Enhancing geneticists' perspectives of the public through community engagement

Genetics in Medicine

Volumn 14, Issue 2, 2012, Pages 243-249

  Odaniel, Julianne M ^a,c,d   Rosanbalm, Katie D ^a   Boles, Larry ^b,c,d   Tindall, Genevieve M ^a   Livingston, Troy M ^b   Haga, Susanne B ^a  

^a DUKE UNIVERSITY   (United States)

^b Museum of Life and Science   (United States)

^c ILLUMINA INC   (United States)

^d Walt Disney World   (United States)

Author keywords

community; education; engagement; geneticists; genomics; public attitudes

Indexed keywords

COMMUNITY; CONTROLLED STUDY; FEMALE; GENOME; HEALTH CARE PERSONNEL; HEALTH PROGRAM; HUMAN; MALE; MIDDLE SCHOOL STUDENT; PARENT; PILOT STUDY; REVIEW; SCIENTIST; SOCIAL INTERACTION; SOCIAL PARTICIPATION;

ATTITUDE; COMMUNICATION; CONSUMER PARTICIPATION; FEMALE; GENETIC RESEARCH; HUMANS; MALE; PARENTS; PILOT PROJECTS; PROGRAM DEVELOPMENT; PUBLIC OPINION; PUBLIC RELATIONS; RESEARCH PERSONNEL; STUDENTS;

EID: 84856723916     PISSN: 10983600     EISSN: 15300366     Source Type: Journal    
DOI: 10.1038/gim.2011.29     Document Type: Review

References (23)

1. Research!America. Taking Our Pulse: The PARADE/Research!America Health Poll. Charlton Research Company. Genetics and Personalized Medicine. 2004. http://www.researchamerica.org/uploads/poll2004paradepersmed.pdf.
2. Ishiyama I, Nagai A, Muto K, et al. Relationship between public attitudes toward genomic studies related to medicine and their level of genomic literacy in Japan. Am J Med Genet A 2008;146A:1696-1706. (Pubitemid 351975480)
3. Catz DS, Green NS, Tobin JN, et al. Attitudes about genetics in underserved, culturally diverse populations. Community Genet 2005;8:161-172. (Pubitemid 41197099)
4. Sanderson SC, Wardle J, Jarvis MJ, Humphries SE. Public interest in genetic testing for susceptibility to heart disease and cancer: a population-based survey in the UK. Prev Med 2004;39:458-464. (Pubitemid 39093900)
5. Lanie AD, Jayaratne TE, Sheldon JP, et al. Exploring the public understanding of basic genetic concepts. J Genet Couns 2004;13:305-320. (Pubitemid 38998455)
6. Miller JD. Public Understanding of, and Attitudes toward, Scientific Research: What We Know and What We Need to Know. Public Underst of Sci 2004;13:273-294. (Pubitemid 39080576)
7. van der Sanden MCA, Meijman FJ. Dialogue guides awareness and understanding of science: an essay on different goals of dialogue leading to different science communication approaches. Public Underst of Sci 2008;17:89-103.
8. Wynne B. Public engagement as a means of restoring public trust in science-hitting the notes, but missing the music? Community Genet 2006;9: 211-220. (Pubitemid 43854187)
9. Gottweis H. Gene therapy and the public: a matter of trust. Gene Ther 2002;9:667-669. (Pubitemid 34591461)
10. Bates BR. Public culture and public understanding of genetics: a focus group study. Public Underst Sci 2005;14:47-65. (Pubitemid 40097268)
11. Bates BR, Lynch JA, Bevan JL, Condit CM. Warranted concerns, warranted outlooks: a focus group study of public understandings of genetic research. Soc Sci Med 2005;60:331-344. (Pubitemid 39452549)
12. Cunningham-Burley S. Public knowledge and public trust. Community Genet 2006;9:204-210. (Pubitemid 43854186)
13. Brunk CG. Public knowledge, public trust: understanding the 'knowledge deficit.' Community Genet 2006;9:178-183. (Pubitemid 43854182)
14. Ferris D. Science Cafés tap nation's fascination with research and discoveries. Wired. 2007. http://www.wired.com/science/discoveries/news/2007/ 12/science-cafe. Accessed 18 July 2011.
15. Goodman Research Group. NOVA scienceNOW Science Cafés Evaluation, 2007. http://sciencecafes.org/q-2007-study.pdf.
16. New Economics Foundation. Democs. 2003. http://www.neweconomics. org/projects/democs.
17. Duensing, Sally and Lorenzet, Andrea (2007). Decide Evaluation Report, March 2007, EC FP6 Decide Programme. . Accessed August 2008.
18. Play Decide. DEliberative CItizens DEbates. http://playdecide.eu.
19. NISE Network Public Forums Manual. Museum of Life and Science: Durham, NC, 2007.
20. Jallinoja P, Aro AR. Does knowledge make a difference? The association between knowledge about genes and attitudes toward gene tests. J Health Commun 2000;5:29-39.
21. Calsbeek H, Morren M, Bensing J, Rijken M. Knowledge and attitudes towards genetic testing: a two year follow-up study in patients with asthma, diabetes mellitus and cardiovascular disease. J Genet Couns 2007;16: 493-504. (Pubitemid 47305505)
22. City of Durham and Durham County NC. 2011 Community Indicator's Progress Report. Durham, NC, March 2011.
23. House of Lords Select Committee on Science and Technology. Science and Society, 3rd edn. HMSO: London, 2000.