Self-management interventions for young people with chronic conditions: A systematic overview

Patient Education and Counseling

Volumn 98, Issue 6, 2015, Pages 704-715

  Sattoe, Jane N T ^a,b   Bal, Marjolijn I ^a,c   Roelofs, Pepijn D D M ^a   Bal, Roland ^b   Miedema, Harald S ^a   van Staa, AnneLoes ^a,b  

^a ROTTERDAM UNIVERSITY OF APPLIED SCIENCES   (Netherlands)

^b ERASMUS UNIVERSITY ROTTERDAM   (Netherlands)

^c ERASMUS MEDICAL CENTER   (Netherlands)

Author keywords

Adolescents; Children; Chronic disease; Evaluation; Intervention; Self care; Self management; Systematic review; Young adults

Indexed keywords

CHRONIC DISEASE; CLASSIFICATION; CONCEPTUAL FRAMEWORK; CONTENT ANALYSIS; EMOTION; HUMAN; MEDICAL CARE; MENTAL HEALTH; OUTCOME ASSESSMENT; PHYSICAL DISABILITY; PRIORITY JOURNAL; REVIEW; SELF CARE; SELF MANAGEMENT INTERVENTION; SYSTEMATIC REVIEW; TREATMENT RESPONSE; PATIENT EDUCATION; PROCEDURES; SELF CONCEPT;

CHRONIC DISEASE; HUMANS; OUTCOME ASSESSMENT (HEALTH CARE); PATIENT EDUCATION AS TOPIC; SELF CARE; SELF EFFICACY;

EID: 84928584862     PISSN: 07383991     EISSN: 18735134     Source Type: Journal    
DOI: 10.1016/j.pec.2015.03.004     Document Type: Review

References (127)

1. The Child and Adolescent Health Measurement Initiative National survey of children with special health care needs 2012, The Child and Adolescent Health Measurement Initiative, (accessed: 11 April 2014).
2. Mokkink L.B., van der Lee J.H., Grootenhuis M.A., Offringa M., van Praag B.M.S., Heymans H.S.A. Omvang en gevolgen van chronische aandoeningen bij kinderen. Tijdschrift voor Kindergeneeskunde 2007, 75:138-142.
3. Gijsen R., van Oostrom S.H., Schellevis F.C. Hoeveel mensen hebben één of meer chronische ziekten?. Volksgezondheid Toekomst Verkenning, Nationaal Kompas Volksgezondheid 2013, RIVM, Bilthoven.
4. Van Staa A.L. On your own feet: adolescents with chronic conditions and their preferences and competencies for care 2012, Rotterdam University, Rotterdam, (Doctoral dissertation).
5. Ratanachadawan Y., response to A., Koch T., Jenkin P., Kralik D. Chronic illness self-management: locating the 'self'. J Adv Nurs 2004, 52:571-572. 2005.
6. Harvey P.W., Petkov J.N., Misan G., Fuller J., Battersby M.W., Cayetano T.N., et al. Self-management support and training for patients with chronic and complex conditions improves health-related behaviour and health outcomes. Aust Health Rev 2008, 32:330-338.
7. Wagner E.H. Chronic disease management: what will it take to improve care for chronic illness?. Eff Clin Pract 1998, 1:2-4.
8. Trappenburg J., Jonkman N., Jaarsma T., van Os-Medendorp H., Kort H., de Wit N., et al. Self-management: one size does not fit all. Patient Educ Couns 2013, 92:134-137.
9. Huber M., Knottnerus J.A., Green L., van der Horst H., Jadad A.R., Kromhout D., et al. How should we define health?. Brit Med J 2011, 343:d4163.
10. Audulv Å., Norbergh K.-G., Asplund K., Hörnsten Å. An ongoing process of inner negotiation-a grounded theory study of self-management among people living with chronic illness. J Nurs Healthc Chronic Illn 2009, 1:283-293.
11. Paterson B.L. The shifting perspectives model of chronic illness. J Nurs Scholarsh 2001, 33:21-26.
12. Barlow J., Wright C., Sheasby J., Turner A., Hainsworth J. Self-management approaches for people with chronic conditions: a review. Patient Educ Couns 2002, 48:177-187.
13. Richard A.A., Shea K. Delineation of self-care and associated concepts. J Nurs Scholarsh 2011, 43:255-264.
14. Lorig K.R., Holman H. Self-management education: history, definition, outcomes, and mechanisms. Ann Behav Med 2003, 26:1-7.
15. Modi A.C., Pai A.L., Hommel K.A., Hood K.K., Cortina S., Hilliard M.E., et al. Pediatric self-management: a framework for research, practice, and policy. Pediatric 2012, 129:e473-e485.
16. Newman S., Steed L., Mulligan K. Chronic physical illness: self-management and behavioural interventions 2009, Open University Press, New York, NY.
17. Jonsdottir H. Self-management programmes for people living with chronic obstructive pulmonary disease: a call for a reconceptualisation. J Clin Nurs 2013, 22:621-637.
18. Kirk S., Beatty S., Callery P., Gellatly J., Milnes L., Pryjmachuk S. The effectiveness of self-care support interventions for children and young people with long-term conditions: a systematic review. Child Care Health Dev 2012, 39:305-324.
19. Lindsay S., Kingsnorth S., McDougall C., Keating H. A systematic review of self-management interventions for children and youth with physical disabilities. Disabil Rehabil 2014, 36:276-288.
20. Newman S., Mulligan K., Steed L. What is meant by self-management and how can its efficacy be established?. Rheumatology 2001, 40:1-4.
21. Schulman-Green D., Jaser S., Martin F., Alonzo A., Grey M., McCorkle R., et al. Processes of self-management in chronic illness. J Nurs Scholarsh 2012, 44:136-144.
22. Nolte S., Elsworth G.R., Newman S., Osborne R.H. Measurement issues in the evaluation of chronic disease self-management programs. Qual Life Res 2013, 22:1655-1664.
23. Grant M.J., Booth A. A typology of reviews: an analysis of 14 review types and associated methodologies. Health Info Libr J 2009, 26:91-108.
24. Moher D., Liberati A., Tetzlaff J., Altman D.G. Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. PLoS Med 2009, 6:e1000097. PRISMA Group.
25. Scottish Intercollegiate Guidelines Network Critical appraisal: notes and checklists 2013, Scottish Intercollegiate Guidelines Network, (accessed: 17 June 2013).
26. Tong A., Sainsbury P., Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care 2007, 19:349-357.
27. Rhee H., Belyea M.J., Hunt J.F., Brasch J. Effects of a peer-led asthma self-management program for adolescents. Arch Pediatr Adolesc Med 2011, 165:513-519.
28. Rhee H., McQuillan B.E., Belyea M.J. Evaluation of a peer-led asthma self-management program and benefits of the program for adolescent peer leaders. Respir Care 2012, 57:2082-2089.
29. Ng S.M., Li A.M., Lou V.W., Tso I.F., Wan P.Y., Chan D.F. Incorporating family therapy into asthma group intervention: a randomized waitlist-controlled trial. Fam process 2008, 47:115-130.
30. Jan R.L., Wang J.Y., Huang M.C., Tseng S.M., Su H.J., Liu L.F. An internet-based interactive telemonitoring system for improving childhood asthma outcomes in Taiwan. Telemed J E Health 2007, 13:257-268.
31. Burkhart P.V., Rayens M.K., Oakley M.G., Abshire D.A., Zhang M. Testing an intervention to promote children's adherence to asthma self-management. J Nurs Scholarsh 2007, 39:133-140.
32. Butz A., Pham L., Lewis L., Lewis C., Hill K., Walker J., et al. Rural children with asthma: impact of a parent and child asthma education program. J Asthma 2005, 42:813-821.
33. Clark N.M., Shah S., Dodge J.A., Thomas L.J., Andridge R.R., Little R.J.A. An evaluation of asthma interventions for preteen students. J Sch Health 2010, 80:80-87.
34. Huss K., Winkelstein M., Nanda J., Naumann P.L., Sloand E.D., Huss R.W. Computer game for inner-city children does not improve asthma outcomes. J Pediatr Health Care 2003, 17:72-78.
35. Joseph C.L., Peterson E., Havstad S., Johnson C.C., Hoerauf S., Stringer S., et al. A web-based, tailored asthma management program for urban African-American high school students. Am J Respir Crit Care Med 2007, 175:888-895.
36. Krishna S., Francisco B.D., Balas E.A., Konig P., Graff G.R., Madsen R.W., et al. Internet-enabled interactive multimedia asthma education program: a randomized trial. Pediatrics 2003, 111:503-510.
37. Pulgaron E.R., Salamon K.S., Patterson C.A., Barakat L.P. A problem-solving intervention for children with persistent asthma: a pilot of a randomized trial at a pediatric summer camp. J Asthma 2010, 47:1031-1039.
38. Shames R.S., Sharek P., Mayer M., Robinson T.N., Hoyte E.G., Gonzalez-Hensley F., et al. Effectiveness of a multicomponent self-management program in at-risk, school-aged children with asthma. Ann Allergy Asthma Immunol 2004, 92:611-618.
39. Velsor-Friedrich B., Pigott T., Srof B. A practitioner-based asthma intervention program with African American inner-city school children. J Pediatr Health Care 2005, 19:163-171.
40. Hampel P., Rudolph H., Stachow R., Petermann F. Multimodal patient education program with stress management for childhood and adolescent asthma. Patient Educ Couns 2003, 49:59-66.
41. Chiang L.C., Ma W.F., Huang J.L., Tseng L.F., Hsueh K.C. Effect of relaxation-breathing training on anxiety and asthma signs/symptoms of children with moderate-to-severe asthma: a randomized controlled trial. Int J Nurs Stud 2009, 46:1061-1070.
42. Beebe A., Gelfand E.W., Bender B. A randomized trial to test the effectiveness of art therapy for children with asthma. J Allergy Clin Immunol 2010, 126:263-266.
43. Clark N.M., Brown R., Joseph C.L., Anderson E.W., Liu M., Valerio M.A. Effects of a comprehensive school-based asthma program on symptoms, parent management, grades, and absenteeism. Chest 2004, 125:1674-1679.
44. Kouba J., Velsor-Friedrich B., Militello L., Harrison P.R., Becklenberg A., White B., et al. Efficacy of the i can control asthma and nutrition now (ICAN) pilot program on health outcomes in high school students with asthma. J School Nurs 2013, 29:235-247.
45. Rami B., Popow C., Horn W., Waldhoer T., Schober E. Telemedical support to improve glycemic control in adolescents with type 1 diabetes mellitus. Eur J Pediatr 2006, 165:701-705.
46. Cafazzo J.A., Casselman M., Hamming N., Katzman D.K., Palmert M.R. Design of an mHealth App for the self-management of adolescent Type 1 diabetes: a pilot study. J Med Internet Res 2012, 14:171-183.
47. Løding R.N., Wold J.E., Skavhaug Å. Experiences with a group intervention for adolescents with type 1 diabetes and their parents. Eur Diab Nursing 2008, 5:9-14.
48. Franklin V.L., Waller A., Pagliari C., Greene S.A. A randomized controlled trial of sweet talk, a text-messaging system to support young people with diabetes. Diabet Med 2006, 23:1332-1338.
49. Martin C., Liveley K., Whitehead K. A health education group intervention for children with type 1 diabetes. J Diabetes Nurs 2009, 13:32-37.
50. Gerber B.S., Solomon M.C., Shaffer T.L., Quinn M.T., Lipton R.B. Evaluation of an internet diabetes self-management training program for adolescents and young adults. Diabetes Technol Ther 2007, 9:60-67.
51. Grey M., Whittemore R., Jaser S., Ambrosino J., Lindemann E., Liberti L., et al. Effects of coping skills training in school-age children with type 1 diabetes. Res Nurs Health 2009, 32:405-418.
52. Hanauer D.A., Wentzell K., Laffel N., Laffel L.M. Computerized Automated Reminder Diabetes System (CARDS): e-mail and SMS cell phone text messaging reminders to support diabetes management. Diabetes Technol Ther 2009, 11:99-106.
53. Kumar V.S., Wentzell K.J., Mikkelsen T., Pentland A., Laffel L.M. The DAILY (Daily Automated Intensive Log for Youth) trial: a wireless, portable system to improve adherence and glycemic control in youth with diabetes. Diabetes Technol Ther 2004, 6:445-453.
54. Laffel L.M., Vangsness L., Connell A., Goebel-Fabbri A., Butler D., Anderson B.J. Impact of ambulatory, family-focused teamwork intervention on glycemic control in youth with type 1 diabetes. J Pediatr 2003, 142:409-416.
55. Nansel T.R., Iannotti R.J., Simons-Morton B.G., Cox C., Plotnick L.P., Clark L.M., et al. Diabetes personal trainer outcomes: short-term and 1-year outcomes of a diabetes personal trainer intervention among youth with type 1 diabetes. Diabetes Care 2007, 30:2471-2477.
56. Wang Y.C., Stewart S., Tuli E., White P. Improved glycemic control in adolescents with type 1 diabetes mellitus who attend diabetes camp. Pediatr Diabetes 2008, 9:29-34.
57. Wysocki T., Harris M.A., Buckloh L.M., Mertlich D., Lochrie A.S., Mauras N., et al. Randomized trial of behavioral family systems therapy for diabetes: maintenance of effects on diabetes outcomes in adolescents. Diabetes Care 2007, 30:555-560.
58. Channon S.J., Huws-Thomas M.V., Rollnick S., Hood K., Cannings-John R.L., Rogers C., et al. A multicenter randomized controlled trial of motivational interviewing in teenagers with diabetes. Diabetes Care 2007, 30:1390-1395.
59. Newton K.T., Ashley A. Pilot study of a web-based intervention for adolescents with type 1 diabetes. J Telemed Telecare 2013, 19:443-449.
60. Herbert L.J., Sweenie R., Kelly K.P., Holmes C., Streisand R. Using qualitative methods to evaluate a family behavioral intervention for type 1 diabetes. J Pediatr Health Care 2014, 28:376-385.
61. Barrera M., Schulte F. A group social skills intervention program for survivors of childhood brain tumors. J Pediatr Psychol 2009, 34:1108-1118.
62. Canada A.L., Schover L.R., Li Y. A pilot intervention to enhance psychosexual development in adolescents and young adults with cancer. Pediatr Blood Cancer 2007, 49:824-828.
63. Jones J.K., Kamani S.A., Bush P.J., Hennessy K.A., Marfatia A., Shad A.T. Development and evaluation of an educational interactive CD-ROM for teens with cancer. Pediatr Blood Cancer 2010, 55:512-519.
64. Maurice-Stam H., Silberbusch L.M., Last B.F., Grootenhuis M.A. Evaluation of a psycho-educational group intervention for children treated for cancer: a descriptive pilot study. Psychooncology 2009, 18:762-766.
65. Kato P.M., Cole S.W., Bradlyn A.S., Pollock B.H. A video game improves behavioral outcomes in adolescents and young adults with cancer: a randomized trial. Pediatrics 2008, 122:e305-e317.
66. Stulemeijer M., De Jong L.W.A.M., Fiselier T.J.W., Hoogveld S.W.B., Bleijenberg G. Cognitive behaviour therapy for adolescents with chronic fatigue syndrome: randomised controlled trial. Br Med J 2005, 330:14-17.
67. Hilberink S.R., Kruijver E., Wiegerink D.J.H.G., Vliet Vlieland T.P.M. A pilot implementation of an intervention to promote sexual health in adolescents and young adults in rehabilitation. Sex Disabil 2013, 31:1-20.
68. Torok S., Kokonyei G., Karolyi L., Ittzes A., Tomcsanyi T. Outcome effectiveness of therapeutic recreation camping program for adolescents living with cancer and diabetes. J Adolesc Health 2006, 39:445-447.
69. Bekesi A., Torok S., Kokonyei G., Bokretas I., Szentes A., Telepoczki G. Health-related quality of life changes of children and adolescents with chronic disease after participation in therapeutic recreation camping program. Health Qual Life Outcomes 2011, 9:43.
70. Curle C., Bradford J., Thompson J., Cawthron P. Users' views of a group therapy intervention for chronically ill or disabled children and their parents: towards a meaningful assessment of therapeutic effectiveness. Clin Child Psychol Psychiatry 2005, 10:509-527.
71. Creedy D., Collis D., Ludlow T., Cosgrove S., Houston K., Irvine D., et al. Development and evaluation of an intensive intervention program for children with a chronic health condition: a pilot study. Contemp Nurse 2004, 18:46-56.
72. Raghavendra P., Newman L., Grace E., Wood D: 'I could never do that before': effectiveness of a tailored internet support intervention to increase the social participation of youth with disabilities. Child Care Health Dev 2013, 39:552-561.
73. Hechler T., Dobe M., Damschen U., Blankenburg M., Schroeder S., Kosfelder J., et al. The pain provocation technique for adolescents with chronic pain: preliminary evidence for its effectiveness. Pain Med (USA) 2010, 11:897-910.
74. Eccleston C., Malleson P.N., Clinch J., Connell H., Sourbut C. Chronic pain in adolescents: evaluation of a programme of interdisciplinary cognitive behaviour therapy. Arch Dis Child 2003, 88:881-885.
75. Palermo T.M., Wilson A.C., Peters M., Lewandowski A., Somhegyi H. Randomized controlled trial of an Internet-delivered family cognitive-behavioral therapy intervention for children and adolescents with chronic pain. Pain 2009, 146:205-213.
76. Merlijn V.P.B.M., Hunfeld J.A.M., van der Wouden J.C., Hazebroek-Kampschreur A.A.J.M., van Suijlekom-Smit L.W.A., Koes B.W., et al. A cognitive-behavioural program for adolescents with chronic pain-a pilot study. Patient Educ Couns 2005, 59:126-134.
77. Fales J., Palermo T.M., Law E.F., Wilson A.C. Sleep outcomes in youth with chronic pain participating in a randomized controlled trial of online cognitive-behavioral therapy for pain management. Behav Sleep Med 2015, 13(2):107-123.
78. Newcombe P.A., Dunn T.L., Casey L.M., Sheffield J.K., Petsky H., Anderson-James S., et al. Breathe easier online: evaluation of a randomized controlled pilot trial of an Internet-based intervention to improve well-being in children and adolescents with a chronic respiratory condition. J Med Internet Res 2012, 14:115-126.
79. Downs J.A., Roberts C.M., Blackmore A.M., Le Souef P.N., Jenkins S.C. Benefits of an education programme on the self-management of aerosol and airway clearance treatments for children with cystic fibrosis. Chronic Respir Dis 2006, 3:19-27.
80. MacDonald K., Greggans A. 'Cool friends': an evaluation of a community befriending programme for young people with cystic fibrosis. J Clin Nurs 2010, 19:2406-2414.
81. Christian B.J., D'Auria J.P. Building life skills for children with cystic fibrosis: effectiveness of an intervention. Nurs Res 2006, 55:300-307.
82. Davis M.A., Quittner A.L., Stack C.M., Yang M.C.K. Controlled evaluation of the STARBRIGHT CD-ROM program for children and adolescents with cystic fibrosis. J Pediatr Psychol 2004, 29:259-267.
83. Staab D., Diepgen T.L., Fartasch M., Kupfer J., Lob-Corzilius T., Ring J., et al. Age related structured educational programmes for the management of atopic dermatitis in children adolescents: multicentre randomised controlled trial. Brit Med J 2006, 332:933-938.
84. Meade M.A., Creer T.L., Mahan J.D. A self-management program for adolescents and children with renal transplantation. J Clin Psychol Med Settings 2003, 10:165-171.
85. Payne M.E., Eaton C.K., Mee L.L., Blount R.L. Promoting medication adherence and regimen responsibility in two adolescents on hemodialysis for end-stage renal disease: a case study. Clin Case Stud 2013, 12:95-110.
86. Sattoe J.N.T., Jedeloo S., Van Staa A. Effective peer-to-peer support for young people with end-stage renal disease: a mixed methods evaluation of Camp COOL. BMC Nephrol 2013, 14:279.
87. Cushner-Weinstein S., Berl M., Salpekar J.A., Johnson J.L., Pearl P.L., Conry J.A., et al. The benefits of a camp designed for children with epilepsy: evaluating adaptive behaviors over 3 years. Epilepsy Behav 2007, 10:170-178.
88. Bultas M.W., Budhathoki C., Balakas K. Evaluation of child and parent outcomes after a pediatric cardiac camp experience. J Spec Pediatr Nurs 2013, 18:320-328.
89. Smith Fawzi M.C., Eustache E., Oswald C., Louis E., Surkan P.J., Scanlan F., et al. Psychosocial support intervention for HIV-affected families in Haiti: Implications for programs and policies for orphans and vulnerable children. Soc Sci Med 2012, 74:1494-1503.
90. Berrien V.M., Salazar J.C., Reynolds E., McKay K. Adherence to antiretroviral therapy in HIV-infected pediatric patients improves with home-based intensive nursing intervention. AIDS Patient Care STDs 2004, 18:355-363. HIVMAI Group.
91. Hayutin L.G., Blount R.L., Lewis J.D., Simons L.E., McCormick M.L. Skills-based group intervention for adolescent girls with inflammatory bowel disease. Clin Case Stud 2009, 8:355-365.
92. Dufresne H., Hadj-Rabia S., Taieb C., Bodemer C. Importance of therapeutic patient education in ichthyosis: results of a prospective single reference center study. Orphanet J Rare Dis 2013, 8:113.
93. Kashikar-Zuck S., Ting T.V., Arnold L.M., Bean J., Powers S.W., Graham T.B., et al. Cognitive behavioral therapy for the treatment of juvenile fibromyalgia: a multisite, single-blind, randomized, controlled clinical trial. Arthritis Rheum 2012, 64:297-305.
94. Kashikar-Zuck S., Flowers S.R., Strotman D., Sil S., Ting T.V., Schikler K.N. Physical activity monitoring in adolescents with juvenile fibromyalgia: findings from a clinical trial of cognitive-behavioral therapy. Arthritis Care Res (Hoboken) 2013, 65:398-405.
95. Kashikar-Zuck S., Sil S., Lynch-Jordan A.M., Ting T.V., Peugh J., Schikler K.N., et al. Changes in pain coping, catastrophizing, and coping efficacy after cognitive-behavioral therapy in children and adolescents with juvenile fibromyalgia. J Pain 2013, 14:492-501.
96. Stinson J.N., McGrath P.J., Hodnett E.D., Feldman B.M., Duffy C.M., Huber A.M., et al. An internet-based self-management program with telephone support for adolescents with arthritis: a pilot randomized controlled trial. J Rheumatol 2010, 37:1944-1952.
97. Hackett J., Johnson B., Shaw K.L., McDonagh J.E. Friends united: an evaluation of an innovative residential self-management programme in adolescent rheumatology. Br J Occup Ther 2005, 68:567-573.
98. McDonagh J.E., Southwood T.R., Shaw K.L. The impact of a coordinated transitional care programme on adolescents with juvenile idiopathic arthritis. Rheumatology (UK) 2007, 46:161-168.
99. Fuchs C.E., Van Geelen S.M., Hermans H.J.M., Van De Putte E.M., Van Geel R., Sinnema G., et al. Psychological intervention for adolescents with juvenile idiopathic arthritis: for whom and when?. J Rheumatol 2013, 40:528-534.
100. Connelly M., Rapoff M.A., Thompson N., Connelly W. Headstrong: a pilot study of a CD-ROM intervention for recurrent pediatric headache. J Pediatr Psychol 2006, 31:737-747.
101. Ten Hoedt A.E., Hollak C.E., Boelen C.C., van der Herberg-van de Wetering N.A.P., Ter Horst N.M., Jonkers C.F., et al. MY PKU": increasing self-management in patients with phenylketonuria. A randomized controlled trial. Orphanet J Rare Dis 2011, 6:48.
102. Hojberg A.L., Steffensen B.F. Developing and maintaining of user-defined personal competencies among young adults with congenital physical disability. Dev Neurorehabil 2010, 11:225-235.
103. Xenakis N., Goldberg J. The young women's program: a health and wellness model to empower adolescents with physical disabilities. Disabil Health J 2010, 3:125-129.
104. Verhoef J.A.C., Roebroeck M.E., van Schaardenburgh N., Floothuis M.C.S.G., Miedema H.S. Improved occupational performance of young adults with a physical disability after a vocational rehabilitation intervention. J Occup Rehabil 2014, 24:42-51.
105. Barakat L.P., Schwartz L.A., Salamon K.S., Radcliffe J. A family-based randomized controlled trial of pain intervention for adolescents with sickle cell disease. J Pediatr Hematol Oncol 2010, 32:540-547.
106. McClellan C.B., Schatz J.C., Puffer E., Sanchez C.E., Stancil M.T., Roberts C.W. Use of handheld wireless technology for a home-based sickle cell pain management protocol. J Pediatr Psychol 2009, 34:564-573.
107. Koontz K., Short A.D., Kalinyak K., Noll R.B. A randomized, controlled pilot trial of a school intervention for children with sickle cell anemia. J Pediatr Psychol 2004, 29:7-17.
108. Yoon S.L., Godwin A. Enhancing self-management in children with sickle cell disease through playing a CD-ROM educational game: a pilot study. Pediatr Nurs 2007, 33(60-3):72.
109. Dobson C.E., Byrne M.W. Using guided imagery to manage pain in young children with sickle cell disease. Am J Nurs 2014, 114:26-36.
110. Betz C.L., Smith K., Macias K. Testing the transition preparation training program: a randomized controlled trial. Int J Child Adolesc health 2011, 3:595-607.
111. O'Mahar K., Holmbeck G.N., Jandasek B., Zukerman J. A camp-based intervention targeting independence among individuals with spina bifida. J Pediatr Psychol 2010, 35:848-856.
112. Holbein C.E., Murray C.B., Psihogios A.M., Wasserman R.M., Essner B.S., O'Hara L.K., et al. A camp-based psychosocial intervention to promote independence and social function in individuals with spina bifida: moderators of treatment effectiveness. J Pediatr Psychol 2013, 38:412-424.
113. Udlis K.A. Self-management in chronic illness: concept and dimensional analysis. J Nurs Healthc Chronic Illn 2011, 130-139.
114. Koch T., Jenkin P., Kralik D. Chronic illness self-management: locating the 'self'. J Adv Nurs 2004, 48:484-492.
115. Sawyer S.M., Drew S., Yeo M.S., Britto M.T. Adolescents with a chronic condition: challenges living, challenges treating. Lancet 2007, 369:1481-1489.
116. Corbin J.M., Strauss A.L. Unending work and care: managing chronic illness at home 1988, Jossey-Bass, San Francisco, CA.
117. Kirk S., Beatty S., Callery P., Milnes L., Pryjmachuk S. Perceptions of effective self-care support for children and young people with long-term conditions. J Clin Nurs 2012, 21:1974-1987.
118. Thirsk L.M., Clark A.M. What is the 'self' in chronic disease self-management?. Int J Nurs Stud 2014, 51:691-693.
119. Audulv A., Asplund K., Norbergh K.G. The integration of chronic illness self-management. Qual Health Res 2012, 22:332-345.
120. Ong B.N., Rogers A., Kennedy A., Bower P., Sanders T., Morden A., et al. Behaviour change and social blinkers? The role of sociology in trials of self-management behaviour in chronic conditions. Sociol Health Illn 2014, 36:226-238.
121. Bandura A. Social learning theory 1977, General Learning Press, New York, NY.
122. Hupp S.D.A., Reitman D., Jewell J.D. Cognitive behavioral theory 2008, John Wiley & Sons, Inc, New York, NY.
123. Nolte S., Osborne R.H. A systematic review of outcomes of chronic disease self-management interventions. Qual Life Res 2013, 22:1805-1816.
124. Coster S., Norman I. Cochrane reviews of educational and self-management interventions to guide nursing practice: a review. Int J Nurs Stud 2009, 46:508-528.
125. Stein R.E., Jessop D.J. What diagnosis does not tell: the case for a noncategorical approach to chronic illness in childhood. Soc Sci Med 1989, 29:769-778.
126. Novak M., Costantini L., Schneider S., Beanlands H. Approaches to self-management in chronic illness. Semin Dial 2013, 26:188-194.
127. Sattoe J.N.T., Hilberink S.R., Peeters M.A.C., van Staa A. 'Skills for growing up': supporting autonomy in young people with kidney disease. J Ren Care 2014, 40:131-139.