-
1
-
-
84871243427
-
-
HUGO Ethics Committee: Statement on Human Genomic Databases December 2002
-
HUGO Ethics Committee: Statement on Human Genomic Databases. Human Genome Organizations. December 2002. http://www.hugo-international.org/img/genomic- 2002.pdf.
-
Human Genome Organizations
-
-
-
2
-
-
33645778065
-
Consent revisited: Points to consider
-
Knoppers BM: Consent revisited: points to consider. Health Law Rev 2005; 13: 33-38.
-
(2005)
Health Law Rev
, vol.13
, pp. 33-38
-
-
Knoppers, B.M.1
-
3
-
-
73449138816
-
Broad consent in biobanking: Reflections on seemingly insurmountable dilemmas
-
Caulfield T, Kaye J: Broad consent in biobanking: reflections on seemingly insurmountable dilemmas. Med Law Int 2009; 10: 85-100.
-
(2009)
Med Law Int
, vol.10
, pp. 85-100
-
-
Caulfield, T.1
Kaye, J.2
-
5
-
-
79960558492
-
Tissue donation to biobanks: A review of sociological studies
-
Lipworth W, Forsyth R, Kerridge I: Tissue donation to biobanks: a review of sociological studies. Sociol Health Illness 2011; 33: 792-811.
-
(2011)
Sociol Health Illness
, vol.33
, pp. 792-811
-
-
Lipworth, W.1
Forsyth, R.2
Kerridge, I.3
-
7
-
-
77955660006
-
Public and biobank participant attitudes toward genetic research participation and data sharing
-
Lemke A, Wolf W, Hebert-Beirne J, Smith M: Public and biobank participant attitudes toward genetic research participation and data sharing. Public Health Genomics 2010; 13: 368-377.
-
(2010)
Public Health Genomics
, vol.13
, pp. 368-377
-
-
Lemke, A.1
Wolf, W.2
Hebert-Beirne, J.3
Smith, M.4
-
8
-
-
34147147584
-
Perceptions of potential donors in the Swedish public towards information and consent procedures in relation to use of human tissue samples in biobanks: A population-based study
-
Kettis-Lindblad A, Ring L, Viberth E, Hansson MG: Perceptions of potential donors in the Swedish public towards information and consent procedures in relation to use of human tissue samples in biobanks: A population-based study. Scand J Public Health 2007; 35: 148-156.
-
(2007)
Scand J Public Health
, vol.35
, pp. 148-156
-
-
Kettis-Lindblad, A.1
Ring, L.2
Viberth, E.3
Hansson, M.G.4
-
9
-
-
76249122986
-
Attitudes towards biomedical use of tissue sample collections, consent, and biobanks among Finns
-
Tupasela A, Sihvo S, Karoliina S, Jallinoja PA, Aro AR, Hemminki E: Attitudes towards biomedical use of tissue sample collections, consent, and biobanks among Finns. Scand J Public Health 2010; 38: 45-52.
-
(2010)
Scand J Public Health
, vol.38
, pp. 45-52
-
-
Tupasela, A.1
Sihvo, S.2
Karoliina, S.3
Jallinoja, P.A.4
Aro, A.R.5
Hemminki, E.6
-
10
-
-
77951641631
-
An investigation of patients' motivations for their participation in genetics-related research
-
Hallowell N, Cooke S, Crawford G, Lucassen A, Parker M, Snowdon C: An investigation of patients' motivations for their participation in genetics-related research. J Med Ethics 2010; 36: 37-45.
-
(2010)
J Med Ethics
, vol.36
, pp. 37-45
-
-
Hallowell, N.1
Cooke, S.2
Crawford, G.3
Lucassen, A.4
Parker, M.5
Snowdon, C.6
-
11
-
-
0035318620
-
Solidarity and equity: New ethical frameworks for genetic databases
-
Chadwick R, Berg K: Solidarity and equity: new ethical frameworks for genetic databases. Nat Rev Genet 2001; 2: 318-321.
-
(2001)
Nat Rev Genet
, vol.2
, pp. 318-321
-
-
Chadwick, R.1
Berg, K.2
-
12
-
-
77953122922
-
Consent to 'personal' genomics and privacy. Direct-to-consumer genetic tests and population genome research challenge traditional notions of privacy and consent
-
Knoppers B: Consent to 'personal' genomics and privacy. Direct-to-consumer genetic tests and population genome research challenge traditional notions of privacy and consent. Eur Mol Biol Organ 2010; 11: 416-419.
-
(2010)
Eur Mol Biol Organ
, vol.11
, pp. 416-419
-
-
Knoppers, B.1
-
13
-
-
0035347261
-
Protecting genetic privacy
-
Roche PA, Annas GJ: Protecting genetic privacy. Nat Rev Genet 2001; 2: 392-396.
-
(2001)
Nat Rev Genet
, vol.2
, pp. 392-396
-
-
Roche, P.A.1
Annas, G.J.2
-
14
-
-
84871223969
-
The privacy-reciprocity connection in biobanking: Comparing german with UK strategies
-
in press
-
Hobbes A, Starkbaum J, Gottweis U, Wichmann H, Gottweis H: The privacy-reciprocity connection in biobanking: comparing german with UK strategies. Public Health Genomics, in press.
-
Public Health Genomics
-
-
Hobbes, A.1
Starkbaum, J.2
Gottweis, U.3
Wichmann, H.4
Gottweis, H.5
-
16
-
-
84871203514
-
Reassessing privacy in biobanking. The significance of control within the digital information flows
-
press
-
Snell K, Starkbaum J, Lauss G, Vermeer A, Hélen I: Reassessing privacy in biobanking. The significance of control within the digital information flows. Public Health Genomics, in press.
-
Public Health Genomics
-
-
Snell, K.1
Starkbaum, J.2
Lauss, G.3
Vermeer, A.4
Hélen, I.5
-
17
-
-
33645778065
-
Consent revisited: Points to consider
-
Knoppers BM: Consent revisited: points to consider. Health Law Rev 2005; 13: 33-38.
-
(2005)
Health Law Rev
, vol.13
, pp. 33-38
-
-
Knoppers, B.M.1
-
18
-
-
56349157160
-
The ethics of research biobanking: A critical review of the literature
-
Hoeyer K: The ethics of research biobanking: a critical review of the literature. Biotechnol Genet Eng Rev 2008; 25: 429-452.
-
(2008)
Biotechnol Genet Eng Rev
, vol.25
, pp. 429-452
-
-
Hoeyer, K.1
-
19
-
-
76249122986
-
Attitudes towards biomedical use of tissue sample collections, consent, and biobanks among Finns
-
Tupasela A, Sihvo S, Karoliina S, Jallinoja PA, Aro AR, Hemminki E: Attitudes towards biomedical use of tissue sample collections, consent, and biobanks among Finns. Scand J Public Health 2010; 38: 45-52.
-
(2010)
Scand J Public Health
, vol.38
, pp. 45-52
-
-
Tupasela, A.1
Sihvo, S.2
Karoliina, S.3
Jallinoja, P.A.4
Aro, A.R.5
Hemminki, E.6
-
20
-
-
34147147584
-
Perceptions of potential donors in the Swedish public towards information and consent procedures in relation to use of human tissue samples in biobanks: A population-based study
-
Kettis-Lindblad A, Ring L, Viberth E, Hansson MG: Perceptions of potential donors in the Swedish public towards information and consent procedures in relation to use of human tissue samples in biobanks: A population-based study. Scand J Public Health 2007; 35: 148-156.
-
(2007)
Scand J Public Health
, vol.35
, pp. 148-156
-
-
Kettis-Lindblad, A.1
Ring, L.2
Viberth, E.3
Hansson, M.G.4
-
21
-
-
0842287359
-
A study of public opinion on the use of tissue samples from living subjects for clinical research
-
Goodson ML, Vernon BG: A study of public opinion on the use of tissue samples from living subjects for clinical research. J Clin Pathol 2004; 57: 135-138.
-
(2004)
J Clin Pathol
, vol.57
, pp. 135-138
-
-
Goodson, M.L.1
Vernon, B.G.2
-
22
-
-
11844269810
-
The ethics of research using biobanks: Reason to question the importance attributed to informed consent
-
Hoeyer K, Olofsson BO, Mjörndal T, Lynöe N: The ethics of research using biobanks: reason to question the importance attributed to informed consent. Arch Intern Med 2005; 165: 97-100.
-
(2005)
Arch Intern Med
, vol.165
, pp. 97-100
-
-
Hoeyer, K.1
Olofsson, B.O.2
Mjörndal, T.3
Lynöe, N.4
-
23
-
-
80054725877
-
Finnish people's attitudes towards biomedical research and its sponsorship
-
Hemminki E, Tupasela A, Jallinoja P, Aro AR, Snell K, Sihvo S: Finnish people's attitudes towards biomedical research and its sponsorship. Genomics Soc Policy 2009; 5: 67-79.
-
(2009)
Genomics Soc Policy
, vol.5
, pp. 67-79
-
-
Hemminki, E.1
Tupasela, A.2
Jallinoja, P.3
Aro, A.R.4
Snell, K.5
Sihvo, S.6
-
24
-
-
84856140892
-
Informed consent: Biobank donors should have a say
-
Spencer B, Koutaissoff D, Lehr HA: Informed consent: biobank donors should have a say. Nature 2012; 481: 443-443.
-
(2012)
Nature
, vol.481
, pp. 443-443
-
-
Spencer, B.1
Koutaissoff, D.2
Lehr, H.A.3
-
25
-
-
84870399104
-
Prospects for technology assessment in a framework of responsible research and innovation
-
Dusseldorp M, Beecroft R (eds) Vs Verlag: Wiesbaden
-
Von Schomberg R: Prospects for technology assessment in a framework of responsible research and innovation; in Dusseldorp M, Beecroft R (eds): Technikfolgen Absch Tzen Lehren: Bildungspotenziale Transdisziplin Rer Methoden. Vs Verlag: Wiesbaden, 2012, pp 39-61.
-
(2012)
Technikfolgen Absch Tzen Lehren: Bildungspotenziale Transdisziplin Rer Methoden
, pp. 39-61
-
-
Von Schomberg, R.1
-
26
-
-
79954797193
-
-
EUR 24537, Luxembourg: Publications of the European Union
-
Gaskell G, Stares S, Allansdottir A et al: Europeans and Biotechnology in 2010: Winds of Change, European Commission, Eurobarometer, EUR 24537, Luxembourg: Publications of the European Union, 2010.
-
(2010)
Europeans and Biotechnology in 2010: Winds of Change, European Commission, Eurobarometer
-
-
Gaskell, G.1
Stares, S.2
Allansdottir, A.3
-
29
-
-
33845354052
-
Trends in ethical and legal frameworks for the use of human biobanks
-
Cambon-Thomsen A, Rial-Sebbag E, Knoppers BM: Trends in ethical and legal frameworks for the use of human biobanks. Eur Respir J 2007; 30: 373-382.
-
(2007)
Eur Respir J
, vol.30
, pp. 373-382
-
-
Cambon-Thomsen, A.1
Rial-Sebbag, E.2
Knoppers, B.M.3
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