Further refinement of the family management style framework

Journal of Family Nursing

Volumn 9, Issue 3, 2003, Pages 232-256

  Knafl, Kathleen A ^a,c   Deatrick, Janet A ^b  

^a YALE UNIVERSITY   (United States)

^b UNIVERSITY OF PENNSYLVANIA   (United States)

^c YALE UNIVERSITY SCHOOL OF NURSING   (United States)

Author keywords

Chronic illness; Families; Frameworks; Management of illness

Indexed keywords

EID: 2442619670     PISSN: 10748407     EISSN: 1552549X     Source Type: Journal    
DOI: 10.1177/1074840703255435     Document Type: Review

References (75)

1. Agazio, J. G. (1997). Family transition through the termination of private duty home care nursing. Journal of Pediatric Nursing, 12(2), 74-84.
2. Angst, D., & Deatrick, J. A. (1996). Involvement in health care decisions: Parents and children with chronic illness. Journal of Family Nursing, 2, 174-194.
3. Austin, J., & Sims, S. (1998). Integrative review of assessment models for examining children's and families' responses to chronic illness. In M. Broome, K. Knafl, K. Pridham, & S. Feetham (Eds.), Children and families in health and illness (pp. 196-220). Thousand Oaks, CA: Sage.
4. Benoliel, J. Q. (1970). The developing diabetic identity: A study of family influence. In M. Batey (Ed.), Communicating nursing research: Methodological issues in research (pp. 14-32). Boulder, CO: Western Interstate Commission on Higher Education.
5. Brust, J. D., Leonard, B., & Sielaff, B. (1992). Maternal time and the care of disabled children. Public Health Nursing, 9(3), 177-184.
6. Chesla, C. (1991). Parents caring practices for the schizophrenic offspring. Qualitative Health Research, 2(4), 446-468.
7. Clarke-Steffen, L. (1993a). A model of the family transition to living with childhood cancer. Cancer Practice, 2(4), 285-292.
8. Clarke-Steffen, L. (1993b). Waiting and not knowing: The diagnosis of cancer in a child. Journal of Pediatric Oncology Nursing, 20(4), 146-153.
9. Clarke-Steffen, L. (1997). Reconstructing reality: Family strategies for managing childhood cancer. Journal of Pediatric Nursing, 22(5), 278-287.
10. Cohen, F. L., Nehring, W., Malm, K., & Harris, D. (1995). Family experiences when a child is HIV-positive: Reports of natural and foster parents. Pediatric Nursing, 22 (3), 248-254.
11. Cohen, M. (1993a). Diagnostic closure and the spread of uncertainty. Issues in Comprehensive Pediatric Nursing, 16, 135-146.
12. Cohen, M. (1993b). The unknown and the unknowable-Managing sustained uncertainty. Western Journal of Nursing Research, 25(1), 77-96.
13. Cohen, M. (1995a). The stages of the prediagnostic period in chronic, life-threatening childhood illness: A process analysis. Research in Nursing and Health, 18, 39-48.
14. Cohen, M. (1995b). The triggers of heightened parental uncertainty in chronic, life-threatening childhood illness. Qualitative Health Research, 5(1), 63-77.
15. Cohen, M., & Martinson, I. (1988). Chronic uncertainty: Its effects on parental appraisal of a child's health. Journal of Pediatric Nursing, 3(2), 89-96.
16. Cornman, B. (1993). Childhood cancer: Differential effects on the family members. Oncology Nursing Forum, 20(10), 1559-1566.
17. Darling, R. (1979). Families against society: A study of reactions to children with birth defects. Beverly Hills, CA: Sage.
18. Dashiff, C. J. (1993). Parents' perceptions of diabetes in adolescent daughters and its impact on the family. Journal of Pediatric Nursing, 8(6), 361-369.
19. Davis, F. (1963). Passage through crisis: Polio victims and their families. Minneapolis, MN: Bobbs-Merrill.
20. Donnelly, E. (1994). Parents of children with asthma: An examination of family hardiness, family stressors, and family functioning. Journal of Pediatric Nursing, 9(6), 398-408.
21. Elfert, H., Anderson, J. M., & Lai, M. (1991). Parents' perceptions of children with chronic illness: A study of immigrant Chinese families. Journal of Pediatric Nursing, 6(2), 114-120.
22. Ferrell, B., Rhiner, M., Shapiro, B., & Dierkes, M. (1994). The experience of pediatric cancer pain, Part I: Impact of pain on the family. Journal of Pediatric Nursing, 9(6), 368-379.
23. Fisher, L., Chesla, C, Skaff, M., Gilliss, C, Kanter, R., Lutz, C, et al. (2000). Disease management status: A typology of Latino and Euro-American patients with type 2 diabetes. Behavioral Medicine, 26, 53-65.
24. Fleming, J., Challela, M., Eland, J., Hornick, R., Johnson, P., Martinson, I., et al. (1994). Impact on the family of children who are technology dependent and cared for in the home. Pediatric Nursing, 20(4), 379-388.
25. Gagliardi, B. A. (1991). The family's experience of living with a child with Duchenne muscular dystrophy. Applied Nursing Research, 4(4), 159-164.
26. Gallo, A. (2002). Parents' interpretation and use of genetic information (Grant proposal). Grant HG02036 funded by the National Institute for Human Genome Research, Public Health Service.
27. Gallo, A. M. (1990). Family management style in juvenile diabetes: A case illustration. Journal of Pediatric Nursing, 5(1), 23-32.
28. Gallo, A. M., & Knafl, K. (1998). Parents' reports of "tricks of the trade" for managing childhood chronic illness. Journal of the Society of Pediatric Nurses, 3(3), 93-100.
29. Gravelle, A. M. (1997). Caring for a child with a progressive illness during the complex chronic phase: Parents' experience of facing adversity. Journal of Advanced Nursing, 25(4), 738-745.
30. Hansell, P. S., Hughes, C. B., Caliandro, G., Russo, P., Budin, W. C., Hartman, B., et al. (1998). The effect of a social support boosting intervention on stress, coping, and social support in caregivers of children with HIV/AIDS. Nursing Research, 47(2), 79-86.
31. Hinds, P., Birenbaum, L., Clarke-Steffen, L., Quargnenti, A., Kreissman, S., Kazak, K., et al. (1996). Coming to terms: Parents' response to a first cancer recurrence in their child. Nursing Research, 45(3), 148-153.
32. Hirose, T., & Ueda, R. (1990). Long-term follow-up study of cerebral palsy children and coping behaviour of parents. Journal of Advanced Nursing, 15(7), 762-770.
33. Horner, S. D. (1998). Catching the asthma: Family care for school-aged children with asthma. Journal of Pediatric Nursing, 23(6), 356-366.
34. Jerrett, M. D. (1994). Parents' experience of coming to know the care of a chronically ill child. Journal of Advanced Nursing, 19(6), 1050-1056.
35. Klein-Berndt, S. (1991). Bronchopulmonary dysplasia in the family: A longitudinal case study. Pediatric Nursing, 17(6), 607-611, 621.
36. Knafl, K., & Ayres, L. (1996). Managing large qualitative data sets in family research. Journal of Family Nursing, 2(4), 350-364.
37. Knafl, K., Breitmayer, B., Gallo, A., & Zoeller, L. (1994). Final report: How families define and manage childhood chronic illness (Grant No. R01594). Bethesda, MD: National Institute of Nursing Research.
38. Knafl, K., Breitmayer, B., Gallo, A., & Zoeller, L. (1996). Family response to childhood chronic illness: Description of management styles. Journal of Pediatric Nursing, 11(5), 315-326.
39. Knafl, K., & Deatrick, J. (1990). Family management style: Concept analysis and development. Journal of Pediatric Nursing, 5(1), 4-14.
40. Knafl, K., & Deatrick, J. (2002). The challenge of normalization for families of children with chronic conditions. Pediatric Nursing, 28, 49-53.
41. Knafl, K., & Zoeller, L. (2000). Childhood chronic illness: A comparison of mothers' and fathers' experiences. Journal of Family Nursing, 6, 287-302.
42. Krouse, A. (2002). The family management of breastfeeding low birth weight infants. Journal of Human Lactation, 18, 155-165.
43. Krulik, T. (1980). Successful 'normalizing' tactics of parents of chronically ill children. Journal of Advanced Nursing, 5(6), 573-578.
44. Leonard, B., Kratz, B., Skay, C., & Rheinberger, M. (1997). Comparison of mother-father perceptions of their child's self-management of diabetes. Issues in Comprehensive Pediatric Nursing, 20(2), 69-87.
45. Martinson, I. M., Gilliss, C., Colaizzo, D., Freeman, M., & Bossert, E. (1990). Impact of childhood cancer on healthy school-age siblings. Cancer Nursing, 23(3), 183-190.
46. Martinson, I. M., Liu-Chiang, C. Y., & Yi-Hua, L. (1997). Distress symptoms and support systems of Chinese parents of children with cancer. Cancer Nursing, 20(2), 94-99.
47. Martinson, I. M., Zhong, B., & Liang, Y. (1994). The reaction of Chinese parents to a terminally ill child with cancer. Cancer Nursing, 27(1), 72-76.
48. May, K. M. (1997). Searching for normalcy: Mothers' caregiving for low birth weight infants. Pediatric Nursing, 23(1), 17-20.
49. McCarthy, S., & Gallo, A. (1992). A case illustration of family management style. Journal of Pediatric Nursing, 7(6), 395-402.
50. Mercer, M., & Ritchie, J. (1997). Tag team parenting of children with cancer. Journal of Pediatric Nursing, 12(6), 331-341.
51. Moore, J. B., & Mosher, R. (1997). Adjustment responses of children and their mothers to cancer: Self-care and anxiety. Oncology Nursing Forum, 24(3), 519-525.
52. Mu, P. F, & Tomlinson, P. (1997). Parental experience and meaning construction during a pediatric health crisis. Western Journal of Nursing Research, 19(5), 608-628.
53. Nelson, D. B., & Edgil, A. E. (1998). Family dynamics in families with very low birth weight and full-term infants: A pilot study. Journal of Pediatric Nursing, 23(2), 95-103.
54. Park, E. S., & Martinson, I. M. (1998). Socioemotional experiences of Korean families with asthmatic children. Journal of Family Nursing, 4, 291-308.
55. Prudhoe, C. M., & Peters, D. (1995). Social support of parents and grandparents in the neonatal intensive care unit. Pediatric Nursing, 22(2), 140-146.
56. Ray, L. D., & Ritchie, J. (1993). Caring for chronically ill children at home: Factors that influence parents' coping. Journal of Pediatric Nursing, 8(4), 217-225.
57. Rhiner, M., Ferrell, B., Shapiro, B., & Dierkes, M. (1994). The experience of pediatric cancer pain, Part II: Management of pain. Journal of Pediatric Nursing, 9(6), 380-387.
58. Robinson, C. A. (1993). Managing life with a chronic condition: The story of normalization. Qualitative Health Research, 3(1), 6-28.
59. Robinson, C. A. (1994). Nursing interventions with families: A demand or an invitation to change. Journal of Advanced Nursing, 19, 897-904.
60. Sawin, K., & Harrigan, M. (1995). Measures of family functioning for research and practice. New York: Springer.
61. Scharer, K., & Dixon, D. (1989). Managing chronic illness: Parents with a ventilator-dependent child. Journal of Pediatric Nursing, 4(4), 236-247.
62. Scott, L. D. (1998). Perceived needs of parents of critically ill children. Journal of the Society of Pediatric Nursing, 3(1), 4-12.
63. Seideman, R., Watson, M., Corff, K., Odle, P., Haase, J., & Bowerman, J. (1997). Parent stress and coping in the ICU and PICU. Journal of Pediatric Nursing, 22, 169-177.
64. Sharkey, T. (1995). The effects of uncertainty in families with children who are chronically ill. Home Health Nurse, 23(4), 37-42.
65. Simon, N., & Smith, D. (1992). Living with chronic pediatric liver disease: The parent's experience. Journal of Pediatric Nursing, 18, 453-458.
66. Snowdon, A., Cameron, S., & Dunham, K. (1994). Relationships between stress, coping resources, and satisfaction with family functioning in families of children with disabilities. Canadian Journal of Nursing Research, 26(3), 63-76.
67. Spalding, K., & McKeever, P. (1998). Mothers' experiences caring for children with disabilities who require a gastrostomy tube. Journal of Pediatric Nursing, 23(4), 234-243.
68. Sparacino, P. S., Tong, E. M., Messias, D. K., Foote, D., Chesla, C. A., & Gilliss, C. L. (1997). The dilemmas of parents of adolescents and young adults with congenital heart disease. Heart & Lung, 26, 187-195.
69. Stewart, M. J., McGrath, P., Thompson, D., & Bruce, B. (1994). Mothers of children with chronic conditions: Supportive and stressful interactions with partners and professionals regarding caregiving burdens. Canadian Journal of Nursing Research, 26(4), 61-82.
70. Stuifbergen, A. K. (1990). Patterns of functioning in families with a chronically ill parent: An exploratory study. Research in Nursing & Health, 13, 35-44.
71. Theis, S. L., Knafl, K., Watkins, G., Biordi, D., Coeling, H. (2002). Family management styles in caregivers and care receivers. Manuscript in preparation.
72. Thomas, V. M., Ellison, K., Howell, E. V., & Winters, K. (1992). Caring for the person receiving ventilatory support at home: Caregivers' needs and involvement. Heart & Lung, 22, 180-186.
73. Tomlinson, P. S., & Mitchell, K. (1992). On the nature of social support for families of critically ill children. Journal of Pediatric Nursing, 7(6), 386-394.
74. Whyte, D. A. (1992). A family nursing approach to the care of a child with a chronic illness. Journal of Advanced Nursing, 27(3), 317-327.
75. Youngblut, J. M., Brennan, P., & Swegart, L. (1994). Families with medically fragile children: An exploratory study. Pediatric Nursing, 20(5), 463-468.