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Volumn 146, Issue 17, 2008, Pages 2266-2274

Consumer contribution to the delivery of genetic health services

Author keywords

Consumer; Genetics; Health service; Satisfaction; Survey

Indexed keywords

ARTICLE; ATTITUDE; AUSTRALIA; CONSTRUCTION WORK AND ARCHITECTURAL PHENOMENA; CONSUMER; EXPECTATION; GENETICS; HEALTH CARE DELIVERY; HEALTH CARE QUALITY; HEALTH PRACTITIONER; INFORMATION; LOGISTICS; PRIORITY JOURNAL; PRIVACY; QUESTIONNAIRE; SATISFACTION; TRAFFIC AND TRANSPORT;

EID: 51449087062     PISSN: 15524825     EISSN: 15524833     Source Type: Journal    
DOI: 10.1002/ajmg.a.32271     Document Type: Article
Times cited : (5)

References (29)
  • 1
    • 0032894724 scopus 로고    scopus 로고
    • Perceived Personal Control (PPC): A new concept in measuring outcome of genetic counseling
    • Berkenstadt MS, Shiloh G, Barkai MB, Katznelson M, Goldman B. 1999. Perceived Personal Control (PPC): A new concept in measuring outcome of genetic counseling. Am J Med Genet 82:53-59.
    • (1999) Am J Med Genet , vol.82 , pp. 53-59
    • Berkenstadt, M.S.1    Shiloh, G.2    Barkai, M.B.3    Katznelson, M.4    Goldman, B.5
  • 2
    • 0035188689 scopus 로고    scopus 로고
    • Goals of genetics counseling
    • Biesecker B. 2001. Goals of genetics counseling. Clin Genet 60: 323-330.
    • (2001) Clin Genet , vol.60 , pp. 323-330
    • Biesecker, B.1
  • 4
    • 0029119808 scopus 로고
    • Are we all of one mind? Clinicians' and patients' opinions regarding the development of a service protocol for predictive testing for Huntington disease
    • Copley T, Wiggins S, Dufrasne S, Bloch M, Adam S, McKellin W, Hayden M. 1995. Are we all of one mind? Clinicians' and patients' opinions regarding the development of a service protocol for predictive testing for Huntington disease. Am J Med Genet 58:59-69.
    • (1995) Am J Med Genet , vol.58 , pp. 59-69
    • Copley, T.1    Wiggins, S.2    Dufrasne, S.3    Bloch, M.4    Adam, S.5    McKellin, W.6    Hayden, M.7
  • 5
    • 0037202686 scopus 로고    scopus 로고
    • Systematic review of involving patients in the planning and development of health care
    • Crawford MJ, Rutter D, Manley C, Weaver T, Bhui K, Fulop N, Tyrer P. 2002. Systematic review of involving patients in the planning and development of health care. Br Med J 325:1263-1267.
    • (2002) Br Med J , vol.325 , pp. 1263-1267
    • Crawford, M.J.1    Rutter, D.2    Manley, C.3    Weaver, T.4    Bhui, K.5    Fulop, N.6    Tyrer, P.7
  • 6
    • 21344446334 scopus 로고    scopus 로고
    • Evaluating genetic counseling: Client expectations, psychological adjustment and satisfaction with service
    • Davey A, Rostant K, Harrop K, Goldblatt J, O'Leary P. 2005. Evaluating genetic counseling: Client expectations, psychological adjustment and satisfaction with service. J Genet Couns 14:197-206.
    • (2005) J Genet Couns , vol.14 , pp. 197-206
    • Davey, A.1    Rostant, K.2    Harrop, K.3    Goldblatt, J.4    O'Leary, P.5
  • 8
    • 51449117353 scopus 로고    scopus 로고
    • Genetic Alliance. 2007. Public Policy. Retrieved 22 Nov 2007 from www.geneticalliance.org/ws_display.asp?filter=policy.
    • Genetic Alliance. 2007. "Public Policy." Retrieved 22 Nov 2007 from www.geneticalliance.org/ws_display.asp?filter=policy.
  • 9
    • 0031687274 scopus 로고    scopus 로고
    • Breaking bad news 1: Current best advice for clinicians
    • Girgis A, Sanson-Fisher R. 1998. Breaking bad news 1: Current best advice for clinicians. Behav Med 24:53-59.
    • (1998) Behav Med , vol.24 , pp. 53-59
    • Girgis, A.1    Sanson-Fisher, R.2
  • 11
    • 51449109950 scopus 로고    scopus 로고
    • Australian Institute of Health Policy Studies Research Project Retrieved 22 Nov 2007 from
    • Gregory J. 2007. "Conceptualising consumer engagement: A review of the literature." Australian Institute of Health Policy Studies Research Project Retrieved 22 Nov 2007 from www.aiphs.org.au.
    • (2007) Conceptualising consumer engagement: A review of the literature
    • Gregory, J.1
  • 12
    • 0141457239 scopus 로고    scopus 로고
    • Experiences at the time of diagnosis of parents who have a child with a bone dysplasia resulting in short stature
    • Hill V, Sahhar M, Aitken M, Savarirayan R, Metcalfe S. 2003. Experiences at the time of diagnosis of parents who have a child with a bone dysplasia resulting in short stature. Am J Med Genet Part A 122A:100-107.
    • (2003) Am J Med Genet , vol.122 A , Issue.PART A , pp. 100-107
    • Hill, V.1    Sahhar, M.2    Aitken, M.3    Savarirayan, R.4    Metcalfe, S.5
  • 13
    • 0034006310 scopus 로고    scopus 로고
    • The role of expectations in effective genetic counseling
    • Jay LR, Afifi WA, Samter W. 2000. The role of expectations in effective genetic counseling. J Genet Couns 9:95-115.
    • (2000) J Genet Couns , vol.9 , pp. 95-115
    • Jay, L.R.1    Afifi, W.A.2    Samter, W.3
  • 14
    • 33845434719 scopus 로고    scopus 로고
    • A survey of patients' experiences with the cancer genetic counseling process: Recommendations for cancer genetics programs
    • Kausmeyer DT, Lengerich EJ, Kluhsman BC, Morrone D, Harper GR, Baker MJ. 2006. A survey of patients' experiences with the cancer genetic counseling process: Recommendations for cancer genetics programs. J Genet Couns 15:409-431.
    • (2006) J Genet Couns , vol.15 , pp. 409-431
    • Kausmeyer, D.T.1    Lengerich, E.J.2    Kluhsman, B.C.3    Morrone, D.4    Harper, G.R.5    Baker, M.J.6
  • 15
    • 0342559385 scopus 로고    scopus 로고
    • Emerging quality improvement measures in genetic counseling
    • Lea DH. 1996. Emerging quality improvement measures in genetic counseling. J Genet Couns 5:123-137.
    • (1996) J Genet Couns , vol.5 , pp. 123-137
    • Lea, D.H.1
  • 16
    • 0242639283 scopus 로고    scopus 로고
    • A new world view of genetics service models
    • Lea DH. 2000. A new world view of genetics service models. Online J Iss Nurs 5:1-16.
    • (2000) Online J Iss Nurs , vol.5 , pp. 1-16
    • Lea, D.H.1
  • 17
    • 33847682868 scopus 로고    scopus 로고
    • Improving service evaluation in clinical genetics: Identifying effects of genetic diseases on individuals and families
    • McAllister M, Payne K, Nicholls S, MacLeod R, Donnai D, Davies L. 2007. Improving service evaluation in clinical genetics: Identifying effects of genetic diseases on individuals and families. J Genet Couns 16:71-83.
    • (2007) J Genet Couns , vol.16 , pp. 71-83
    • McAllister, M.1    Payne, K.2    Nicholls, S.3    MacLeod, R.4    Donnai, D.5    Davies, L.6
  • 19
    • 34848894537 scopus 로고    scopus 로고
    • Outcome measures for clinical genetics services: A comparison of genetics healthcare professionals and patients' views
    • Payne K, Nicholls S, McAllister M, MacLeod R, Ellis I, Donnai D, Davies L. 2007. Outcome measures for clinical genetics services: A comparison of genetics healthcare professionals and patients' views. Health Policy 84:112-122.
    • (2007) Health Policy , vol.84 , pp. 112-122
    • Payne, K.1    Nicholls, S.2    McAllister, M.3    MacLeod, R.4    Ellis, I.5    Donnai, D.6    Davies, L.7
  • 20
    • 29444450211 scopus 로고    scopus 로고
    • Australia's Health Workforce
    • Productivity Commission, Commonwealth of Australia. Retrieved 22 Nov 2007 from
    • Productivity Commission. 2005. "Australia's Health Workforce." Research Report, Commonwealth of Australia. Retrieved 22 Nov 2007 from http://www.pc.gov.au/_data/assets/pdf_file/0003/9480/healthworkforce.pdf.
    • (2005) Research Report
  • 21
    • 33645520377 scopus 로고    scopus 로고
    • Assessing the perceptions of program providers for serving children with genetic disorders and their families
    • Selber K, Hernandez VR, Tijerina M, Heyman C, Sallee C. 2006. Assessing the perceptions of program providers for serving children with genetic disorders and their families. Fam Soc 87:133-139.
    • (2006) Fam Soc , vol.87 , pp. 133-139
    • Selber, K.1    Hernandez, V.R.2    Tijerina, M.3    Heyman, C.4    Sallee, C.5
  • 22
    • 0032965514 scopus 로고    scopus 로고
    • Genetic counselling: Do we recognise and meet the consultands' agenda?
    • Shankar A, Chapman P, Goodship J. 1999. Genetic counselling: Do we recognise and meet the consultands' agenda?. J Med Genet 36:580-582.
    • (1999) J Med Genet , vol.36 , pp. 580-582
    • Shankar, A.1    Chapman, P.2    Goodship, J.3
  • 24
    • 0025151755 scopus 로고
    • Satisfaction with genetic counseling: Dimensions and measurement
    • Shiloh S, Avdor O, Goodman RM. 1990. Satisfaction with genetic counseling: Dimensions and measurement. Am J Med Genet 37:522-529.
    • (1990) Am J Med Genet , vol.37 , pp. 522-529
    • Shiloh, S.1    Avdor, O.2    Goodman, R.M.3
  • 25
    • 51449097009 scopus 로고    scopus 로고
    • Developing an audit tool to assess genetic services
    • Skirton H. 2005. Developing an audit tool to assess genetic services. Nurs Health Sci 7:143-146.
    • (2005) Nurs Health Sci , vol.7 , pp. 143-146
    • Skirton, H.1
  • 26
    • 33745906946 scopus 로고    scopus 로고
    • Assessing the need for certainty in users of a clinical genetic health service
    • Skirton H. 2006. Assessing the need for certainty in users of a clinical genetic health service. J Adv Nurs 55:151-158.
    • (2006) J Adv Nurs , vol.55 , pp. 151-158
    • Skirton, H.1
  • 27
    • 0842305120 scopus 로고    scopus 로고
    • Assessment of genetic testing and related counseling services: Current research and future directions
    • Wang C, Gonzalez R, Merajver SD. 2004. Assessment of genetic testing and related counseling services: Current research and future directions. Soc Sci Med 58:1427-1442.
    • (2004) Soc Sci Med , vol.58 , pp. 1427-1442
    • Wang, C.1    Gonzalez, R.2    Merajver, S.D.3
  • 28
    • 0033865640 scopus 로고    scopus 로고
    • Genetics services in a social, ethical and policy context: A collaboration between consumers and providers
    • Wertz DC, Gregg R. 2000. Genetics services in a social, ethical and policy context: A collaboration between consumers and providers. J Med Ethics 26:261-265.
    • (2000) J Med Ethics , vol.26 , pp. 261-265
    • Wertz, D.C.1    Gregg, R.2
  • 29
    • 0028188233 scopus 로고
    • The Delphi technique: A methodological discussion
    • Williams P, Webb C. 1994. The Delphi technique: A methodological discussion. J Adv Nurs 19:180-196.
    • (1994) J Adv Nurs , vol.19 , pp. 180-196
    • Williams, P.1    Webb, C.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.