User involvement in service integration and carers' views of co-locating children's services

Journal of Health, Organisation and Management

Volumn 27, Issue 5, 2013, Pages 601-617

  Kaehne, Axel ^a   Catherall, Chris ^b  

^a CARDIFF UNIVERSITY SCHOOL OF MEDICINE   (United Kingdom)

^b BETSI CADWALADR UNIVERSITY HEALTH BOARD   (United Kingdom)

Author keywords

Carer; Commissioning; Health care; Integration; Intellectual disabilities; Service planning; Social care; User involvement

Indexed keywords

ARTICLE; CHILD; CHILD HEALTH CARE; CHILD WELFARE; DEVELOPMENTAL DISORDER; HANDICAPPED CHILD; HUMAN; HUMAN RELATION; LEARNING DISORDER; METHODOLOGY; NEEDS ASSESSMENT; ORGANIZATION AND MANAGEMENT; PROGRAM DEVELOPMENT; PUBLIC RELATIONS; STANDARD; SYSTEM ANALYSIS; UNITED KINGDOM;

CHILD; CHILD HEALTH SERVICES; CHILD WELFARE; DEVELOPMENTAL DISABILITIES; DISABLED CHILDREN; HUMANS; INTERINSTITUTIONAL RELATIONS; LEARNING DISORDERS; NEEDS ASSESSMENT; PROFESSIONAL-FAMILY RELATIONS; PROGRAM DEVELOPMENT; SYSTEMS INTEGRATION; WALES;

EID: 84884242588     PISSN: 14777266     EISSN: None     Source Type: Journal    
DOI: 10.1108/JHOM-04-2012-0072     Document Type: Article

References (74)

1. Addicott, R., McGivern, G. (2006), "Networks, organizational learning and knowledge management: NHS cancer networks" in Public Money and Management, Vol. 26, No. 2, pp. 87-94.
2. Bailey, N.M., Cooper, S.-A. (1997), "The current provision of specialist health services to people with learning disabilities in England and Wales" in Journal of Intellectual Disability Research, Vol. 41, No. 1, pp. 52-59.
3. Balogh, R., Oulette-Kuntz, H. (2009), "Organising health care services for persons with an intellectual disability (Review)" in The Cochrane Library, No. 1, pp. 1-39.
4. Barnes, P. (2008), "Multi-agency working: what are the perspectives of SENCos and parents regarding its development and implementation?" in British Journal of Special Education, Vol. 35, No. 4, pp. 230-240.
5. Bernard, S., Aspinal, F. (2010), "Integrated services for people with long-term neurological conditions: evaluation of the impact of the National Service Framework", Research Works. Social Policy Research Unit, York.
6. Bovaird, T. (2007), "Beyond engagement and participation: user and community coproduction of public services" in Public Administration Review, Vol. 67, No. 5, pp. 846-860.
7. Bowling, A. (2009), Research Methods in Health: Investigating Health and Health Services, Open University: McGraw Hill, Maidenhead.
8. Caine, A., Hatton, C. (1999), "Service provision" in Emerson, E., Hatton, C., Bromley, J. and Caine, A. (Eds.), Clinical Psychology and People with Intellectual Disabilities, John Wiley & Sons, Chichester, pp. 54-75.
9. Carvalho, C., Brito, C. (2012), "Assessing users' perceptions on how to improve public service quality" in Public Management Review, Vol. 14, No. 4, pp. 451-472.
10. Case, S. (2001), "Learning to partner, disabling conflict: early indications of an improving relationship between parents and professionals with regard to service provision for children with learning disabilities" in Disability and Society, Vol. 16, No. 6, pp. 837-854.
11. Chenoweth, L., Clements, N. (2011), "Participation opportunities for adults with intellectual disabilities provided by disability services in one Australian state" in Journal of Policy and Practice in Intellectual Disabilities, Vol. 8, No. 3, pp. 172-182.
12. Cooney, B.F. (2002), "Exploring perspectives on transition of youth with disabilities: voices of young adults, parents, and professionals" in Mental Retardation, Vol. 40, No. 6, pp. 425-435.
13. Cowen, A., Murray, P. (2011), "Personalised transition: a collaborative approach to funding individual budgets for young disabled people with complex needs leaving school" in Journal of Integrated Care, Vol. 19, No. 2, pp. 30-36.
14. Cumella, S. (2008), "New public management and public services for people with intellectual disability: a review of the implementation of valuing people in England" in Journal of Policy and Practice in Intellectual Disabilities, Vol. 5, No. 3, pp. 178-186.
15. Dibben, P., Bartlett, D. (2001), "Local government and service users: empowerment through user-led innovation?" in Local Government Studies, Vol. 27, No. 3, pp. 43-58.
16. Dickinson, H. (2008), Evaluating Outcomes in Health and Social Care, Policy Press, Bristol.
17. Dickinson, H., Neal, C. (2011), "Single point of access to third sector services: the Conwy collaborative approach" in Journal of Integrated Care, Vol. 19, No. 2, pp. 37-48.
18. DoH (2001), Valuing People. A New Strategy for Learning Disability for the 21st Century, Stationery Office, London.
19. Emerson, E., Glover, G. (2012), "Improving health and lives: the learning disabilities public health observatory" in Advances in Mental Health and Learning Disabilities, Vol. 6, No. 1, pp. 26-32.
20. Emerson, E., Hatton, C. (2005), Evaluating the Impact of Valuing People, University of Lancaster, Lancaster.
21. Emerson, E., Hatton, C. (2008) in People with Learning Disabilities in England, Centre for Disability Research, Lancaster, p. 36.
22. Fulop, N., Allen, P. (eds) (2001), Studying the Organisation and Delivery of Health Services. Research Methods, Routledge, London.
23. Fyson, R., Fox, L. (2008), The Role and Effectiveness of Learning Disability Partnership Boards, International Centre for Public and Social Policy, Nottingham.
24. Glasgow, R.E., Klesges, L.M. (2006), "Evaluating the impact of health promotion programs: using the RE-AIM framework to form summary measures for decision making involving complex issues" in Health Education Research. Theory and Practice, Vol. 21, No. 5, pp. 688-694.
25. Gleave, R., Wong, I. (2010), "What is 'more integration' between health and social care? Results of a survey of primary care trusts and directors of adult social care in England" in Journal of Integrated Care, Vol. 18, No. 5, pp. 29-44.
26. Glidden, L.M., Jobe, B.M. (2007), "Measuring parental daily rewards and worries in the transition to adulthood" in American Journal on Mental Retardation, Vol. 112, No. 4, pp. 275-288.
27. Goodwin, N., Smith, J. (2011), "Integrated care for patients and populations: improving outcomes by working together", Report to the Department of Health and NHS Future Forum from the King's Fund and Nuffield Trust, The King's Fund, London, p. 20.
28. Hall, I., Parkes, C. (2006), "Working across boundaries: clinical outcomes for an integrated mental health service for people with intellectual disabilities" in Journal of Intellectual Disability Research, Vol. 50, No. 8, pp. 598-607.
29. Ham, C., De Silva, D. (2009), "Integrating care and transforming community services: what works? Where next?", Health Services Management Centre Policy Paper, University of Birmingham, Birmingham, pp. 1-10.
30. Hardwick, L., Worsley, A. (2007), "Bridging the gap between social work practice and community welfare agencies" in European Journal of Social Work, Vol. 10, No. 2, pp. 245-258.
31. Helene, T., Anne, V. (2010), "The PRISMA France study: is there a way to measure the implementation of integration in different countries?" in Śmigórski, K. (Ed.), Health Management, SCIYO, Rijeka, pp. 1-18.
32. Her Majestys Government (HMG) (2009), "Valuing people now: a new three year strategy for people with learning disabilities", Stationery Office, London.
33. Hogansen, J.M., Powers, K. (2008), "Transition goals and experiences of females with disabilities: youth, parents, and professionals" in Exceptional Children, Vol. 74, No. 2, pp. 215-234.
34. Holland, S. (2000), "The assessment relationship: interactions between social workers and parents in child protection assessments" in British Journal of Social Work, Vol. 30, No. 1, pp. 149-163.
35. Horrocks, J., Lyons, C. (2010), "Does strategic involvement of mental health service users and carers in the planning, design and commissioning of mental health services lead to better outcomes?" in International Journal of Consumer Studies, Vol. 34, No. 3, pp. 562-569.
36. Howarth, M.L., Haigh, C. (2007), "The myth of patient centrality in integrated care: the case of back pain services" in International Journal of Integrated Care, Vol. 7, pp. 1-7.
37. Hudson, B. (2006), "Making and missing connections: learning disability services and the transition from adolescence to adulthood" in Disability and Society, Vol. 21, No. 1, pp. 47-60.
38. Hudson, B., Henwood, M. (2002), "The NHS and social care: the final countdown?" in Policy and Politics, Vol. 30, No. 2, pp. 153-166.
39. Julian, G. (2009), "From service provision to self-directed support. Managing transitions" in Petch, A. (Ed.), Support for Individuals at Key Points of Change, Policy Press, Bristol, pp. 93-111.
40. Kaehne, A. (2010a), "Multi-agency protocols in intellectual disabilities transition partnerships: a survey of Welsh local authorities" in Journal of Policy and Practice in Intellectual Disabilities, Vol. 7, No. 3, pp. 182-188.
41. Kaehne, A. (2010b), "Transition from children and adolescent to adult mental health services for young people with intellectual disabilities: a scoping study of service organisation problems" in Advances in Mental Health and Learning Disabilities, Vol. 5, No. 1, pp. 9-16.
42. Kaehne, A. (2011), "Transition from children and adolescent to adult mental health services for young people with intellectual disabilities: a scoping study of service organisation problems" in Advances in Mental Health and Learning Disabilities, Vol. 5, No. 1, pp. 9-16.
43. Kaehne, A., Beyer, S. (2008), "Carer perspectives on the transition of young people with learning disabilities to employment" in Journal on Developmental Disabilities, Vol. 14, No. 1, pp. 91-100.
44. Kaehne, A., Beyer, S. (2009), "Views on transition partnerships of professionals in education and support services for young people with learning disabilities" in British Journal of Special Education, Vol. 36, No. 2, pp. 112-119.
45. Kaehne, A., Beyer, S. (2011), "Stroppy' or 'confident'? Do carers and professionals view the impact of transition support on young people differently?" in British Journal of Learning Disabilities, Vol. 39, No. 2, pp. 154-160.
46. Kaehne, A., Catherall, C. (2012), "Co-located health and social care services in Wales: what are the benefits to professionals?" in International Journal of Healthcare Management, Vol. 5, No. 3, pp. 164-172.
47. Kodner, D. (2009), "All together now: a conceptual exploration of integrated care" in Healthcare Quarterly, Vol. 13, pp. 6-15.
48. Kodner, D.L., Spreeuwenberg, C. (2002), "Integrated care: meaning, logic, applications, and implications - a discussion paper" in International Journal of Integrated Care, Vol. 2, No. 6, pp. 1-6.
49. Ling, T., Bardsley, M. (2010), "Evaluation of UK integrated care pilots: research protocol" in International Journal of Integrated Care, Vol. 10, pp. 1-15.
50. Mann, P., Pritchard, S. (2004), "Supporting inter-organizational partnerships in the public sector" in Public Management Review, Vol. 6, No. 3, pp. 417-439.
51. Margetts, E. (ed) (2010), Paradoxes of Modernization. Unintended Consequences of Public Policy Reform, OUP, Oxford.
52. Meissner, H. (2011), "How the shift to individualise supports gets stuck and the first step out of gridlock" in Intellectual and Development Disabilities, Vol. 49, No. 5, pp. 383-387.
53. Osborne, S.P. (2010), "Delivering public services: time for a new theory?" in Public Management Review, Vol. 12, No. 1, pp. 1-10.
54. Osborne, S.P., McLaughlin, K. (2004), "The cross-cutting review of the voluntary sector: where next for local government-voluntary sector relationships?" in Regional Studies, Vol. 38, No. 5, pp. 573-582.
55. Osgood, T. (2005), "Managing the tensions between the interests of organizations and service users" in Carnaby, S. and Cambridge, P. (Eds.), Person Centre Planning and Care Management with People with Learning Disabilities, Jessica Kingsley, London, pp. 51-64.
56. Palfreman, M., Jepson, W. (2011), "Study into integrated approaches to service delivery that promote independence and wellbeing" in Social Services Improvement Agency, Cardiff, p. 55.
57. Race, D. (1995) in Historical Development of Service Provision. Services for People with Learning Disabilities, Routledge, London, pp. 46-78.
58. RAND and and Ernst&Young (2012) in Young National Evaluation of the Department of Health's Integrated Care Pilots, London, p. 129.
59. Redley, M., Weinberg, D. (2007), "Learning disability and the limits of liberal citizenship: interactional impediments to political empowerment" in Sociology of Health and Illness, Vol. 29, No. 5, pp. 767-786.
60. Riddell, S., Wilson, A. (2002), "Parents, professionals and special educational needs policy frameworks in England and Scotland" in Policy and Politics, Vol. 30, No. 3, pp. 411-425.
61. Riddington, C., Mansell, J. (2008), "Are partnership boards really valuing people?" in Disability and Society, Vol. 23, No. 6, pp. 649-665.
62. Rosen, R., Mountford, J. (2011), "Integration in action: four international case studies", Research Report, Nuffield Trust, London, p. 55.
63. Shaw, S., Rosen, R. (2011), "What is integrated care?" Research Report, Nuffield Trust, London, p. 22.
64. Stancliffe, R.J. (2000), "Proxy respondents and quality of life" in Evaluation and Program Planning, Vol. 23, No. 2, pp. 89-93.
65. Sullivan, H., Williams, P. (2012), "Leadership for collaboration: situated agency in practice" in Public Management Review, Vol. 14, No. 1, pp. 41-66.
66. Welsh Assembly Government (WAG) (2002) in A Health and Social Care Research and Development Strategic Framework for Wales, Welsh Assembly Government, Cardiff, p. 38.
67. Welsh Assembly Government (WAG) (2006) in Making the Connections - Delivering Beyond Boundaries, Welsh Assembly Government, Cardiff, p. 47.
68. Welsh Assembly Government (WAG) (2007), Statement on Policy and Practice for Adults with a Learning Disability, Welsh Assembly Government, Cardiff.
69. Welsh Government (WG) (2011), Together for Health. A Five Year Vision for the NHS in Wales, Welsh Assembly Government, Cardiff.
70. Williams, P., Sullivan, H. (2009), "Faces of integration" in International Journal of Integrated Care, Vol. 9, No. 22, pp. 1-13.
71. Wyatt, M. (2002), "Partnership in health and social care: the implications of government guidance in the 1990s in England, with particular reference to voluntary organisations" in Policy and Politics, Vol. 30, No. 2, pp. 167-182.
72. Young, A.F., Chesson, R.A. (2006), "Stakeholders' views on measuring outcomes for people with learning disabilities" in Health and Social Care in the Community, Vol. 14, No. 1, pp. 17-25.
73. Young, R. (2006), "Introducing role and service changes in health and social care: the impact and influence of user involvement in England and Wales" in Social Policy and Society, Vol. 5, No. 2, pp. 249-268.
74. Primary Care Trust Network (2010), "Where next for health and social care integration?", discussion paper, Primary Care Trust Network, London, June 8.