Clarifying the concept of normalization

Journal of Nursing Scholarship

Volumn 31, Issue 3, 1999, Pages 209-214

  Deatrick, Janet A ^a   Knafl, Kathleen A ^b   Murphy Moore, Carol ^c  

^a UNIVERSITY OF PENNSYLVANIA   (United States)

^b UNIVERSITY OF ILLINOIS AT CHICAGO   (United States)

^c BLOOMSBURG UNIVERSITY   (United States)

Author keywords

Childhood; Chronic illness disease; Concept analysis

Indexed keywords

ADAPTIVE BEHAVIOR; CHILD; CHILD PARENT RELATION; CHRONIC DISEASE; FAMILY HEALTH; HUMAN; LIFESTYLE; NURSING RESEARCH; PSYCHOLOGICAL ASPECT; REVIEW;

ADAPTATION, PSYCHOLOGICAL; CHILD; CHRONIC DISEASE; FAMILY HEALTH; HUMANS; LIFE STYLE; NURSING RESEARCH; PARENTING;

EID: 0032605976     PISSN: 15276546     EISSN: None     Source Type: Journal    
DOI: 10.1111/j.1547-5069.1999.tb00482.x     Document Type: Article

References (55)

1. Anderson, J.M. (1981). The social construction of illness experience: Families with a chronically ill child. Journal of Advanced Nursing, 6, 427-434.
2. Anderson, J.M. (1986). Ethnicity and illness experience: Ideological structure and the health care delivery system. Social Science Medicine, 22(11), 1277-1283.
3. Anderson, J., & Chung, J. (1982a). Culture and illness: parents' perceptions of their child's long term illness. Nursing Papers, 14(4), 40-52.
4. Anderson, J.M., & Chung, J. (1982b). The differential construction of social reality in chronically ill children: An interpretive perspective. Human Organization, 41(3), 259-262.
5. Anderson, J.M., Elfert, H., & Lai, M. (1989). Ideology in the clinical context: Chronic illness, ethnicity and the discourse on normalization. Sociology of Health and Illness, 11(3), 253-278.
6. Austin, J. (1991). Family adaptation to chronic illness. In J. Fitzpatrick, R.L. Taunton, & A.K. Jacox (Eds.), Annual review of nursing research (103-120). New York: Springer.
7. Bossert, E., Holaday, B., Harkins, A., & Turner-Henson, A. (1990). Strategies of normalization used by parents of chronically ill school age children. Journal of Child Psychiatric Nursing, 3(2), 57-61.
8. Callahan, D. (1988). Families as caregivers: The limits of morality. Archives of Physical Medicine and Rehabilitation, 69, 323-328.
9. Chinn, P., & Jacobs, M. (1983). Theory and Nursing: A systematic approach. St. Louis, MO: C.V. Mosby.
10. Clarke-Steffen, L. (1993a). Waiting and not knowing: The diagnosis of cancer in a child. Journal of Pediatric Oncology, 10(4), 146-153.
11. Clarke-Steffen, L. (1993b). A model of family transition to living with childhood cancer. Cancer Practice, 1(4), 285-292.
12. Clarke-Steffen, L. (1997). Reconstruction reality: Family strategies for managing childhood cancer. Journal of Pediatric Nursing, 12(5), 278-287.
13. Cohen, M.H. (1993). The unknown and the unknowable - managing sustained uncertainty. Western Journal of Nursing Research, 15(1), 77-96.
14. Cohen, M.H. (1995). The stages of the prediagnostic period in chronic, life threatening childhood illness: A process analysis. Research in Nursing and Health, 18, 39-48.
15. Cohen, M.H., & Martinson, I.M. (1988). Chronic uncertainty: Its effect on parental appraisal of a child's health. Journal of Pediatric Nursing, 3(2), 89-96.
16. Counterman, A., Saylor, C., & Pai, S. (1995). Psychological adjustment of children and adolescents with neurofibromatosis. Children's Health Care, 24(4), 223-234.
17. Dashiff, C.J. (1993). Parents' perceptions of diabetes in adolescent daughters and its impact on the family. Journal of Pediatric Nursing, 8(6), 361-369.
18. Deatrick, J., & Knafl, K. (1990). Management behaviors: Day-to-day adjustments to childhood chronic conditions. Journal of Pediatric Nursing, 5(1), 15-22.
19. Deatrick, J.A., Faux, S.A., & Moore, C.M. (1993). The contribution of qualitative research to the study of families' experiences with childhood illness. In S.L. Feetham, S.B. Meister, J.M. Bell, & C.L. Gilliss (Eds.), The nursing of families (61-69). Newbury Park, CA: Sage.
20. Deatrick, J.A., Knafl, K.A., & Guyer, K. (1993). The meaning of caregiving behaviors: Inductive approaches to family theory development. In S.L. Feetham, S.B. Meister, J.M. Bell, & C.L. Gilliss (Eds.), The nursing of families (38-45). Newbury Park, CA: Sage.
21. Deatrick, J.A., Knafl, K.A., & Walsh, M. (1988). The process of parenting a child with a disability: Normalization through accommodation. Journal of Advanced Nursing, 13, 15-21.
22. Douard, J. (1995). Disability and the persistence of the "normal." In S.K. Toombs, D. Barnard, & R. Carson (Eds.), Chronic illness from experience to policy (154-175). Bloomington, IN: Indiana University Press.
23. Elfert, H., Anderson, J.M., & Lai, M. (1991). Parents' perception of children with chronic illness: A study of immigrant Chinese families. Journal of Pediatric Nursing, 6(2), 114-120.
24. Feetham, S. (1984). Family research: Issues and directions for nursing. In H. Werley & J. Fitzpatrick (Eds.), Annual review of nursing research (Vol. 2) (3-24). New York: Springer.
25. Feetham, S. (1991). Conceptual and methodological issues in research of families. In A. Whall & J. Fawcett (Eds.), Family theory development in nursing: State of the science and art (55-68). Philadelphia: F.A. Davis.
26. Ferrell, B.R., Rhiner, M., Shapiro, B., & Dierkes, M. (1994). The experience of pediatric cancer pain, Part I: Impact of pain on family. Journal of Pediatric Nursing, 9(6), 368-379.
27. Gagliardi, B.A. (1991a). The family's experience of living with a child with Duchenne Muscular Dystrophy. Applied Nursing Research, 4(4), 159-164.
28. Gagliardi, B.A. (1991b). The impact of Duchenne Muscular Dystrophy on families. Orthopaedic Nursing, 10(5), 41-49.
29. Gallo, A., & Knafl, K. (1998). Parents' reports of tricks of the trade for managing childhood chronic illness. Journal of the Society of Pediatric Nurses, 3(3), 93-102.
30. Gilliss, C., Highley, B., Roberts, B., & Martinson, I. (Eds.). (1989). Toward a science of family nursing. Menlo Park, CA: Addison-Wesley.
31. Haase, J., & Rostad, M. (1994). Experiences of completing cancer therapy: Children's perspectives. Oncology Nursing Forum, 21(9), 1483-1492.
32. Hatton, D., Canam, C., Thorne, S., & Hughes, A.M. (1995). Parents' perceptions of caring for an infant or toddler with diabetes. Journal of Advanced Nursing, 22, 569-577.
33. Jerrett, M.D. (1994). Parents' experience of coming to know the care of a chronically ill child. Journal of Advanced Nursing, 19, 1050-1056.
34. Knafl, K., Ayres, L., Gallo, A., Zoeller, L., & Breitmayer, B. (1995). Learning from stories: Parents' accounts of the pathway to diagnosis. Pediatric Nursing, 21(5), 411-415.
35. Knafl, K., Breitmayer, B., Gallo, A., & Zoeller, L. (1996). Family response to childhood chronic illness: Description of management style. The Journal of Pediatric Nursing, 11, 315-326.
36. Knafl, K., & Deatrick, J. (1987). Conceptualizing family response to a child's chronic illness or disability. Family Relations, 36, 300-304.
37. Knafl, K., & Deatrick, J. (1986). How families manage chronic conditions: An analysis of the concept of normalization. Research in Nursing and Health, 9, 215-222.
38. Knafl, K., & Deatrick, J. (1990). Family management style: Concept analysis and development. Journal of Pediatric Nursing, 4(1), 4-14.
39. Knafl, K., & Deatrick, J., (1993). Knowledge synthesis and concept development in nursing. In B. Rodgers & K. Knafl (Eds.), Concept development in nursing (35-50). Philadelphia: W.B. Saunders.
40. Knafl, K., Deatrick, J., & Kirby, A. (In Press). Encouraging normalization. In M. Craft-Rosenberg & J. Denehy (Eds.), Nursing interventions for the childbearing and childrearing family. Newbury Park, CA: Sage.
41. Krulik, T. (1980). Successful 'normalizing' tactics of parents of chronically ill children. Journal of Advanced Nursing, 5, 573-578.
42. May, K. (1997). Searching for normalcy: Mothers' caregiving for low birth weight infants. Pediatric Nursing, 23(1), 17-20.
43. McCloskey, J.C., & Bulechek, G.M. (1996). Nursing Intervention Classification (NIC). St. Louis, MO: Mosby.
44. Morse, J. (1995). Exploring the theoretic basis of nursing using advanced techniques of concept analysis. Advances in Nursing Science, 17(3), 31-46.
45. Ray, L.D., & Ritchie, J.A. (1993). Caring for chronically ill children at home: Factors that influence parents' coping. Journal of Pediatric Nursing, 8(4), 217-225.
46. Robinson, C.A. (1987). Roadblocks to family centered care when a chronically ill child is hospitalized. Maternal Child Nursing Journal, 16(3), 181-193.
47. Robinson, C.A. (1993). Managing life with a chronic condition: the story of normalization. Qualitative Health Research, 3(1), 7-28.
48. Rodgers, B. (1989). Concepts, analysis, and the development of nursing knowledge: The evolutionary cycle. Journal of Advanced Nursing, 14, 330-335.
49. Rodgers, B. (1993). Concept analysis: An evolutionary view. In B. Rodgers & K. Knafl (Eds.), Concept development in nursing: Foundations, techniques, and applications (73-92). Philadelphia: W.B. Saunders.
50. Scharer, K., & Dixon, D.M. (1989). Managing chronic illness: Parents with a ventilator-dependent child. Journal of Pediatric Nursing, 4(4), 236-247.
51. Stein, F., Bauman, L., Westbrook, L., Coupey, S., & Ireys, H. (1993). Framework for identifying children who have chronic conditions: The case for a new definition. The Journal of Pediatrics, 122(2), 342-347.
52. Thorne, S. (1993). Negotiating health care: The social context of chronic illness. Newbury Park, CA: Sage.
53. Thorne, S., Radford, M.J., & McCormick, J. (1997). The multiple meanings of long-term gastrostomy in children with severe disability. Journal of Pediatric Nursing, 12(2), 89-99.
54. Whyte, D.A. (1992). A family nursing approach to the care of a child with a chronic illness. Journal of Advanced Nursing, 17, 317-327.
55. Williams, J.K. (1994). Parenting a daughter with precocious puberty or Turner Syndrome. Journal of Pediatric Health Care, 9(1), 109-114.