Ethics of knowledge translation: One step forward

International Journal of Interdisciplinary Social Sciences

Volumn 7, Issue 1, 2012, Pages 23-36

  Lafrenière, Darquise ^a   Hurlimann, Thierry ^a   Menuz, Vincent ^a   Godard, Béatrice ^a  

^a UNIVERSITÉ DE MONTRÉAL   (Canada)

Author keywords

Ethics; Knowledge Translation; Knowledge to action Framework

Indexed keywords

EID: 85014668528     PISSN: 18331882     EISSN: 24742260     Source Type: Journal    
DOI: 10.18848/1833-1882/CGP/v07/53561     Document Type: Review

References (50)

1. Allesee, Lori and Colleen M. Gallagher. “Pregnancy and Protection: The Ethics of Limiting a Pregnant Woman's Participation in Clinical Trials.” Journal of Clinical Research in Bioethics 2, no. 108 (2011): 1-9.
2. Baker, Tamara A. and Caroline C. Wang. “Photovoice: Use of a Participatory Action Research Method to Explore the Chronic Pain Experience in Older Adults.” Qualitative Health Research, 16 no. 10, (2006): 1405-1413.
3. Boivin, Antoine, France Légaré, and Pascale Lehoux. “Decision technologies as normative instruments: Exposing the values within.” Patient Education and Counseling 73 (2008): 426-430.
4. Borgerson, K. “Valuing evidence. Bias and the evidence hierarchy of evidence-based medicine. “Perspectives in Biology and Medicine, 52 no. 2 (2009): 218-233.
5. Britten, Nicky. (2010). “Qualitative Research and the Take-up of Evidence-based Practice.” Journal of Research in Nursing 15, no. 6 (2010): 537-44.
6. Broeder, Jennifer L. and Ann Donze. “The Role of Qualitative Research in Evidenced-based Practice. “Neonatal Network 29, no. 3 (2010): 197-202.
7. Browne, Gina. “Knowledge Translation. Getting Efficacious Interventions Incorporated Into Practice: Lessons Learned.” Canadian Journal of Nursing Research 41, no. 4 (2009): 83-89.
8. Curran, Janet A., Jeremy M. Grimshaw, Jill A. Hayden, and Barbara Campbell. “Knowledge Translation Research: The Science of Moving Research into Policy and Practice.” The Journal of Continuing Education in the Health Professions 31, no. 3 (2011): 174-80.
9. Desai, Chetna. “Authorship issues.” Indian Journal of Pharmacology 44, no. 4 (2012): 433-434.
10. Estey, Elizabeth A., Andrew M. Kmetic, and Jeffrey L Reading. “Thinking about Aboriginal KT: Learning from the Network Environments for Aboriginal Health Research British Columbia (NEARBC).” Canadian Journal of Public Health 101, no. 1 (2010): 83-6.
11. Fenech, Michael, Ahmed El-Sohemy, Leah Cahill, Lynnette R. Ferguson, Tapaeru-Ariki C. French, E. Shyong Tai, John Milner, Woon-Puay Koh, Lin Xie, Michelle Zucher, Michael Buckley, Leah Cosgrove, Trevor Lockett, Kim YC. Fung, and Richard Head. “Nutrigenetics and Nutrigenomics: Viewpoints on the Current Status and Applications in Nutrition Research and Practice.” Journal of Nutrigenetics and Nutrigenomics 4, (2011): 69-89.
12. Godard, Béatrice and Lise Lévesque. “Genomics and Public Health Research: Building Public 'Goods'? Divergences and Convergences of views in Four Stakeholders Groups.” Current Pharmacogenomics and Personalized Medicine 10, no. 2 (2012): 138-147.
13. Goering, Paula, Katherine M. Boydell, and Antonio Pignatiello. “The relevance of qualitative research for clinical programs in psychiatry.” The Canadian Journal of Psychiatry 53, no. 3 (2008): 145-51.
14. Goyal, Rishi K., Rita Charon, Helen-Maria Lekas, Mindy T. Fullilove, Michael J. Devlin, Louise Falzon, and Peter C. Wyer. “'A Local Habitation and a Name': How Narrative Evidence-based Medicine Transforms the Translational Research Paradigm.” Journal of Evaluation in Clinical Practice 14, (2008): 732-41.
15. Graham, Ian D. and Jacqueline Tetroe. “How to Translate Health Research Knowledge into Effective Healthcare Action.” Healthcare Quarterly 10, no. 3 (2007): 20-2.
16. Graham, Ian D., Jo Logan, Margaret B. Harrison, Sharon E. Straus, Jacqueline Tetroe, Wenda Caswell, Nicole Robinson. “Lost in Knowledge Translation: Time for a Map?” The Journal of Continuing Education in the Health Professions 26, no. 1 (2006): 13-24.
17. Grypdonck, Maria H. “Qualitative Health Research in the Era of Evidenced-based Practice.” Qualitative Health Research 16, no. 10 (2006): 1371-85.
18. Gupta, Mona. “Ethics and Evidence in Psychiatric Practice.” Perspectives in Biology and Medicine 52, no. 2 (2009): 276-288.
19. Hurlimann, Thierry, Raphaelle Stenne, Vincent Menuz, and Béatrice Godard. “Inclusion and Exclusion in Nutrigenetics Research: Ethical and Scientific Challenges.” Journal of Nutrigenetics and Nutrigenomics 4, no. 6 (2012): 322-44.
20. Jardine, Cindy and Chris Furgal. “Knowledge Translation with Northern Aboriginal Communities: A Case Study.” Canadian Journal of Nursing Research 42, no.1 (2010): 119-27.
21. Kerridge, Ian. “Ethics and EBM: Acknowledging Bias, Accepting Difference and Embracing Politics.” Journal of Evaluation in Clinical Practice 16, (2010): 365-73.
22. Kitson, Alison. “Knowledge Translation and Guidelines: A Transfer, Translation or Transformation Process?” International Journal of Evidence-Based Healthcare 7, (2009): 124-39.
23. Kothari, Anita R., Julia J. Bickford, Nancy Edwards, Maureen J. Dobbins, and Mechthild Meyer. “Uncovering Tacit Knowledge: A Pilot Study to Broaden the Concept of Knowledge in Knowledge Translation.” BMC Health Services Research 11, (2011): 198-208.
24. Lafrenière, Darquise, Susan M. Cox, George Belliveau, and Graham W. Lea. “Performing the Human Subject: Arts-based Knowledge Dissemination in Health Research.” Journal of Applied Arts and Health 3 no. 3 (forthcoming).
25. Lafrenière, Darquise, Thierry Hurlimann, Vincent Menuz, and Béatrice Godard. “Health Research: Ethics and the Use of Arts-based Methods in Knowledge Translation Processes.” International Journal of the Creative Arts in Interdisciplinary Practice 11, (2012), http://www.ijcaip.com/archives/IJCAIP-11-paper3.pdf (accessed July 5, 2012).
26. Larkin, Gregory Luke, Cara J. Hamann, Edward P. Monico, Linda Degutis, Jeremiah Schuur, Walter Kantor, and Charles S Graffeo. “Knowledge Translation at the Macro Level: Legal and Ethical Considerations.” Academic Emergency Medicine 14, no. 11 (2007): 1042-46.
27. Lehmann, Lisa Soleymani, David J. Kaufman, Richard R. Sharp, Tanya A. Moreno, Joanna L. Mountain, J. Scott Roberts, and Robert C. Green. “Navigating a research partnership between academia and industry to assess the impact of personalized genetic testing.” Genetics in Medicine 14, no. 2 (2012): 268-273.
28. Lipworth, Wendy L., Ian H. Kerridge, Stacy M. Carter, and Miles Little. “Journal peer review in context: A qualitative study of the social and subjective dimensions of manuscript review in biomedical publishing.” Social Science & Medicine 72 (2011): 1056-1063.
29. Maar, MA., NE. Lightfoot, ME. Sutherland, RP. Strasser, KJ. Wilson, CM. Lidstone-Jones, DG. Graham, R. Beaudin, GA. Daybutch, BR. Dokis, MT Lesage, M. Raymond, and P. Williamson. “Thinking Outside the Box: Aboriginal People's Suggestions for Conducting Health Studies with Aboriginal Communities.” Public Health 125, (2011): 747-53.
30. MacDermid, Joy C. and Ian D. Graham. “Knowledge Translation: Putting the « Practice» in Evidence-based Practice.” Hand Clinics 25, (2009): 125-43.
31. Malec, James F. “Ethical and evidence-based practice in brain injury rehabilitation.” Neuropsychological Rehabilitation 19, no. 6 (2009): 790-806.
32. Martin, Debbie, Anne C.Macaulay, Alex McComber, Carla Moore, and Fred Wien. Knowledge Translation: A Quest for Understanding. Report Prepared by the Atlantic Aboriginal Health Research Program and the Kahnawake Schools Diabetes Prevention Program, 2006
33. McDonald, Michael and Susan M. Cox. “Moving Toward Evidence-Based Human Participant Protection.” Journal of Academic Ethics 7 (2009): 1-16.
34. McDonald, Michael, Anne Townsend, Susan M. Cox, Natasha Damiano Paterson, and Darquise Lafrenière. “Trust in Health Research Relationships: Accounts of Human Subjects.” Journal of Empirical Research on Human Research Ethics 3 no. 4 (2008): 35-47.
35. McDonald, Michael, Susan M. Cox, and Anne Townsend. “Towards Human Research Protection that is Evidence-Based and Participant-Centered.” In The Future of Human Subjects Research Regulation, edited by Glen Cohen and Holly Fernandez Lynch. Boston, MA: MIT Press, forthcoming.
36. Michael Smith Foundation for Health Research. Knowledge Translation. Confirmation of Term and Definition. Version February 9, 2011. http://www.msfhr.org/resources/public/about/KT/KT_Term%20_Definition.pdf. Accessed online November 9, 2012.
37. Morris, Zoe Slote, Steve Wooding, and Jonathan Grant, J. “The Answer Is 17 Years, What Is the Question: Understanding Time Lags in Translation Research.” Journal of the Royal Society of Medicine 104, no. 12 (2011): 510-20.
38. National Center for the Dissemination of Disability Research. “Overview of International Literature on Knowledge Translation.” Focus, Technical Brief no. 14 (2006): 1-6.
39. Nunn, Robin. “Mere Anecdote: Evidence and Stories in Medicine.” Journal of Evaluation in Clinical Practice 17, (2011): 920-26.
40. Petrini, Carlo. “Ethical Issues in Translational Research.” Perspectives in Biology and Medicine 53, no. 4 (2010): 517-33.
41. Rogers, Julia L. “Transferring Research Into Practice. An Integrative Review. “Clinical Nurse Specialist 23, no. 4 (2009): 192-199.
42. Rycroft-Malone, Jo. “Theory and Knowledge Translation: Setting Some Co-ordinates?” Nursing Research 56, no. 4S (2007): S78-85.
43. Shamy, Michel C.F., Clement Zai, Vincenzo S. Basile, James L. Kennedy, Daniel J. Müller, and Mario Masellis. “Ethical and Policy Considerations in the Application of Pharmacogenomic Testing for Tardive Dyskinesia: Case Study of the Dopamine D3 Receptor.” Current Pharmacogenomics and Personalized Medicine 9, no. 2 (2011): 94-101.
44. Shea, Beverley J. “A Decade of Knowledge Translation Research-What Has Changed?” Journal of Clinical Epidemiology 64, (2010): 3-5.
45. Smylie, Janet, Nili Kaplan-Myrth, Kelly McShane, Métis Nation of Ontario-Ottawa Council, Pikwakanagan First Nation, and Tungasuvvingat Inuit Family Resource Centre. “Indigenous Knowledge Translation: Baseline Findings in a Qualitative Study of the Pathways of Health Knowledge in Three Indigenous Communities in Canada.” Health Promotion Practice 10, no. 3 (2009): 436-446. Weijer, Charles, Jeremy
46. Stenne, Raphaelle, Thierry Hurlimann, and Béatrice Godard. “Are Research Papers Reporting Results from Nutrigenetics Clinical Research a Potential Source of Biohype?” Accountability in Research 19, no. 5 (2012): 285-307.
47. Teti, Michelle, Cynthia Murray, LaShaune Johnson, and Diane Binson. “Photovoice as a Community-Based Participatory Research Method among Women Living with HIV/AIDS: Ethical Opportunities and Challenges”. Journal of Empirical Research on Human Research Ethics: An International Journal 7, no. 4 (2012): 34-43.
48. Trevor-Deutsch, Burleigh, Kristiann Allen, and Vardit Ravitsky. “Ethics in knowledge translation.” In Knowledge Translation in Health Care. Moving from Evidence to Practice, edited by Sharon Strauss, Jacqueline Tetroe and Ian D. Graham, 291-299. Singapore: Wiley-Blackwell Publishing, 2009.
49. Ward, Vicky, Allan House, and Susan Hamer. “Developing a framework for transferring knowledge into action: a thematic analysis of the literature.” Journal of Health Services Research & Policy 14, (2009): 156-64.
50. Weijer, Charles, Jeremy M Grimshaw, Monica Taljaard, Ariella Binik, Robert Boruch, Jamie C Brehaut, Allan Donner, Martin P Eccles, Antonio Gallo, Andrew D McRae, Raphael Saginur, and Merrick Zwarenstein. “Ethical issues posed by cluster randomized trials in health research”. Trials 12 (2011): 100-111.