Valuing Healthcare Improvement: Implicit Norms, Explicit Normativity, and Human Agency

Health Care Analysis

Volumn 26, Issue 2, 2018, Pages 189-205

  Carter, Stacy M ^a  

^a UNIVERSITY OF SYDNEY   (Australia)

Author keywords

Cancer screening; Community participation; Early detection of cancer; Ethics; Evidence based medicine; Health policy; Implementation science; Improvement science; Knowledge translation; Social values

Indexed keywords

ATTENTION; CANCER SCREENING; COMMUNITY PARTICIPATION; EARLY CANCER DIAGNOSIS; ETHICS; HEALTH CARE POLICY; HUMAN; HUMAN EXPERIMENT; MEDICINE; MORALITY; SOCIAL LIFE; DECISION MAKING; EVIDENCE BASED MEDICINE; HEALTH CARE DELIVERY; SOCIAL NORM; TOTAL QUALITY MANAGEMENT;

COMMUNITY PARTICIPATION; DELIVERY OF HEALTH CARE; EARLY DETECTION OF CANCER; EVIDENCE-BASED MEDICINE; HEALTH POLICY; HUMANS; JUDGMENT; QUALITY IMPROVEMENT; SOCIAL NORMS;

EID: 85031902831     PISSN: 10653058     EISSN: 15733394     Source Type: Journal    
DOI: 10.1007/s10728-017-0350-x     Document Type: Article

References (54)

1. Abraham, C., & Michie, S. (2008). A taxonomy of behavior change techniques used in interventions. Health Psychology, 27(3), 379–387.
2. Allen, D., & Harkins, K. J. (2005). Too much guidance? The Lancet, 365(9473), 1768.
3. Barley, E., Borschmann, R. D., Walters, P., & Tylee, A. (2015). Interventions to encourage uptake of cancer screening for people with severe mental illness. Cochrane Database of Systematic Reviews. doi:10.1002/14651858.CD009641.pub3.
4. Bekelman, J. E., Li, Y., & Gross, C. P. (2003). Scope and impact of financial conflicts of interest in biomedical research: A systematic review. JAMA, 289(4), 454–465.
5. Blakely, J. (2013). The forgotten Alasdair MacIntyre: Beyond value neutrality in the social sciences. Polity, 45(3), 445–463.
6. Bonfill Cosp, X., Marzo Castillejo, M., Pladevall Vila, M., Marti, J., & Emparanza, J. I. (2009). Strategies for increasing the participation of women in community breast cancer screening. Cochrane Database of Systematic Reviews. doi:10.1002/14651858.CD002943.
7. Borgerson, K. (2009). Valuing evidence: Bias and the evidence hierarchy of evidence-based medicine. Perspectives in Biology and Medicine, 52(2), 218–233.
8. Canadian Agency for Drugs and Technologies in Health. Rx for Change Database 2016. https://www.cadth.ca/resources/rx-for-change/database/browse.
9. Cane, J., O’Connor, D., & Michie, S. (2012). Validation of the theoretical domains framework for use in behaviour change and implementation research. Implementation Science, 7(1), 1–17.
10. Carter, S. M. (2016). Ethical aspects of cancer screening. Cancer Forum, 40(2), 105–109.
11. Carter, S. M., Williams, J., Parker, L., Pickles, K., Jacklyn, G., Rychetnik, L., et al. (2015). Screening for cervical, prostate, and breast cancer. American Journal of Preventive Medicine, 49(2), 274–285.
12. Carter, S. M., Degeling, C., Doust, J., & Barratt, A. (2016). A definition and ethical evaluation of overdiagnosis. Journal of Medical Ethics, 42(11), 705–714.
13. Dancy, J. (2006). Nonnaturalism. In D. Copp (Ed.), The Oxford handbook of ethical theory (pp. 132–145). New York: Oxford University Press.
14. Degeling, C., Carter, S. M., & Rychetnik, L. (2015). Which public and why deliberate?—A scoping review of public deliberation in public health and health policy research. Social Science and Medicine, 131, 114–121.
15. Degeling, C., Rychetnik, L., Pickles, K., Thomas, R., Doust, J. A., Gardiner, R. A., et al. (2015). “What should happen before asymptomatic men decide whether or not to have a PSA test?” A report on three community juries. Medical Journal of Australia, 203(8), 335.
16. Degeling, C., Carter, S. M., & Rychetnik, L. (2016). All care, but whose responsibility? Community juries reason about expert and patient responsibilities in prostate-specific antigen screening for prostate cancer. Health, 20(5), 465–484.
17. Dixon-Woods, M., Bosk, C. L., Aveling, E. L., Goeschel, C. A., & Pronovost, P. J. (2011). Explaining Michigan: Developing an ex post theory of a quality improvement program. Milbank Quarterly, 89(2), 167–205.
18. Flight, I. H. K., Wilson, C. L., Griffiths, L., & Myers, R. E. (2004). Interventions for improving uptake of population-based screening for colorectal cancer using fecal occult blood testing (Protocol). Cochrane Database of Systematic Reviews. doi:10.1002/14651858.CD005035.
19. Gewirtz, S., & Cribb, A. (2006). What to do about values in social research: The case for ethical reflexivity in the sociology of education. British Journal of Sociology of Education, 27, 141–155.
20. Gewirtz, S., & Cribb, A. (2008). Differing to agree: A reply to Hammersley and Abraham. British Journal of Sociology of Education, 29(5), 559–562.
21. Gotzsche, P. C., & Jorgensen, J. K. (2013). Screening for breast cancer with mammography. Cochrane Database of Systematic Reviews. doi:10.1002/14651858.CD001877.pub5.
22. Greenhalgh, T. (2014). How to read a paper: The basics of evidence-based medicine. West Sussex: BMJ Books/John Wiley and Sons.
23. Greenhalgh, T., Howick, J., & Maskrey, N. (2014). Evidence based medicine: A movement in crisis? BMJ, 348, g3725.
24. Greenhalgh, T., Snow, R., Ryan, S., Rees, S., & Salisbury, H. (2015). Six ‘biases’ against patients and carers in evidence-based medicine. BMC Medicine, 13(1), 1–11.
25. Grimshaw, J. M., Eccles, M. P., Lavis, J. N., Hill, S. J., & Squires, J. E. (2012). Knowledge translation of research findings. Implementation Science, 7(1), 1–17.
26. Hedgecoe, A. M. (2004). Critical bioethics: Beyond the social science critique of applied ethics. Bioethics, 18(2), 120–143.
27. Holme, O., Bretthauer, M., Fretheim, A., OdgaardJensen, J., & Hoff, G. (2014). Flexible sigmoidoscopy versus faecal occult blood testing for colorectal cancer screening in asymptomatic individuals. Cochrane Database of Systematic Reviews. doi:10.1002/14651858.CD009259.pub2.
28. Ilic, D., Neuberger, M. M., Djulbegovic, M., & Dahm, P. (2013). Screening for prostate cancer. Cochrane Database of Systematic Reviews. doi:10.1002/14651858.CD004720.pub3.
29. Institute of Medicine. (2009). Conflict of interest in medical research, education, and practice. Washington, DC: The National Academies Press.
30. Ioannidis, J. P. A. (2016). Evidence-based medicine has been hijacked: A report to David Sackett. Journal of Clinical Epidemiology, 73(May), 82–86.
31. Ioannidis, J. P., Fanelli, D., Dunne, D. D., & Goodman, S. N. (2015). Meta-research: Evaluation and improvement of research methods and practices. PLoS Biology, 13(10), e1002264.
32. Korsgaard, C. M. (1996). The sources of normativity. Cambridge: Cambridge University Press.
33. Manser, R., Lethaby, A., Irving, L. B., Stone, C., Byrnes, G., Abramson, M. J., et al. (2013). Screening for lung cancer. Cochrane Database of Systematic Reviews. doi:10.1002/14651858.CD001991.pub3.
34. Michie, S., van Stralen, M. M., & West, R. (2011). The behaviour change wheel: A new method for characterising and designing behaviour change interventions. Implementation Science, 6(1), 1–12.
35. Michie, S., Richardson, M., Johnston, M., Abraham, C., Francis, J., Hardeman, W., et al. (2013). The behavior change technique taxonomy (v1) of 93 hierarchically clustered techniques: Building an international consensus for the reporting of behavior change interventions. Annals of Behavioral Medicine, 46(1), 81–95.
36. Moynihan, R. N., Cooke, G. P. E., Doust, J. A., Bero, L., Hill, S., & Glasziou, P. P. (2013). Expanding disease definitions in guidelines and expert panel ties to industry: A cross-sectional study of common conditions in the United States. PLoS Medicine, 10(8), e1001500.
37. Neuman, J., Korenstein, D., Ross, J. S., & Keyhani, S. (2011). Prevalence of financial conflicts of interest among panel members producing clinical practice guidelines in Canada and United States: Cross sectional study. BMJ, 343, d5621.
38. Parker, L., Rychetnik, L., & Carter, S. (2015). Values in breast cancer screening: An empirical study with Australian experts. British Medical Journal Open, 5(5), e006333.
39. Paul, C., Nicholls, R., Priest, P., & McGee, R. (2008). Making policy decisions about population screening for breast cancer: The role of citizens’ deliberation. Health Policy, 85(3), 314–320.
40. Pickles, K., Carter, S. M., & Rychetnik, L. (2015). Doctors’ approaches to PSA testing and overdiagnosis in primary healthcare: A qualitative study. British Medical Journal Open, 5(3), e006367.
41. Pickles, K., Carter, S. M., Rychetnik, L., & Entwistle, V. A. (2016). Doctors’ perspectives on PSA testing illuminate established differences in prostate cancer screening rates between Australia and the UK: A qualitative study. BMJ Open, 6(12), e011932.
42. Pickles, K., Carter, S. M., Rychetnik, L., McCaffery, K., & Entwistle, V. (2016). General practitioners’ experiences of, and responses to, uncertainty in prostate cancer screening: Insights from a qualitative study. PLoS ONE, 11(4), e0153299.
43. Putnam, H. (2002). The collapse of the fact/value dichotomy and other essays. Cambridge: Harvard University Press.
44. Raffle, A., & Gray, M. (2007). Screening: Evidence and practice. Oxford: Oxford University Press.
45. Raz, J. (2011). From normativity to responsibility. Oxford: Oxford University Press.
46. Rogers, W. A. (2004). Evidence based medicine and justice: A framework for looking at the impact of EBM upon vulnerable or disadvantaged groups. Journal of Medical Ethics, 30(2), 141.
47. Rychetnik, L., Doust, J., Thomas, R., Gardiner, R., MacKenzie, G., & Glasziou, P. (2014). A Community Jury on PSA screening: What do well-informed men want the government to do about prostate cancer screening—A qualitative analysis. BMJ Open, 4(4), e004682.
48. Sayer, A. (2011). Why things matter to people: Social science, values and ethical life. Cambridge: Cambridge University Press.
49. Thompson, D. F. (2008). Deliberative democratic theory and empirical political science. Annual Review of Political Science, 11(1), 497–520.
50. Wedgwood, R. (2007). The nature of normativity. Oxford: Oxford University Press.
51. Williams, J. (2016). An empirical ethics analysis of cervical screening organisation (Ph.D. thesis). Sydney: The University of Sydney. http://hdl.handle.net/2123/15710.
52. Williams, J. H., Carter, S. M., & Rychetnik, L. (2014). ‘Organised’ cervical screening 45 years on: How consistent are organised screening practices? European Journal of Cancer, 50(17), 3029–3038.
53. Williams, J., Carter, S., & Rychetnik, L. (2017). Contested guideline development in Australia’s Cervical Screening Program: Values drive different views of the purpose and implementation of organized screening. Public Health Ethics, 10(1), 5–18.
54. Wilson, J. M. G., & Jungner, G. (1968). Principles and practice of screening for disease. Geneva: World Health Organisation.