Disparities in unmet need for care coordination: The national survey of children's health

Pediatrics

Volumn 131, Issue 2, 2013, Pages 217-224

  Toomey, Sara L ^a,b   Chien, Alyna T ^a,b   Elliott, Marc N ^c   Ratner, Jessica ^a   Schuster, Mark A ^a,b  

^a BOSTON CHILDREN S HOSPITAL   (United States)

^b HARVARD MEDICAL SCHOOL   (United States)

^c RAND CORPORATION   (United States)

Author keywords

Care coordination; CSHCN; Disparities; Variation in care

Indexed keywords

ADOLESCENT; ADULT; BIVARIATE ANALYSIS; CAUCASIAN; CHILD; CHILD HEALTH CARE; CROSS-SECTIONAL STUDY; DEMOGRAPHY; ETHNIC DIFFERENCE; FAMILY CENTERED CARE; FEMALE; HEALTH CARE DELIVERY; HEALTH CARE DISPARITY; HEALTH CARE NEED; HEALTH CARE PERSONNEL; HEALTH SURVEY; HISPANIC; HUMAN; INFANT; MAJOR CLINICAL STUDY; MALE; MULTIVARIATE ANALYSIS; NEGRO; OUTCOME ASSESSMENT; PARENT; PRESCHOOL CHILD; PRIORITY JOURNAL; RACE DIFFERENCE; REVIEW; SCHOOL CHILD; SOCIAL STATUS;

EID: 84873426394     PISSN: 00314005     EISSN: 10984275     Source Type: Journal    
DOI: 10.1542/peds.2012-1535     Document Type: Review

References (39)

1. National Research Council. Crossing the Quality Chasm: A New Health System for the 21st Century. Washington, DC: The National Academies Press, 2001
2. Ziring PR, Brazdziunas D, Cooley WC, et al Committee on Children With Disabilities. Care coordination: integrating health and related systems of care for children with special health care needs. Pediatrics. 1999; 104(4 pt 1):978-981
3. Patient Protection and Affordable Care Act, 124 Stat 119-1025, HR 3590 (2010)
4. Health-related portions of the Health Care and Education Reconciliation Act of 2010, 124 Stat 1029-1084, HR 4872 (2010)
5. McDonald K, Schultz E, Albin L, et al. Care Coordination Atlas Version 3. (Prepared by Stanford University under subcontract to Battelle on contract 290-04-0020.) Rockville, MD: Agency for Healthcare Research and Quality; November 2010. AHRQ publication 11-0023-EF
6. Wise P, Huffman L, Brat G. A Critical Analysis of Care Coordination Strategies for Children With Special Health Care Needs, Technical Review 14. (Prepared by the Stanford University-UCSF Evidence-based Practice Center under contract 290-02-0017.) Rockville, MD: Agency for Healthcare Research and Quality; June 2007. AHRQ publication 07-0054
7. McDonald K, Sundaram V, Bravata D, et al. Closing the Quality Gap: A Critical Analysis of Quality Improvement Strategies: Volume 7 -Care Coordination, Technical Review 9. (Prepared by the Stanford University-UCSF Evidence-based Practice Center under contract 290-02-0017.) Rockville, MD: Agency for Healthcare Research and Quality; June 2007. AHRQ publication 04(07)-0051-7
8. Franks P, Clancy CM, Nutting PA. Gatekeeping revisited -protecting patients from overtreatment. N Engl J Med. 1992;327(6):424-429
9. Roland MO, Porter RW, Matthews JG, Redden JF, Simonds GW, Bewley B. Improving care: a study of orthopaedic outpatient referrals. BMJ. 1991;302(6785):1124-1128
10. Gandhi TK, Sittig DF, Franklin M, Sussman AJ, Fairchild DG, Bates DW. Communication breakdown in the outpatient referral process. J Gen Intern Med. 2000;15(9):626-631
11. Epstein RM. Communication between primary care physicians and consultants. Arch Fam Med. 1995;4(5):403-409
12. Forrest CB, Glade GB, Baker AE, Bocian A, von Schrader S, Starfield B. Coordination of specialty referrals and physician satisfaction with referral care. Arch Pediatr Adolesc Med. 2000;154(5):499-506
13. Forrest CB, Glade GB, Starfield B, Baker AE, Kang M, Reid RJ. Gatekeeping and referral of children and adolescents to specialty care. Pediatrics. 1999;104(1 pt 1):28-34
14. Cummins RO, Smith RW, Inui TS. Communication failure in primary care: failure of consultants to provide follow-up information. JAMA. 1980;243(16):1650-1652
15. McPhee SJ, Lo B, Saika GY, Meltzer R. How good is communication between primary care physicians and subspecialty consultants? Arch Intern Med. 1984;144(6): 1265-1268
16. Stille CJ, Korobov N, Primack WA. Generalist-subspecialist communication about children with chronic conditions: an analysis of physician focus groups. Ambul Pediatr. 2003;3(3):147-153
17. Stille CJ, McLaughlin TJ, Primack WA, Mazor KM, Wasserman RC. Determinants and impact of generalist-specialist communication about pediatric outpatient referrals. Pediatrics. 2006;118(4):1341-1349
18. Lee T, Pappius EM, Goldman L. Impact of inter-physician communication on the effectiveness of medical consultations. Am J Med. 1983;74(1):106-112
19. American Academy of Pediatrics Medical Home Initiatives for Children With Special Needs Project Advisory Committee.. The medical home. Pediatrics. 2002;110(1 pt 1):184-186
20. American College of Physicians. The Advanced Medical Home: A Patient-Centered, Physician-Guided Model of Health Care. Philadelphia, PA: American College of Physicians; 2005: Position Paper.
21. Kuo DZ, Bird TM, Tilford JM. Associations of family-centered care with health care outcomes for children with special health care needs. Matern Child Health J. 2011;15(6): 794-805
22. Committee on Hospital Care and Institute for Patient-and Family-Centered Care. Patient-and family-centered care and the pediatrician's role. Pediatrics. 2012;129(2): 394-404
23. Bethell CD, Read D, Stein REK, Blumberg SJ, Wells N, Newacheck PW. Identifying children with special health care needs: development and evaluation of a short screening instrument. Ambul Pediatr. 2002;2(1):38-48
24. Data Resource Center for Child and Adolescent Health. The National Survey of Children's Health. 2012. Available at: http://childhealthdata.org/learn/ NSCH. Accessed May 18, 2012
25. Centers for Disease Control and Prevention. State and Local Area Integrated Telephone Survey. Available at: www.cdc.gov/nchs/slaits/about-slaits. htm. Accessed July 21, 2012
26. Blumberg SJ, Foster EB, Frasier AM, et al. Design and Operation of the National Survey of Children's Health, 2007. National Center for Health Statistics. Vital Health Stat. 2012;1(55).
27. Toomey SL, Homer CJ, Finkelstein JA. Comparing medical homes for children with ADHD and asthma. Acad Pediatr. 2010; 10(1):56-63
28. Kenney MK, Kogan MD. Special needs children with speech and hearing difficulties: prevalence and unmet needs. Acad Pediatr. 2011;11(2):152-160
29. Nageswaran S, Johnson Silver E, Stein RE. Association of functional limitation with health care needs and experiences of children with special health care needs. Pediatrics. 2008;121(5):994-1001
30. Hovén E, Lannering B, Gustafsson G, Boman KK. The met and unmet health care needs of adult survivors of childhood central nervous system tumors: a doubleinformant, population-based study. Cancer. 2011;117(18):4294-4303
31. Kuo DZ, Cohen E, Agrawal R, Berry JG, Casey PH. A national profile of caregiver challenges among more medically complex children with special health care needs. Arch Pediatr Adolesc Med. 2011;165(11): 1020-1026
32. Institute of Medicine. Future Directions for the National Healthcare Quality and Disparities Reports. Washington, DC: National Academy Press; 2010
33. Murphy MM, Simons JP, Ng SC, et al. Racial differences in cancer specialist consultation, treatment, and outcomes for locoregional pancreatic adenocarcinoma. Ann Surg Oncol. 2009;16(11):2968-2977
34. Stevens J, Harman JS, Kelleher KJ. Race/ethnicity and insurance status as factors associated with ADHD treatment patterns. J Child Adolesc Psychopharmacol. 2005;15 (1):88-96
35. Tai-Seale M, Freund D, LoSasso A. Racial disparities in service use among medicaid beneficiaries after mandatory enrollment in managed care: a difference-in-differences approach. Inquiry. 2011/11/01 2001;38(1):49-59
36. American Academy of Pediatrics Medical Home Initiatives for Children With Special Needs Project Advisory Committee. Policy statement: organizational principles to guide and define the child health care system and/or improve the health of all children. Pediatrics. 2004;113(5 suppl): 1545-1547
37. Cooley WC, McAllister JW. Building medical homes: improvement strategies in primary care for children with special health care needs. Pediatrics. 2004;113(5 suppl):1499-1506
38. National Committee for Quality Assurance. Patient-centered medical home. 2011. Available at: www.ncqa.org/tabid/631/default. aspx. Accessed May 18, 2012
39. Zickafoose JS, Gebremariam A, Davis MM. Medical home disparities for children by insurance type and state of residence. Matern Child Health J. 2012;16(suppl 1): S178-S187