메뉴 건너뛰기




Volumn 13, Issue 1, 2013, Pages

Beliefs and attitudes towards participating in genetic research - A population based cross-sectional study

Author keywords

Biological specimen banks; Genetic research; Public opinion

Indexed keywords

ADOLESCENT; ADULT; AGED; ARTICLE; CONSUMER; CROSS-SECTIONAL STUDY; FEMALE; GENETICS; HEALTH CARE FACILITY; HUMAN; MALE; MIDDLE AGED; PSYCHOLOGICAL ASPECT; PUBLIC OPINION; QUESTIONNAIRE; UNITED STATES;

EID: 84873345553     PISSN: None     EISSN: 14712458     Source Type: Journal    
DOI: 10.1186/1471-2458-13-114     Document Type: Article
Times cited : (65)

References (32)
  • 1
    • 31044441473 scopus 로고    scopus 로고
    • Pharmacogenetics and the concept of individualized medicine
    • 10.1038/sj.tpj.6500338 16302022
    • Pharmacogenetics and the concept of individualized medicine. Shastry BS, Pharmacogenomics Journal 2006 6 16 21 10.1038/sj.tpj.6500338 16302022
    • (2006) Pharmacogenomics Journal , vol.6 , pp. 16-21
    • Shastry, B.S.1
  • 2
    • 0037044656 scopus 로고    scopus 로고
    • Population databases boom, from Iceland to the U.S
    • 10.1126/science.298.5596.1158 12424349
    • Population databases boom, from Iceland to the U.S. Kaiser J, Biobanks, Science 2002 298 1158 1161 10.1126/science.298.5596.1158 12424349
    • (2002) Biobanks Science , vol.298 , pp. 1158-1161
    • Kaiser, J.1
  • 5
    • 13644267286 scopus 로고    scopus 로고
    • Single nucleotide polymorphisms (SNPs) are inherited from parents and they measure heritable events
    • 10.1186/1477-3163-4-2 15652000
    • Single nucleotide polymorphisms (SNPs) are inherited from parents and they measure heritable events. Hemminki K, Forsti A, Lorenzo Bermejo J, J Carcinog 2005 4 2 10.1186/1477-3163-4-2 15652000
    • (2005) J Carcinog , vol.4 , pp. 2
    • Hemminki, K.1    Forsti, A.2    Lorenzo Bermejo, J.3
  • 12
    • 84861179027 scopus 로고    scopus 로고
    • Genetics without borders
    • 19812627
    • Genetics without borders. Nature 2009 461 697 19812627
    • (2009) Nature , vol.461 , pp. 697
  • 14
    • 3042849144 scopus 로고    scopus 로고
    • Genetics. Genomic research and human subject privacy
    • 10.1126/science.1095019 15247459
    • Genetics. Genomic research and human subject privacy. Lin Z, Owen AB, Altman RB, Science 2004 305 183 10.1126/science.1095019 15247459
    • (2004) Science , vol.305 , pp. 183
    • Lin, Z.1    Owen, A.B.2    Altman, R.B.3
  • 15
    • 50849101381 scopus 로고    scopus 로고
    • Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays
    • 10.1371/journal.pgen.1000167
    • Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays. Homer N, Szelinger S, Redman M, Duggan D, Tembe W, Muehling J, Pearson JV, Stephan DA, Nelson SF, Craig DW, PLoS Genetic 2008 4 1000167 10.1371/journal.pgen.1000167
    • (2008) PLoS Genetic , vol.4 , pp. 51000167
    • Homer, N.1    Szelinger, S.2    Redman, M.3    Duggan, D.4    Tembe, W.5    Muehling, J.6    Pearson, J.V.7    Stephan, D.A.8    Nelson, S.F.9    Craig, D.W.10
  • 16
    • 0030201674 scopus 로고    scopus 로고
    • Department of Defense DNA registry raises legal, ethical issues
    • 11656662
    • Department of Defense DNA registry raises legal, ethical issues. Mnookin S, GeneWatch 1996 10 1 11 11656662
    • (1996) GeneWatch , vol.10 , pp. 1-11
    • Mnookin, S.1
  • 17
    • 54049106915 scopus 로고    scopus 로고
    • Silent witness, articulate collective: DNA evidence and the inference of visible traits
    • 10.1111/j.1467-8519.2008.00699.x 18959734
    • Silent witness, articulate collective: DNA evidence and the inference of visible traits. M'Charek A, Bioethics 2008 22 519 528 10.1111/j.1467-8519.2008. 00699.x 18959734
    • (2008) Bioethics , vol.22 , pp. 519-528
    • M'Charek, A.1
  • 18
    • 58849142053 scopus 로고    scopus 로고
    • Public attitudes to the storage of blood left over from routine general practice tests and its use in research
    • 10.1258/jhsrp.2008.008016
    • Public attitudes to the storage of blood left over from routine general practice tests and its use in research. Treweek S, Doney A, Leiman D, J Health Serv Res Pol 2009 14 13 19.26 10.1258/jhsrp.2008.008016
    • (2009) J Health Serv Res Pol , vol.14 , pp. 13-1926
    • Treweek, S.1    Doney, A.2    Leiman, D.3
  • 20
    • 76249122986 scopus 로고    scopus 로고
    • Attitudes towards biomedical use of tissue sample collections, consent, and biobanks among Finns
    • 10.1177/1403494809353824 19906772
    • Attitudes towards biomedical use of tissue sample collections, consent, and biobanks among Finns. Tupasela A, Sihvo S, Snell K, Jallinoja P, Aro AR, Hemminki E, Scand J Public Health 2010 38 1 46 52 10.1177/1403494809353824 19906772
    • (2010) Scand J Public Health , vol.38 , Issue.1 , pp. 46-52
    • Tupasela, A.1    Sihvo, S.2    Snell, K.3    Jallinoja, P.4    Aro, A.R.5    Hemminki, E.6
  • 21
    • 84873706606 scopus 로고    scopus 로고
    • The Genetic Information Nondiscrimination Act (GINA): Public policy and medical practice in the age of personalized medicine.[published on-line ahead of print on Feb. 12, 2012]
    • Accessed April 22, 2012
    • The Genetic Information Nondiscrimination Act (GINA): public policy and medical practice in the age of personalized medicine.[published on-line ahead of print on Feb. 12, 2012]. Feldman EA, J General Int Med 2012 2012 22 2012 Accessed April 22, 2012
    • (2012) J General Int Med 2012 , vol.22 , pp. 2012
    • Feldman, E.A.1
  • 22
    • 33748207767 scopus 로고    scopus 로고
    • Genetic research and donation of tissue samples to biobanks. What do potential sample donors in the Swedish general public think?
    • 10.1093/eurpub/cki198 16207726
    • Genetic research and donation of tissue samples to biobanks. What do potential sample donors in the Swedish general public think? Kettis-Lindblad A, Ring L, Viberth E, Hansson MG, Eur J Public Health 2006 16 4 433 440 10.1093/eurpub/cki198 16207726
    • (2006) Eur J Public Health , vol.16 , Issue.4 , pp. 433-440
    • Kettis-Lindblad, A.1    Ring, L.2    Viberth, E.3    Hansson, M.G.4
  • 23
    • 81955161816 scopus 로고    scopus 로고
    • Two large-scale surveys on community attitudes toward an opt-out biobank
    • Two large-scale surveys on community attitudes toward an opt-out biobank. Brothers BB, Morrison DR, Clayton EW, Am J Med Genet 2011 Part A 155 2982 2990
    • (2011) Am J Med Genet , vol.155 , pp. 2982-2990
    • Brothers, B.B.1    Morrison, D.R.2    Clayton, E.W.3
  • 24
    • 71849090072 scopus 로고    scopus 로고
    • Public opinion about the importance of privacy in biobank research
    • 10.1016/j.ajhg.2009.10.002 19878915
    • Public opinion about the importance of privacy in biobank research. Kaufman D, Murphy-Bollinger J, Scott J, Hudson K, Am J Hum Genet 2009 85 643 654 10.1016/j.ajhg.2009.10.002 19878915
    • (2009) Am J Hum Genet , vol.85 , pp. 643-654
    • Kaufman, D.1    Murphy-Bollinger, J.2    Scott, J.3    Hudson, K.4
  • 25
    • 59649110565 scopus 로고    scopus 로고
    • Informed consent in biobank research: A deliberative approach to the debate
    • 10.1016/j.socscimed.2008.11.020 19095337
    • Informed consent in biobank research: a deliberative approach to the debate. Secko D, Preto N, Niemeyer S, Burgess M, Soc Sci Med 2009 68 781 789 10.1016/j.socscimed.2008.11.020 19095337
    • (2009) Soc Sci Med , vol.68 , pp. 781-789
    • Secko, D.1    Preto, N.2    Niemeyer, S.3    Burgess, M.4
  • 26
    • 33750444631 scopus 로고    scopus 로고
    • Public willingness to participate in and public opinions about genetic variation research: A review of the literature
    • 10.2105/AJPH.2005.069286 17018829
    • Public willingness to participate in and public opinions about genetic variation research: a review of the literature. Sterling R, Henderson GE, Corbie-Smith G, Am J Public Health 2006 96 1971 1978 10.2105/AJPH.2005.069286 17018829
    • (2006) Am J Public Health , vol.96 , pp. 1971-1978
    • Sterling, R.1    Henderson, G.E.2    Corbie-Smith, G.3
  • 28
    • 80052573480 scopus 로고    scopus 로고
    • Active choice but not too active: Public perspectives on biobank consent models
    • 10.1097/GIM.0b013e31821d2f88 21555942
    • Active choice but not too active: public perspectives on biobank consent models. Simon CM, L'heureux J, Murray JC, Winokur P, Weiner G, Newbury E, Shikunas L, Zimmerman B, Genet Med 2011 13 9 821 831 10.1097/GIM. 0b013e31821d2f88 21555942
    • (2011) Genet Med , vol.13 , Issue.9 , pp. 821-831
    • Simon, C.M.1    L'Heureux, J.2    Murray, J.C.3    Winokur, P.4    Weiner, G.5    Newbury, E.6    Shikunas, L.7    Zimmerman, B.8
  • 29
    • 84859608971 scopus 로고    scopus 로고
    • Public preferences regarding the return of individual genetic research results: Findings from a qualitative focus group study
    • 10.1038/gim.2011.66 22402755
    • Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study. Bollinger JM, Scott J, Dvorskin R, Kaufman D, Genet Med 2012 14 4 451 457 10.1038/gim.2011.66 22402755
    • (2012) Genet Med , vol.14 , Issue.4 , pp. 451-457
    • Bollinger, J.M.1    Scott, J.2    Dvorskin, R.3    Kaufman, D.4
  • 30
    • 33646163023 scopus 로고    scopus 로고
    • Human tissue samples and ethics-attitudes of the general public in Sweden to biobank research
    • 10.1007/s11019-005-7984-4 16645800
    • Human tissue samples and ethics-attitudes of the general public in Sweden to biobank research. Nilstun T, Hermeren G, Med Health Care Philos 2006 9 1 81 86 10.1007/s11019-005-7984-4 16645800
    • (2006) Med Health Care Philos , vol.9 , Issue.1 , pp. 81-86
    • Nilstun, T.1    Hermeren, G.2
  • 31
    • 84857856437 scopus 로고    scopus 로고
    • The beliefs, motivations, and expectations of parents who have enrolled their children in a genetic repository
    • 10.1038/gim.2011.25 22241099
    • The beliefs, motivations, and expectations of parents who have enrolled their children in a genetic repository. Harris E, Ziniel S, Amatruda J, Clinton C, Savage S, Taylor P, Huntington N, Green R, Holm I, Genetics in Medicine 2012 14 3 330 337 10.1038/gim.2011.25 22241099
    • (2012) Genetics in Medicine , vol.14 , Issue.3 , pp. 330-337
    • Harris, E.1    Ziniel, S.2    Amatruda, J.3    Clinton, C.4    Savage, S.5    Taylor, P.6    Huntington, N.7    Green, R.8    Holm, I.9


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.