Post-high school service use among young adults with an autism spectrum disorder

Archives of Pediatrics and Adolescent Medicine

Volumn 165, Issue 2, 2011, Pages 141-146

  Shattuck, Paul T ^a   Wagner, Mary ^b   Narendorf, Sarah ^a   Sterzing, Paul ^a   Hensley, Melissa ^a  

^a WASHINGTON UNIVERSITY IN ST LOUIS   (United States)

^b SRI INTERNATIONAL   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ADULT DISEASE; AFRICAN AMERICAN; ARTICLE; AUTISM; CASE MANAGEMENT; FEMALE; HEALTH CARE UTILIZATION; HEALTH SURVEY; HIGH SCHOOL GRADUATE; HUMAN; LOWEST INCOME GROUP; MAJOR CLINICAL STUDY; MALE; MEDICAL ASSESSMENT; MENTAL FUNCTION; MENTAL HEALTH SERVICE; PARENT; PREVALENCE; PRIORITY JOURNAL; RACE DIFFERENCE; RISK FACTOR; SPEECH THERAPY; TELEPHONE; UNITED STATES;

CASE MANAGEMENT; CHILD; CHILD DEVELOPMENT DISORDERS, PERVASIVE; FEMALE; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; MALE; MENTAL HEALTH SERVICES; QUESTIONNAIRES; SPEECH THERAPY; UNITED STATES; YOUNG ADULT;

EID: 79751497709     PISSN: 10724710     EISSN: 15383628     Source Type: Journal    
DOI: 10.1001/archpediatrics.2010.279     Document Type: Article

References (31)

1. US Department of Education, Office of Special Education Programs, Data Analysis System. Table 1-11: Children and students served under IDEA, part B, in the US and outlying areas by age group, year, and disability category: fall 1998 through fall 2007. https://www.ideadata.org/TABLES31ST/AR-1-11.htm. Accessed August 17, 2009.
2. Shattuck PT. The contribution of diagnostic substitution to the growing administrative prevalence of autism in US special education. Pediatrics. 2006;117(4):1028-1037. (Pubitemid 46071493)
3. Rutter M. Incidence of autism spectrum disorders: changes over time and their meaning. Acta Paediatr. 2005;94(1):2-15. (Pubitemid 40127925)
4. Fombonne E. The changing epidemiology of autism. J Appl Res Intellect Disabil. 2005;18(4):281-294. doi:10.1111/j.1468-3148.2005.00266.x. (Pubitemid 41687543)
5. Shattuck PT, Grosse SD. Issues related to the diagnosis and treatment of autism spectrum disorders. Ment Retard Dev Disabil Res Rev. 2007;13(2):129-135. (Pubitemid 47092766)
6. National Conference of State Legislatures. Autism policy issues overview. http://www.ncsl.org/IssuesResearch/Health/AutismPolicyIssuesOverview/tabid/ 14390/Default.aspx. Accessed December 21, 2009.
7. Centers for Disease Control and Prevention. Learn the Signs. Act Early. Early Identification of Children With Autism or Other Developmental Disorders awareness campaign. http://www.cdc.gov/ncbddd/autism/actearly/. Accessed May 16, 2006.
8. Johnson CP, Myers SM; American Academy of Pediatrics Council on Children With Disabilities. Identification and evaluation of children with autism spectrum disorders. Pediatrics. 2007;120(5):1183-1215. (Pubitemid 350085561)
9. Howlin P. Redressing the balance in autism research. Nat Clin Pract Neurol. 2008;4(8):407.
10. Interagency Autism Coordinating Committee. The Interagency Autism Coordinating Committee strategic plan for autism spectrum disorder research, January 26, 2009. http://iacc.hhs.gov/reports/2009/iacc-strategic-plan-for- autism-spectrum-disorder-research-jan26.shtml. Accessed May 1, 2009.
11. Hogan DP, Astone NM. The transition to adulthood. Annu Rev Sociol. 1986;12:109-130.
12. Gore S, Aseltine RH, Schilling EA. Transition to adulthood, mental health, and inequality. In: Avison WR, McLeod JD, Pescosolido BA, eds. Mental Health, Social Mirror. New York, NY: Springer; 2007:219-237.
13. Rutter M. Pathways from childhood to adult life. J Child Psychol Psychiatry. 1989;30(1):23-51.
14. Seltzer MM, Shattuck P, Abbeduto L, Greenberg JS. Trajectory of development in adolescents and adults with autism. Ment Retard Dev Disabil Res Rev. 2004;10(4):234-247. (Pubitemid 40209457)
15. Schall C, Cortijo-Doval E, Targett PS, Wehman P. Applications for youth with autism spectrum disorders. In: Wehman P, ed. Life Beyond the Classroom: Transition Strategies for Young People With Disabilities. 4th ed. Baltimore, MD: Paul H. Brookes; 2006.
16. Gerhardt PE. Effective transition planning for learners with ASD approaching adulthood. Impact. 2006;19:18-19.
17. National Institute of Mental Health. Refining and testing mental health interventions and services for youth with mental illness who are transitioning to adulthood. http://grants.nih.gov/grants/guide/rfa-files/RFA-MH-07-051.html. Accessed August 20, 2008.
18. Myers SM, Johnson CP; American Academy of Pediatrics Council on Children With Disabilities. Management of children with autism spectrum disorders. Pediatrics. 2007;120(5):1162-1182.
19. Levine P, Marder C, Wagner M. Services and Supports for Secondary School Students With Disabilities. Menlo Park, CA: SRI International; 2004.
20. SRI International. The National Longitudinal Transition Study II (NLTS2) Sampling Plan. Menlo Park, CA: SRI International; 2000.
21. Wagner M, Kutash K, Duchnowski AJ, Epstein MH. The Special Education Elementary Longitudinal Study and the National Longitudinal Transition Study: study designs and implications for children and youth with emotional disturbance. J Emot Behav Disord. 2005;13(1):25-41. doi:10.1177/ 10634266050130010301. (Pubitemid 40366845)
22. Bertrand J, Mars A, Boyle C, Bove F, Yeargin-Allsopp M, Decoufle P. Prevalence of autism in a United States population: the Brick Township, New Jersey, investigation. Pediatrics. 2001;108(5):1155-1161. (Pubitemid 33021192)
23. Yeargin-Allsopp M, Rice C, Karapurkar T, Doernberg N, Boyle C, Murphy C. Prevalence of autism in a US metropolitan area. JAMA. 2003;289(1):49-55. (Pubitemid 36026277)
24. Raghunathan TE, Lepkowski JM, Van Hoewyk J, Solenberger P. A multivariate technique for multiply imputing missing values using a sequence of regression models. Surv Methodol. 2001;27(1):85-95.
25. IVEware: Imputation and Variance Estimation Software [computer program]. Version 0.1. Ann Arbor: Survey Methodology Program, Survey Research Center, Institute for Social Research, University of Michigan; 2002.
26. Rubin DB. Multiple Imputation for Nonresponse in Surveys. New York, NY: John Wiley & Sons; 1987.
27. Interagency Autism Coordinating Committee. The 2010 Interagency Autism Coordinating Committee Strategic Plan for Autism Spectrum Disorder Research. http://iacc.hhs.gov/strategic-plan/2010/index.shtml. Accessed April 21, 2010.
28. Bhandari A, Wagner T. Self-reported utilization of health care services: improving measurement and accuracy. Med Care Res Rev. 2006;63(2):217-235. (Pubitemid 43344151)
29. Parish SL, Rose RA, Andrews ME, Shattuck PT. Receipt of professional care coordination among families raising children with special health care needs: a multilevel analysis of state policy needs. Child Youth Serv Rev. 2009;31(1):63-70. doi:10.1016/j.childyouth.2008.05.010.
30. Shattuck PT, Parish SL. Financial burden in families of children with special health care needs: variability among states. Pediatrics. 2008;122(1):13-18.
31. Parish SL, Shattuck PT, Rose RA. Financial burden of raising CSHCN: association with state policy choices. Pediatrics. 2009;124(suppl 4):S435-S442.