Photovoice as a community-based participatory research method among women living with HIV/AIDS: Ethical opportunities and challenges

Journal of Empirical Research on Human Research Ethics

Volumn 7, Issue 4, 2012, Pages 34-43

  Teti, Michelle ^a   Murray, Cynthia ^a   Johnson, LaShaune ^a   Binson, Diane ^b  

^a UNIVERSITY OF MISSOURI   (United States)

^b UNIVERSITY OF CALIFORNIA   (United States)

Author keywords

CBPR; Ethics; HIV AIDS; Photovoice; Women living with HIV AIDS

Indexed keywords

ACQUIRED IMMUNE DEFICIENCY SYNDROME; ADULT; ARTICLE; ATTITUDE TO HEALTH; BEHAVIOR; CONFIDENTIALITY; ETHICS; FEMALE; HUMAN; HUMAN IMMUNODEFICIENCY VIRUS; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; INTERPERSONAL COMMUNICATION; METHODOLOGY; MIDDLE AGED; PARTICIPATORY RESEARCH; PHOTOGRAPHY; RESEARCH; RESEARCH ETHICS; SOCIAL PSYCHOLOGY;

ACQUIRED IMMUNODEFICIENCY SYNDROME; ADULT; ATTITUDE TO HEALTH; COMMUNITY-BASED PARTICIPATORY RESEARCH; CONFIDENTIALITY; DISCLOSURE; ETHICS, RESEARCH; FEMALE; HIV; HIV INFECTIONS; HUMANS; MIDDLE AGED; PHOTOGRAPHY; POWER (PSYCHOLOGY); RESEARCH; SOCIAL VALUES; WOMEN; YOUNG ADULT;

EID: 84867940140     PISSN: 15562646     EISSN: 15562654     Source Type: Journal    
DOI: 10.1525/jer.2012.7.4.34     Document Type: Article

References (30)

1. CARR, R. L. & GRAMLING, L. F. (2004). Stigma: A health barrier for women with HIV/AIDS. Journal of the Association of Nurses in AIDS Care, 15(5), 30-39. (Pubitemid 39360633)
2. CATALANI, C. & MINKLER, M. (2010). Photovoice: A review of the literature in health and public health. Health Education and Behavior, 37(3), 424-451.
3. Centers for Disease Control and Prevention. (2011). HIV/AIDS among women, August 10. Retrieved April 24, 2011 from http://www.cdc.gov/hiv/topics/women/.
4. CHARMAZ, K. (2006). Constructing grounded theory: A practical guide through qualitative analysis. London: Sage Publications.
5. CORBIE-SMITH, G., ADIMORA, A. A., YOUMANS, S., MUHAMMAD, M., BLUMENTHAL, C. ET AL. (2011). Project GRACE: A staged approach to development of a community-academic partnership to address HIV in rural African American communities. Health Promotion Practice, 12(2), 293-302.
6. GREEN, L. W. & MERCER, S. L. (2001). Can public health researchers and agencies reconcile the push from funding bodies and the pull from communities? American Journal of Public Health, 91(12), 1926-1929. (Pubitemid 33111635)
7. GRIFFITH, D. M., PICHON, L. C., CAMPBELL, B., & ALLEN, J. O. (2010). YOUR Blessed Health: A faith-based CBPR approach to addressing HIV/AIDS among African Americans. AIDS Education and Prevention, 22(3), 203-217.
8. GROSS, L., KATZ, J. S., & RUBY, J. (1988). Image ethics. New York: Oxford University Press.
9. HEREK, G. M., CAPITANIO, J. P., & WIDAMAN, K. F. (2002). HIV-related stigma and knowledge in the United States: Prevalence and trends, 1991-1999. American Journal of Public Health, 92(3), 371-377. (Pubitemid 34184822)
10. HEREK, G. M., CAPITANIO, J. P., & WIDAMAN, K. F. (2003). Stigma, social risk, and health policy: Public attitudes toward HIV surveillance policies and the social construction of illness. Health Psychology, 22(5), 533-540. (Pubitemid 37243688)
11. HERGENRATHER, K. C., RHODES, S. D., & CLARK, G. (2006). Windows to work: Exploring employment-seeking behaviors of persons with HIV/AIDS through photovoice. AIDS Education and Prevention, 18(3), 243-258. (Pubitemid 43894262)
12. HERGENRATHER, K. C., RHODES, S. D., COWAN, C. A., BARDHOSHI, G., & PULA, S. (2009). Photovoice as community-based participatory research: A qualitative review. American Journal of Health Behavior, 33(6), 686-698.
13. ISRAEL, B. A., SCHULZ, A. J., PARKER, A., & BECKER, A. B. (1998). Review of community-based participatory research: Assessing partnership approaches to health. Annual Review of Public Health, 19, 173-202. (Pubitemid 28279929)
14. MAMARY, E., MCCRIGHT, J., & ROE, K. (2007). Our lives: An examination of sexual health issues using photovoice by nongay identified African American men who have sex with men. Culture, Health, and Sexuality, 9(4), 359-370. (Pubitemid 47097586)
15. MINKLER, M. (2004). Ethical challenges for the "outside" researcher in community-based participatory research. Health Education and Behavior, 31, 684-697. (Pubitemid 39586107)
16. MINKLER, M. (2005). Community-based research partnerships: Challenges and opportunities. Journal of Urban Health, 82 (2 Suppl. 2), ii3-ii12. (Pubitemid 41442974)
17. NUTBROWN, C. (2011). Naked by the pool? Blurring the image? Ethical issues in the portrayal of young children in arts-based educational research. Qualitative Inquiry, 17(1), 3-14.
18. Public Health Leadership Society. (2002). Principles of the ethical practice of public health. New Orleans: Public Health Leadership Society.
19. RHODES, S. D. (2006). Visions and voices: HIV in the 21st century. Indigent persons living with HIV/AIDS in the southern USA use photovoice to communicate meaning. Journal of Epidemiology and Community Health, 60(10), 886.
20. RHODES, S. D., BISCHOFF, W. E., BURNELL, J. M., WHALLEY, L. E., WALKUP, M. P. ET AL. (2010). HIV and sexually transmitted disease risk among male Hispanic/Latino migrant farmworkers in the Southeast: Findings from a pilot CBPR study. American Journal of Industrial Medicine, 53(10), 976-983.
21. RHODES, S. D., HERGENRATHER, K. C., DUNCAN, J., RAMSEY, B., YEE, L. J., & WILKIN, A. M. (2007). Using community-based participatory research to develop a chat room-based HIV prevention intervention for gay men. Progress in Community Health Partnerships: Research, Education, and Action, 1(2), 175-184.
22. SANDELOWSKI, M., LAMBE, C., & BARROSO, J. (2004). Stigma in HIV-positive women. Journal of Nursing Scholarship, 36(2), 122-128. (Pubitemid 41794720)
23. SCHONBERG, J. & BOURGOIS, P. (2002). The politics of photographic aesthetics: Critically documenting the HIV epidemic among heroin injectors in Russia and the United States. International Journal of Drug Policy, 13, 387-392. (Pubitemid 35449542)
24. TETI, M., MASSIE, J., CHEAK-ZAMORA, N., & BINSON, D. (2012). Photos to "show the world what we're going through": Women use images to talk about living with HIV. Journal of Applied Arts in Health, in press.
25. VISWANATHAN, M., AMMERMAN, A., ENG, E., GARLEHNER, G., LOHR, K. N., GRIFFITH, D. ET AL. (2004). Community-based participatory research: Assessing the evidence. In AHRQ evidence report summaries. Rockville, MD: Agency for Healthcare Research and Quality.
26. WALLERSTEIN, N. (1999). Power between evaluator and community: Research relationships with New Mexico's health communities. Social Science and Medicine, 49(1), 39-53. (Pubitemid 29277182)
27. WANG, C. (1999). Photovoice: A participatory action research strategy applied to women's health. Journal of Women?s Health, 8(2), 185-192. (Pubitemid 29149844)
28. WANG, C. & BURRIS, M. A. (1997). Photovoice: Concept, methodology, and use for participatory needs assessment. Health Education and Behavior, 24(3), 369-387. (Pubitemid 127453222)
29. WANG, C. & REDWOOD-JONES, Y. A. (2001). Photovoice ethics: Perspectives from Flint Photovoice. Health Education and Behavior, 28(5), 560-572. (Pubitemid 33602905)
30. WINGOOD, G. M., DICLEMENTE, R. J., MIKHAIL, I., MCCREE, D. H., DAVIES, S. L. ET AL. (2007). HIV discrimination and the health of women living with HIV. Women and Health, 46(2-3), 99-112.