An internet-based self-management program with telephone support for adolescents with arthritis: A pilot randomized controlled trial

Journal of Rheumatology

Volumn 37, Issue 9, 2010, Pages 1944-1952

  Stinson, Jennifer N ^a,b   McGrath, Patrick J ^c   Hodnett, Ellen D ^b   Feldman, Brian M ^a,b   Duffy, Ciaran M ^d   Huber, Adam M ^c   Tucker, Lori B ^e   Hetherington, C Ross ^a   Tse, Shirley M L ^a,b   Spiegel, Lynn R ^a,b   Campillo, Sarah ^d   Gill, Navreet K ^a   White, Meghan E ^a  

^a HOSPITAL FOR SICK CHILDREN   (Canada)

^b UNIVERSITY OF TORONTO   (Canada)

^c IWK HEALTH CENTRE   (Canada)

^d MONTREAL CHILDREN S HOSPITAL   (Canada)

^e BC CHILDREN S HOSPITAL   (Canada)

Author keywords

Adolescent; Internet; Juvenile idiopathic arthritis; Randomized controlled trial; Self management

Indexed keywords

ADOLESCENT; ARTHRITIS; ARTICLE; CLINICAL ARTICLE; CLINICAL TRIAL; CONTROLLED CLINICAL TRIAL; CONTROLLED STUDY; FEMALE; HUMAN; INTERNET; JUVENILE RHEUMATOID ARTHRITIS; MALE; PAIN ASSESSMENT; PATIENT COMPLIANCE; PATIENT SATISFACTION; PRIORITY JOURNAL; QUALITY OF LIFE; RANDOMIZED CONTROLLED TRIAL; SELF CARE; SELF CONCEPT; SOCIAL SUPPORT; TELEPHONE;

ADOLESCENT; ARTHRITIS; CANADA; CHILD; FEMALE; HUMANS; INTERNET; MALE; PATIENT COMPLIANCE; PATIENT EDUCATION AS TOPIC; PATIENT SATISFACTION; PILOT PROJECTS; QUALITY OF LIFE; SELF CARE; SOCIAL SUPPORT; TELEPHONE;

EID: 77956458646     PISSN: 0315162X     EISSN: None     Source Type: Journal    
DOI: 10.3899/jrheum.091327     Document Type: Article

References (48)

1. Oen KG, Cheang M. Epidemiology of chronic arthritis in childhood. Semin Arthritis Rheum 1996;26:575-91.
2. Shaw KL, Southwood TR, Duffy, CM, McDonagh JE. Health related quality of life in adolescents with juvenile idiopathic arthritis. Arthritis Rheum 2006;55:199-207.
3. Schanberg LE, Gil KM, Anthony KK, Yow E, Rochon J. Pain, stiffness and fatigue in juvenile polyarticular arthritis. Arthritis Rheum 2005;52:1196-204.
4. Stinson J, Stevens BJ, Feldman B, McGrath PJ, Streiner D, Petroz G, et al. Construct validity of a multidimensional electronic pain diary for adolescents with arthritis. Pain 2008;136:281-92.
5. Adam V, St-Pierre Y, Fautrel B, Clarke AE, Duffy CM, Penrod JR. What is the impact of adolescent arthritis and rheumatism? Evidence from a national sample of Canadians. J Rheumatol 2005;32:354-61.
6. Margetic B, Aukst-Margetic B, Bilic E, Jelusic M, Tambic Bukovac L. Depression, anxiety and pain in children with juvenile idiopathic arthritis (JIA). Eur Psychiatry 2005;20:274-6.
7. Hoff AL, Palermo TM, Schuchter M, Zebracki K, Drotor D. Longitudinal relationships of depressive symptoms to pain intensity and functional disability among children with disease-related pain. J Pediatr Psychol 2006;31:1046-56.
8. Schanberg LE, Sandstrom MJ, Starr K, Gil KM, Lefebvre JC, Keefe JF, et al. The relationship of daily mood and stressful events to symptoms in juvenile rheumatic disease. Arthritis Care Res 2000;13:33-41.
9. Baildman EM, Holt PJ, Conway SC, Morton MJ. The association between functional status and psychological problems in children with juvenile chronic arthritis. Br J Rheumatol 1995;34:470-7.
10. Reiter-Purtill J, Gerhardt CA, Vannatta K, Passo MH, Noll RB. A controlled longitudinal study of the social functioning of children with juvenile rheumatoid arthritis. J Pediatr Psychol 2003;28:17-28. (Pubitemid 36091763)
11. Phelps A. Chronic health-related disorders in children: Collaborative medical and psychoeducational interventions 2006. Washington, DC: American Psychological Association; 2006.
12. Barlow JH, Wright C, Sheasby J, Turner A, Hainsworth J. Self-management for people with chronic conditions: a review. Patient Educ Couns 2002;48:177-87.
13. Shaw KL, Southwood TR, McDonagh JE. Young people's satisfaction of transitional care in adolescent rheumatology in the UK. Child Care Health Dev 2006;33:368-79.
14. Lineker SC, Badley EM, Dalby DM. Unmet service needs of children with rheumatic diseases and their parents in a metropolitan area. J Rheumatol 1996;23:104-8.
15. Barlow JH, Shaw KL, Harrison K. Consulting the 'experts': children's and parents' perceptions of psycho-educational interventions in the context of juvenile chronic arthritis. Health Educ Res 1999;14:597-610.
16. Stinson J, Toomey P, Stevens B, Kagan S, Duffy C, Huber A, et al. Asking the experts: Exploring the self-management needs of adolescents with arthritis. Arthritis Care Res 2008;59:65-72.
17. Ritterband LM, Gonder-Frederick LA, Cox DJ, Clifton AD, West RW, Borowitz SM. Internet interventions: in review, in use, and into the future. Prof Psychol Res Pr 2003;34:527-34.
18. Gray NJ, Klein JD, Noyce PR, Sesselberg TS, Cantrill JA. Health information-seeking behaviour in adolescence: The place of the Internet. Soc Sci Med 2005;60:1467-78.
19. Drotar D, Greenley R, Hoff A, Johnson C, Lewandowski A, Moore M, et al. Summary of issues and challenges in the use of new technologies in clinical care and with children and adolescents with chronic illnesses. Child Health Care 2006;35:91-102.
20. Griffiths F, Lindenmeyer A, Powell J, Lowe P, Thorogood M. Why are health care interventions delivered over the internet? A systematic review of the published literature. J Med Internet Res 2006;8:e10.
21. Ngugen HQ, Carrieri-Kohlman V, Ranki SH, Slaughter R, Stulbarg MS. Internet-based patient education and support interventions: a review of evaluation studies and directions for future research. Comput Biol Med 2004;34:95-112.
22. Palmqvist B, Carlbring P, Andersson G. Internet-delivered treatments with or without therapist input: does the therapist factor have implications for efficacy and cost? Expert Rev Pharmacoecon Outcomes Res 2007;7:291-7.
23. Spek C, Cuijper P, Nyklicek I, Riper H, Keyzer J, Pop V. Internet-based cognitive behavioral therapy for symptoms of depression and anxiety: A meta-analysis. Psychol Med 2007:37:319-28.
24. Wantland DJ, Portillo C, Holzemer, WL, Slaughter R, McGhee EM. The effectiveness of web-based vs. non-web-based interventions: A meta-analysis of behavioural change outcomes. J Med Internet Res 2004;6:e40.
25. Cuijpers P, van Straten A, Andersson G. Internet-administered cognitive behavior therapy for health problems: a systematic review. J Behav Med 2008;31:169-77.
26. Murray E, Burns J, See Tai S, Lai R, Nazareth I. Interactive health communication applications for people with chronic disease. Cochrane Database Syst Rev 2005;4:1-25.
27. Lorig KR, Ritter PL, Laurent DD, Plant K. The internet-based arthritis self-management program: A one-year randomized controlled trial for patients with arthritis or fibromyalgia. Arthritis Rheum 2008;7:1009-17.
28. Stinson JN, Wilson R, Gill N, Yamada J, Holt J. A systematic review of Internet-based self-management interventions for youth with health conditions. J Pediatr Psychol 2009;34:495-510.
29. Moher D, Schulz KF, Altman DG. The CONSORT statement: revised recommendations for improving the quality of reports of parallel-group randomized trials. J Am Podiatr Med Assoc 2001;91:437-42.
30. Stinson JN, McGrath PJ, Hodnett E, Feldman BM, Duffy CM, Huber A, et al. Usability testing of an online self-management program for adolescents with juvenile idiopathic arthritis. J Med Internet Res, [in press].
31. Duffy CM, Arsenault L, Duffy KN, Paquin JD, Strawczynski H. The Juvenile Arthritis Quality of Life Questionnaire - development of a new responsive index for juvenile rheumatoid arthritis and juvenile spondyloarthritides. J Rheumatol 1997;24:738-46.
32. Duffy CM, Arsenault L, Watanabe Duffy KN, Paquin JD, Strawczynski H. Validity and sensitivity to change of the Juvenile Arthritis Quality of Life Questionnaire (JAQQ). [abstract]. Arthritis Rheum 1993;36 Suppl:S144.
33. Duffy CM, Arsenault L, Watanabe Duffy KN, Paquin JD, Strawczynski H. Relative sensitivity of the Juvenile Quality of Life Questionnaire following a new treatment [abstract]. Arthritis Rheum 1994;37 Suppl:S196.
34. Duffy CM, Arsenault L, Watanabe Duffy KN, Paquin JD, Strawczynski H. Relative sensitivity of the Juvenile Quality of Life Questionnaire on sequential follow-up [abstract]. Arthritis Rheum 1995;38 Suppl:S178.
35. Berard R, Tucker L, Oen K, Yeung R, Gibbon M, Meshefedjian G, et al for The REACCH OUT Study Group. Enhanced responsiveness and minimal clinically important difference for Improvement of the Juvenile Arthritis Quality of Life Questionnaire (JAQQ) [poster]. Keystone (Colorado) Pediatric Rheumatology Symposium, March 2008.
36. Koacelevent RD, Levenstein S, Fliege H, Schmdi G, Hinz A, Braher E, et al. Contribution to the construct validity of the Perceived Stress Questionnaire from a population-based survey. J Psychosom Res 2007;63:71-81.
37. Andre M, Hedengren E, Hagelberg S, Stenstrom CH. Perceived ability to manage juvenile chronic arthritis among adolescents and parents: development of a questionnaire to assess medical issues, exercise, pain, and social support. Arthritis Care Res 1999;12:229-37.
38. Barlow J, Shaw KL, Wright CC. Development and preliminary validation of a children's arthritis self-efficacy scale. Arthritis Rheum 2001;45:159-66.
39. April KT, Feldman DE, Platt RW, Duffy CM. Comparison between children with juvenile idiopathic arthritis and their parents concerning perceived treatment adherence. Arthritis Rheum 2006;55:558-63.
40. Goossens MEJB, Vlaeyen JWS, Hiddin A, Kole-Snijders A, Evers SMAA. Treatment expectations affects the outcome of cognitive-behavioural interventions in chronic pain. Clin J Pain 2005;21:1826.
41. SAS Institute Inc. SAS Version 9.1.3. Cary, North Carolina, USA, 2006.
42. Frison L, Pocock S. Repeated measures in clinical trials: Analysis using mean summary statistics and its implications for design. Stat Med 1993;11:1685-704.
43. Cohen J. Statistical power analysis for the behavioral sciences. 2nd ed. Mahwah, NJ: Lawrence Erlbaum Associates; 1988.
44. Palermo TM, Wilson AC, Peters M, Lewandowski A, Somhegyi H. Randomized controlled trial of an internet-delivered family cognitive-behavioral therapy intervention for children and adolescents with chronic pain. Pain 2009;146:205-13.
45. Marks I, Cavanagh K. Computer-aided psychological treatments: evolving issues. Annu Rev Clin Psychol 2009;5:121-41.
46. Carey JC, Wade SL, Wolfe CR. Lessons learned: the effect of prior technology use on Web-based interventions. Cyberpsychol Behav 2008;11:188-95.
47. Chassany O, Sagnier P, Marquis P, Fullerton S, Aaronson N, for the European Regulatory Issues on Quality of Life Assessment Group. Patient-reported outcomes: The example of health-related quality of life - a European guidance document for the improved integration of health-related quality of life assessment in the drug regulation process. Drug Inf J 2002;36:209-38.
48. Scogin FR, Hanson A, Welsh D. Self-administered treatment in stepped care models of depression treatment. J Clin Psychol 2003;59:341-9.