-
2
-
-
82155175415
-
-
Copenhagen: WHO Regional Office for Europe. Accessed 21 May 2014
-
World Health Organization: Governance for Health in the 21st Century. Copenhagen: WHO Regional Office for Europe; 2012. [http://www.euro.who.int/-data/assets/pdf-file/0019/171334/RC62BD01-Governance-for-Health-Web.pdf]. Accessed 21 May 2014.
-
(2012)
Governance for Health in the 21st Century
-
-
World Health Organization1
-
3
-
-
77949693630
-
Biobank governance in the post-genomic age
-
Gottweis H, Lauss G: Biobank governance in the post-genomic age. Pers Med 2010, 7:187-195.
-
(2010)
Pers Med
, Issue.7
, pp. 187-195
-
-
Gottweis, H.1
Lauss, G.2
-
4
-
-
34248402535
-
-
Accessed 21 May 2014
-
BBMRI Stakeholder's Forum: Consultation document. [http://bbmri.eu/documents/15600/19102/Consultation-Document-010810.pdf/b7fcbd43-9ae6-4974b066-6a573425b882]. Accessed 21 May 2014.
-
Consultation Document
-
-
BBMRI Stakeholder's Forum1
-
5
-
-
84892474244
-
From 'trust us' to participatory governance: Deliberative publics and science policy
-
Burgess MM: From 'trust us' to participatory governance: deliberative publics and science policy. Public Underst Sci 2014, 23:48-52.
-
(2014)
Public Underst Sci
, vol.23
, pp. 48-52
-
-
Burgess, M.M.1
-
6
-
-
84861693094
-
Biobank governance: Heterogeneous modes of ordering and democratization
-
Gottweis H, Lauss G: Biobank governance: heterogeneous modes of ordering and democratization. J Community Genet 2012, 3:61-72.
-
(2012)
J Community Genet
, vol.3
, pp. 61-72
-
-
Gottweis, H.1
Lauss, G.2
-
7
-
-
27644529733
-
What do people at risk for Alzheimer disease think about surrogate consent for research?
-
Kim SY, Kim HM, McCallum C, Tariot PN: What do people at risk for Alzheimer disease think about surrogate consent for research? Neurology 2005, 65:1395-1401.
-
(2005)
Neurology
, vol.65
, pp. 1395-1401
-
-
Kim, S.Y.1
Kim, H.M.2
McCallum, C.3
Tariot, P.N.4
-
8
-
-
84892786354
-
The policies of ethics committees in the management of biobanks used for research: An Italian survey
-
Porteri C, Togni E, Pasqualetti P: The policies of ethics committees in the management of biobanks used for research: an Italian survey. Eur J Hum Genet 2014, 22:260-265.
-
(2014)
Eur J Hum Genet
, vol.22
, pp. 260-265
-
-
Porteri, C.1
Togni, E.2
Pasqualetti, P.3
-
9
-
-
48749084671
-
Banking together: A unified model of informed consent for biobanking
-
Salvaterra E, Lecchi L, Giovanelli S, Butti B, Bardella MT, Bertazzi PA, Bosari S, Coggi G, Coviello DA, Lalatta F, Moggio M, Nosotti M, Zanella A, Rebulla P: Banking together: a unified model of informed consent for biobanking. EMBO Rep 2008, 9:307-313.
-
(2008)
EMBO Rep
, vol.9
, pp. 307-313
-
-
Salvaterra, E.1
Lecchi, L.2
Giovanelli, S.3
Butti, B.4
Bardella, M.T.5
Bertazzi, P.A.6
Bosari, S.7
Coggi, G.8
Coviello, D.A.9
Lalatta, F.10
Moggio, M.11
Nosotti, M.12
Zanella, A.13
Rebulla, P.14
-
10
-
-
77958489649
-
Hypothetical and factual willingness to participate in biobank research
-
Johnsson L, Helgesson G, Rafnar T, Halldorsdottir I, Chia KS, Eriksson S, Hansson MG: Hypothetical and factual willingness to participate in biobank research. Eur J Hum Genet 2010, 18:1261-1264.
-
(2010)
Eur J Hum Genet
, vol.18
, pp. 1261-1264
-
-
Johnsson, L.1
Helgesson, G.2
Rafnar, T.3
Halldorsdottir, I.4
Chia, K.S.5
Eriksson, S.6
Hansson, M.G.7
-
11
-
-
84871195411
-
Publics and biobanks: Pan-European diversity and the challenge of responsible innovation
-
Gaskell G, Gottweis H, Starkbaum J, Gerber MM, Broerse J, Gottweis U, Hobbs A, Helén I, Paschou M, Snell K, Soulier A: Publics and biobanks: Pan-European diversity and the challenge of responsible innovation. Eur J Hum Genet 2013, 21:14-20.
-
(2013)
Eur J Hum Genet
, vol.21
, pp. 14-20
-
-
Gaskell, G.1
Gottweis, H.2
Starkbaum, J.3
Gerber, M.M.4
Broerse, J.5
Gottweis, U.6
Hobbs, A.7
Helén, I.8
Paschou, M.9
Snell, K.10
Soulier, A.11
-
12
-
-
33746686239
-
Neurologists and patients' associations: Alliances and conflicts
-
M Gasparini M, Bonito V, Leonardi M, Tarquini D, Colombi L, Congedo M, Marcello N, Causarano R, Gasperini M, Rizzo M, Porteri C, Borghi L, Primavera A, Defanti CA, for the Bioethics and Palliative Care Study Group of the Italian Society of Neurology: Neurologists and patients' associations: alliances and conflicts. Neurol Sci 2006, 27:194-204.
-
(2006)
Neurol Sci
, vol.27
, pp. 194-204
-
-
Gasparini M, M.1
Bonito, V.2
Leonardi, M.3
Tarquini, D.4
Colombi, L.5
Congedo, M.6
Marcello, N.7
Causarano, R.8
Gasperini, M.9
Rizzo, M.10
Porteri, C.11
Borghi, L.12
Primavera, A.13
Defanti, C.A.14
-
13
-
-
79952424519
-
WPA guidance on how to combat stigmatization of psychiatry and psychiatrists
-
Sartorius N, Gaebel W, Cleveland HR, Stuart H, Akiyama T, Arboleda-Flórez J, Baumann AE, Gureje O, Jorge MR, Kastrup M, Suzuki Y, Tasman A: WPA guidance on how to combat stigmatization of psychiatry and psychiatrists. World Psychiatry 2010, 9:131-144.
-
(2010)
World Psychiatry
, vol.9
, pp. 131-144
-
-
Sartorius, N.1
Gaebel, W.2
Cleveland, H.R.3
Stuart, H.4
Akiyama, T.5
Arboleda-Flórez, J.6
Baumann, A.E.7
Gureje, O.8
Jorge, M.R.9
Kastrup, M.10
Suzuki, Y.11
Tasman, A.12
-
15
-
-
33845354052
-
Trends in ethical and legal frameworks for the use of human biobanks
-
Cambon-Thomsen A, Rial-Sebbag E, Knoppers BM: Trends in ethical and legal frameworks for the use of human biobanks. Eur Respir J 2007, 30:373-382.
-
(2007)
Eur Respir J
, vol.30
, pp. 373-382
-
-
Cambon-Thomsen, A.1
Rial-Sebbag, E.2
Knoppers, B.M.3
-
16
-
-
33644930832
-
One-time general consent for research on biological samples
-
Wendler D: One-time general consent for research on biological samples. BMJ 2006, 332:544-547.
-
(2006)
BMJ
, vol.332
, pp. 544-547
-
-
Wendler, D.1
-
17
-
-
72249092345
-
Public perspectives on informed consent for biobanking
-
Murphy J, Scott J, Kaufman D, Geller G, LeRoy L, Hudson K: Public perspectives on informed consent for biobanking. Am J Public Health 2009, 99:2128-2134.
-
(2009)
Am J Public Health
, vol.99
, pp. 2128-2134
-
-
Murphy, J.1
Scott, J.2
Kaufman, D.3
Geller, G.4
LeRoy, L.5
Hudson, K.6
-
19
-
-
57349167685
-
Public expectations for return of results from large-cohort genetic research
-
Murphy J, Scott J, Kaufman D, Geller G, LeRoy L, Hudson K: Public expectations for return of results from large-cohort genetic research. Am J Bioeth 2008, 8:36-43.
-
(2008)
Am J Bioeth
, vol.8
, pp. 36-43
-
-
Murphy, J.1
Scott, J.2
Kaufman, D.3
Geller, G.4
LeRoy, L.5
Hudson, K.6
-
20
-
-
84896547470
-
Factors influencing public participation in biobanking
-
Ahram M, Othman A, Shahrouri M, Mustafa E: Factors influencing public participation in biobanking. Eur J Hum Genet 2014, 22:445-451.
-
(2014)
Eur J Hum Genet
, vol.22
, pp. 445-451
-
-
Ahram, M.1
Othman, A.2
Shahrouri, M.3
Mustafa, E.4
-
21
-
-
84856803715
-
What does 'respect for persons' require? Attitudes and reported practices of genetics researchers in informing research participants about research
-
Miller FA, Hayeems RZ, Li L, Bytautas JP: What does 'respect for persons' require? Attitudes and reported practices of genetics researchers in informing research participants about research. J Med Ethics 2012, 38:48-52.
-
(2012)
J Med Ethics
, vol.38
, pp. 48-52
-
-
Miller, F.A.1
Hayeems, R.Z.2
Li, L.3
Bytautas, J.P.4
-
22
-
-
40849139474
-
Ethical, legal, and social implications of biobanks for genetics research
-
Haga SB, Beskow LM: Ethical, legal, and social implications of biobanks for genetics research. Adv Genet 2008, 60:505-544.
-
(2008)
Adv Genet
, vol.60
, pp. 505-544
-
-
Haga, S.B.1
Beskow, L.M.2
-
23
-
-
33750388916
-
The emergence of an ethical duty to disclose genetic research results: International perspectives
-
Knoppers BM, Joly Y, Simard J, Durocher F: The emergence of an ethical duty to disclose genetic research results: international perspectives. Eur J Hum Genet 2006, 14:1170-1178.
-
(2006)
Eur J Hum Genet
, vol.14
, pp. 1170-1178
-
-
Knoppers, B.M.1
Joly, Y.2
Simard, J.3
Durocher, F.4
-
24
-
-
84896319968
-
Clinical trial sponsors' refusal to communicate genetic research results to subjects
-
Porteri C, Giardina E, Eusebi L: Clinical trial sponsors' refusal to communicate genetic research results to subjects. Patient Educ Couns 2014, 95:157-158.
-
(2014)
Patient Educ Couns
, vol.95
, pp. 157-158
-
-
Porteri, C.1
Giardina, E.2
Eusebi, L.3
-
25
-
-
80054744855
-
Connecting the public with biobank research: Reciprocity matters
-
Gottweis H, Gaskell G, Starkbaum J: Connecting the public with biobank research: reciprocity matters. Nat Rev Genet 2011, 12:738-739.
-
(2011)
Nat Rev Genet
, vol.12
, pp. 738-739
-
-
Gottweis, H.1
Gaskell, G.2
Starkbaum, J.3
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