메뉴 건너뛰기




Volumn 9, Issue 12, 2014, Pages

Current practice of public involvement activities in biomedical research and innovation: A systematic qualitative review

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; BIOINFORMATICS; BIOMEDICAL TECHNOLOGY ASSESSMENT; CONCEPTUAL FRAMEWORK; CONSENSUS DEVELOPMENT; DATA ANALYSIS; DATA BASE; DATA EXTRACTION; ELECTRONIC DATA INTERCHANGE; HEALTH CARE PLANNING; HEALTH CARE POLICY; HUMAN; INTERMETHOD COMPARISON; MEDICAL ETHICS; MEDICAL LITERATURE; MEDICAL PRACTICE; MEDICAL RESEARCH; PUBLIC INVOLVEMENT ACTIVITIES; PUBLIC RELATIONS; PUBLICATION; QUALITATIVE RESEARCH; SOCIAL PARTICIPATION; SYSTEMATIC REVIEW; THEMATIC ANALYSIS; TRANSLATIONAL RESEARCH; CONSUMER; ETHICS; PUBLIC OPINION;

EID: 84915818921     PISSN: None     EISSN: 19326203     Source Type: Journal    
DOI: 10.1371/journal.pone.0113274     Document Type: Article
Times cited : (22)

References (77)
  • 2
    • 84915794090 scopus 로고    scopus 로고
    • Emerging biotechnologies: Technology, choice and the public good
    • 978-1-904384-27-4 978-1-904384-27-4
    • Nuffield Council on Bioethics (2012) Emerging biotechnologies: technology, choice and the public good. Nuffield Council on Bioethics. 978-1-904384-27-4 978-1-904384-27-4.
    • (2012) Nuffield Council on Bioethics
    • Nuffield Council on Bioethics1
  • 3
    • 67449097690 scopus 로고    scopus 로고
    • Engaging the public on biobanks: Outcomes of the BC biobank deliberation
    • O'Doherty KC, Burgess MM (2009) Engaging the public on biobanks: outcomes of the BC biobank deliberation. Public Health Genomics 12:203-215.
    • (2009) Public Health Genomics , vol.12 , pp. 203-215
    • O'Doherty, K.C.1    Burgess, M.M.2
  • 4
    • 77951473507 scopus 로고    scopus 로고
    • Structuring public engagement for effective input in policy development on human tissue biobanking
    • O'Doherty KC, Hawkins A (2010) Structuring public engagement for effective input in policy development on human tissue biobanking. Public Health Genomics 13:197-206.
    • (2010) Public Health Genomics , vol.13 , pp. 197-206
    • O'Doherty, K.C.1    Hawkins, A.2
  • 13
    • 0038293333 scopus 로고    scopus 로고
    • Deliberations about deliberative methods: Issues in the design and evaluation of public participation processes
    • Abelson J, Forest PG, Eyles J, Smith P, Martin E, et al. (2003) Deliberations about deliberative methods: issues in the design and evaluation of public participation processes. Soc Sci Med 57:239-251.
    • (2003) Soc Sci Med , vol.57 , pp. 239-251
    • Abelson, J.1    Forest, P.G.2    Eyles, J.3    Smith, P.4    Martin, E.5
  • 16
    • 84925361959 scopus 로고    scopus 로고
    • What is the evidence base for public involvement in health-care policy?: Results of a systematic scoping review
    • Conklin A, Morris Z, Nolte E (2012) What is the evidence base for public involvement in health-care policy?: results of a systematic scoping review. Health Expect.
    • (2012) Health Expect
    • Conklin, A.1    Morris, Z.2    Nolte, E.3
  • 17
    • 80053139138 scopus 로고    scopus 로고
    • A framework for assessing the quality of democratic deliberation: Enhancing deliberation as a tool for bioethics
    • De Vries R, Stanczyk AE, Ryan KA, Kim SY (2011) A framework for assessing the quality of democratic deliberation: enhancing deliberation as a tool for bioethics. J Empir Res Hum Res Ethics 6:3-17.
    • (2011) J Empir Res Hum Res Ethics , vol.6 , pp. 3-17
    • De Vries, R.1    Stanczyk, A.E.2    Ryan, K.A.3    Kim, S.Y.4
  • 18
    • 84858965961 scopus 로고    scopus 로고
    • An uneven spread: A review of public involvement in the National Institute of Health Research's Health Technology Assessment program
    • Moran R, Davidson P (2011) An uneven spread: a review of public involvement in the National Institute of Health Research's Health Technology Assessment program. Int J Technol Assess Health Care 27:343-347.
    • (2011) Int J Technol Assess Health Care , vol.27 , pp. 343-347
    • Moran, R.1    Davidson, P.2
  • 19
    • 77349093263 scopus 로고    scopus 로고
    • Public involvement at the design stage of primary health research: A narrative review of case examples
    • Boote J, Baird W, Beecroft C (2010) Public involvement at the design stage of primary health research: a narrative review of case examples. Health Policy 95:10-23.
    • (2010) Health Policy , vol.95 , pp. 10-23
    • Boote, J.1    Baird, W.2    Beecroft, C.3
  • 20
    • 0346009569 scopus 로고    scopus 로고
    • Evaluating public-participation exercises: A research agenda
    • Rowe G, Frewer LJ (2004) Evaluating Public-Participation Exercises: A Research Agenda. Science, Technology & Human Values 29:512-556.
    • (2004) Science, Technology & Human Values , vol.29 , pp. 512-556
    • Rowe, G.1    Frewer, L.J.2
  • 21
    • 77951471331 scopus 로고    scopus 로고
    • Involving the Public in Public Health Genomics. A review of guidelines and policy statements
    • Avard D, Grégoire G, Jean M (2008) Involving the Public in Public Health Genomics. A review of guidelines and policy statements. Gen Edit 6:1-9.
    • (2008) Gen Edit , vol.6 , pp. 1-9
    • Avard, D.1    Grégoire, G.2    Jean, M.3
  • 23
    • 0034347168 scopus 로고    scopus 로고
    • Public participation methods: A framework for evaluation
    • Rowe G, Frewer LJ (2000) Public Participation Methods: A Framework for Evaluation. Science, Technology & Human Values 25:3-29.
    • (2000) Science, Technology & Human Values , vol.25 , pp. 3-29
    • Rowe, G.1    Frewer, L.J.2
  • 28
    • 57349167685 scopus 로고    scopus 로고
    • Public expectations for return of results from large-cohort genetic research
    • Murphy J, Scott J, Kaufman D, Geller G, Le Roy L, et al. (2008) Public expectations for return of results from large-cohort genetic research. Am J Bioeth 8:36-43.
    • (2008) Am J Bioeth , vol.8 , pp. 36-43
    • Murphy, J.1    Scott, J.2    Kaufman, D.3    Geller, G.4    Le Roy, L.5
  • 29
    • 84877652713 scopus 로고    scopus 로고
    • Blueprint for a deliberative public forum on biobanking policy: Were theoretical principles achievable in practice?
    • Molster C, Maxwell S, Youngs L, Kyne G, Hope F, et al. (2013) Blueprint for a deliberative public forum on biobanking policy: were theoretical principles achievable in practice? Health Expect 16:211-224.
    • (2013) Health Expect , vol.16 , pp. 211-224
    • Molster, C.1    Maxwell, S.2    Youngs, L.3    Kyne, G.4    Hope, F.5
  • 30
    • 84857064683 scopus 로고    scopus 로고
    • An Australian approach to the policy translation of deliberated citizen perspectives on biobanking
    • Molster C, Maxwell S, Youngs L, Potts A, Kyne G, et al. (2012) An Australian approach to the policy translation of deliberated citizen perspectives on biobanking. Public Health Genomics 15:82-91.
    • (2012) Public Health Genomics , vol.15 , pp. 82-91
    • Molster, C.1    Maxwell, S.2    Youngs, L.3    Potts, A.4    Kyne, G.5
  • 32
    • 84865653047 scopus 로고    scopus 로고
    • Involving citizens in the ethics of biobank research: Informing institutional policy through structured public deliberation
    • O'Doherty KC, Hawkins AK, Burgess MM (2012) Involving citizens in the ethics of biobank research: informing institutional policy through structured public deliberation. Soc Sci Med 75:1604-1611.
    • (2012) Soc Sci Med , vol.75 , pp. 1604-1611
    • O'Doherty, K.C.1    Hawkins, A.K.2    Burgess, M.M.3
  • 33
    • 18944388901 scopus 로고    scopus 로고
    • 'Even if they ask you to stand by a tree all day, you will have to do it (laughter) ⋯!': Community voices on the notion and practice of informed consent for biomedical research in developing countries
    • Molyneux CS, Wassenaar DR, Peshu N, Marsh K (2005) 'Even if they ask you to stand by a tree all day, you will have to do it (laughter) ⋯!': community voices on the notion and practice of informed consent for biomedical research in developing countries. Soc Sci Med 61:443-454.
    • (2005) Soc Sci Med , vol.61 , pp. 443-454
    • Molyneux, C.S.1    Wassenaar, D.R.2    Peshu, N.3    Marsh, K.4
  • 34
    • 84942294578 scopus 로고    scopus 로고
    • Values associated with public involvement in health and social care research: A narrative review
    • Gradinger F, Britten N, Wyatt K, Froggatt K, Gibson A, et al. (2013) Values associated with public involvement in health and social care research: a narrative review. Health Expect.
    • (2013) Health Expect
    • Gradinger, F.1    Britten, N.2    Wyatt, K.3    Froggatt, K.4    Gibson, A.5
  • 35
    • 33646682159 scopus 로고    scopus 로고
    • Deliberative impacts: The macro-political uptake of mini-publics
    • Goodin RE, Dryzek JS (2006) Deliberative Impacts: The Macro-Political Uptake of Mini-Publics. Politics & Society 34:219-244.
    • (2006) Politics & Society , vol.34 , pp. 219-244
    • Goodin, R.E.1    Dryzek, J.S.2
  • 36
    • 46049085015 scopus 로고    scopus 로고
    • Generation Scotland: Consulting publics and specialists at an early stage in a genetic database's development
    • Haddow G, Cunningham-Burley S, Bruce A, Parry S (2008) Generation Scotland: consulting publics and specialists at an early stage in a genetic database's development. Critical Public Health 18:139-149.
    • (2008) Critical Public Health , vol.18 , pp. 139-149
    • Haddow, G.1    Cunningham-Burley, S.2    Bruce, A.3    Parry, S.4
  • 38
    • 34147214767 scopus 로고    scopus 로고
    • Examining the role of context in the implementation of a deliberative public participation experiment: Results from a Canadian comparative study
    • Abelson J, Forest PG, Eyles J, Casebeer A, Martin E, et al. (2007) Examining the role of context in the implementation of a deliberative public participation experiment: results from a Canadian comparative study. Soc Sci Med 64:2115-2128.
    • (2007) Soc Sci Med , vol.64 , pp. 2115-2128
    • Abelson, J.1    Forest, P.G.2    Eyles, J.3    Casebeer, A.4    Martin, E.5
  • 39
    • 84873345553 scopus 로고    scopus 로고
    • Beliefs and attitudes towards participating in genetic research - A population based cross-sectional study
    • Kerath SM, Klein G, Kern M, Shapira I, Witthuhn J, et al. (2013) Beliefs and attitudes towards participating in genetic research - a population based cross-sectional study. BMC Public Health 13:114.
    • (2013) BMC Public Health , vol.13 , pp. 114
    • Kerath, S.M.1    Klein, G.2    Kern, M.3    Shapira, I.4    Witthuhn, J.5
  • 40
    • 84875830659 scopus 로고    scopus 로고
    • Do canadian researchers and the lay public prioritize biomedical research outcomes equally? A choice experiment
    • Miller FA, Mentzakis E, Axler R, Lehoux P, French M, et al. (2013) Do canadian researchers and the lay public prioritize biomedical research outcomes equally? A choice experiment. Acad Med 88:519-526.
    • (2013) Acad Med , vol.88 , pp. 519-526
    • Miller, F.A.1    Mentzakis, E.2    Axler, R.3    Lehoux, P.4    French, M.5
  • 42
    • 84866347308 scopus 로고    scopus 로고
    • Attitudes of African-American parents about biobank participation and return of results for themselves and their children
    • Halverson CM, Ross LF (2012) Attitudes of African-American parents about biobank participation and return of results for themselves and their children. J Med Ethics 38:561-566.
    • (2012) J Med Ethics , vol.38 , pp. 561-566
    • Halverson, C.M.1    Ross, L.F.2
  • 43
    • 84893094390 scopus 로고    scopus 로고
    • Community perceptions of genomic research: Implications for addressing health disparities
    • Isler MR, Sutton K, Cadigan RJ, Corbie-Smith G (2013) Community perceptions of genomic research: implications for addressing health disparities. N C Med J 74:470-476.
    • (2013) N C Med J , vol.74 , pp. 470-476
    • Isler, M.R.1    Sutton, K.2    Cadigan, R.J.3    Corbie-Smith, G.4
  • 44
    • 84876692293 scopus 로고    scopus 로고
    • Public support and consent preference for biomedical research and biobanking in Jordan
    • Ahram M, Othman A, Shahrouri M (2013) Public support and consent preference for biomedical research and biobanking in Jordan. Eur J Hum Genet 21:567-570.
    • (2013) Eur J Hum Genet , vol.21 , pp. 567-570
    • Ahram, M.1    Othman, A.2    Shahrouri, M.3
  • 45
    • 84863393820 scopus 로고    scopus 로고
    • Public attitudes regarding the use of residual newborn screening specimens for research
    • Botkin JR, Rothwell E, Anderson R, Stark L, Goldenberg A, et al. (2012) Public attitudes regarding the use of residual newborn screening specimens for research. Pediatrics 129:231-238.
    • (2012) Pediatrics , vol.129 , pp. 231-238
    • Botkin, J.R.1    Rothwell, E.2    Anderson, R.3    Stark, L.4    Goldenberg, A.5
  • 46
    • 85027908487 scopus 로고    scopus 로고
    • Personal privacy, public benefits, and biobanks: A conjoint analysis of policy priorities and public perceptions
    • Pullman D, Etchegary H, Gallagher K, Hodgkinson K, Keough M, et al. (2011) Personal privacy, public benefits, and biobanks: A conjoint analysis of policy priorities and public perceptions. Genet Med.
    • (2011) Genet Med
    • Pullman, D.1    Etchegary, H.2    Gallagher, K.3    Hodgkinson, K.4    Keough, M.5
  • 47
  • 48
    • 84857867890 scopus 로고    scopus 로고
    • Consequences of media information uptake and deliberation: Focus groups' symbolic coping with synthetic biology
    • Kronberger N, Holtz P, Wagner W (2012) Consequences of media information uptake and deliberation: focus groups' symbolic coping with synthetic biology. Public Underst Sci 21:174-187.
    • (2012) Public Underst Sci , vol.21 , pp. 174-187
    • Kronberger, N.1    Holtz, P.2    Wagner, W.3
  • 49
    • 84863407753 scopus 로고    scopus 로고
    • Assessing public attitudes on the retention and use of residual newborn screening blood samples: A focus group study
    • Rothwell E, Anderson R, Goldenberg A, Lewis MH, Stark L, et al. (2012) Assessing public attitudes on the retention and use of residual newborn screening blood samples: a focus group study. Soc Sci Med 74:1305-1309.
    • (2012) Soc Sci Med , vol.74 , pp. 1305-1309
    • Rothwell, E.1    Anderson, R.2    Goldenberg, A.3    Lewis, M.H.4    Stark, L.5
  • 50
    • 84862643267 scopus 로고    scopus 로고
    • Benefit sharing and biobanking in Australia
    • Nicol D, Critchley C (2012) Benefit sharing and biobanking in Australia. Public Underst Sci 21:534-555.
    • (2012) Public Underst Sci , vol.21 , pp. 534-555
    • Nicol, D.1    Critchley, C.2
  • 51
    • 77952529089 scopus 로고    scopus 로고
    • Examining the public refusal to consent to DNA biobanking: Empirical data from a Swedish population-based study
    • Melas PA, Sjoholm LK, Forsner T, Edhborg M, Juth N, et al. (2010) Examining the public refusal to consent to DNA biobanking: empirical data from a Swedish population-based study. J Med Ethics 36:93-98.
    • (2010) J Med Ethics , vol.36 , pp. 93-98
    • Melas, P.A.1    Sjoholm, L.K.2    Forsner, T.3    Edhborg, M.4    Juth, N.5
  • 52
    • 77957897118 scopus 로고    scopus 로고
    • Saudi views on consenting for research on medical records and leftover tissue samples
    • Al-Qadire MM, Hammami MM, Abdulhameed HM, Al Gaai EA (2010) Saudi views on consenting for research on medical records and leftover tissue samples. BMC Med Ethics 11:18.
    • (2010) BMC Med Ethics , vol.11 , pp. 18
    • Al-Qadire, M.M.1    Hammami, M.M.2    Abdulhameed, H.M.3    Al Gaai, E.A.4
  • 53
    • 77958100713 scopus 로고    scopus 로고
    • Collection, storage and use of blood samples for future research: Views of Egyptian patients expressed in a cross-sectional survey
    • Abou-Zeid A, Silverman H, Shehata M, Shams M, Elshabrawy M, et al. (2010) Collection, storage and use of blood samples for future research: views of Egyptian patients expressed in a cross-sectional survey. J Med Ethics 36:539-547.
    • (2010) J Med Ethics , vol.36 , pp. 539-547
    • Abou-Zeid, A.1    Silverman, H.2    Shehata, M.3    Shams, M.4    Elshabrawy, M.5
  • 54
    • 77749260871 scopus 로고    scopus 로고
    • Public attitudes to genomic science: An experiment in information provision
    • Sturgis P, Brunton-Smith I, Fife-Schaw C (2010) Public attitudes to genomic science: an experiment in information provision. Public Underst Sci 19:166-180.
    • (2010) Public Underst Sci , vol.19 , pp. 166-180
    • Sturgis, P.1    Brunton-Smith, I.2    Fife-Schaw, C.3
  • 55
    • 76249122986 scopus 로고    scopus 로고
    • Attitudes towards biomedical use of tissue sample collections, consent, and biobanks among Finns
    • Tupasela A, Sihvo S, Snell K, Jallinoja P, Aro AR, et al. (2010) Attitudes towards biomedical use of tissue sample collections, consent, and biobanks among Finns. Scand J Public Health 38:46-52.
    • (2010) Scand J Public Health , vol.38 , pp. 46-52
    • Tupasela, A.1    Sihvo, S.2    Snell, K.3    Jallinoja, P.4    Aro, A.R.5
  • 56
    • 70249122789 scopus 로고    scopus 로고
    • Pediatric biobanks: Approaching informed consent for continuing research after children grow up
    • Goldenberg AJ, Hull SC, Botkin JR, Wilfond BS (2009) Pediatric biobanks: approaching informed consent for continuing research after children grow up. J Pediatr 155:578-583.
    • (2009) J Pediatr , vol.155 , pp. 578-583
    • Goldenberg, A.J.1    Hull, S.C.2    Botkin, J.R.3    Wilfond, B.S.4
  • 57
    • 77954825531 scopus 로고    scopus 로고
    • Ethnocultural community leaders' views and perceptions on biobanks and population specific genomic research: A qualitative research study
    • Godard B, Ozdemir V, Fortin M, Egalite N (2010) Ethnocultural community leaders' views and perceptions on biobanks and population specific genomic research: a qualitative research study. Public Underst Sci 19:469-485.
    • (2010) Public Underst Sci , vol.19 , pp. 469-485
    • Godard, B.1    Ozdemir, V.2    Fortin, M.3    Egalite, N.4
  • 58
    • 79958106994 scopus 로고    scopus 로고
    • Public involvement in pharmacogenomics research: A national survey on patients' attitudes towards pharmacogenomics research and the willingness to donate DNA samples to a DNA bank in Japan
    • Kobayashi E, Sakurada T, Ueda S, Satoh N (2011) Public involvement in pharmacogenomics research: a national survey on patients' attitudes towards pharmacogenomics research and the willingness to donate DNA samples to a DNA bank in Japan. Cell Tissue Bank 12:71-80.
    • (2011) Cell Tissue Bank , vol.12 , pp. 71-80
    • Kobayashi, E.1    Sakurada, T.2    Ueda, S.3    Satoh, N.4
  • 59
    • 80855148238 scopus 로고    scopus 로고
    • Motivations and perceptions of early adopters of personalized genomics: Perspectives from research participants
    • Gollust SE, Gordon ES, Zayac C, Griffin G, Christman MF, et al. (2012) Motivations and perceptions of early adopters of personalized genomics: perspectives from research participants. Public Health Genomics 15:22-30.
    • (2012) Public Health Genomics , vol.15 , pp. 22-30
    • Gollust, S.E.1    Gordon, E.S.2    Zayac, C.3    Griffin, G.4    Christman, M.F.5
  • 60
    • 67649780555 scopus 로고    scopus 로고
    • Why do people refuse to take part in biomedical research studies? Evidence from a resource-poor area
    • Mfutso-Bengo J, Masiye F, Molyneux M, Ndebele P, Chilungo A (2008) Why do people refuse to take part in biomedical research studies? Evidence from a resource-poor area. Malawi Med J 20:57-63.
    • (2008) Malawi Med J , vol.20 , pp. 57-63
    • Mfutso-Bengo, J.1    Masiye, F.2    Molyneux, M.3    Ndebele, P.4    Chilungo, A.5
  • 61
    • 34648834075 scopus 로고    scopus 로고
    • Willingness of minorities to participate in biomedical studies: Confirmatory findings from a follow-up study using the Tuskegee Legacy Project Questionnaire
    • Katz RV, Green BL, Kressin NR, Claudio C, Wang MQ, et al. (2007) Willingness of minorities to participate in biomedical studies: confirmatory findings from a follow-up study using the Tuskegee Legacy Project Questionnaire. J Natl Med Assoc 99:1052-1060.
    • (2007) J Natl Med Assoc , vol.99 , pp. 1052-1060
    • Katz, R.V.1    Green, B.L.2    Kressin, N.R.3    Claudio, C.4    Wang, M.Q.5
  • 62
    • 34250316645 scopus 로고    scopus 로고
    • Towards an understanding of British public attitudes concerning human cloning
    • Shepherd R, Barnett J, Cooper H, Coyle A, Moran-Ellis J, et al. (2007) Towards an understanding of British public attitudes concerning human cloning. Soc Sci Med 65:377-392.
    • (2007) Soc Sci Med , vol.65 , pp. 377-392
    • Shepherd, R.1    Barnett, J.2    Cooper, H.3    Coyle, A.4    Moran-Ellis, J.5
  • 63
    • 34250650978 scopus 로고    scopus 로고
    • Community engagement in genetic research: Results of the first public consultation for the Quebec CARTaGENE project
    • Godard B, Marshall J, Laberge C (2007) Community engagement in genetic research: results of the first public consultation for the Quebec CARTaGENE project. Community Genet 10:147-158.
    • (2007) Community Genet , vol.10 , pp. 147-158
    • Godard, B.1    Marshall, J.2    Laberge, C.3
  • 64
    • 10444250930 scopus 로고    scopus 로고
    • Employees' perspectives on ethically important aspects of genetic research participation: A pilot study
    • Roberts LW, Warner TD, Geppert CM, Rogers M, Green Hammond KA (2005) Employees' perspectives on ethically important aspects of genetic research participation: a pilot study. Compr Psychiatry 46:27-33.
    • (2005) Compr Psychiatry , vol.46 , pp. 27-33
    • Roberts, L.W.1    Warner, T.D.2    Geppert, C.M.3    Rogers, M.4    Green Hammond, K.A.5
  • 65
    • 3242769268 scopus 로고    scopus 로고
    • The Tuskegee Study of Untreated Syphilis and public perceptions of biomedical research: A focus group study
    • Bates BR, Harris TM (2004) The Tuskegee Study of Untreated Syphilis and public perceptions of biomedical research: a focus group study. J Natl Med Assoc 96:1051-1064.
    • (2004) J Natl Med Assoc , vol.96 , pp. 1051-1064
    • Bates, B.R.1    Harris, T.M.2
  • 66
    • 7544250377 scopus 로고    scopus 로고
    • Warranted concerns, warranted outlooks: A focus group study of public understandings of genetic research
    • Bates BR, Lynch JA, Bevan JL, Condit CM (2005) Warranted concerns, warranted outlooks: a focus group study of public understandings of genetic research. Soc Sci Med 60:331-344.
    • (2005) Soc Sci Med , vol.60 , pp. 331-344
    • Bates, B.R.1    Lynch, J.A.2    Bevan, J.L.3    Condit, C.M.4
  • 67
    • 5644247984 scopus 로고    scopus 로고
    • Concerns over participation in genetic research among Malay-Muslims, Chinese and Indians in Singapore: A focus group study
    • Wong ML, Chia KS, Wee S, Chia SE, Lee J, et al. (2004) Concerns over participation in genetic research among Malay-Muslims, Chinese and Indians in Singapore: a focus group study. Community Genet 7:44-54.
    • (2004) Community Genet , vol.7 , pp. 44-54
    • Wong, M.L.1    Chia, K.S.2    Wee, S.3    Chia, S.E.4    Lee, J.5
  • 68
    • 0012599027 scopus 로고    scopus 로고
    • Parents' and children's attitudes toward the enrollment of minors in genetic susceptibility research: Implications for informed consent
    • Bernhardt BA, Tambor ES, Fraser G, Wissow LS, Geller G (2003) Parents' and children's attitudes toward the enrollment of minors in genetic susceptibility research: implications for informed consent. Am J Med Genet A 116 a: 315-323.
    • (2003) Am J Med Genet A , vol.116 A , pp. 315-323
    • Bernhardt, B.A.1    Tambor, E.S.2    Fraser, G.3    Wissow, L.S.4    Geller, G.5
  • 69
    • 0012113097 scopus 로고    scopus 로고
    • Health through gene tests? Acceptance of and concerns about genetic testing in a German representative sample
    • Berth H, Dinkel A, Balck F (2002) Health through gene tests? Acceptance of and concerns about genetic testing in a German representative sample. Zeitschrift fü r Gesundheitspsychologie 10:97-107.
    • (2002) Zeitschrift Fü R Gesundheitspsychologie , vol.10 , pp. 97-107
    • Berth, H.1    Dinkel, A.2    Balck, F.3
  • 70
    • 84883730870 scopus 로고    scopus 로고
    • Managing misaligned paternity findings in research including sickle cell disease screening in Kenya: 'Consulting communities' to inform policy
    • Marsh V, Kombe F, Fitzpatrick R, Molyneux S, Parker M (2013) Managing misaligned paternity findings in research including sickle cell disease screening in Kenya: 'consulting communities' to inform policy. Soc Sci Med 96:192-199.
    • (2013) Soc Sci Med , vol.96 , pp. 192-199
    • Marsh, V.1    Kombe, F.2    Fitzpatrick, R.3    Molyneux, S.4    Parker, M.5
  • 71
    • 84856547266 scopus 로고    scopus 로고
    • Citizens' values regarding research with stored samples from newborn screening in Canada
    • Bombard Y, Miller FA, Hayeems RZ, Carroll JC, Avard D, et al. (2012) Citizens' values regarding research with stored samples from newborn screening in Canada. Pediatrics 129:239-247.
    • (2012) Pediatrics , vol.129 , pp. 239-247
    • Bombard, Y.1    Miller, F.A.2    Hayeems, R.Z.3    Carroll, J.C.4    Avard, D.5
  • 73
    • 49749130471 scopus 로고    scopus 로고
    • Engaging the public in priority-setting for health technology assessment: Findings from a citizens' jury
    • Menon D, Stafinski T (2008) Engaging the public in priority-setting for health technology assessment: findings from a citizens' jury. Health Expect 11:282-293.
    • (2008) Health Expect , vol.11 , pp. 282-293
    • Menon, D.1    Stafinski, T.2
  • 74
    • 59649110565 scopus 로고    scopus 로고
    • Informed consent in biobank research: A deliberative approach to the debate
    • Secko DM, Preto N, Niemeyer S, Burgess MM (2009) Informed consent in biobank research: a deliberative approach to the debate. Soc Sci Med 68:781-789.
    • (2009) Soc Sci Med , vol.68 , pp. 781-789
    • Secko, D.M.1    Preto, N.2    Niemeyer, S.3    Burgess, M.M.4
  • 75
  • 76
    • 57149115791 scopus 로고    scopus 로고
    • Community consultation and communication for a population-based DNA biobank: The Marshfield clinic personalized medicine research project
    • McCarty CA, Chapman-Stone D, Derfus T, Giampietro PF, Fost N (2008) Community consultation and communication for a population-based DNA biobank: the Marshfield clinic personalized medicine research project. Am J Med Genet A 146 A: 3026-3033.
    • (2008) Am J Med Genet A , vol.146 A , pp. 3026-3033
    • McCarty, C.A.1    Chapman-Stone, D.2    Derfus, T.3    Giampietro, P.F.4    Fost, N.5
  • 77
    • 0043135050 scopus 로고    scopus 로고
    • "What are they going to do with the information?" Latino/Latina and African American perspectives on the Human Genome Project
    • Schulz A, Caldwell C, Foster S (2003) "What are they going to do with the information?" Latino/Latina and African American perspectives on the Human Genome Project. Health Educ Behav 30:151-169.
    • (2003) Health Educ Behav , vol.30 , pp. 151-169
    • Schulz, A.1    Caldwell, C.2    Foster, S.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.