Treating the whole person with autism: The proceedings of the autism speaks national autism conference

Current Problems in Pediatric and Adolescent Health Care

Volumn 44, Issue 2, 2014, Pages 26-47

  Coury, Daniel L ^a   Swedo, Susan E ^b   Thurm, Audrey E ^b   Miller, David T ^c   Veenstra Vanderweele, Jeremy M ^d   Carbone, Paul S ^e   Taylor, Julie Lounds ^f  

^a OHIO STATE UNIVERSITY   (United States)

^b NATIONAL INSTITUTE OF MENTAL HEALTH   (United States)

^c BOSTON CHILDREN S HOSPITAL   (United States)

^d VANDERBILT UNIVERSITY MEDICAL CENTER   (United States)

^e UNIVERSITY OF UTAH SCHOOL OF MEDICINE   (United States)

^f VANDERBILT UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

PSYCHOTROPIC AGENT;

ADULTHOOD; ARTICLE; AUTISM; BEHAVIOR DISORDER; CHILD CARE; CHILDHOOD; COMMUNICATION DISORDER; COMMUNITY CARE; COPY NUMBER VARIATION; DEVELOPMENTAL DISORDER; DIFFERENTIAL DIAGNOSIS; DSM-5; DSM-IV; EDUCATION; EMPLOYMENT; GENETIC ASSOCIATION; GENETIC HETEROGENEITY; GENETIC PREDISPOSITION; GENETIC RISK; GENETIC SCREENING; GENETIC VARIABILITY; GENETICS; HEALTH CARE SYSTEM; HEREDITY; HUMAN; INTELLECTUAL IMPAIRMENT; LANGUAGE DISABILITY; MEDICAL HISTORY; PERSONALIZED MEDICINE; PHARMACEUTICAL CARE; POST SECONDARY EDUCATION; RANDOMIZED CONTROLLED TRIAL (TOPIC); RECURRENCE RISK; SELF CARE; SINGLE NUCLEOTIDE POLYMORPHISM; SOCIAL COMMUNICATION DISORDER;

ADOLESCENT; ADOLESCENT HEALTH SERVICES; AGE OF ONSET; CHILD; CHILD DEVELOPMENT DISORDERS, PERVASIVE; CHILD HEALTH SERVICES; CHILD, PRESCHOOL; DIAGNOSTIC AND STATISTICAL MANUAL OF MENTAL DISORDERS; EDUCATIONAL STATUS; EMPLOYMENT; FEMALE; GENETIC PREDISPOSITION TO DISEASE; GENETIC TESTING; HUMANS; INTELLECTUAL DISABILITY; MALE; PREVALENCE; RANDOMIZED CONTROLLED TRIALS AS TOPIC;

EID: 84893306182     PISSN: 15385442     EISSN: 15383199     Source Type: Journal    
DOI: 10.1016/j.cppeds.2013.12.002     Document Type: Review

References (123)

1. American Psychiatric Association Diagnostic and statistical manual of mental disorders, DSM-IV-TR 2000 American Psychiatric Publishing Arlington, VA
2. J.S. Miller, D. Bilder, and M. Farley et al. Autism spectrum disorder reclassified: a second look at the 1980s Utah/UCLA autism epidemiologic study J Autism Dev Disord 2012 〈 10.1007/s10803-012-1566-0 ⌠[Published online 13 June 2012]
3. C. Lord, E. Petkova, and V. Hus et al. A multisite study of the clinical diagnosis of different autism spectrum disorders Arch Gen Psychiatry 69 3 2012 306 313
4. Autism and Developmental Disabilities Monitoring Network Surveillance Year 2008 Principal Investigators Centers for Disease Control and Prevention Prevalence of autism spectrum disorders - Autism and developmental disabilities monitoring network, 14 sites, United States, 2008 MMWR Surveill Summ 61 3 2012 1 19
5. Happe F. Why fold Asperger syndrome into autism spectrum disorder in the DSM-5? 〈 http://sfari.org/news-and-opinion/viewpoint/2011 âŒ; 2011.
6. R.E. Rosenberg, A.M. Daniels, J.K. Law, P.A. Law, and W.E. Kaufmann Trends in autism spectrum disorder diagnoses: 1994-2007 J Autism Dev Disord 39 8 2009 1099 1111
7. Carey, B. New definition of autism will exclude many, study suggests. New York Times, January 19, 2012. 〈 http://www.nytimes.com/2012/ 01/20/health/research/new-autism-definition-would-exclude-many-study-suggests. html?pagewanted=all âŒ; 2012.
8. J.C. McPartland, B. Reichow, and F.R. Volkmar Sensitivity and specificity of proposed DSM-5 diagnostic criteria for autism spectrum disorder J Am Acad Child Adolesc Psychiatry 51 4 2012 368 383
9. S.E. Swedo, G. Baird, and EH Cook Jr et al. Commentary from the DSM-5 workgroup on neurodevelopmental disorders J Am Acad Child Adolesc Psychiatry 51 4 2012 347 349 [United States]
10. D.E. Clarke, W.E. Narrow, and D.A. Regier et al. DSM-5 field trials in the United States and Canada, Part I: study design, sampling strategy, implementation, and analytic approaches Am J Psychiatry 170 1 2013 43 58
11. D.A. Regier, W.E. Narrow, and D.E. Clarke et al. DSM-5 field trials in the United States and Canada, Part II: test-retest reliability of selected categorical diagnoses Am J Psychiatry 170 1 2013 59 70
12. W. Mandy, T. Charman, J. Gilmour, and D. Skuse Toward specifying pervasive developmental disorder - not otherwise specified Autism Res 4 2 2011 121 131
13. W. Guthrie, L.B. Swineford, A.M. Wetherby, and C. Lord Comparison of DSM-IV and DSM-5 factor structure models for toddlers with autism spectrum disorder J Am Acad Child Adolesc Psychiatry 52 8 2013 797 805
14. K. Gotham, S.L. Bishop, and V. Hus et al. Exploring the relationship between anxiety and insistence on sameness in autism spectrum disorders Autism Res 6 1 2013 33 41
15. J.N. Constantino, Y. Zhang, T. Frazier, A.M. Abbacchi, and P. Law Sibling recurrence and the genetic epidemiology of autism Am J Psychiatry 167 11 2010 1349 1356 〈 10.1176/appi.ajp.2010.09101470 ⌠[Epub 2010 Oct 1]
16. S. Ozonoff, G.S. Young, and A. Carter et al. Recurrence risk for autism spectrum disorders: a Baby Siblings Research Consortium study Pediatrics 128 3 2011 e488 e495 〈 10.1542/peds.2010-2825 ⌠[Epub 2011 Aug 15]
17. Y. Shen, K.A. Dies, and I.A. Holm et al. Clinical genetic testing for patients with autism spectrum disorders Pediatrics 125 4 2010 e727 e735 〈 10.1542/peds.2009-1684 ⌠[Epub 2010 Mar 15]
18. J. Roesser Diagnostic yield of genetic testing in children diagnosed with autism spectrum disorders at a regional referral center Clin Pediatr 50 9 2011 834 843
19. J. Sebat, B. Lakshmi, and D. Malhotra et al. Strong association of de novo copy number mutations with autism Science 316 5823 2007 445 449 [Epub 2007 Mar 15]
20. B. Devlin, and S.W. Scherer Genetic architecture in autism spectrum disorder Curr Opin Genet Dev 22 3 2012 229 237 〈 10.1016/j.gde.2012.03.002 ⌠[Epub 2012 Mar 29]
21. Human Gene Module. 〈 https://gene.sfari.org/autdb/HG- Home.do âŒ; Accessed 22.10.13.
22. R. Anney, L. Klei, and D. Pinto et al. Individual common variants exert weak effects on the risk for autism spectrum disorders Hum Mol Genet 21 21 2012 4781 4792
23. L. Klei, S.J. Sanders, and M.T. Murtha et al. Common genetic variants, acting additively, are a major source of risk for autism Mol Autism 3 1 2012 9
24. D. Moreno-De-Luca, S.J. Sanders, and A.J. Willsey et al. Using large clinical data sets to infer pathogenicity for rare copy number variants in autism cohorts Mol Psychiatry 18 10 2013 1090 1095
25. G.B. Schaefer, N.J. Mendelsohn Professional Practice and Guidelines Committee Clinical genetics evaluation in identifying the etiology of autism spectrum disorders: 2013 guideline revisions Genet Med 15 5 2013 399 407
26. M.G. Butler, M.J. Dasouki, and X.P. Zhou et al. Subset of individuals with autism spectrum disorders and extreme macrocephaly associated with germline PTEN tumor suppressor gene mutations J Med Genet 42 4 2005 318 321
27. E. Ben-David, and S. Shifman Combined analysis of exome sequencing points toward a major role for transcription regulation during brain development in autism Mol psychiatry 2012 〈 10.1038/mp.2012.14 âŒ
28. M.H. Chahrour, T.W. Yu, and E.T. Lim et al. Whole-exome sequencing and homozygosity analysis implicate depolarization-regulated neuronal genes in autism PLoS Genet 8 4 2012 e1002635
29. B.J. O'Roak, P. Deriziotis, and C. Lee et al. Exome sequencing in sporadic autism spectrum disorders identifies severe de novo mutations Nat Genet 43 6 2011 585 589
30. S.J. Sanders, M.T. Murtha, and A.R. Gupta et al. De novo mutations revealed by whole-exome sequencing are strongly associated with autism Nature 485 2012 237 241 〈 10.1038/nature10945 âŒ
31. T.W. Yu, M.H. Chahrour, and M.E. Coulter et al. Using whole-exome sequencing to identify inherited causes of autism Neuron 77 2 2013 259 273
32. M.G. Aman, K.S. Lam, and A. Collier-Crespin Prevalence and patterns of use of psychoactive medicines among individuals with autism in the Autism Society of Ohio J Autism Dev Disord 33 5 2003 527 534
33. M.G. Aman, K.S. Lam, and M.E. Van Bourgondien Medication patterns in patients with autism: temporal, regional, and demographic influences J Child Adolesc Psychopharmacol 15 1 2005 116 126
34. D.L. Coury, E. Anagnostou, and P. Manning-Courtney et al. Use of psychotropic medication in children and adolescents with autism spectrum disorders Pediatrics 130 suppl 2 2012 S69 S76
35. K. Horvath, G. Stefanatos, K.N. Sokolski, R. Wachtel, L. Nabors, and J.T. Tildon Improved social and language skills after secretin administration in patients with autistic spectrum disorders J Assoc Acad Minor Phys 9 1 1998 9 15
36. S. Krishnaswami, M.L. McPheeters, and J. Veenstra-VanderWeele A systematic review of secretin for children with autism spectrum disorders Pediatrics 127 5 2011 e1322 e1325
37. B.H. King, E. Hollander, and L. Sikich et al. Lack of efficacy of citalopram in children with autism spectrum disorders and high levels of repetitive behavior: citalopram ineffective in children with autism Arch Gen Psychiatry 66 6 2009 583 590
38. A.D. Sandler, K.A. Sutton, J. DeWeese, M.A. Girardi, V. Sheppard, and J.W. Bodfish Lack of benefit of a single dose of synthetic human secretin in the treatment of autism and pervasive developmental disorder N Engl J Med 341 24 1999 1801 1806
39. Veenstra-VanderWeele J, Sikich L, Melmed R, et al. Randomized, controlled, phase 2 trial of STX209 (arbaclofen) for social function in ASD. International Meeting for Autism Research. San Sebastian, Spain. 2013.
40. D. Fein, M. Barton, and I.M. Eigsti et al. Optimal outcome in individuals with a history of autism J Child Psychol Psychiatry 54 2 2013 195 205
41. O. Lovaas Behavioral treatment and normal educational and intellectual functioning in young autistic children J Consult Clin Psychol 55 1 1987 3 9
42. Z. Warren, M.L. McPheeters, N. Sathe, J.H. Foss-Feig, A. Glasser, and J. Veenstra-VanderWeele A systematic review of early intensive intervention for autism spectrum disorders Pediatrics 127 5 2011 e1303 e1311
43. C.J. McDougle, J.P. Holmes, D.C. Carlson, G.H. Pelton, D.J. Cohen, and L.H. Price A double-blind, placebo-controlled study of risperidone in adults with autistic disorder and other pervasive developmental disorders Arch Gen Psychiatry 55 7 1998 633 641
44. J.T. McCracken, J. McGough, and B. Shah et al. Risperidone in children with autism and serious behavioral problems N Engl J Med 347 5 2002 314 321
45. C.J. McDougle, J.P. Holmes, and M.R. Bronson et al. Risperidone treatment of children and adolescents with pervasive developmental disorders: a prospective open-label study J Am Acad Child Adolesc Psychiatry 36 5 1997 685 693
46. R. Nicolson, G. Awad, and L. Sloman An open trial of risperidone in young autistic children J Am Acad Child Adolesc Psychiatry 37 4 1998 372 376
47. M.L. McPheeters, Z. Warren, and N. Sathe et al. A systematic review of medical treatments for children with autism spectrum disorders Pediatrics 127 5 2011 e1312 e1321
48. R.N. Marcus, R. Owen, and L. Kamen et al. A placebo-controlled, fixed-dose study of aripiprazole in children and adolescents with irritability associated with autistic disorder J Am Acad Child Adolesc Psychiatry 48 11 2009 1110 1119
49. R. Owen, L. Sikich, and R.N. Marcus et al. Aripiprazole in the treatment of irritability in children and adolescents with autistic disorder Pediatrics 124 6 2009 1533 1540
50. B. Reichow, F.R. Volkmar, and M.H. Bloch Systematic review and meta-analysis of pharmacological treatment of the symptoms of attention-deficit/hyperactivity disorder in children with pervasive developmental disorders J Autism Dev Disord 43 10 2013 2435 2441
51. E. Hollander, L. Soorya, and W. Chaplin et al. A double-blind placebo-controlled trial of fluoxetine for repetitive behaviors and global severity in adult autism spectrum disorders Am J Psychiatry 169 3 2012 292 299
52. C. McDougle, S. Naylor, D. Cohen, F. Volkmar, G. Heninger, and L. Price A double-blind, placebo-controlled study of fluvoxamine in adults with autistic disorder Arch Gen Psychiatry 53 11 1996 1001 1008
53. J.L. Rubenstein, and M.M. Merzenich Model of autism: increased ratio of excitation/inhibition in key neural systems Genes Brain Behav 2 5 2003 255 267
54. E. Cook, and B. Leventhal The serotonin system in autism Curr Opin Pediatr 8 4 1996 348 354
55. J.S. Sutcliffe, R.J. Delahanty, and H.C. Prasad et al. Allelic heterogeneity at the serotonin transporter locus (SLC6A4) confers susceptibility to autism and rigid-compulsive behaviors Am J Hum Genet 77 2 2005 265 279
56. K. Nakamura, Y. Sekine, and Y. Ouchi et al. Brain serotonin and dopamine transporter bindings in adults Arch Gen Psychiatry 67 1 2010 59 68
57. D.G. Murphy, E. Daly, and N. Schmitz et al. Cortical serotonin 5-HT2A receptor binding and social communication in adults with Asperger's syndrome: an in vivo SPECT study Am J Psychiatry 163 5 2006 934 936
58. C.F. Zink, and A. Meyer-Lindenberg Human neuroimaging of oxytocin and vasopressin in social cognition Horm Behav 61 3 2012 400 409
59. G. Domes, M. Heinrichs, E. Kumbier, A. Grossmann, K. Hauenstein, and S.C. Herpertz Effects of intranasal oxytocin on the neural basis of face processing in autism spectrum disorder Biol Psychiatry 74 3 2013 164 171
60. E. Hollander, J. Bartz, and W. Chaplin et al. Oxytocin increases retention of social cognition in autism Biol Psychiatry 61 4 2007 498 503
61. D. Ehninger, S. Han, and C. Shilyansky et al. Reversal of learning deficits in a Tsc2+/-mouse model of tuberous sclerosis Nat Med 14 8 2008 843 848
62. P.T. Tsai, C. Hull, and Y. Chu et al. Autistic-like behaviour and cerebellar dysfunction in Purkinje cell Tsc1 mutant mice Nature 488 7413 2012 647 651
63. G. Dawson, S. Rogers, and J. Munson et al. Randomized, controlled trial of an intervention for toddlers with autism: the Early Start Denver Model Pediatrics 125 1 2010 e17 e23
64. J.T. Danial, and J.J. Wood Cognitive behavioral therapy for children with autism: review and considerations for future research J Dev Behav Pediatr 34 9 2013 702 715
65. L.E. Arnold, M.G. Aman, and X. Li et al. Research Units of Pediatric Psychopharmacology (RUPP) Autism Network randomized clinical trial of parent training and medication: one-year follow-up J Am Acad Child Adolesc Psychiatry 51 11 2012 1173 1184
66. M.G. Aman, C.J. McDougle, and L. Scahill et al. Medication and parent training in children with pervasive developmental disorders and serious behavior problems: results from a randomized clinical trial J Am Acad Child Adolesc Psychiatry 48 12 2009 1143 1154
67. M. Davis, K. Ressler, B.O. Rothbaum, and R. Richardson Effects of d-cycloserine on extinction: translation from preclinical to clinical work Biol Psychiatry 60 4 2006 369 375
68. D. Coury Medical treatment of autism spectrum disorders Curr Opin Neurol 23 2 2010 131 136
69. M.L. Bauman Medical comorbidities in autism: challenges to diagnosis and treatment Neurotherapeutics 7 3 2010 320 327
70. The medical home Pediatrics 110 1 Pt 1 2002 184 186
71. W.C. Cooley, J.W. McAllister, K. Sherrieb, and K. Kuhlthau Improved outcomes associated with medical home implementation in pediatric primary care Pediatrics 124 1 2009 358 364
72. A.E. Brachlow, K.K. Ness, M.L. McPheeters, and J.G. Gurney Comparison of indicators for a primary care medical home between children with autism or asthma and other special health care needs: National Survey of Children's Health Arch Pediatr Adolesc Med 161 4 2007 399 405
73. M.D. Kogan, B.B. Strickland, S.J. Blumberg, G.K. Singh, J.M. Perrin, and P.C. van Dyck A national profile of the health care experiences and family impact of autism spectrum disorder among children in the United States, 2005-2006 Pediatrics 122 6 2008 e1149 e1158
74. D. Denboba, M.G. McPherson, M.K. Kenney, B. Strickland, and P.W. Newacheck Achieving family and provider partnerships for children with special health care needs Pediatrics 118 4 2006 1607 1615
75. A. Golnik, N. Maccabee-Ryaboy, P. Scal, A. Wey, and P. Gaillard Shared decision making: improving care for children with autism Intellect Dev Disabil 50 4 Aug 2012 322 331
76. P.S. Carbone, N.A. Murphy, C. Norlin, V. Azor, X. Sheng, and P.C. Young Parent and pediatrician perspectives regarding the primary care of children with autism spectrum disorders J Autism Dev Disord 43 4 2013 964 972
77. McDonald K, Schultz E, Albin L, et?al. Care Coordination Atlas Version 3. (Prepared by Stanford University under subcontract to Battelle on contract 290-04-0020.) Rockville, MD: Agency for Healthcare Research and Quality. 2010 [AHRQ publication 11-0023-EF].
78. S.L. Toomey, A.T. Chien, M.N. Elliott, J. Ratner, and M.A. Schuster Disparities in unmet need for care coordination: the national survey of children's health Pediatrics 131 2 2013 217 224
79. Pringle B, Colpe LJ, Blumberg SJ, Avila RM, Kogan MD. Diagnostic history and treatment of school-aged children with autism spectrum disorder and special health care needs. NCHS Data Brief. 2012(97):1-8.
80. R.M. Turchi, Z. Berhane, C. Bethell, A. Pomponio, R. Antonelli, and C.S. Minkovitz Care coordination for CSHCN: associations with family-provider relations and family/child outcomes Pediatrics 124 suppl 4 2009 S428 S434
81. D. Weedon, P. Carbone, D. Bilder, S. O'Brien, and J. Dorius Building a person-centered medical home: lessons from a program for people with developmental disabilities J Health Care Poor Underserved 23 4 2012 1600 1608
82. G.L. Freed, S.J. Clark, A.T. Butchart, D.C. Singer, and M.M. Davis Parental vaccine safety concerns in 2009 Pediatrics 125 4 2010 654 659
83. A. Bazzano, A. Zeldin, E. Schuster, C. Barrett, and D. Lehrer Vaccine-related beliefs and practices of parents of children with autism spectrum disorders Am J Intellect Dev Disabil 117 3 2012 233 242
84. R.E. Rosenberg, J.K. Law, C. Anderson, C. Samango-Sprouse, and P.A. Law Survey of vaccine beliefs and practices among families affected by autism spectrum disorders Clin Pediatr (Phila) 52 9 2013 Sep 871 874
85. E. Hanson, L.A. Kalish, and E. Bunce et al. Use of complementary and alternative medicine among children diagnosed with autism spectrum disorder J Autism Dev Disord 37 4 2007 628 636
86. G.S. Liptak, M. Orlando, and J.T. Yingling et al. Satisfaction with primary health care received by families of children with developmental disabilities J Pediatr Health Care 20 4 2006 245 252
87. A.E. Golnik, and M. Ireland Complementary alternative medicine for children with autism: a physician survey J Autism Dev Disord 39 7 2009 996 1005
88. P.S. Carbone, D.D. Behl, V. Azor, and N.A. Murphy The medical home for children with autism spectrum disorders: parent and pediatrician perspectives J Autism Dev Disord 40 3 2010 317 324
89. A. Golnik, M. Ireland, and I.W. Borowsky Medical homes for children with autism: a physician survey Pediatrics 123 3 2009 966 971
90. B.B. Strickland, P.C. van Dyck, and M.D. Kogan et al. Assessing and ensuring a comprehensive system of services for children with special health care needs: a public health approach Am J Public Health 101 2 2011 224 231
91. National Survey of Children with Special Health Care Needs. 〈 http://www.childhealthdata.org/learn/NS-CSHCN âŒ; Accessed 1.2.13.
92. L.A. Schieve, S.L. Boulet, and M.D. Kogan et al. Parenting aggravation and autism spectrum disorders: 2007 National Survey of Children's Health Disabil Health J 4 3 2011 143 152
93. M. Bayat Evidence of resilience in families of children with autism J Intellect Disabil Res 51 Pt 9 2007 702 714
94. M.B. Bruder, G. Kerins, C. Mazzarella, J. Sims, and N. Stein Brief report: the medical care of adults with autism spectrum disorders: identifying the needs J Autism Dev Disord 42 11 2012 2498 2504
95. Autism Speaks Transition Tool Kit. 〈 http://www.autismspeaks.org/family-services/tool-kits/transition-tool-kit âŒ; Accessed 31.10.13.
96. J.S. Miller, T. Gabrielsen, and M. Villalobos et al. The each child study: systematic screening for autism spectrum disorders in a pediatric setting Pediatrics 127 5 2011 866 871
97. K. Pierce, C. Carter, and M. Weinfeld et al. Detecting, studying, and treating autism early: the one-year well-baby check-up approach J Pediatr 159 3 2011 458 465
98. D.C.P. Weedon, D. Bilder, S. O'Brien, and J. Dorius Building a person-centered medical home: lessons from a program for people with developmental disabilities J Health Care Poor Underserved 23 4 2012 1600 1608
99. A. Golnik, P. Scal, A. Wey, and P. Gaillard Autism-specific primary care medical home intervention J Autism Dev Disord 42 6 2012 1087 1093
100. G.T. Furuta, K. Williams, and K. Kooros et al. Management of constipation in children and adolescents with autism spectrum disorders Pediatrics 130 suppl 2 2012 S98 S105
101. B.A. Malow, K. Byars, and K. Johnson et al. A practice pathway for the identification, evaluation, and management of insomnia in children and adolescents with autism spectrum disorders Pediatrics 130 suppl 2 2012 S106 S124
102. R. Mahajan, M.P. Bernal, and R. Panzer et al. Clinical practice pathways for evaluation and medication choice for attention-deficit/hyperactivity disorder symptoms in autism spectrum disorders Pediatrics 130 suppl 2 2012 S125 S138
103. S.M. Myers, and C.P. Johnson Management of children with autism spectrum disorders Pediatrics 120 5 2007 1162 1182
104. C.P. Johnson, and S.M. Myers Identification and evaluation of children with autism spectrum disorders Pediatrics 120 5 2007 1183 1215
105. S.L. Parish, K.C. Thomas, R. Rose, M. Kilany, and P.T. Shattuck State Medicaid spending and financial burden of families raising children with autism Intellect Dev Disabil 50 6 2012 441 451
106. Essential Health Benefits. 〈 http://www.healthcare. gov/glossary/e/essential.html âŒ; 2012 Accessed 7.7.13.
107. J.E. Schulenberg, A.J. Sameroff, and D. Cicchetti The transition to adulthood as a critical juncture in the course of psychopathology and mental health Dev Psychopathol 16 4 2004 799 806
108. P. Howlin, J. Alcock, and C. Burkin An 8?year follow-up of a specialist supported employment service for high-ability adults with autism or Asperger syndrome Autism 9 5 2005 533 549
109. P.T. Shattuck, M. Wagner, S. Narendorf, P. Sterzing, and M. Hensley Post-high school service use among young adults with an autism spectrum disorder Arch Pediatr Adolesc Med 165 2 2011 141 146
110. J.L. Taylor, and M.M. Seltzer Employment and post-secondary education activities for young adults with autism spectrum disorders during the transition to adulthood J Autism Dev Disord 41 5 2011 566 574
111. P.T. Shattuck, S.C. Narendorf, B. Cooper, P.R. Sterzing, M. Wagner, and J.L. Taylor Postsecondary education and employment among youth with an autism spectrum disorder Pediatrics 129 6 2012 1042 1049
112. J.L. Taylor, and M.M. Seltzer Change in the autism phenotype during the transition to adulthood J Autism Dev Disord 40 12 2010 1431 1446
113. J.L. Taylor, and M.M. Seltzer Changes in the mother-child relationship during the transition to adulthood for youth with autism spectrum disorders J Autism Dev Disord 41 10 2011 1397 1410
114. N.A. Henninger, and J.L. Taylor Outcomes in adults with autism spectrum disorders: a historical perspective Autism 17 1 2013 103 116
115. Henninger NA, Taylor JL. Family perspectives on a successful transition to adulthood for individuals with disabilities. (Under review).
116. E.W. Carter, D. Austin, and A.A. Trainor Predictors of postschool employment outcomes for young adults with severe disabilities J Disabil Policy Stud 23 1 2012 50 63
117. M. Wagner, T. Cadwallader, and C. Marder Life Outside the Classroom for Youth With Disabilities: A Report From the National Longitudinal Transition Study-2 2003 SRI International Menlo Park, CA
118. Howlin P. Outcomes in autism spectrum disorders. In: Volkmar FR, Paul R, Klin A, Cohen D, eds. Handbook of Autism and Pervasive Developmental Disorders. 1. 3rd ed. Hoboken, NJ: John Wiley & Sons, Inc.; 2005:201-220
119. J.L. Taylor, and M.R. Mailick A longitudinal examination of 10-year change in achievement outcomes for adults with autism spectrum disorders Dev Psychol 50 9 2013 888 898
120. M.A. Farley, W.M. McMahon, and E. Fombonne et al. Twenty-year outcome for individuals with autism and average or near-average cognitive abilities Autism Res 2 2 2009 109 118
121. 〈 www.thinkcollege.net âŒ; Accessed 6.8.13.
122. E.W. Carter, M.N. Harvey, J.L. Taylor, and K. Gothan Connecting youth and young adults with autism spectrum disorders to community life Psychol Schools 50 9 2013 888 898
123. H.M. Chiang, Y.K. Cheung, L. Hickson, R. Xiang, and L.Y. Tsai Predictive factors of participation in postsecondary education for high school leavers with autism J Autism Dev Disord 42 5 2012 685 696