Strengths, Challenges, and Relational Processes in Families of Children With Congenital Upper Limb Differences

Families, Systems and Health

Volumn 25, Issue 3, 2007, Pages 276-292

  Murray, Christine E ^a   Kelley Soderholm, Erin L ^b   Murray Jr , Thomas L ^c  

^a UNIVERSITY OF NORTH CAROLINA AT GREENSBORO   (United States)

^b UNIVERSITY OF FLORIDA   (United States)

^c independent practice   (United States)

Author keywords

chronic health conditions in children; congenital upper limb differences; families and health; family systems theory

Indexed keywords

ARM MALFORMATION; ARTICLE; CHILD; CHILD DEVELOPMENT; CHILD PARENT RELATION; CONTENT ANALYSIS; CONTROLLED STUDY; FAMILY COUNSELING; HUMAN; HUMOR; INTIMACY; MEDICAL DECISION MAKING; QUALITATIVE RESEARCH; SOCIAL SUPPORT;

EID: 36048994347     PISSN: 10917527     EISSN: None     Source Type: Journal    
DOI: 10.1037/1091-7527.25.3.276     Document Type: Article

References (26)

1. American Society for Surgery of the Hand. Congenital differences of the upper extremity (2006). http://www.assh.org Retrieved June 21, 2006, from http://www.assh.org
2. Cadman D., Rosenbaum P., Boyle M., and Offord D.R. Children with chronic illness: Family and parent demographic characteristics and psychosocial adjustment. Pediatrics 87 (1991) 884-889
3. Carter B., and McGoldrick M. The expanded family life cycle. 3rd ed. (1999), Allyn & Bacon, Boston
4. Garwick A.W., Kohrman C.H., Titus J.C., Wolman C., and Blum R.W. Variations in families' explanations of childhood chronic conditions: A cross-cultural perspective. In: McCubbin H.I., Thompson E.A., Thompson A.I., and Futrell J.A. (Eds). The dynamics of resilient families (1999), Sage Publications, Thousand Oaks, CA 165-202
5. Guttman H.A. Systems theory, cybernetics, and epistemology. In: Gurman A.S., and Kniskern D.P. (Eds). Handbook of family therapy 2 (1991), Brunner/Mazel, New York 41-61
6. Heiman T. Parents of children with disabilities: Resilience, coping, and future expectations. Journal of Developmental and Physical Disabilities 14 (2002) 159-171
7. Joachim G., and Acorn S. Stigma of visible and invisible chronic conditions. Journal of Advanced Nursing 32 (2000) 243-248
8. Lombard M., Snyder-Duch J., and Campanella Bracken C. Practical resources for assessing and reporting intercoder reliability in content analysis research projects (2005). http://www.temple.edu/sct/mmc/reliability/ Retrieved April 26, 2006, from http://www.temple.edu/sct/mmc/reliability/
9. Longoria L., and Marini I. Perceptions of children's attitudes towards peers with a severe physical disability. Journal of Rehabilitation 72 (2006) 19-25
10. McCubbin H.I., Thompson A.I., and McCubbin M.A. Family measures: Stress, coping, and resiliency (2001), Kamehameha Schools, Honolulu
11. McDaniel S.H., Hepworth J., and Doherty W.J. Medical family therapy: A biopsychosocial approach to families with health problems (1992), Basic Books, New York
12. Murray, C. E. & Graybeal, J. D. (2006). Correlation analysis of coping resources among families of children with congenital upper limb differences. Manuscript submitted for publication.
13. Nichols M.P., and Schwartz R.C. Family therapy: Concepts and methods. 6th ed. (2004), Allyn & Bacon, Boston
14. Patterson J.M. Families experiencing stress. Family Systems Medicine 6 (1988) 202-237
15. Patterson J.M., and McCubbin H.I. Chronic illness: Family stress and coping. In: Figley C.R., and McCubbin H.I. (Eds). Stress and the family: Volume 2. Coping with catastrophe (1983), Brunner/Mazel, New York 21-36
16. Piercy F.P., and Nickerson V. Focus groups in family therapy research. In: Sprenkle D.H., and Moon S.M. (Eds). Research methods in family therapy (1996), Guilford Press, New York 173-185
17. Rolland J.S. Chronic illness and the family life cycle. In: Carter B., and McGoldrick M. (Eds). The expanded family life cycle: Individual, family and social perspectives. 3rd ed. (1999), Allyn & Bacon, Boston 492-511
18. Sallfors C., and Hallberg L.R.-M. A parental perspective on living with a chronically ill child: A qualitative study. Families, Systems & Health 21 (2003) 193-204
19. Stein R. Growing up with a physical difference. Children's Health Care 12 (1983) 53-61
20. Stemler S. An overview of content analysis. Practical Assessment, Research, & Evaluation 7 (2001). http://PAREonline.net/getvn.asp?v=7&n=17 Article 17. Retrieved April 26, 2006, from http://PAREonline.net/getvn.asp?v=7&n=17
21. Taanila A., Jarvelin M., and Kokkonen J. Parental guidance and counseling by doctors and nursing staff: Parents' views of initial information and advice for families with disabled children. Journal of Clinical Nursing 7 (1998) 505-511
22. Taanila A., Syrjala L., Kokkonen J., and Jarvelin M. Coping of parents with physically and/or intellectually disabled children. Child: Care, Health & Development 28 (2002) 73-86
23. Tam S.-F., Chan M.H., Lam H.W., and Lam L.H. Comparing the self-concepts of Hong Kong Chinese adults with visible and not visible physical disability. Journal of Psychology 137 (2003) 363-372
24. Varni J.W., and Setoguchi Y. Perceived physical appearance and adjustment of adolescents with congenital/acquired limb deficiencies: A path-analytic model. Journal of Clinical Child Psychology 25 (1996) 201-208
25. Wallander J.L., and Noojin A.B. Mothers' report of stressful experiences related to having a child with a physical disability. Children's Health Care 24 (1995) 245-256
26. Woolfson L. Family well-being and disabled children: A psychosocial model of disability-related child behaviour problems. British Journal of Health Psychology 9 (2004) 1-13