Concealed concern: Fathers' experiences of having a child with Juvenile Idiopathic Arthritis

Psychology and Health

Volumn 23, Issue 5, 2008, Pages 585-601

  Waite Jones, J M ^a   Madill, A ^a  

^a UNIVERSITY OF LEEDS   (United Kingdom)

Author keywords

Childhood disability; Chronic illness; Family; Fathers; Juvenile Idiopathic Arthritis; Qualitative research

Indexed keywords

ADAPTIVE BEHAVIOR; ADOLESCENT; ARTICLE; CHILD; CHILDHOOD DISABILITY; CHRONIC DISEASE; FAMILY; FATHER; FATHER CHILD RELATION; FEMALE; HUMAN; JUVENILE RHEUMATOID ARTHRITIS; MALE; MENTAL STRESS; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; SOCIAL SUPPORT;

CHILDHOOD DISABILITY; CHRONIC ILLNESS; FAMILY; FATHERS; JUVENILE IDIOPATHIC ARTHRITIS; QUALITATIVE RESEARCH;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; ARTHRITIS, JUVENILE; CHILD; FATHER-CHILD RELATIONS; FATHERS; FEMALE; HUMANS; MALE; QUALITATIVE RESEARCH; SOCIAL SUPPORT; STRESS, PSYCHOLOGICAL;

EID: 45749105530     PISSN: 08870446     EISSN: 14768321     Source Type: Journal    
DOI: 10.1080/08870440802036911     Document Type: Article

References (36)

1. Baker, S., & Lane, M. (1994). The good father. Child Health, 2, 28-30.
2. Banister, P., Burman, E., Parker, I., Taylor, M., & Tindall, C. (1995). Qualitative methods in psychology: A research guide. Buckingham, UK: Open University Press.
3. Barlow, J. H., Wright, C. C., Shaw, K. L., Luqman, R., & Wyness, I. J. (2002). Maternal stressors, maternal well being and children's well being in the context of juvenile idiopathic arthritis. Early Child Development and Care, 172, 89-98.
4. Baumann, S. L., & Braddick, M. (1999). Out of their element: Fathers of children who are 'not the same.' Journal of Pediatric Nursing, 14, 369-378.
5. Britton, C. (2001). Telling it how it is. Brimingham: Hanseltrust Publications.
6. Britton, C., & Moore, A. (2002). Views from the inside, Part 2: What the children with arthritis said, and the experiences of siblings, mothers, fathers and grandparents. British Journal of Occupational Therapy, 65, 413-419.
7. Charmaz, K. (2006). Constructing grounded theory: A practical guide through qualitative analysis. London: Sage.
8. Chesler, M. A., & Parry, C. (2001). Gender roles and/or styles in crisis: An integrative analysis of the experiences of fathers of children with cancer. Qualitative Health Research, 11, 363-384.
9. Connell, R. W. (1995). Masculinities. Cambridge: Polity.
10. Connell, R. W. (2002). Gender. Cambridge: Polity.
11. Courtenay, W. H. (2000). Constructions of masculinity and their influence on men's well-being: A theory of gender and health. Social Science & Medicine, 50, 1385-1401.
12. Ellis, N., Upton, U., & Thompson, P. (2000). Epilepsy and the family: A review of current literature. Seizure, 9, 22-30.
13. Gerhardt, C. A., Vannatta, K., McKellop, J., Zeller, M., Taylor, J., Passo, M., et al. (2003). Comparing parental distress: Family functioning and the role of social support for caregivers with and without a child with Juvenile Rheumatoid Arthritis. Journal of Pediatric Psychology, 28, 5-15.
14. Gerschick, T. J., & Miller, A. S. (2004). Coming to terms with masculinity and physical disability. In M. S. Kimmel & M. A. Messner (Eds.), Men's lives (pp. 349-362). London: Pearson Education Inc.
15. Glaser, B. G., & Strauss, A. L. (1967). The discovery of grounded theory: Strategies for qualitative research. New York: Aldine.
16. Mac an Ghaill, M. (1996). Understanding masculinities. Buckingham: Open University Press.
17. Mackey, W. C. (2001). Support for the existence of an independent man-to-child affiliative bond: Fatherhood as a biocultural invention. Psychology of Men & Masculinity, 2, 51-66.
18. Madill, A., Jordan, A., & Shirley, S. (2000). Objectivity and reliability in qualitative analysis: Realist, contextualist, and radical constructionist epistemologies. British Journal of Psychology, 91, 1-20.
19. Maurer, T. W., & Pleck, J. H. (2006). Fathers' caregiving and breadwinning: A gender congruence analysis. Psychology of Men & Masculinity, 7, 101-112.
20. McNeill, T. (2004). Fathers' experiences of parenting a child with Juvenile Rheumatoid Arthritis. Qualitative Health Research, 14, 526-545.
21. Morgan, D. H. J. (1992). Discovering men. London: Routledge.
22. Pelchat, D., Lefebvre, H., & Perreault, M. (2003). Differences and similarities between mothers' and fathers' experiences of parenting a child with a disability. Journal of Child Health Care, 7, 231-247.
23. Reay, D., Bignold, S., Ball, S. J., & Cribb, A. (1998). 'He just had a different way of showing it': Gender dynamics in families coping with childhood cancer. Journal of Gender Studies, 7, 39-52.
24. Robertson, S. (2006). 'I've been like a coiled spring this last week': Embodied masculinity and health. Sociology of Health & Illness, 28, 433-456.
25. Sallfors, C., & Hallberg, L. R.-M. (2003). A parental perspective on living with a chronically ill child: A qualitative study. Family Systems & Health, 21, 193-203.
26. Schaffer, H. R. (1994). Making decisions about children. Oxford: Blackwell.
27. Shaw, K. L., Southwood, T. R., & McDonagh, J. E. (2005). Growing up and moving on in rheumatology: A multi-centre cohort of adolescents with Juvenile Idiopathic Arthritis. Rheumatology, 44, 806-812.
28. Seidler, V. J. (2006). Transforming masculinities. London: Routledge.
29. Seidler, V. J. (2007). Masculinities, bodies and emotional life. Men and Masculinities, 10, 9-12.
30. Smith, J. A. (1995). Semi-structured interviewing and qualitative analysis. In J. A. Smith, R. Harré, & L. Van Langenhove (Eds.), Rethinking methods in psychology (pp. 9-27). London: Sage.
31. Sullivan-Bolyai, S., Rosenberg, R., & Bayard, M. (2006). Fathers' reflections on parenting young children with type 1 diabetes. MCN American Journal of Maternal Child Nursing, 31, 24-31.
32. Symmons, D. P. M., Jones, M., Osborn, J., Sills, J., Southwood, T. R., & Woo, P. (1996). Paediatric rheumatology in the United Kingdom: Data from the British Paediatric Group National Diagnostic register. Journal of Rheumatology, 23, 1975-1980.
33. Towers, C., & Swift, P. (2006). Recognising fathers. Report for the Foundation for People with Learning Disabilities. http://www. learningdisabilities.org.uk/page.cfm?pagecode=PUUP. Accessed 14.03.2007.
34. Walker, K. (2004). 'I'm not friends the way she's friends': Ideological and behavioural constructions of masculinity in men's friendships. In M. S. Kimmel & M. A. Messner (Eds.), Men's lives (pp. 389-401). London: Pearson Education Inc.
35. Watson, J. (2000). Male bodies. Buckingham: Open University Press.
36. West, S. (2000). Just a shadow: A review of support for fathers of children with disabilities. Birmingham, UK: Hanseltrust.