-
2
-
-
84915794090
-
Emerging biotechnologies: Technology, choice and the public good
-
978-1-904384-27-4 978-1-904384-27-4
-
Nuffield Council on Bioethics (2012) Emerging biotechnologies: technology, choice and the public good. Nuffield Council on Bioethics. 978-1-904384-27-4 978-1-904384-27-4.
-
(2012)
Nuffield Council on Bioethics
-
-
Nuffield Council on Bioethics1
-
3
-
-
67449097690
-
Engaging the public on biobanks: Outcomes of the BC biobank deliberation
-
O'Doherty KC, Burgess MM (2009) Engaging the public on biobanks: outcomes of the BC biobank deliberation. Public Health Genomics 12:203-215.
-
(2009)
Public Health Genomics
, vol.12
, pp. 203-215
-
-
O'Doherty, K.C.1
Burgess, M.M.2
-
4
-
-
77951473507
-
Structuring public engagement for effective input in policy development on human tissue biobanking
-
O'Doherty KC, Hawkins A (2010) Structuring public engagement for effective input in policy development on human tissue biobanking. Public Health Genomics 13:197-206.
-
(2010)
Public Health Genomics
, vol.13
, pp. 197-206
-
-
O'Doherty, K.C.1
Hawkins, A.2
-
5
-
-
68449097072
-
Public health genomics (PHG) and public participation: Points to consider
-
Avard D, Bucci L, Burgess M, Kaye J, Heeney C, et al. (2009) Public Health Genomics (PHG) and Public Participation: Points to Consider. Journal of Public Deliberation 5.
-
(2009)
Journal of Public Deliberation
, pp. 5
-
-
Avard, D.1
Bucci, L.2
Burgess, M.3
Kaye, J.4
Heeney, C.5
-
13
-
-
0038293333
-
Deliberations about deliberative methods: Issues in the design and evaluation of public participation processes
-
Abelson J, Forest PG, Eyles J, Smith P, Martin E, et al. (2003) Deliberations about deliberative methods: issues in the design and evaluation of public participation processes. Soc Sci Med 57:239-251.
-
(2003)
Soc Sci Med
, vol.57
, pp. 239-251
-
-
Abelson, J.1
Forest, P.G.2
Eyles, J.3
Smith, P.4
Martin, E.5
-
15
-
-
84884153365
-
Public deliberation in health policy and bioethics: Mapping an emerging, interdisciplinary field
-
Abelson J, Blacksher E, Li K, Boesveld S, Goold S (2013) Public Deliberation in Health Policy and Bioethics: Mapping an emerging, interdisciplinary field. Journal of Public Deliberation 9.
-
(2013)
Journal of Public Deliberation
, pp. 9
-
-
Abelson, J.1
Blacksher, E.2
Li, K.3
Boesveld, S.4
Goold, S.5
-
16
-
-
84925361959
-
What is the evidence base for public involvement in health-care policy?: Results of a systematic scoping review
-
Conklin A, Morris Z, Nolte E (2012) What is the evidence base for public involvement in health-care policy?: results of a systematic scoping review. Health Expect.
-
(2012)
Health Expect
-
-
Conklin, A.1
Morris, Z.2
Nolte, E.3
-
17
-
-
80053139138
-
A framework for assessing the quality of democratic deliberation: Enhancing deliberation as a tool for bioethics
-
De Vries R, Stanczyk AE, Ryan KA, Kim SY (2011) A framework for assessing the quality of democratic deliberation: enhancing deliberation as a tool for bioethics. J Empir Res Hum Res Ethics 6:3-17.
-
(2011)
J Empir Res Hum Res Ethics
, vol.6
, pp. 3-17
-
-
De Vries, R.1
Stanczyk, A.E.2
Ryan, K.A.3
Kim, S.Y.4
-
18
-
-
84858965961
-
An uneven spread: A review of public involvement in the National Institute of Health Research's Health Technology Assessment program
-
Moran R, Davidson P (2011) An uneven spread: a review of public involvement in the National Institute of Health Research's Health Technology Assessment program. Int J Technol Assess Health Care 27:343-347.
-
(2011)
Int J Technol Assess Health Care
, vol.27
, pp. 343-347
-
-
Moran, R.1
Davidson, P.2
-
19
-
-
77349093263
-
Public involvement at the design stage of primary health research: A narrative review of case examples
-
Boote J, Baird W, Beecroft C (2010) Public involvement at the design stage of primary health research: a narrative review of case examples. Health Policy 95:10-23.
-
(2010)
Health Policy
, vol.95
, pp. 10-23
-
-
Boote, J.1
Baird, W.2
Beecroft, C.3
-
20
-
-
0346009569
-
Evaluating public-participation exercises: A research agenda
-
Rowe G, Frewer LJ (2004) Evaluating Public-Participation Exercises: A Research Agenda. Science, Technology & Human Values 29:512-556.
-
(2004)
Science, Technology & Human Values
, vol.29
, pp. 512-556
-
-
Rowe, G.1
Frewer, L.J.2
-
21
-
-
77951471331
-
Involving the Public in Public Health Genomics. A review of guidelines and policy statements
-
Avard D, Grégoire G, Jean M (2008) Involving the Public in Public Health Genomics. A review of guidelines and policy statements. Gen Edit 6:1-9.
-
(2008)
Gen Edit
, vol.6
, pp. 1-9
-
-
Avard, D.1
Grégoire, G.2
Jean, M.3
-
23
-
-
0034347168
-
Public participation methods: A framework for evaluation
-
Rowe G, Frewer LJ (2000) Public Participation Methods: A Framework for Evaluation. Science, Technology & Human Values 25:3-29.
-
(2000)
Science, Technology & Human Values
, vol.25
, pp. 3-29
-
-
Rowe, G.1
Frewer, L.J.2
-
28
-
-
57349167685
-
Public expectations for return of results from large-cohort genetic research
-
Murphy J, Scott J, Kaufman D, Geller G, Le Roy L, et al. (2008) Public expectations for return of results from large-cohort genetic research. Am J Bioeth 8:36-43.
-
(2008)
Am J Bioeth
, vol.8
, pp. 36-43
-
-
Murphy, J.1
Scott, J.2
Kaufman, D.3
Geller, G.4
Le Roy, L.5
-
29
-
-
84877652713
-
Blueprint for a deliberative public forum on biobanking policy: Were theoretical principles achievable in practice?
-
Molster C, Maxwell S, Youngs L, Kyne G, Hope F, et al. (2013) Blueprint for a deliberative public forum on biobanking policy: were theoretical principles achievable in practice? Health Expect 16:211-224.
-
(2013)
Health Expect
, vol.16
, pp. 211-224
-
-
Molster, C.1
Maxwell, S.2
Youngs, L.3
Kyne, G.4
Hope, F.5
-
30
-
-
84857064683
-
An Australian approach to the policy translation of deliberated citizen perspectives on biobanking
-
Molster C, Maxwell S, Youngs L, Potts A, Kyne G, et al. (2012) An Australian approach to the policy translation of deliberated citizen perspectives on biobanking. Public Health Genomics 15:82-91.
-
(2012)
Public Health Genomics
, vol.15
, pp. 82-91
-
-
Molster, C.1
Maxwell, S.2
Youngs, L.3
Potts, A.4
Kyne, G.5
-
31
-
-
72249092345
-
Public perspectives on informed consent for biobanking
-
Murphy J, Scott J, Kaufman D, Geller G, Le Roy L, et al. (2009) Public perspectives on informed consent for biobanking. Am J Public Health 99:2128-2134.
-
(2009)
Am J Public Health
, vol.99
, pp. 2128-2134
-
-
Murphy, J.1
Scott, J.2
Kaufman, D.3
Geller, G.4
Le Roy, L.5
-
32
-
-
84865653047
-
Involving citizens in the ethics of biobank research: Informing institutional policy through structured public deliberation
-
O'Doherty KC, Hawkins AK, Burgess MM (2012) Involving citizens in the ethics of biobank research: informing institutional policy through structured public deliberation. Soc Sci Med 75:1604-1611.
-
(2012)
Soc Sci Med
, vol.75
, pp. 1604-1611
-
-
O'Doherty, K.C.1
Hawkins, A.K.2
Burgess, M.M.3
-
33
-
-
18944388901
-
'Even if they ask you to stand by a tree all day, you will have to do it (laughter) ⋯!': Community voices on the notion and practice of informed consent for biomedical research in developing countries
-
Molyneux CS, Wassenaar DR, Peshu N, Marsh K (2005) 'Even if they ask you to stand by a tree all day, you will have to do it (laughter) ⋯!': community voices on the notion and practice of informed consent for biomedical research in developing countries. Soc Sci Med 61:443-454.
-
(2005)
Soc Sci Med
, vol.61
, pp. 443-454
-
-
Molyneux, C.S.1
Wassenaar, D.R.2
Peshu, N.3
Marsh, K.4
-
34
-
-
84942294578
-
Values associated with public involvement in health and social care research: A narrative review
-
Gradinger F, Britten N, Wyatt K, Froggatt K, Gibson A, et al. (2013) Values associated with public involvement in health and social care research: a narrative review. Health Expect.
-
(2013)
Health Expect
-
-
Gradinger, F.1
Britten, N.2
Wyatt, K.3
Froggatt, K.4
Gibson, A.5
-
35
-
-
33646682159
-
Deliberative impacts: The macro-political uptake of mini-publics
-
Goodin RE, Dryzek JS (2006) Deliberative Impacts: The Macro-Political Uptake of Mini-Publics. Politics & Society 34:219-244.
-
(2006)
Politics & Society
, vol.34
, pp. 219-244
-
-
Goodin, R.E.1
Dryzek, J.S.2
-
36
-
-
46049085015
-
Generation Scotland: Consulting publics and specialists at an early stage in a genetic database's development
-
Haddow G, Cunningham-Burley S, Bruce A, Parry S (2008) Generation Scotland: consulting publics and specialists at an early stage in a genetic database's development. Critical Public Health 18:139-149.
-
(2008)
Critical Public Health
, vol.18
, pp. 139-149
-
-
Haddow, G.1
Cunningham-Burley, S.2
Bruce, A.3
Parry, S.4
-
37
-
-
84942295538
-
Patient and service user engagement in research: A systematic review and synthesized framework
-
Shippee ND, Domecq Garces JP, Prutsky Lopez GJ, Wang Z, Elraiyah TA, et al. (2013) Patient and service user engagement in research: a systematic review and synthesized framework. Health Expect.
-
(2013)
Health Expect
-
-
Shippee, N.D.1
Domecq Garces, J.P.2
Prutsky Lopez, G.J.3
Wang, Z.4
Elraiyah, T.A.5
-
38
-
-
34147214767
-
Examining the role of context in the implementation of a deliberative public participation experiment: Results from a Canadian comparative study
-
Abelson J, Forest PG, Eyles J, Casebeer A, Martin E, et al. (2007) Examining the role of context in the implementation of a deliberative public participation experiment: results from a Canadian comparative study. Soc Sci Med 64:2115-2128.
-
(2007)
Soc Sci Med
, vol.64
, pp. 2115-2128
-
-
Abelson, J.1
Forest, P.G.2
Eyles, J.3
Casebeer, A.4
Martin, E.5
-
39
-
-
84873345553
-
Beliefs and attitudes towards participating in genetic research - A population based cross-sectional study
-
Kerath SM, Klein G, Kern M, Shapira I, Witthuhn J, et al. (2013) Beliefs and attitudes towards participating in genetic research - a population based cross-sectional study. BMC Public Health 13:114.
-
(2013)
BMC Public Health
, vol.13
, pp. 114
-
-
Kerath, S.M.1
Klein, G.2
Kern, M.3
Shapira, I.4
Witthuhn, J.5
-
40
-
-
84875830659
-
Do canadian researchers and the lay public prioritize biomedical research outcomes equally? A choice experiment
-
Miller FA, Mentzakis E, Axler R, Lehoux P, French M, et al. (2013) Do canadian researchers and the lay public prioritize biomedical research outcomes equally? A choice experiment. Acad Med 88:519-526.
-
(2013)
Acad Med
, vol.88
, pp. 519-526
-
-
Miller, F.A.1
Mentzakis, E.2
Axler, R.3
Lehoux, P.4
French, M.5
-
41
-
-
84865340783
-
Issues in biomedical research: What do Hispanics think?
-
Ulrich A, Thompson B, Livaudais JC, Espinoza N, Cordova A, et al. (2013) Issues in biomedical research: what do Hispanics think? Am J Health Behav 37:80-85.
-
(2013)
Am J Health Behav
, vol.37
, pp. 80-85
-
-
Ulrich, A.1
Thompson, B.2
Livaudais, J.C.3
Espinoza, N.4
Cordova, A.5
-
42
-
-
84866347308
-
Attitudes of African-American parents about biobank participation and return of results for themselves and their children
-
Halverson CM, Ross LF (2012) Attitudes of African-American parents about biobank participation and return of results for themselves and their children. J Med Ethics 38:561-566.
-
(2012)
J Med Ethics
, vol.38
, pp. 561-566
-
-
Halverson, C.M.1
Ross, L.F.2
-
43
-
-
84893094390
-
Community perceptions of genomic research: Implications for addressing health disparities
-
Isler MR, Sutton K, Cadigan RJ, Corbie-Smith G (2013) Community perceptions of genomic research: implications for addressing health disparities. N C Med J 74:470-476.
-
(2013)
N C Med J
, vol.74
, pp. 470-476
-
-
Isler, M.R.1
Sutton, K.2
Cadigan, R.J.3
Corbie-Smith, G.4
-
44
-
-
84876692293
-
Public support and consent preference for biomedical research and biobanking in Jordan
-
Ahram M, Othman A, Shahrouri M (2013) Public support and consent preference for biomedical research and biobanking in Jordan. Eur J Hum Genet 21:567-570.
-
(2013)
Eur J Hum Genet
, vol.21
, pp. 567-570
-
-
Ahram, M.1
Othman, A.2
Shahrouri, M.3
-
45
-
-
84863393820
-
Public attitudes regarding the use of residual newborn screening specimens for research
-
Botkin JR, Rothwell E, Anderson R, Stark L, Goldenberg A, et al. (2012) Public attitudes regarding the use of residual newborn screening specimens for research. Pediatrics 129:231-238.
-
(2012)
Pediatrics
, vol.129
, pp. 231-238
-
-
Botkin, J.R.1
Rothwell, E.2
Anderson, R.3
Stark, L.4
Goldenberg, A.5
-
46
-
-
85027908487
-
Personal privacy, public benefits, and biobanks: A conjoint analysis of policy priorities and public perceptions
-
Pullman D, Etchegary H, Gallagher K, Hodgkinson K, Keough M, et al. (2011) Personal privacy, public benefits, and biobanks: A conjoint analysis of policy priorities and public perceptions. Genet Med.
-
(2011)
Genet Med
-
-
Pullman, D.1
Etchegary, H.2
Gallagher, K.3
Hodgkinson, K.4
Keough, M.5
-
47
-
-
84856723916
-
Enhancing geneticists' perspectives of the public through community engagement
-
O'Daniel JM, Rosanbalm KD, Boles L, Tindall GM, Livingston TM, et al. (2012) Enhancing geneticists' perspectives of the public through community engagement. Genet Med 14:243-249.
-
(2012)
Genet Med
, vol.14
, pp. 243-249
-
-
O'Daniel, J.M.1
Rosanbalm, K.D.2
Boles, L.3
Tindall, G.M.4
Livingston, T.M.5
-
48
-
-
84857867890
-
Consequences of media information uptake and deliberation: Focus groups' symbolic coping with synthetic biology
-
Kronberger N, Holtz P, Wagner W (2012) Consequences of media information uptake and deliberation: focus groups' symbolic coping with synthetic biology. Public Underst Sci 21:174-187.
-
(2012)
Public Underst Sci
, vol.21
, pp. 174-187
-
-
Kronberger, N.1
Holtz, P.2
Wagner, W.3
-
49
-
-
84863407753
-
Assessing public attitudes on the retention and use of residual newborn screening blood samples: A focus group study
-
Rothwell E, Anderson R, Goldenberg A, Lewis MH, Stark L, et al. (2012) Assessing public attitudes on the retention and use of residual newborn screening blood samples: a focus group study. Soc Sci Med 74:1305-1309.
-
(2012)
Soc Sci Med
, vol.74
, pp. 1305-1309
-
-
Rothwell, E.1
Anderson, R.2
Goldenberg, A.3
Lewis, M.H.4
Stark, L.5
-
50
-
-
84862643267
-
Benefit sharing and biobanking in Australia
-
Nicol D, Critchley C (2012) Benefit sharing and biobanking in Australia. Public Underst Sci 21:534-555.
-
(2012)
Public Underst Sci
, vol.21
, pp. 534-555
-
-
Nicol, D.1
Critchley, C.2
-
51
-
-
77952529089
-
Examining the public refusal to consent to DNA biobanking: Empirical data from a Swedish population-based study
-
Melas PA, Sjoholm LK, Forsner T, Edhborg M, Juth N, et al. (2010) Examining the public refusal to consent to DNA biobanking: empirical data from a Swedish population-based study. J Med Ethics 36:93-98.
-
(2010)
J Med Ethics
, vol.36
, pp. 93-98
-
-
Melas, P.A.1
Sjoholm, L.K.2
Forsner, T.3
Edhborg, M.4
Juth, N.5
-
53
-
-
77958100713
-
Collection, storage and use of blood samples for future research: Views of Egyptian patients expressed in a cross-sectional survey
-
Abou-Zeid A, Silverman H, Shehata M, Shams M, Elshabrawy M, et al. (2010) Collection, storage and use of blood samples for future research: views of Egyptian patients expressed in a cross-sectional survey. J Med Ethics 36:539-547.
-
(2010)
J Med Ethics
, vol.36
, pp. 539-547
-
-
Abou-Zeid, A.1
Silverman, H.2
Shehata, M.3
Shams, M.4
Elshabrawy, M.5
-
54
-
-
77749260871
-
Public attitudes to genomic science: An experiment in information provision
-
Sturgis P, Brunton-Smith I, Fife-Schaw C (2010) Public attitudes to genomic science: an experiment in information provision. Public Underst Sci 19:166-180.
-
(2010)
Public Underst Sci
, vol.19
, pp. 166-180
-
-
Sturgis, P.1
Brunton-Smith, I.2
Fife-Schaw, C.3
-
55
-
-
76249122986
-
Attitudes towards biomedical use of tissue sample collections, consent, and biobanks among Finns
-
Tupasela A, Sihvo S, Snell K, Jallinoja P, Aro AR, et al. (2010) Attitudes towards biomedical use of tissue sample collections, consent, and biobanks among Finns. Scand J Public Health 38:46-52.
-
(2010)
Scand J Public Health
, vol.38
, pp. 46-52
-
-
Tupasela, A.1
Sihvo, S.2
Snell, K.3
Jallinoja, P.4
Aro, A.R.5
-
56
-
-
70249122789
-
Pediatric biobanks: Approaching informed consent for continuing research after children grow up
-
Goldenberg AJ, Hull SC, Botkin JR, Wilfond BS (2009) Pediatric biobanks: approaching informed consent for continuing research after children grow up. J Pediatr 155:578-583.
-
(2009)
J Pediatr
, vol.155
, pp. 578-583
-
-
Goldenberg, A.J.1
Hull, S.C.2
Botkin, J.R.3
Wilfond, B.S.4
-
57
-
-
77954825531
-
Ethnocultural community leaders' views and perceptions on biobanks and population specific genomic research: A qualitative research study
-
Godard B, Ozdemir V, Fortin M, Egalite N (2010) Ethnocultural community leaders' views and perceptions on biobanks and population specific genomic research: a qualitative research study. Public Underst Sci 19:469-485.
-
(2010)
Public Underst Sci
, vol.19
, pp. 469-485
-
-
Godard, B.1
Ozdemir, V.2
Fortin, M.3
Egalite, N.4
-
58
-
-
79958106994
-
Public involvement in pharmacogenomics research: A national survey on patients' attitudes towards pharmacogenomics research and the willingness to donate DNA samples to a DNA bank in Japan
-
Kobayashi E, Sakurada T, Ueda S, Satoh N (2011) Public involvement in pharmacogenomics research: a national survey on patients' attitudes towards pharmacogenomics research and the willingness to donate DNA samples to a DNA bank in Japan. Cell Tissue Bank 12:71-80.
-
(2011)
Cell Tissue Bank
, vol.12
, pp. 71-80
-
-
Kobayashi, E.1
Sakurada, T.2
Ueda, S.3
Satoh, N.4
-
59
-
-
80855148238
-
Motivations and perceptions of early adopters of personalized genomics: Perspectives from research participants
-
Gollust SE, Gordon ES, Zayac C, Griffin G, Christman MF, et al. (2012) Motivations and perceptions of early adopters of personalized genomics: perspectives from research participants. Public Health Genomics 15:22-30.
-
(2012)
Public Health Genomics
, vol.15
, pp. 22-30
-
-
Gollust, S.E.1
Gordon, E.S.2
Zayac, C.3
Griffin, G.4
Christman, M.F.5
-
60
-
-
67649780555
-
Why do people refuse to take part in biomedical research studies? Evidence from a resource-poor area
-
Mfutso-Bengo J, Masiye F, Molyneux M, Ndebele P, Chilungo A (2008) Why do people refuse to take part in biomedical research studies? Evidence from a resource-poor area. Malawi Med J 20:57-63.
-
(2008)
Malawi Med J
, vol.20
, pp. 57-63
-
-
Mfutso-Bengo, J.1
Masiye, F.2
Molyneux, M.3
Ndebele, P.4
Chilungo, A.5
-
61
-
-
34648834075
-
Willingness of minorities to participate in biomedical studies: Confirmatory findings from a follow-up study using the Tuskegee Legacy Project Questionnaire
-
Katz RV, Green BL, Kressin NR, Claudio C, Wang MQ, et al. (2007) Willingness of minorities to participate in biomedical studies: confirmatory findings from a follow-up study using the Tuskegee Legacy Project Questionnaire. J Natl Med Assoc 99:1052-1060.
-
(2007)
J Natl Med Assoc
, vol.99
, pp. 1052-1060
-
-
Katz, R.V.1
Green, B.L.2
Kressin, N.R.3
Claudio, C.4
Wang, M.Q.5
-
62
-
-
34250316645
-
Towards an understanding of British public attitudes concerning human cloning
-
Shepherd R, Barnett J, Cooper H, Coyle A, Moran-Ellis J, et al. (2007) Towards an understanding of British public attitudes concerning human cloning. Soc Sci Med 65:377-392.
-
(2007)
Soc Sci Med
, vol.65
, pp. 377-392
-
-
Shepherd, R.1
Barnett, J.2
Cooper, H.3
Coyle, A.4
Moran-Ellis, J.5
-
63
-
-
34250650978
-
Community engagement in genetic research: Results of the first public consultation for the Quebec CARTaGENE project
-
Godard B, Marshall J, Laberge C (2007) Community engagement in genetic research: results of the first public consultation for the Quebec CARTaGENE project. Community Genet 10:147-158.
-
(2007)
Community Genet
, vol.10
, pp. 147-158
-
-
Godard, B.1
Marshall, J.2
Laberge, C.3
-
64
-
-
10444250930
-
Employees' perspectives on ethically important aspects of genetic research participation: A pilot study
-
Roberts LW, Warner TD, Geppert CM, Rogers M, Green Hammond KA (2005) Employees' perspectives on ethically important aspects of genetic research participation: a pilot study. Compr Psychiatry 46:27-33.
-
(2005)
Compr Psychiatry
, vol.46
, pp. 27-33
-
-
Roberts, L.W.1
Warner, T.D.2
Geppert, C.M.3
Rogers, M.4
Green Hammond, K.A.5
-
65
-
-
3242769268
-
The Tuskegee Study of Untreated Syphilis and public perceptions of biomedical research: A focus group study
-
Bates BR, Harris TM (2004) The Tuskegee Study of Untreated Syphilis and public perceptions of biomedical research: a focus group study. J Natl Med Assoc 96:1051-1064.
-
(2004)
J Natl Med Assoc
, vol.96
, pp. 1051-1064
-
-
Bates, B.R.1
Harris, T.M.2
-
66
-
-
7544250377
-
Warranted concerns, warranted outlooks: A focus group study of public understandings of genetic research
-
Bates BR, Lynch JA, Bevan JL, Condit CM (2005) Warranted concerns, warranted outlooks: a focus group study of public understandings of genetic research. Soc Sci Med 60:331-344.
-
(2005)
Soc Sci Med
, vol.60
, pp. 331-344
-
-
Bates, B.R.1
Lynch, J.A.2
Bevan, J.L.3
Condit, C.M.4
-
67
-
-
5644247984
-
Concerns over participation in genetic research among Malay-Muslims, Chinese and Indians in Singapore: A focus group study
-
Wong ML, Chia KS, Wee S, Chia SE, Lee J, et al. (2004) Concerns over participation in genetic research among Malay-Muslims, Chinese and Indians in Singapore: a focus group study. Community Genet 7:44-54.
-
(2004)
Community Genet
, vol.7
, pp. 44-54
-
-
Wong, M.L.1
Chia, K.S.2
Wee, S.3
Chia, S.E.4
Lee, J.5
-
68
-
-
0012599027
-
Parents' and children's attitudes toward the enrollment of minors in genetic susceptibility research: Implications for informed consent
-
Bernhardt BA, Tambor ES, Fraser G, Wissow LS, Geller G (2003) Parents' and children's attitudes toward the enrollment of minors in genetic susceptibility research: implications for informed consent. Am J Med Genet A 116 a: 315-323.
-
(2003)
Am J Med Genet A
, vol.116 A
, pp. 315-323
-
-
Bernhardt, B.A.1
Tambor, E.S.2
Fraser, G.3
Wissow, L.S.4
Geller, G.5
-
69
-
-
0012113097
-
Health through gene tests? Acceptance of and concerns about genetic testing in a German representative sample
-
Berth H, Dinkel A, Balck F (2002) Health through gene tests? Acceptance of and concerns about genetic testing in a German representative sample. Zeitschrift fü r Gesundheitspsychologie 10:97-107.
-
(2002)
Zeitschrift Fü R Gesundheitspsychologie
, vol.10
, pp. 97-107
-
-
Berth, H.1
Dinkel, A.2
Balck, F.3
-
70
-
-
84883730870
-
Managing misaligned paternity findings in research including sickle cell disease screening in Kenya: 'Consulting communities' to inform policy
-
Marsh V, Kombe F, Fitzpatrick R, Molyneux S, Parker M (2013) Managing misaligned paternity findings in research including sickle cell disease screening in Kenya: 'consulting communities' to inform policy. Soc Sci Med 96:192-199.
-
(2013)
Soc Sci Med
, vol.96
, pp. 192-199
-
-
Marsh, V.1
Kombe, F.2
Fitzpatrick, R.3
Molyneux, S.4
Parker, M.5
-
71
-
-
84856547266
-
Citizens' values regarding research with stored samples from newborn screening in Canada
-
Bombard Y, Miller FA, Hayeems RZ, Carroll JC, Avard D, et al. (2012) Citizens' values regarding research with stored samples from newborn screening in Canada. Pediatrics 129:239-247.
-
(2012)
Pediatrics
, vol.129
, pp. 239-247
-
-
Bombard, Y.1
Miller, F.A.2
Hayeems, R.Z.3
Carroll, J.C.4
Avard, D.5
-
72
-
-
84859954991
-
Community engagement about genetic variation research
-
Terry SF, Christensen KD, Metosky S, Rudofsky G, Deignan KP, et al. (2012) Community engagement about genetic variation research. Popul Health Manag 15:78-89.
-
(2012)
Popul Health Manag
, vol.15
, pp. 78-89
-
-
Terry, S.F.1
Christensen, K.D.2
Metosky, S.3
Rudofsky, G.4
Deignan, K.P.5
-
73
-
-
49749130471
-
Engaging the public in priority-setting for health technology assessment: Findings from a citizens' jury
-
Menon D, Stafinski T (2008) Engaging the public in priority-setting for health technology assessment: findings from a citizens' jury. Health Expect 11:282-293.
-
(2008)
Health Expect
, vol.11
, pp. 282-293
-
-
Menon, D.1
Stafinski, T.2
-
74
-
-
59649110565
-
Informed consent in biobank research: A deliberative approach to the debate
-
Secko DM, Preto N, Niemeyer S, Burgess MM (2009) Informed consent in biobank research: a deliberative approach to the debate. Soc Sci Med 68:781-789.
-
(2009)
Soc Sci Med
, vol.68
, pp. 781-789
-
-
Secko, D.M.1
Preto, N.2
Niemeyer, S.3
Burgess, M.M.4
-
75
-
-
51449087062
-
Consumer contribution to the delivery of genetic health services
-
Nisselle A, Forbes R, Bankier A, Hughes E, Aitken M (2008) Consumer contribution to the delivery of genetic health services. Am J Med Genet A 146 a: 2266-2274.
-
(2008)
Am J Med Genet A
, vol.146 A
, pp. 2266-2274
-
-
Nisselle, A.1
Forbes, R.2
Bankier, A.3
Hughes, E.4
Aitken, M.5
-
76
-
-
57149115791
-
Community consultation and communication for a population-based DNA biobank: The Marshfield clinic personalized medicine research project
-
McCarty CA, Chapman-Stone D, Derfus T, Giampietro PF, Fost N (2008) Community consultation and communication for a population-based DNA biobank: the Marshfield clinic personalized medicine research project. Am J Med Genet A 146 A: 3026-3033.
-
(2008)
Am J Med Genet A
, vol.146 A
, pp. 3026-3033
-
-
McCarty, C.A.1
Chapman-Stone, D.2
Derfus, T.3
Giampietro, P.F.4
Fost, N.5
-
77
-
-
0043135050
-
"What are they going to do with the information?" Latino/Latina and African American perspectives on the Human Genome Project
-
Schulz A, Caldwell C, Foster S (2003) "What are they going to do with the information?" Latino/Latina and African American perspectives on the Human Genome Project. Health Educ Behav 30:151-169.
-
(2003)
Health Educ Behav
, vol.30
, pp. 151-169
-
-
Schulz, A.1
Caldwell, C.2
Foster, S.3
|