Continued Development of the Family Management Style Framework

Journal of Family Nursing

Volumn 18, Issue 1, 2012, Pages 11-34

  Knafl, Kathleen A ^a   Deatrick, Janet A ^b   Havill, Nancy L ^a  

^a UNIVERSITY OF NORTH CAROLINA   (United States)

^b UNIVERSITY OF PENNSYLVANIA   (United States)

Author keywords

childhood chronic conditions; Family Management Style Framework; research review

Indexed keywords

ADAPTIVE BEHAVIOR; ADOLESCENT; CHILD; CHRONIC DISEASE; FAMILY HEALTH; FAMILY RELATION; HANDICAPPED CHILD; HUMAN; NURSING; PSYCHOLOGICAL ASPECT; PSYCHOLOGICAL MODEL; REVIEW;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; CHILD; CHRONIC DISEASE; DISABLED CHILDREN; FAMILY HEALTH; FAMILY RELATIONS; HUMANS; MODELS, PSYCHOLOGICAL;

EID: 84857221190     PISSN: 10748407     EISSN: 1552549X     Source Type: Journal    
DOI: 10.1177/1074840711427294     Document Type: Article

References (71)

1. Alderfer M.Use of family management styles in family intervention research.Journal of Pediatric Oncology Nursing. 2006;23:32-35.
2. Alexander E.,Rennick J.E.,Carnevale F.,Davis M.Daily struggles: Living with long-term childhood technology dependence.The Canadian Journal of Nursing Research-Revue Canadienne de Recherche en Sciences Infirmieres. 2002;34 (4): 7-14.
3. Azar R.,Solomon C.R.Coping strategies of parents facing child diabetes mellitus.Journal of Pediatric Nursing. 2001;16 (6): 418-428.
4. BarbosaM. A. M.ChaudM. N.GomesM. M. F. (2008). Experiences of mothers of disabled children: A phenomenological study. Acta Paulista de Enfermagem, 21(1), 46-52. doi.org/10.1590/S0103-21002008000100006.
5. Bedell G.M.,Cohn E.S.,Dumas H.M.Exploring parents' use of strategies to promote social participation of school-age children with acquired brain injuries.American Journal of Occupational Therapy. 2005;59 (3): 273-284.
6. Brinchmann B.S.When the home becomes a prison: Living with a severely disabled child.Nursing Ethics. 1999;6 (2): 137-143.
7. Burke S.O.,Kauffmann E.,LaSalle J.,Harrison M.B.,Wong C.Parents' perceptions of chronic illness trajectories.The Canadian Journal of Nursing Research-Revue Canadienne de Recherche en Sciences Infirmieres. 2000;32 (3): 19-36.
8. Canary H.E.Negotiating dis/ability in families: Constructions and contradictions.Journal of Applied Communication Research. 2008;36 (4): 437-458.
9. Case-Smith J.Parenting a child with a chronic medical condition.American Journal of Occupational Therapy. 2004;58 (5): 551-560.
10. Cashin G.H.,Small S.P.,Solberg S.M.The lived experience of fathers who have children with asthma: A phenomenological study.Journal of Pediatric Nursing. 2008;23 (5): 372-385.
11. Chen J.,Clark M.Family function in families of children with Duchenne muscular dystrophy.Family & Community Health. 2007;30 (4): 296-304.
12. Cimete G.Stress factors and coping strategies of parents with children treated by hemodialysis: A qualitative study.Journal of Pediatric Nursing. 2002;17 (4): 297-306.
13. Craig G.M.,Scambler G.Negotiating mothering against the odds: Gastrostomy tube feeding, stigma, governmentality and disabled children.Social Science & Medicine. 2006;62 (5): 1115-1125.
14. Deatrick J.,Beacham B.Encyclopedia of family health. Craft-Rosenberg M.Pehler S., ed. Thousand Oaks, CA: SAGE; 2011:191-194.
15. Deatrick J.,Knafl K.,Murphy-Moore C.Clarifying the concept of normalization.Image: The Journal of Nursing Scholarship. 1999;31 (3): 209-214.
16. Deatrick J.A.,Mullaney E.K.,Mooney-Doyle K.Exploring family management of childhood brain tumor survivors.Journal of Pediatric Oncology Nursing. 2009;26 (5): 303-311.
17. Esdaile S.A.Valuing difference: Caregiving by mothers of children with disabilities.Occupational Therapy International. 2009;16 (2): 122-133.
18. Fallon M.A.,Russo T.J.Adaptation to stress: An investigation into the lives of United States military families with a child who is disabled.Early Childhood Education Journal. 2003;30 (3): 193-198.
19. FisherP. (2007). Experiential knowledge challenges "normality" and individualized citizenship: Towards "another way of being". Disability & Society, 22(3), 283-298. http://dx.doi.org/10.1080%2F09687590701259591.
20. Fisher P.,Goodley D.The linear medical model of disability: Mothers of disabled babies resist with counter-narratives.Sociology of Health and Illness. 2007;29 (1): 66-81.
21. Frank R.G.,Thayer J.F.,Hagglund K.J.,Vieth A.Z.,Schopp L.H.,Beck N.C.,Johnson J.C.Trajectories of adaptation in pediatric chronic illness: The importance of the individual.Journal of Consulting and Clinical Psychology. 1998;66 (3): 521-532.
22. Gallo A.,Knafl K.,Angst D.Information management in families with a child with a genetic condition.Journal of Pediatric Nursing. 2009;24:194-204.
23. Gannoni A.F.,Shute R.H.Parental and child perspectives on adaptation to childhood chronic illness: A qualitative study.Clinical Child Psychology & Psychiatry. 2010;15:39-53.
24. Graungaard A.H.,Skov L.Why do we need a diagnosis? A qualitative study of parents' experiences, coping and needs, when the newborn child is severely disabled.Child: Care, Health and Development. 2007;33:296-307.
25. Grineski S.Coping with asthma in the central city: Parental experiences with children's health care.Journal of Health Care for the Poor & Underserved. 2008;19 (1): 227-236.
26. Heiman T.Parents of children with disabilities: Resilience, coping, and future expectations.Journal of Developmental and Physical Disabilities. 2002;14 (2): 159-171.
27. Hovey J.Fathers parenting chronically ill children: Concerns and coping strategies.Issues in Comprehensive Pediatric Nursing. 2005;28:83-95.
28. Keller D.,Honig A.S.Maternal and paternal stress in families with school-aged children with disabilities.American Journal of Orthopsychiatry. 2004;74 (3): 337-348.
29. Kelso T.,French D.,Fernandez M.Stress and coping in primary caregivers of children with a disability: A qualitative study using the Lazarus and Folkman Process Model of Coping.Journal of Research in Special Educational Needs. 2005;5:3-10.
30. Knafl K.,Breitmayer B.,Gallo A.,Zoeller L.Family response to childhood chronic illness: Description of management styles.Journal of Pediatric Nursing. 1996;11 (5): 315-326.
31. Knafl K.,Deatrick J.How families manage chronic conditions: An analysis of the concept of normalization.Research in Nursing & Health. 1986;9:215-222.
32. Knafl K.,Deatrick J.Further refinement of the family management style framework.Journal of Family Nursing. 2003;9:232-256.
33. Knafl K.,Deatrick J.,Gallo A.The interplay of concepts, data, and methods in the development of the Family Management Style Framework.Journal of Family Nursing. 2008;14:412-428.
34. Knafl K.,Deatrick J.,Gallo A.,Dixon J.,Grey M.,Knafl G.,O'Malley J.Assessment of the psychometric properties of the Family Management Measure.Journal of Pediatric Psychology. 2011;36 (5): 494-505.
35. Knafl K.,Deatrick J.,Gallo A.,Holcombe G.,Bakitis M.,Dixon J.,Grey M.The analysis and interpretation of cognitive interviews for instrument development.Research in Nursing & Health. 2007;30:224-234.
36. Krouse A.The management of breastfeeding low birth weight infants.Journal of Human Lactation. 2002;18:155-165.
37. Larson E.Reframing the meaning of disability to families: The embrace of paradox.Social Science & Medicine. 1998;47 (7): 865-875.
38. Lemanek K.L.,Jones M.L.,Lieberman B.Mothers of children with spina bifida: Adaptational and stress processing.Children's Health Care. 2000;29:19-35.
39. Lewis S.,Kagan C.,Heaton P.Dual-earner parents with disabled children: Family patterns for working and caring.Journal of Family Issues. 2000;21 (8): 1031-1060.
40. Lindblad B.M.,Rasmussen B.H.,Sandman P.O.Being invigorated in parenthood: Parents' experiences of being supported by professionals when having a disabled child.Journal of Pediatric Nursing. 2005;20 (4): 288-297.
41. Marshall E.S.,Olsen S.F.,Mandleco B.L.,Dyches T.T.,Allred K.W.,Sansom N."This is a spiritual experience": Perspectives of Latter-Day-Saint families living with a child with disabilities.Qualitative Health Research. 2003;13 (1): 57-76.
42. Mawn B.Raising a child with HIV: An emerging phenomenon.Families, Systems & Health: The Journal of Collaborative Family HealthCare. 1999;17 (2): 197-215.
43. McKeever P.,Miller K.-L.Mothering children who have disabilities: A Bourdieusian interpretation of maternal practices.Social Science & Medicine. 2004;59 (6): 1177-1191.
44. McLaughlin J.,Goodley D.Seeking and rejecting certainty: Exposing the sophisticated lifeworlds of parents of disabled babies.Sociology. 2008;42 (2): 317-335.
45. Morse J.,Wilson S.,Penrod J.Mothers and their disabled children: Refining the concept of normalization.Health Care for Women International. 2000;21:659-676.
46. Muñoz J.P.,Karmosky A.,Gaugler J.,Lang K.,Stayduhar M.Perceived role changes in parents of children with cerebral palsy.Mental Health Special Interest Section Quarterly. 1999;22 (4): 1-3.
47. Murray C.E.,Kelley-Soderholm E.,Murray T.L.Strengths, challenges, and relational processes in families of children with congenital upper limb differences.Families, Systems, & Health. 2007;25 (3): 276-292.
48. Nicholas D.B.Meanings of maternal caregiving: Children with end stage renal disease.Qualitative Health Research. 1999;9 (4): 468-478.
49. Nolan K.J.,Camfield C.S.,Camfield P.R.Coping with Dravet syndrome: Parental experiences with a catastrophic epilepsy.Developmental Medicine & Child Neurology. 2006;48 (9): 761-765.
50. O'Brien M.E.Living in a house of cards: Family experiences with long-term childhood technology dependence.Journal of Pediatric Nursing. 2001;16 (1): 13-22.
51. Ogden M.L.,Van Eyk J.M.,Armstrong L.,Witt P.Single-parent perspectives on rearing a child with multiple disabilities.Physical Therapy Case Reports. 1998;1 (4): 191-199.
52. Olson J.,Esdaile S.Mothering young children with disabilities in a challenging urban environment.American Journal of Occupational Therapy. 2000;54 (3): 307-314.
53. Patton M.Qualitative research and evaluation methods. 2002). Qualitative research and evaluation methods (3rd ed.). Thousand Oaks, CA: SAGE.Thousand Oaks, CA: SAGE; 2002:.
54. Peck B.,Lillibridge J.Normalization behaviours of rural fathers living with chronically-ill children: An Australian experience.Journal of Child Health Care. 2005;9 (1): 31-45.
55. Perrin J.,Bloom S.,Guttmacher S.The increase in childhood chronic conditions in the United States.Journal of the American Medical Association. 2007;297:2755-2759.
56. Robinson C.A.Women, families, chronic illness, and nursing interventions: From burden to burden.Journal of Family Nursing. 1998;4 (3): 271-290.
57. Sallfors C.,Hallberg L.R. M.A parental perspective on living with a chronically ill child: A qualitative study.Families, Systems, & Health. 2003;21:193-204.
58. Sawin K.J.,Bellin M.H.,Roux G.,Buran C.,Brei T.J.,Fastenau P.S.The experience of parenting an adolescent with spina bifida.Rehabilitation Nursing. 2003;28 (6): 173.
59. Stubblefield C.,Murray R.L.Making the transition: Pediatric lung transplantation.Journal of Pediatric Healthcare. 2000;14 (6): 280-287.
60. Sullivan-Bolyai S.,Deatrick J.,Gruppuso P.,Tamborlane W.,Grey M.Mothers' experiences raising young children with type 1 diabetes.Journal for Specialists in Pediatric Nursing. 2002;7 (3): 93-103.
61. Sullivan-Bolyai S.,Knafl K.,Deatrick J.,Grey M.Maternal management behaviors for young children with Type 1 diabetes.MCN: American Journal of Maternal/Child Nursing. 2003;28:160-166.
62. Sullivan-Bolyai S.,Rosenberg R.,Bayard M.Fathers' reflections on parenting young children with type 1 diabetes.MCN: The American Journal of Maternal Child Nursing. 2006;31 (1): 24-31.
63. Svavarsdottir E.K.,Rayens M.K.Hardiness in families of young children with asthma.Journal of Advanced Nursing. 2005;50 (4): 381-390.
64. Todd M.,Welsh J.,Moriarty D.The experience of parents of children with primary lymphoedema.International Journal of Palliative Nursing. 2002;8 (9): 444-451.
65. Van Riper M.Handbook of genomics and the family: Psychosocial context for children and adolescents. Tercyak K., ed. New York, NY: Springer; 2010:109-139.
66. Waite-Jones J.,Madill A.Concealed concern: Fathers' experiences of having a child with juvenile idiopathic arthritis.Psychology & Health. 2008;23 (5): 585-601.
67. Webb C.L.Parents' perspectives on coping with Duchenne muscular dystrophy.Child: Care, Health & Development. 2005a;31 (4): 385-396.
68. Webb C.L.Parents' perspectives on coping with Duchenne muscular dystrophy and concomitant specific learning disabilities.Learning Disabilities: A Multidisciplinary Journal. 2005b;13 (3): 105-112.
69. Weigand D.,Deatrick J.,Knafl K.Family management styles related to withdrawal of life-sustaining therapy for adults who are acutely ill or injured.Journal of Family Nursing. 2008;14:16-32.
70. Wong M.G.,Heriot S.A.Parents of children with cystic fibrosis: How they hope, cope and despair.Child: Care, Health & Development. 2008;34 (3): 344-354.
71. Wysocki T.,Gavin L.Paternal involvement in the management of pediatric chronic diseases: Associations with adherence, quality of life, and health status.Journal of Pediatric Psychology. 2006;31 (5): 501-511.