A camp-based psychosocial intervention to promote independence and social function in individuals with spina bifida: Moderators of treatment effectiveness

Journal of Pediatric Psychology

Volumn 38, Issue 4, 2013, Pages 412-424

  Holbein, Christina E ^a   Murray, Caitlin B ^a   Psihogios, Alexandra M ^a   Wasserman, Rachel M ^a   Essner, Bonnie S ^b   O'hara, Lauren K ^c   Holmbeck, Grayson N ^a  

^a LOYOLA UNIVERSITY CHICAGO   (United States)

^b SEATTLE CHILDREN S RESEARCH INSTITUTE   (United States)

^c NATIONWIDE CHILDREN S HOSPITAL   (United States)

Author keywords

camp; independence; intervention; social functioning; spina bifida

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CHILD; CLINICAL TRIAL; COUNSELING; EDUCATION; FEMALE; HUMAN; MALE; METHODOLOGY; MOTIVATION; PSYCHOLOGICAL ASPECT; SOCIAL BEHAVIOR; SOCIOECONOMICS; SPINAL DYSRAPHISM; TREATMENT OUTCOME; YOUNG ADULT; PROCEDURES; PSYCHOLOGY;

ADOLESCENT; ADULT; CHILD; COUNSELING; EDUCATION; FEMALE; GOALS; HUMANS; MALE; SOCIAL BEHAVIOR; SOCIOECONOMIC FACTORS; SPINAL DYSRAPHISM; TREATMENT OUTCOME; YOUNG ADULT;

EID: 84877284916     PISSN: 01468693     EISSN: 1465735X     Source Type: Journal    
DOI: 10.1093/jpepsy/jst003     Document Type: Article

References (42)

1. Addis, M. E. (1997). Evaluating the treatment manual as a means of disseminating empirically validated psychotherapies. Clinical Psychology: Science and Practice, 4, 1-11 (Pubitemid 127531687)
2. American Camping Association. (2010). Retrieved from http://www.acacamps. org/
3. Anderson, B. J., Auslander, W. F., Jung, K. C., Miller, J. P.,Santiago, J. V. (1990). Assessing family sharing of diabetes responsibilities. Journal of Pediatric Psychology, 15, 477-492 (Pubitemid 20366295)
4. Blum, R. W., Resnick, M. D., Nelson, R.,St. Germaine, A. (1991). Family and peer issues among adolescents with spina bifida and cerebral palsy. Pediatrics, 88, 280-285
5. Briery, B. G.,Rabian, B. (1999). Psychosocial changes associated with participation in a pediatric summer camp. Journal of Pediatric Psychology, 24, 183-190 (Pubitemid 29177427)
6. Burmeister, R., Hannay, H. J., Copeland, K., Fletcher, J., Boudousquie, A.,Dennis, M. (2005). Attention problems and executive functions in children with 422 Holbein et al. spina bifida and hydrocephalus. Child Neuropsychology, 11, 265-283 (Pubitemid 40911110)
7. Centers for Disease Control and Prevention. (2011). Neural tube defect ascertainment project, Retrieved from http://www.nbdpn.org
8. Cohen, J. (1988). Statistical power analysis for the behavioral sciences (2nd ed.). Hillsdale, NJ: Erlbaum. Cutting, L. E., Koth, C. E., Mahone, E. M., &
9. Deckla, M. B. (2003). Evidence for unexpected weaknesses in learning in children with attention-deficit/hyperactivity disorder without reading disabilities. Journal of Learning Disabilities, 36, 259-269
10. Davis, B. E., Shurtleff, D. B., Walker, W. O.,Seidel, K. D. (2006). Acquisition of autonomy skills in adolescents with myelomeningocele. Developmental Medicine and Child Neurology, 48, 253-258
11. Dennis, M., Landry, S. H., Barnes, M.,Fletcher, J. M. (2006). A model of neurocognitive function in spina bifida over the life span. Journal of the International Neurocognitive Society, 12, 285-296
12. Devine, K. A., Holmbeck, G. N., Gayes, L.,Purnell, J. Q. (2012). Friendships of children and adolescents with spina bifida: Social adjustment, social performance, and social skills. Journal of Pediatric Psychology, 37, 220-231
13. Devine, K. A., Wasserman, R. M., Gershenson, L. S., Holmbeck, G. N.,Essner, B. S. (2011). Mother-Adolescent agreement regarding decision-making autonomy: A longitudinal comparison of families of adolescents with and without spina bifida. Journal of Pediatric Psychology, 36, 277-288
14. Engelman, B. E., Loomis, J. W.,Kleiback, L. (1994). A psychoeducational group addressing self-care, self-esteem, and social skills in children with spina bifida. European Journal of Pediatric Surgery, 4, 38-39
15. Essner, B., Kelly, L.,Holmbeck, G. (2010). Camp ability: A camp curriculum addressing independence, social skills, emotional wellness, and self-care (2nd ed.). Unpublished manual
16. Faul, F., Erdfelder, E., Lang, A.-G.,Buchner, A. (2007). G Power 3: A flexible statistical power analysis program for the social, behavioral, and biomedical sciences. Behavior Research Methods, 39, 175-191
17. Friedman, D., Holmbeck, G. N., DeLucia, C., Jandasek, B.,Zebracki, K. (2009). Trajectories of autonomy development across the adolescent transition in children with spina bifida. Rehabilitation Psychology, 54, 16-27
18. Gresham, F. M.,Nagle, R. J. (1980). Social skills training with children: Responsiveness to modeling and coaching as a function of peer orientation. Journal of Consulting and Clinical Psychology, 48, 718-729 (Pubitemid 11171324)
19. Harter, S. (1985). Manual for self-perception profile for children: Revision of the perceived competence scale for children. Denver, CO: University of Denver
20. Harter, S. (1988). Manual for the Self-Perception profile for adolescents. Denver, CO: University of Denver
21. Herring, S. S. J., Rich-Edwards, J. W., Oken, E., Rifas- Shiman, S. L., Kleinman, K. P.,Gillman, M. W. (2008). Association of postpartum depression with weight retention 1 year after childbirth. Obesity (Silver Spring, Md.), 16, 1296-1301 (Pubitemid 351770545)
22. Hetherington, R., Dennis, M., Barnes, M., Drake, J.,Gentili, F. (1999). Functional outcome in young adults with spina bifida. Journal of Neurology, NeurosurgeryPsychiatry, 67, 591-595
23. Holmbeck, G. N., DeLucia, C., Essner, B., Kelly, L., Zebracki, K., Friedman, D.,Jandasek, B. (2010). Trajectories of psychosocial adjustment in adolescents with spina bifida: A 6-year, four-wave longitudinal follow-up. Journal of Consulting and Clinical Psychology, 78, 511-525
24. Holmbeck, G. N., Devine, K. A.,Bruno, E. F. (2010). Developmental issues and considerations in research and practice. In J. R. Weisz,A. E. Kazdin (Eds.), Evidence-based psychotherapies for children and adolescents (2nd ed., pp. 28-39). New York, NY: The Guilford Press
25. Joyce, B. M., Rockwood, K. J.,Mate-Kole, C. C. (1994). Use of goal attainment scaling in brain injury in a rehabilitation hospital. American Journal of Physical MedicineRehabilitation/Association of Academic Physiatrists, 73, 10-14 (Pubitemid 24067167)
26. Kazdin, A. E. (2003). Clinical significance: Measuring whether interventions make a difference. In A. E. Kazdin (Ed.), Methodological issuesstrategies in clinical research (3rd ed., pp. 691-710 Washington DC: American Psychological Association
27. Malec, J. J. F. (1999). Goal attainment scaling in rehabilitation. Neurocognitive Rehabilitation, 9, 253-275
28. McLone, D. G.,Ito, J. (1998). An introduction to spina bifida. Chicago, IL: Children's Memorial Spina Bifida Team
29. Nowicki, S. (2003). Manual for the receptive tests of the diagnostic analysis of nonverbal accuracy 2: DANVA2. Atlanta, GA: Department of Psychology, Emory University
30. O'Mahar, K., Holmbeck, G. N., Jandasek, B.,Zuckerman, J. (2010). A camp-based intervention targeting independence among individuals with spina bifida. Journal of Pediatric Psychology, 35, 848-856
31. Rhee, H., Belyea, M. J., Hunt, J. F.,Brasch, J. (2011). Effects of a peer-led asthma self-management program for adolescents. Archives of PediatricsAdolescent Medicine, 165, 513-519
32. Rieppi, R., Greenhill, L. L., Ford, R. E., Chuang, S., Wu, M., Davies, M., . . . Wigal, T. (2002). Socioeconomic status as a moderator of ADHD treatment outcomes. Journal of American Academy of Child and Adolescent Psychiatry, 41, 269-277 (Pubitemid 38338148)
33. Sawin, K. J., Bellin, M. H., Builta, E., Vasel, L., Buran, C. F.,Brei, T. J. (2006). Cross-informant agreement between adolescents with myelomeningocele and their parents. Developmental MedicineChild Neurology, 48, 188-194 (Pubitemid 44404264)
34. Sherman, R. G., Berling, B. S.,Oppenheimer, S. (1985). Increasing community independence for adolescents with spina bifida. Adolescence, 20, 1-13
35. Silverman, W. K., Kurtines, W. M., Ginsburg, G. S., Weems, C. F., Lumpkin, P. W.,Carmichael, D. H. (1999). Treating anxiety disorders in children with group cognitive-behavioral therapy: A randomized clinical trial. Journal of Consulting and Clinical Psychology, 67, 995-1003
36. Swanson, J. M., Kraemer, H. C., Hinshaw, S. P., Arnold, L. E., Conners, C. K., Abikoff, H. B., . . . Wu, M. (2001). Clinical relevance of the primary findings of the MTA: Success rates based on severity of ADHD and ODD symptoms at the end of treatment. Journal of the American Academy of Child and Adolescent Psychiatry, 40, 168-179 (Pubitemid 32111020)
37. Tabachnick, B. G.,Fidell, L. S. (2001). Using multivariate statistics. (4th ed.). Needham Heights, MA: AllynBacon
38. Wechsler, D. (1999). Wechsler abbreviated scales of intelligence (WASI). San Antonia, TX: Psychological Corporation
39. Wechsler, D. (2003). WISC-IV technical and interpretive manual. San Antonia, TX: Psychological Corporation
40. Wills, K. K. W. (1993). Neurocognitive functioning in children with spina bifida and/or hydrocephalus. Journal of Clinical Child Psychology, 22, 247-265
41. Wysocki, T., Meinhold, P. M., Taylor, A., Hough, B. S., Barnard, M. U., Clarke, W. L., . . . Bourgeois, M. J. (1996). Psychometric properties and normative data for the parent version of the Diabetes Independence Survey. The Diabetes Educator, 22, 587-591
42. Zukerman, J. M., Devine, K. A.,Holmbeck, G. N. (2011). Adolescent predictors of emerging adult milestones in youth with spina bifida. Journal of Pediatric Psychology, 36, 265-276