Nursing leadership in genomics for health and society

Journal of Nursing Scholarship

Volumn 37, Issue 2, 2005, Pages 102-110

  Feetham, Suzanne ^a,b   Thomson, Elizabeth J ^a,c   Hinshaw, Ada Sue ^a,b,d  

^a Lambda ^*

^b HEALTH RESOURCES AND SERVICES ADMINISTRATION   (United States)

^c NATIONAL HUMAN GENOME RESEARCH INSTITUTE   (United States)

^d UNIVERSITY OF MICHIGAN   (United States)

Author keywords

Education; Genetics; Genomics; Health; Leadership; Nursing; Practice; Research

Indexed keywords

ATTITUDE TO HEALTH; EDUCATION; GENETIC SCREENING; GENOMICS; HEALTH CARE POLICY; HEALTH PERSONNEL ATTITUDE; HEALTH SERVICE; HUMAN; LEADERSHIP; MEDICAL GENETICS; NURSE ATTITUDE; NURSING EDUCATION; NURSING RESEARCH; ORGANIZATION; ORGANIZATION AND MANAGEMENT; PATIENT CARE; PUBLIC HEALTH; REVIEW; SOCIAL BEHAVIOR; SOCIAL CHANGE;

ATTITUDE OF HEALTH PERSONNEL; ATTITUDE TO HEALTH; EDUCATION, NURSING; GENETIC SCREENING; GENETICS, MEDICAL; GENOMICS; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HEALTH POLICY; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; LEADERSHIP; NURSE'S ROLE; NURSING RESEARCH; ORGANIZATIONAL INNOVATION; PATIENT CARE TEAM; PUBLIC HEALTH; SOCIAL CHANGE; SOCIAL RESPONSIBILITY;

EID: 22144454637     PISSN: 15276546     EISSN: None     Source Type: Journal    
DOI: 10.1111/j.1547-5069.2005.00021.x     Document Type: Review

References (72)

1. American College of Obstetrics and Gynecology. (2001). Preconception and prenatal carrier screening for cystic fibrosis. Washington, DC: Author.
2. Ando, H. (2000). The start of genetic nursing: The first genetic nursing seminar, hosted by the Genetic Nursing Committee of Japan. Journal of the Kango Gijyutu (Nursing Practices), 46(4), 71-78.
3. Antoniou, A., Pharoah, P.D.P., Narod, S., Risch, H.A., Eyfjord, J.E., Hopper, J.L., et al. (2003). Average risks of breast and ovarian cancer associated with BRCA1 or BRCA2 mutations detected in case series unselected for family history: A combined analysis of 22 studies. American Journal of Human Genetics, 72(5), 1117-1130.
4. Arimori, N., Nakagomi, S., Mizoguchi, M., Morita, M., Ando, H., Mori, A. et al. (2004). Competency of genetic nursing practice in Japan: A comparison between basic & advanced levels. Journal of Japan Academy of Nursing Science, 24(2), 13-23.
5. Beutler, E., Felitti, B., Koziol, J., Ho, N., & Gelbart, T. (2002). Penetrance of the 845G®A (C282Y) HFE hereditary haemochromatosis mutation in the USA. Lancet, 359, 211-218.
6. Bottorff, J.L., McCullum, M., Balneaves, L.G., Esplen, MJ., Carroll, J., Kelly, M., et al. (2004). Nursing and genetics. Canadian Nurse, 100(8), 24-28.
7. Bragadòttir, H., Björnsdóttir, G., Thorhallsdottir, I., & Erlendsdóttir, R.O. (2004). Iceland-Genetics and nursing: An Icelandic perspective. In S.L. Feetham & J.K. Williams (Eds.), Nursing and genetics in the 21st century-Leadership for global health. Geneva, Switzerland: International Council of Nurses.
8. Burke, W. (2002). Genetic testing. New England Journal of Medicine, 347(23), 1867-1875.
9. Chatterjee, N., Shih, J., Hartge, P., Brody, L., Tucker, M., & Wacholder, S. (2001). Association and aggregation analysis using kin-cohort designs with applications to genotype and family history data from the Washington Ashkenazi Study. Genetic Epidemiology, 21(2), 123-138.
10. Childs, B. (2003). Genomics, proteomics, and genetics in medicine. Advances in Pediatrics, 50, 39-58.
11. Cogswell, M., Gallagher, M., Steinberg, K., Caudill, S., Looker, A., Bowman, B. et al. (2003). HFE genotype and transferring saturation in the United States. Genetics in Medicine, 5(4), 304-310.
12. Collins, F.S., Green, E., Guttmacher, A.E., & Guyer, M.S. (2003). A vision for the future of genomic research. Nature, 422, 835-847.
13. Corder, E., Saunders, A., Strittmatter, W., Schmechel, D., Gaskell, P., Small, G., et al. (1993). Gene dose of apolipoprotein E type allele and the risk of Alzheimer disease in late onset families. Science, 13, 261(5123), 921-923.
14. Department of Health. (2003). Our inheritance, our future, realising the potential of genetics in the NHS. London: The Stationery Office.
15. Expert Panel Report on Genetics and Nursing. (2000). Implications for education and practice. [Washington, DC, BHP00177]. Retrieved January 2005, from: http://www.ask.hrsa.gov/
16. Feetham, S.L. (1999). Families and the genetic revolution: Implications for primary care, education, research and policy. Families, Systems and Health, 17(1), 27-43.
17. Feetham, S.L. (2000). Editorial genetics and nursing research. Opportunities and challenges. Research in Nursing and Health, 23(4), 257-259.
18. Feetham, S.L., & Williams, J.K. (Eds.). (2004). Nursing and genetics in the 21st century - Leadership for global health. Geneva, Switzerland: International Council of Nurses.
19. Genetic Nursing Committee of Japan. (2000). The convention project: Perspective of genetic medicine and nursing, proceedings of 20th Academic Conference. Journal of Japan Academy of Nursing Science, 20, 349.
20. Gostin, L.O., & Hodge, J.G. (1999). Genetic privacy and the law: An end to genetics exceptionalism. Jurimetrics, 40, 21-58.
21. Green, M.J., & Botkin, J.R. (2003). "Genetic Exceptionalism" in medicine: Clarfying the differences between genetic and nongenetic tests. Annals of Internal Medicine, 138(7), 571-575
22. Guttmacher, A.E. (2002). Putting genetics into clinical practice: Current and future. 15th Annual International Society of Nurses in Genetics Conference, Baltimore, MD.
23. Guttmacher, A.E., & Collins, F.S. (2002). Genomic medicine: A primer. New England Journal of Medicine, 347, 1512-1520.
24. Guttmacher, A.E., Collins, F.S., & Carmona, R.H. (2004). The family history-more important than ever. New England Journal of Medicine, 351(22), 2333-2336.
25. Hager, M. (Ed.). (1999). The implications of genetics for health professional education. New York: Josiah Macy, Jr. Foundation.
26. Hetteberg, C., & Prows, C. (2004). A checklist to assist in the integration of genetics into nursing curricula. Nursing Outlook, 52(2), 85-88.
27. Hinshaw, A., Feetham, S., & Shaver, J. (1999). Preface. In A.S. Hinshaw, S.L. Feetham, & J.L.F. Shaver (Eds.), Handbook of clinical nursing research (pp. xiv-xvi). Thousand Oaks, CA: Sage.
28. Horner, S.D., Abel, E., Taylor, K., & Sands, D. (2004). Using theory to guide the diffusion of genetics content in nursing curricula. Nursing Outlook, 52(2), 80-84.
29. International Human Genome Sequencing Consortium. (2001). Initial sequencing and analysis of the human genome. Nature, 409, 860-921.
30. International Society of Nurses in Genetics, Inc. (1998). Statement on the scope and standards of genetics clinical nursing practice. Washington, DC: American Nurses Association.
31. Jarvik, G. (1997). Genetic predictors of common disease: Apolipoprotein E genotype as a paradigm. Annals of Epidemiology, 7, 357-62.
32. Jenkins, J.F., Prows, C., Dimond, E., Monsen, R., & Williams, J. (2001). Recommendations for educating nurses in genetics. Journal of Professional Nursing, 17(6), 283-290.
33. Kirk, M. (1999). Nurse education and the new genetics: Preparing practitioners of the future. Report for the Welsh Institute of Health and Social Care. School of Nursing and Midwifery, University of Glamorga.
34. Kolb, S.E., Aguilar, M.C., Dinenberg, M., & Kaye, C.I. (1995). Genetics education for primary care providers in community health settings. Journal of Community Health, 24, 45-59.
35. Lazarou, J., Pomeranz, B., & Corey, P. (1998). Incidence of adverse drug reactions in hospitalized patients: A meta-analysis of prospective studies. Journal of the American Medical Association, 279, 1200-1205.
36. Lea, D.H. (2002). Position Statement: Integrating genetics competencies into baccalaureate and advanced nursing education. Nursing Outlook, 50(3), 167-168.
37. Lea, D.H., & Monsen, R.B. (2003). Preparing nurses for a 21st century role in genomics based health care. Nursing Education Perspectives, 24(2), 75-80.
38. Mann, K., Thorngate, F., Katoh-Fukui, Y., Hamanaka, H., Williams, D., Fujita, S., et al. (2004). Independent effects of APOE on cholesterol metabolism and brain AB levels in an Alzheimer disease mouse model. Human Molecular Genetics, 13(17), 1959-1968.
39. Martinez, F., Graves, P., Baldini, M., Solomon, S., & Erickson, R. (1997). Association between genetic polymorphisms of the beta2-adrenoceptor and the response to albuterol in children with and without a history of wheezing. Journal of Clinical Investigation, 100, 3184-3188.
40. McKusick, V., & Ruddle, F. (1987). A new discipline, a new name, a new journal. Genomics, 1, 1-2.
41. McLaren, C., Barton, J., Adams, P., Harris, E., Acton, R., Press, N., et al. (2003). Hemochromatosis and iron overload screening (HEIRS) study design for an evaluation of 100,000 primary care-based adults. American Journal of the Medical Sciences, 325(2), 53-62.
42. Menzel, H., Kladetzky, R., & Assmann, G. (1983). Apolipoprotein E polymorphism and coronary artery disease. Arteriosclerosis, 3, 310-315.
43. Mizoguchi, M., Yokoyama, H., Wada, K., Morita, M., & Ando, H. (2000) Needs for continuing education related to genetics in nursing. Journal of Japan Academy of Nursing Education, 10(1), 1-9.
44. National Coalition for Health Professional Education in Genetics. (2000). Core competencies in genetics essential for all health-care professionals. Retrieved January 10, 2005, from http://www.nchpeg.org/news box/ corecompetencies.html
45. Olsen, S.J., Feetham, S.L., Jenkins, J., Lewis, J., Nissly, T.L., Sigmon, H.D., et al. (2003). Creating a nursing vision for leadership in genetics. MedSurg Nursing, 12(3), 177-183.
46. Palmer, L., Silverman, E., Weiss, S., & Drazen, J. (2002). Pharmacogenetics of asthma. American Journal of Respiratory Critical Care in Medicine, 165, 861-866.
47. Patenaude, A.F., Guttmacher, A., & Collins, F. (2002). Genetic testing and psychology: New roles, new responsibilities. American Psychologist, 57(4), 271-282.
48. Prendergast, H.M., Bunney, E.B., Roberson, T., & Davis, T. (2004). Knowledge of heart disease among women in an urban emergency setting. Journal of the National Medical Association, 96(8), 1027-1031.
49. Prows, C.A., Hetteberg, C., Johnson, N., Latta, K., Lovell, A., Saal, H., et al. (2003, March/April). Outcomes of a genetics education program for nursing faculty. Nursing Education Perspectives, 24(2), 81-85.
50. Prows, C.A., & Prows, D.R. (2004). Medication selection by genotype. American Journal of Nursing, 104(5), 60-70.
51. Rich, E.C., Burke, W., Heaton, C.J., Haga, S., Pinsky, L., Short, P., et al. (2004). Reconsidering the family history in primary care. Journal of General Internal Medicine, 19(3), 273-280.
52. Rolland, J.S. (1999). Families and genetic fate: A millennial challenge. Families, Systems Sc Health (formerly Family Systems Medicine), 17(1), 123-133.
53. Rolland, J.S. (in press). Living with genetically-linked anticipatory loss: A life cycle perspective. In S. Miller, S.L. Feetham, J.S. Rolland, & S.H. McDaniels (Eds.), Individuals, families and the new era of genetics: Biopsychosocial perspectives. New York, NY: W.W. Norton.
54. Rolland, J.S., & Williams, J.K. (in press). Toward a psychosocial typology of 21st century genetics. In S. Miller, S.L. Feetham, J.S. Rolland, & S.H. McDaniels (Eds.). Individuals, families and the new era of genetics: biopsychosocial perspectives. New York, NY: W.W. Norton.
55. Ross, L.F. (2000). Genetic testing of adolescents: Is it in their best interest? Archives of Pediatrics and Adolescent Medicine, 154, 850-851.
56. Ross, L.F. (2001). Genetic exceptionalism vs. paradigm shift: Lessons from HIV. Journal of Law Medical Ethics, 29(2), 149-51.
57. Satagopan, J.M., Offit, K., Foulkes, W., Robson, M.E., Wacholder, S., Eng, C.M., et al. (2001). The lifetime risks of breast cancer in Ashkenazi Jewish carriers of BRCA1 and BRCA2 mutations. Cancer, Epidemiological Biomarkers, and Prevention, 10(5), 467-473.
58. Scanlon, C., & Fibison, W. (1995). Managing genetic information: Implications for nursing practice. Washington, DC: American Nurses Publishing.
59. Skirton, H., Barnes, C., Curtis, G., & Walford-Moore, J. (1997). The role and practice of the genetic nurse: report of the AGNC Working Party. Journal of Medical Genetics, 34(2), 141-147.
60. Skirton, H., Barnes, C., Guilbert, P., Kershaw, A., Kerzin-Storrar, L., Patch, C., et al. (1998). Recommendations for education and training of genetic nurses and counselors in the United Kingdom. Journal of Medical Genetics, 35(5), 410-412.
61. Skirton, H., & Williams, J.K. (2002). International collaboration in genetic nursing. Nursing Standard, 17(5), 38-40.
62. Street, E., & Soldan, J. (1998). A conceptual framework for the psychosocial issues faced by families with genetic conditions. Families, Systems & Health (formerly Family Systems Medicine), 16(3), 217-233.
63. Struewing, J.P., Hartge, P., Wacholder, S., Baker, S.M., Berlin, M., McAdams, M., et al. (1997). The risk of cancer associated with specific mutations of BRCA1and BRCA2 among Ashkenazi Jews. New England Journal of Medicine, 336(20), 1401-1408.
64. Suter, S.M. (2001). The allure and peril of genetics exceptionalism: Do we need special genetics legislation? Washington University Law Quarterly, 79(3), 669-748.
65. Taskforce on Genetic Information and Insurance. (1993). Report of Joint NIH-DOE Working Group on the Ethical, Legal and Social Implications (ELSI) of Human Genome Research. Bethesda, MD: NHGRI.
66. Varmus, H. (2002). Getting ready for gene-based medicine. New England Journal of Medicine, 347(19), 1526-1527.
67. Waalen, J., Felitti, V., Gelbart, T., Ho, N.J., & Beutler, E. (2002). Penetrance of hemochromatosis. Blood Cells, Molecules, and Diseases, 29(3), 418-432.
68. Wacholder, S., Hartge, P., Struewing, J.P., Pee, D., McAdams, M., Brody, L., et al. (1998). The kin-cohort study for estimating penetrance. American Journal of Epidemiology, 148(7), 623-630.
69. Wakefield, M. (2004). Linking health policy to nursing and health care scholarship: Points to consider. Nursing Outlook, 52(2), 111-113.
70. Watson, J.D., & Crick, F.H. (1953). Molecular structure of nucleic acids: A structure for deoxyribose nucleic acid. Nature 171, 4356, 737-738.
71. Williams, J.K. (2001). Genetic nursing. The Japanese Journal of Nursing Research, 34(5), 67-74.
72. Williams, J.K., Skirton, H., Reed, D., Johnson, M., Maas, M., & DaackHirsch, S. (2001). Genetic counseling outcomes validation by genetic nurses in the UK and US. Journal of Nursing Scholarship, 33, 369-374.