-
1
-
-
3142694082
-
The Cancer Genetics Network: Recruitment results and pilot studies
-
DOI 10.1159/000078165
-
Anton-Culver H, Ziogas A, Bowen D, Finkelstein D, Griffin C, Hanson J, Isaacs C, Kasten-Sportes C, Mineau G, Nadkarni P, Rimer B, Schildkraut J, Strong L, Weber B, Winn D, Hiatt R, Nayfield S: The Cancer Genetics Network: Recruitment results and pilot studies. Community Genet 2003; 6: 171-177 (Pubitemid 38916116)
-
(2003)
Community Genetics
, vol.6
, Issue.3
, pp. 171-177
-
-
Anton-Culver, H.1
Ziogas, A.2
Bowen, D.3
Finkelstein, D.4
Griffin, C.5
Hanson, J.6
Isaacs, C.7
Kasten-Sportes, C.8
Mineau, G.9
Nadkarni, P.10
Rimer, B.11
Schildkraut, J.12
Strong, L.13
Weber, B.14
Winn, D.15
Hiatt, R.16
Nayfield, S.17
-
2
-
-
0038618794
-
Genebanks: A comparison of eight proposed international genetic databases
-
DOI 10.1159/000069544
-
Austin MA, Harding S, McElroy C: Genebanks: A comparison of eight proposed international genetic databases. Community Genet 2003; 6: 37-45 (Pubitemid 36693837)
-
(2003)
Community Genetics
, vol.6
, Issue.1
, pp. 37-45
-
-
Austin, M.A.1
Harding, S.2
McElroy, C.3
-
3
-
-
0037905465
-
African-American population biobank proposed
-
DOI 10.1126/science.300.5625.1485
-
Kaiser J: Genomic medicine. African-American population biobank proposed. Science 2003; 300: 1485 (Pubitemid 36682848)
-
(2003)
Science
, vol.300
, Issue.5625
, pp. 1485
-
-
Kaiser, J.1
-
4
-
-
34748848639
-
The NCBI dbGaP database of genotypes and phenotypes
-
DOI 10.1038/ng1007-1181, PII NG10071181
-
Mailman MD, Feolo M, Jin Y, Kimura M, Tryka K, Bagoutdinov R, Hao L, Kiang A, Paschall J, Phan L, Popova N, Pretel S, Ziyabari L, Lee M, Shao Y, Wang ZY, Sirotkin K, Ward M, Kholodov M, Zbicz K, Beck J, Kimelman M, Shevelev S, Preuss D, Yaschenko E, Graeff A, Ostell J, Sherry ST: The NCBI dbGaP database of genotypes and phenotypes. Nat Genet 2007; 39: 1181-1186 (Pubitemid 47482671)
-
(2007)
Nature Genetics
, vol.39
, Issue.10
, pp. 1181-1186
-
-
Mailman, M.D.1
Feolo, M.2
Jin, Y.3
Kimura, M.4
Tryka, K.5
Bagoutdinov, R.6
Hao, L.7
Kiang, A.8
Paschall, J.9
Phan, L.10
Popova, N.11
Pretel, S.12
Ziyabari, L.13
Lee, M.14
Shao, Y.15
Wang, Z.Y.16
Sirotkin, K.17
Ward, M.18
Kholodov, M.19
Zbicz, K.20
Beck, J.21
Kimelman, M.22
Shevelev, S.23
Preuss, D.24
Yaschenko, E.25
Graeff, A.26
Ostell, J.27
Sherry, S.T.28
more..
-
5
-
-
80053418647
-
Assessing the need for a standardized cancer human biobank (cahub): Findings from a national survey with cancer researchers
-
Massett HA, Atkinson NL, Weber D, Myles R, Ryan C, Grady M, Compton C: Assessing the need for a standardized cancer HUman Biobank (caHUB): Findings from a national survey with cancer researchers. J Natl Cancer Inst Monogr 2011; 8-15
-
(2011)
J Natl Cancer Inst Monogr
, pp. 8-15
-
-
Massett, H.A.1
Atkinson, N.L.2
Weber, D.3
Myles, R.4
Ryan, C.5
Grady, M.6
Compton, C.7
-
6
-
-
80053413968
-
The value of banked samples for oncology drug discovery and development
-
Shaw PM, Patterson SD: The value of banked samples for oncology drug discovery and development. J Natl Cancer Inst Monogr 2011; 46-49
-
(2011)
J Natl Cancer Inst Monogr
, pp. 46-49
-
-
Shaw, P.M.1
Patterson, S.D.2
-
7
-
-
80053401739
-
An NCI perspective on creating sustainable biospecimen resources
-
Vaught J, Rogers J, Myers K, Lim MD, Lockhart N, Moore H, Sawyer S, Furman JL, Compton C: An NCI perspective on creating sustainable biospecimen resources. J Natl Cancer Inst Monogr 2011; 1-7
-
(2011)
J Natl Cancer Inst Monogr
, pp. 1-7
-
-
Vaught, J.1
Rogers, J.2
Myers, K.3
Lim, M.D.4
Lockhart, N.5
Moore, H.6
Sawyer, S.7
Furman, J.L.8
Compton, C.9
-
9
-
-
0344328867
-
-
U.S. Department of Health and Human Services
-
U.S. Department of Health and Human Services: Summary of the HIPAA Privacy Rule. 2003. www.hhs.gov/ocr/privacy/hipaa/understanding/summary/index. html
-
(2003)
Summary of the HIPAA Privacy Rule
-
-
-
10
-
-
77955660006
-
Public and biobank participant attitudes toward genetic research participation and data sharing
-
Lemke AA, Wolf WA, Hebert-Beirne J, Smith ME: Public and biobank participant attitudes toward genetic research participation and data sharing. Public Health Genomics 2010; 13: 368-377
-
(2010)
Public Health Genomics
, vol.13
, pp. 368-377
-
-
Lemke, A.A.1
Wolf, W.A.2
Hebert-Beirne, J.3
Smith, M.E.4
-
11
-
-
33746897353
-
Consent for genetic research in a general population: An update on the National Health and Nutrition Examination Survey experience
-
DOI 10.1097/01.gim.0000223552.70393.08, PII 0012581720060600000004
-
McQuillan GM, Pan Q, Porter KS: Consent for genetic research in a general population: An update on the National Health and Nutrition Examination Survey experience. Genet Med 2006; 8: 354-360 (Pubitemid 44297306)
-
(2006)
Genetics in Medicine
, vol.8
, Issue.6
, pp. 354-360
-
-
McQuillan, G.M.1
Pan, Q.2
Porter, K.S.3
-
12
-
-
77149180429
-
The role of race and trust in tissue/blood donation for genetic research
-
Bussey-Jones J, Garrett J, Henderson G, Moloney M, Blumenthal C, Corbie-Smith G: The role of race and trust in tissue/blood donation for genetic research. Genet Med 2010; 12: 116-121
-
(2010)
Genet Med
, vol.12
, pp. 116-121
-
-
Bussey-Jones, J.1
Garrett, J.2
Henderson, G.3
Moloney, M.4
Blumenthal, C.5
Corbie-Smith, G.6
-
14
-
-
77149140796
-
Impact of limited population diversity of genome-wide association studies
-
Haga SB: Impact of limited population diversity of genome-wide association studies. Genet Med 2010; 12: 81-84
-
(2010)
Genet Med
, vol.12
, pp. 81-84
-
-
Haga, S.B.1
-
15
-
-
84861848446
-
Incidental findings of therapeutic misconception in biobankbased research
-
Halverson CM, Ross LF: Incidental findings of therapeutic misconception in biobankbased research. Genet Med 2012; 14: 611-615
-
(2012)
Genet Med
, vol.14
, pp. 611-615
-
-
Halverson, C.M.1
Ross, L.F.2
-
16
-
-
67650141420
-
Theory of reasonsed action, theory of planned behavior, and the integrated behavioral model
-
in Glanz K, Rimer B, Viswanath K (eds). San Francisco, John Wiley & Sons
-
Montano DE, Kasprzyk D: Theory of reasonsed action, theory of planned behavior, and the integrated behavioral model; in Glanz K, Rimer B, Viswanath K (eds): Health Behavior and Health Education. Theory, Research, and Practice. San Francisco, John Wiley & Sons, 2008, pp 67-96
-
(2008)
Health Behavior and Health Education. Theory, Research, and Practice
, pp. 67-96
-
-
Montano, D.E.1
Kasprzyk, D.2
-
17
-
-
84866863049
-
Understanding participation by african americans in cancer genetics research
-
McDonald JA, Barg FK, Weathers B, Guerra CE, Troxel AB, Domchek S, Bowen D, Shea JA, Halbert CH: Understanding participation by African Americans in cancer genetics research. J Natl Med Assoc 2012; 104: 324-330
-
(2012)
J Natl Med Assoc
, vol.104
, pp. 324-330
-
-
McDonald, J.A.1
Barg, F.K.2
Weathers, B.3
Guerra, C.E.4
Troxel, A.B.5
Domchek, S.6
Bowen, D.7
Shea, J.A.8
Halbert, C.H.9
-
18
-
-
0030826189
-
Ethnic differences in knowledge and attitudes about BRCA1 testing in women at increased risk
-
DOI 10.1016/S0738-3991(97)00064-5, PII S0738399197000645
-
Hughes C, Gomez-Caminero A, Benkendorf J, Kerner J, Isaacs C, Barter J, Lerman C: Ethnic differences in knowledge and attitudes about BRCA1 testing in women at increased risk. Patient Educ Couns 1997; 32: 51-62 (Pubitemid 27395979)
-
(1997)
Patient Education and Counseling
, vol.32
, Issue.1-2
, pp. 51-62
-
-
Hughes, C.1
Gomez-Caminero, A.2
Benkendorf, J.3
Kerner, J.4
Isaacs, C.5
Barter, J.6
Lerman, C.7
-
19
-
-
18344373876
-
Attitudes about genetic testing and genetic testing intentions in African American women at increased risk for hereditary breast cancer
-
DOI 10.1097/01.GIM.0000159901.98315.FE
-
Kessler L, Collier A, Brewster K, Smith C, Weathers B, Wileyto EP, Halbert CH: Attitudes about genetic testing and genetic testing intentions in African American women at increased risk for hereditary breast cancer. Genet Med 2005; 7: 230-238 (Pubitemid 40638068)
-
(2005)
Genetics in Medicine
, vol.7
, Issue.4
, pp. 230-238
-
-
Kessler, L.1
Collier, A.2
Brewster, K.3
Smith, C.4
Weathers, B.5
Wileyto, E.P.6
Halbert, C.H.7
-
20
-
-
33847633370
-
Knowledge about genetics among African Americans
-
DOI 10.1007/s10897-006-9054-3
-
Kessler L, Collier A, Halbert CH: Knowledge about genetics among African Americans. J Genet Couns 2007; 16: 191-200 (Pubitemid 46355035)
-
(2007)
Journal of Genetic Counseling
, vol.16
, Issue.2
, pp. 191-200
-
-
Kessler, L.1
Collier, A.2
Halbert, C.H.3
-
22
-
-
84860199961
-
Donation intentions for cancer genetics research among african americans
-
McDonald JA, Weathers B, Barg FK, Troxel AB, Shea JA, Bowen D, Guerra CE, Halbert CH: Donation intentions for cancer genetics research among African Americans. Genet Test Mole Biomarkers 2012; 16: 252-258
-
(2012)
Genet Test Mole Biomarkers
, vol.16
, pp. 252-258
-
-
McDonald, J.A.1
Weathers, B.2
Barg, F.K.3
Troxel, A.B.4
Shea, J.A.5
Bowen, D.6
Guerra, C.E.7
Halbert, C.H.8
-
23
-
-
84859988417
-
Biobank participation and returning research results: Perspectives from a deliberative engagement in south side chicago
-
Lemke AA, Halverson C, Ross LF: Biobank participation and returning research results: Perspectives from a deliberative engagement in South Side Chicago. Am J Med Genet 2012; 158A: 1029-1037
-
(2012)
Am J Med Genet
, vol.158 A
, pp. 1029-1037
-
-
Lemke, A.A.1
Halverson, C.2
Ross, L.F.3
-
24
-
-
84867412233
-
-
rfaut Pew Research Institute
-
Pew Research Institute: Assessing the representativeness of public opinion surveys. 2012. http: //www.people-press.org/2012/05/15/assessing-The- representativeness-of-publicopinion-surveys/.
-
(2012)
Assessing the representativeness of public opinion surveys
-
-
-
25
-
-
33748750168
-
Low rates of acceptance of BRCA1 and BRCA2 test results among African American women at increased risk for hereditary breast-ovarian cancer
-
DOI 10.1097/01.gim.0000237719.37908.54, PII 0012581720060900000006
-
Halbert CH, Kessler L, Stopfer JE, Domchek S, Wileyto EP: Low rates of acceptance of BRCA1 and BRCA2 test results among African American women at increased risk for hereditary breast-ovarian cancer. Genet Med 2006; 8: 576-582 (Pubitemid 44402035)
-
(2006)
Genetics in Medicine
, vol.8
, Issue.9
, pp. 576-582
-
-
Halbert, C.H.1
Kessler, L.2
Stopfer, J.E.3
Domchek, S.4
Wileyto, E.P.5
-
26
-
-
0041805504
-
Consent for genetic research in a general population: The nhanes experience
-
McQuillan GM, Porter KS, Agelli M, Kington R: Consent for genetic research in a general population: The NHANES experience. Genet Med 2003; 5: 35-42
-
(2003)
Genet Med
, vol.5
, pp. 35-42
-
-
McQuillan, G.M.1
Porter, K.S.2
Agelli, M.3
Kington, R.4
-
27
-
-
4043138903
-
Racial differences in enrolment in a cancer genetics registry
-
Moorman PG, Skinner CS, Evans JP, Newman B, Sorenson JR, Calingaert B, Susswein L, Crankshaw TS, Hoyo C, Schildkraut JM: Racial differences in enrolment in a cancer genetics registry. Cancer Epidemiol Biomarker Prev 2004; 13: 1349-1354 (Pubitemid 39071560)
-
(2004)
Cancer Epidemiology Biomarkers and Prevention
, vol.13
, Issue.8
, pp. 1349-1354
-
-
Moorman, P.G.1
Skinner, C.S.2
Evans, J.P.3
Newman, B.4
Sorenson, J.R.5
Calingaert, B.6
Susswein, L.7
Crankshaw, T.S.8
Hoyo, C.9
Schildkraut, J.M.10
-
28
-
-
3142657472
-
Minority recruitment in hereditary breast cancer research
-
Hughes C, Peterson SK, Ramirez A, Gallion KJ, McDonald PG, Skinner CS, Bowen D: Minority recruitment in hereditary breast cancer research. Cancer Epidemiol Biomarker Prev 2004; 13: 1146-1155 (Pubitemid 38917903)
-
(2004)
Cancer Epidemiology Biomarkers and Prevention
, vol.13
, Issue.7
, pp. 1146-1155
-
-
Hughes, C.1
Peterson, S.K.2
Ramirez, A.3
Gallion, K.J.4
McDonald, P.G.5
Skinner, C.S.6
Bowen, D.7
|