Measurement issues in the evaluation of chronic disease self-management programs

Quality of Life Research

Volumn 22, Issue 7, 2013, Pages 1655-1664

  Nolte, Sandra ^a,b   Elsworth, Gerald R ^b   Newman, Stanton ^c   Osborne, Richard H ^b  

^a CHARITÉ UNIVERSITÄTSMEDIZIN BERLIN   (Germany)

^b DEAKIN UNIVERSITY   (Australia)

^c CITY UNIVERSITY   (United Kingdom)

Author keywords

Bias; Chronic disease; Outcomes assessment; Patient education; Program evaluation; PROMs; Quality of life; Self management

Indexed keywords

ARTICLE; CHRONIC DISEASE; HUMAN; METHODOLOGY; OUTCOME ASSESSMENT; PATIENT EDUCATION; PROGRAM EVALUATION; QUALITY OF LIFE; SELF CARE; PROCEDURES;

CHRONIC DISEASE; HUMANS; OUTCOME ASSESSMENT (HEALTH CARE); PATIENT EDUCATION AS TOPIC; PROGRAM EVALUATION; QUALITY OF LIFE; RESEARCH DESIGN; SELF CARE;

EID: 84884412009     PISSN: 09629343     EISSN: None     Source Type: Journal    
DOI: 10.1007/s11136-012-0317-1     Document Type: Article

References (46)

1. Wagner, E.; Davis, C.; Schaefer, J.; Von Korff, M.; & Austin, B. (1999). A survey of leading chronic disease management programs: Are they consistent with the literature? Managed Care Quarterly, 7(3), 56-66.
2. World Health Organization. (2002). Innovative care for chronic conditions: building blocks for action. Geneva: World Health Organization.
3. Newman, S.; Steed, L.; & Mulligan, K. (2004). Self-management interventions for chronic illness. Lancet, 364(9444), 1523-1537.
4. Barlow, J.; Wright, C.; Sheasby, J.; Turner, A.; & Hainsworth, J. (2002). Self-management approaches for people with chronic conditions: a review. Patient Education and Counseling, 48(2), 177-187.
5. Lorig, K. R.; González, V. M.; & Laurent, D. D. (1999). The chronic disease self-management program: Leaders manual. Palo Alto: Stanford University.
6. Lorig, K. R. (2003). Editorial - self-management education: More than a nice extra. Medical Care, 41(6), 699-701.
7. Chodosh, J.; Morton, S. C.; Mojica, W.; Maglione, M.; Suttorp, M. J.; Hilton, L.; et al. (2005). Meta-analysis: chronic disease self-management programs for older adults. Annals of Internal Medicine, 143(6), 427-438.
8. Warsi, A.; Wang, P. S.; LaValley, M. P.; Avorn, J.; & Solomon, D. H. (2004). Self-management education programs in chronic disease: A systematic review and methodological critique of the literature. Archives of Internal Medicine, 164(15), 1641-1649.
9. Astin, J. A.; Beckner, W.; Soeken, K.; Hochberg, M. C.; & Berman, B. (2002). Psychological interventions for rheumatoid arthritis: A meta-analysis of randomized controlled trials. Arthritis and Rheumatism, 47(3), 291-302.
10. Devos-Comby, L.; Cronan, T.; & Roesch, S. C. (2006). Do exercise and self-management interventions benefit patients with osteoarthritis of the knee? A metaanalytic review. The Journal of Rheumatology, 33(4), 744-756.
11. Warsi, A.; LaValley, M. P.; Wang, P. S.; Avorn, J.; & Solomon, D. H. (2003). Arthritis self-management education programs: A meta-analysis of the effect on pain and disability. Arthritis and Rheumatism, 48(8), 2207-2213.
12. March, L.; Amatya, B.; Osborne, R.; & Brand, C. (2010). Developing a minimum standard of care for treating people with osteoarthritis of the hip and knee. Best Practice & Research Clinical rheumatology, 24(1), 121-145.
13. Schwartz, C. E.; & Rapkin, B. D. (2004). Reconsidering the psychometrics of quality of life assessment in light of response shift and appraisal. Health Qual Life Outcomes Retrieved April 15, 2006, from http://www.hqlo.com/content/2/1/16.
14. Schwarz, N.; & Strack, F. (1985). Cognitive and affective processes in judgements of subjective well-being: A preliminary model. In H. Brandstatter & E. Kirchler (Eds.), Economic psychology (pp. 439-447). Linz, Austria: R. Tauner.
15. Tourangeau, R.; & Rasinski, K. (1988). Cognitive processes underlying context effects in attitude measurement. Psychological Bulletin, 103, 299-314.
16. Krosnick, J. A. (1999). Survey research. Annual Review of Psychology, 50, 537-567.
17. Crowne, D. P.; & Marlowe, D. (1964). The approval motive: Studies in evaluative dependence. New York, London, Sydney: Wiley.
18. Sprangers, M. A. G.; & Schwartz, C. E. (1999). Integrating response shift into health-related quality of life research: A theoretical model. Social Science and Medicine, 48(11), 1507-1515.
19. Schwartz, C. E.; & Sprangers, M. A. G. (1999). Methodological approaches for assessing response shift in longitudinal health-related quality-of-life research. Social Science and Medicine, 48(11), 1531-1548.
20. Nolte, S.; & Osborne, R. H. (2012). A systematic review of outcomes of chronic disease self-management interventions. Quality of Life Research [Epub ahead of print 2012 Oct 31].
21. Lorig, K.; Lubeck, D.; Kraines, R. G.; Seleznick, M.; & Holman, H. R. (1985). Outcomes of self-help education for patients with arthritis. Arthritis and Rheumatism, 28(6), 680-685.
22. Cohen, J. (1988). Statistical power analysis for the behavioural sciences (2nd ed.). Hillsdale, NJ: Lawrence Erlbaum Associates.
23. Heuts, P. H. T. G.; de Bie, R.; Drietelaar, M.; Aretz, K.; Hopman-Rock, M.; Bastiaenen, C. H. G.; et al. (2005). Self-management in osteoarthritis of hip or knee: A randomized clinical trial in a primary healthcare setting. The Journal of Rheumatology, 32(3), 543-549.
24. Hopman-Rock, M.; & Westhoff, M. H. (2000). The effects of a health educational and exercise program for older adults with osteoarthritis of the hip or knee. The Journal of Rheumatology, 27(8), 1947-1954.
25. Keefe, F. J.; Caldwell, D. S.; Wiliams, D. A.; Gil, K. M.; Mitchell, D.; Robertson, C.; et al. (1990). Pain coping skills training in the management of osteoarthritic knee pain: A comparative study. Behavior Therapy, 21, 49-62.
26. Barlow, J. H.; Turner, A. P.; & Wright, C. C. (2000). A randomized controlled study of the Arthritis self-management programme in the UK. Health Education Research, 15(6), 665-680.
27. Lorig, K.; Feigenbaum, P.; Regan, C.; Ung, E.; Chastain, R. L.; & Holman, H. R. (1986). A comparison of lay-taught and professional-taught arthritis self-management courses. Journal of Rheumatology, 13(4), 763-767.
28. Lorig, K.; González, V. M.; & Ritter, P. (1999). Community-based Spanish language arthritis education program: A randomized trial. Medical Care, 37(9), 957-963.
29. Lorig, K.; Seleznick, M.; Lubeck, D.; Ung, E.; Chastain, R. L.; & Holman, H. R. (1989). The beneficial outcomes of the arthritis self-management course are not adequately explained by behavior change. Arthritis and Rheumatism, 32(1), 91-95.
30. Goeppinger, J.; Arthur, M. W.; Baglioni, A. J.; Jr, Brunk, S. E.; & Brunner, C. M. (1989). A reexamination of the effectiveness of self-care education for persons with arthritis. Arthritis and Rheumatism, 32(6), 706-716.
31. Scholten, C.; Brodowicz, T.; Graninger, W.; Gardavsky, I.; Pils, K.; Pesau, B.; et al. (1999). Persistent functional and social benefit 5 years after a multidisciplinary arthritis training program. Archives of Physical Medicine and Rehabilitation, 80, 1282-1287.
32. Taal, E.; Riemsma, R. P.; Brus, H. L.; Seydel, E. R.; Rasker, J. J.; & Wiegman, O. (1993). Group education for patients with rheumatoid arthritis. Patient Education and Counseling, 20(2-3), 177-187.
33. Haas, M.; Groupp, E.; Muench, J.; Kraemer, D.; Brummel-Smith, K.; Sharma, R.; et al. (2005). Chronic disease self-management program for low back pain in the elderly. Journal of Manipulative and Physiological Therapeutics, 28(4), 228-237.
34. Von Korff, M.; Moore, J. E.; Lorig, K.; Cherkin, D. C.; Saunders, K.; González, V. M.; et al. (1998). A randomized trial of a lay person-led self-management group intervention for back pain patients in primary care. Spine, 23(23), 2608-2615.
35. LeFort, S. M.; Gray-Donald, K.; Rowat, K. M.; & Jeans, M. E. (1998). Randomized controlled trial of a community-based psychoeducation program for the self-management of chronic pain. Pain, 74(2-3), 297-306.
36. Burckhardt, C. S.; Mannerkorpi, K.; Hedenberg, L.; & Bjelle, A. (1994). A randomized, controlled clinical trial of education and physical training for women with fibromyalgia. Journal of Rheumatology, 21, 714-720.
37. Fu, D.; Fu, H.; McGowan, P.; Shen, Y.-E.; Zhu, L.; Yang, H.; et al. (2003). Implementation and quantitative evaluation of chronic disease self-management programme in Shanghai, China: Randomized controlled trial. Bulletin of the World Health Organization, 81(3), 174-182.
38. Griffiths, C.; Motlib, J.; Azad, A.; Ramsay, J.; Eldridge, S.; Feder, G.; et al. (2005). Randomised controlled trial of a lay-led self-management programme for Bangladeshi patients with chronic disease. British Journal of General Practice, 55, 831-837.
39. Lorig, K. R.; Ritter, P. L.; & González, V. M. (2003). Hispanic chronic disease self-management - a randomized community-based outcome trial. Nursing Research, 52(6), 361-369.
40. Lorig, K. R.; Sobel, D. S.; Stewart, A. L.; Brown, B. W.; Bandura, A.; Ritter, P.; et al. (1999). Evidence suggesting that a chronic disease self-management program can improve health status while reducing hospitalization. Medical Care, 37(1), 5-14.
41. Gibbons, F. X. (1999). Social comparison as a mediator of response shift. Social Science and Medicine, 48(11), 1517-1530.
42. Prochaska, J. O.; Redding, C. A.; & Evers, K. E. (2008). The transtheoretical model and stages of change. In K. Glanz, F. M. Lewis, & B. K. Rimer (Eds.), Health behavior and health education: Theory, research, and practice (4th ed.; pp. 97-122). San Francisco: Wiley.
43. Buunk, B.; Gibbons, F.; & Visser, A. (2002). The relevance of social comparison processes for prevention and health care. Patient Education and Counseling, 47, 1-3.
44. Osborne, R. H.; Batterham, R.; & Livingston, J. (2011). The evaluation of chronic disease self-management support across settings: The international experience of the health education impact questionnaire monitoring system. Nursing Clinics of North America, 46(3), 255-270.
45. Brady, T. (1997). Do common arthritis self-efficacy measures really measure self-efficacy? Arthritis Care and Research, 10(1), 1-8.
46. Osborne, R. H.; Elsworth, G. R.; & Whitfield, K. (2007). The health education impact questionnaire (heiQ): An outcomes and evaluation measure for patient education and self-management interventions for people with chronic conditions. Patient Education and Counseling, 66, 192-201.