Putting people on the map: Protecting confidentiality with linked social-spatial data

Putting People on the Map: Protecting Confidentiality with Linked Social-Spatial Data

Volumn , Issue , 2007, Pages 1-163

  Gutmann, Myron P ^a   Stern, Paul C ^b  

^a UNIVERSITY OF MICHIGAN   (United States)

^b Committee on the Human Dimensions of Global Change ^*  (United States)

Author keywords

[No Author keywords available]

Indexed keywords

REVIEWS; SOCIAL SCIENCES; SOCIETIES AND INSTITUTIONS;

BEHAVIORAL DATA; ENVIRONMENTAL CONTEXTS; GOVERNMENT AGENCIES; HUMAN BEHAVIORS; INSTITUTIONAL REVIEW BOARDS; SCIENTIFIC DATA; SCIENTIFIC INSTITUTIONS; SPATIAL INFORMATIONS;

BEHAVIORAL RESEARCH;

EID: 85013270118     PISSN: None     EISSN: None     Source Type: Book    
DOI: 10.17226/11865     Document Type: Book

References (223)

1. Abowd, J.M., and J. Lane 2003 The Economics of Data Confidentiality. Cornell University and the Urban Institute, Washington, DC. Available: http://www7.nationalacademies.org/cnstat/Abowd_Lane.pdf [accessed April 2006].
2. Abowd, J.M., and S.D. Woodcock 2001 Disclosure limitation in longitudinal linked data. Pp. 216-277 in P. Doyle, J. Lane, L. Zayatz, and J. Theeuwes, eds., Confidentiality, Disclosure, and Data Access: Theory and Practical Applications for Statistical Agencies. Amsterdam, Netherlands: North-Holland Elsevier.
3. Agrawal, R., and R. Srikant 2000 Privacy-preserving data mining. Pp. 439-450 in Proceedings of the 2000 ACM SIGMOD on Management of Data. New York: ACM Press.
4. Anderson, M., and Fienberg, S.F. 1997 Who counts? The politics of census taking. Society 34(3):19-26.
5. Anselin, L. 2005 Exploring Spatial Data with GeoDa(tm): A Workbook. Center for Spatially Integrated Social Science, University of Illinois, Urbana-Champaign. Available: http://www.geoda.uiuc.edu/pdf/geodaworkbook.pdf [accessed April 2006].
6. Anselin, L., I. Syabri, I., and Y. Kho 2006 GeoDa: An introduction to spatial data analysis. Geographical Analysis 38(1):5- 22.
7. Arizona State University 2006 Central Arizona-Phoenix Long-Term Ecological Research Project, Global Institute of Sustainability. Available: http://caplter.asu.edu/home/data/index.jsp [accessed November 2006].
8. Armstrong, M.P., and A. Ruggles 2005 Geographic information technologies and personal privacy. Cartographica 40(4):63-73.
9. Armstrong, M.P., G. Rushton, and D.L. Zimmerman 1999 Geographically masking health data to preserve confidentiality. Statistics in Medicine 18:497-525.
10. Balk, D., T. Pullum, A. Storeygard, F. Greenwell, and M. Neuman 2004 A spatial analysis of childhood mortality in West Africa. Population, Space and Place 10:175-216.
11. Balk, D., A. Storeygard, M. Levy, J. Gaskell, M. Sharma, and R. Flor 2005 Child hunger in the developing world: An analysis of environmental and social correlates. Food Policy 30(5-6):584-611.
12. Benaloh, J. 1987 Secret sharing homomorphisms: Keeping shares of a secret secret. Pp. 251-260 in A.M. Odlyzko, ed., Crypto86. Lecture Notes in Computer Science No. 263. Berlin, Germany: Springer-Verlag.
13. Bethlehem, J.G., W.J. Keller, and J. Pannekoek 1990 Disclosure control of microdata. Journal of the American Statistical Association 85:38-45.
14. Bivand, R. 2006 Implementing spatial data analysis software tools in R. Geographical Analysis 38(1):23-40.
15. Blien, U., H. Wirth, and M. Muller 1992 Disclosure risk for microdata stemming from official statistics. Statistica Neerlandica 46:69-82.
16. Borgatti, S.P., and J.L. Molina 2003 Ethical and strategic issues in organizational social network analysis. The Journal of Applied Behavioral Science 39(30):337-349.
17. Borriello, G., M. Chalmers, A. LaMarca, and P. Nixon 2005 Delivering real-world ubiquitous location systems. Communications of the Association for Computing Machinery 48(3):36-41.
18. Boulos, M.N.K., Q. Cai, J.A. Padget, and G. Rushton 2006 Using software agents to preserve individual health data confidentiality in microscale geographical analyses. Journal of Biomedical Informatics 39(2):160-170.
19. Breiger, R.L. 2005 Introduction to special issue: Ethical dilemmas in social network research. Social Networks 27(2):89-93.
20. Brownstein, J.S., C.A. Cassa, and K.D. Mandi 2006 No place to hide-Reverse identification of patients from published maps. New England Journal of Medicine 355(16):1741-1742.
21. Butz, W., and B.B. Torrey 2006 Some frontiers in social science. Science 312:1898-1900.
22. Chakraborty, J., and M.P. Armstrong 2001 Assessing the impact of airborne toxic releases on populations with special needs. The Professional Geographer 53:119-131.
23. Chawla, S., C. Dwork, F. McSherry, A. Smith, and H. Wee 2005 Towards privacy in public databases. Pp. 363-385 in J. Kilian, ed., Theory of Cryptography Conference Proceedings. Lecture Notes in Computer Science 3378. Berlin, Germany: Springer-Verlag.
24. Chen, G., and S. Keller-McNulty 1998 Estimation of identification disclosure risk in microdata. Journal of Official Sta- tistics14:79-95.
25. Churches, T., and P. Christen 2004 Some methods for blindfolded record linkage. BMC Medical Informatics and Decision Making 4(9). Available: http://www.pubmedcentral.nih.gov/tocrender.fcgi?iid=10563 [accessed April 2006].
26. Clark, W.A.V., and K. Avery 1976 The effects of data aggregation in statistical analysis. Geographical Analysis 8:428-438.
27. Confidentiality and Data Access Committee 2000 Panel on Disclosure Review Boards of Federal Agencies: Characteristics, Defining Qualities, and Generalizability. 2000 Joint Statitistic Meetings, Indianapolis, IN. Available: http://www.fcsm.gov/committees/cdac/DRB-Panel.doc [accessed April 2006].
28. Confidentiality and Data Access Committee 2002 Indentifiability in Microdata Files. Available: http://www.fcsm.gov/committees/cdac/cdacra9.doc [accessed April 2006].
29. Cowen, D., and J.R. Jensen 1998 Extraction and modeling of urban attributes using remote sensing. Pp. 164-188 in National Research Council, People and Pixels: Linking Remote Sensing and Social Science. Committee on the Human Dimensions of Global Change, D. Liverman, E.F. Moran, R.R. Rindfuss, and P.C. Stern, eds. Washington, DC: National Academy Press.
30. Cowen, D., J. Jensen, J. Halls, M. King, and S. Narumalani 1993 Estimating Housing Density with CAMS Remotely Sensed Data. Proceedings, American Congress on Surveying and Mapping/American Society for Photogram- metry and Remote Sensing (ACRM/ASPRS):35-43.
31. Cox, L.H. 1980 Suppression methodology and statistical disclosure control. Journal of the American Statistical Association 75:377-385.
32. Cox, L.H. 1995 Network models for complementary cell suppression. Journal of the American Statistical Association 90:1453-1462.
33. Cox, L.H. 1996 Protecting confidentiality in small population health and environmental statistics. Statistics in Medicine 15:1895-1905.
34. Cox, L.H. 2004 Inference control problems in statistical disclosure query systems. Pp. 1-13 in Research Directions in Data and Applications Security, C. Farkas and P. Samarati, eds. Boston, MA: Kluwer.
35. Cox, L.H., J.P. Kelly, and R. Patil 2004 Balancing quality and confidentiality for multivariate tabular data. Pp. 87-98 in J. Domingo-Ferrer and V. Torra, eds., Privacy in Statistical Databases. Lecture Notes in Computer Science, vol. 3050. Berlin, Germany: Springer-Verlag.
36. Culler, D., D. Estrin, and M. Srivastava 2004 Overview of sensor networks. Computer 37(8):41-49.
37. Dale, A., and M. Elliot 2001 Proposals for 2001 samples of anonymized records: an assessment of disclosure risk. Journal of the Royal Statistical Society, Series A 164:427-447.
38. Deane, G.D., and M.P. Gutmann 2003 Blowin' down the road: Investigating bilateral causality between dust storms and population change in the Great Plains. Population Research and Policy Review 22:297-331.
39. de Wolf, V. 2003 Issues in accessing and sharing confidential survey and social science data. Data Science Journal 2 (17 Feb):66-74.
40. Dobson, J.E., and P.F. Fisher 2003 Geoslavery. Technology and Society 22(1):47-52.
41. Domingo-Ferrer, J., and V. Torra 2001 A quantitative comparison of disclosure control methods for microdata. Pp. 111-133 in P. Doyle, J. Lane, L. Zayatz, and J. Theeuwes, eds., Disclosure, and Data Access: Theory and Practical Applications. Amsterdam, Netherlands: North-Holland Elsevier.
42. Doyle P., J. I. Lane, J.J.M. Theeuwe, and L.V. Zayatz, eds. 2002 Confidentiality, Disclosure and Data Access: Theory and Practical Applications for Statistical Agencies. Amsterdam, Netherlands: North-Holland Elsevier.
43. Duncan, G.T., and D. Lambert 1986a Disclosure-limited data dissemination. Journal of the American Statistical Association 81:10-28.
44. Duncan, G.T., and D. Lambert 1986b The risk of disclosure for microdata. Journal of Business and Economic Statistics 7:207-217.
45. Duncan, G.T., S.A. Keller-McNulty, and S.L. Stokes 2001 Disclosure Risk vs. Data Utility: The R-U Confidentiality Map. Technical Report, U.S. National Institute of Statistical Sciences, Research Triangle Park, NC.
46. Electronic Privacy Information Center 2003 The Census and Privacy. Available: http://www.epic.org/privacy/census/ [ac cessed July 2006].
47. Entwisle, B., R.R. Rindfuss, S.J. Walsh, T.P. Evans, and S.R. Curran 1997 Geographic information systems, spatial network analysis, and contraceptive choice. Demography 34:171-187.
48. Federal Committee on Statistical Methodology 1994 Statistical Policy Working Paper 22: Report on Statistical Disclosure Limitation Methodology. Subcommittee on Disclosure Limitation Methodology, Office of Management and Budget, Executive Office of the President. Washington, DC: U.S. General Printing Office.
49. Fienberg, S.E., and U.E. Makov 1998 Confidentiality, uniqueness, and disclosure limitation for categorical data. Journal of Official Statistics 14:361-372.
50. Fienberg, S.E., U.E. Makov, and A.P. Sanil 1997 A Bayesian approach to data disclosure: Optimal intruder behavior for continuous data. Journal of Official Statistics 13:75-89.
51. Fienberg, S.E., and A.B. Slavkovic 2004 Making the release of confidential data from multi-way tables count. Chance 17(3):5-10.
52. Fienberg, S.E., and A.B. Slavkovic 2005 Preserving the confidentiality of categorical statistical data bases when releasing information for association rules. Data Mining and Knowledge Discovery 11: 155-180.
53. Fisher, P., and J. Dobson 2003 Who knows where you are, and who should, in the era of mobile geography? Geography 88:331-337.
54. Foster, A. 2005 A review of ten years of work on economic growth and population change in rural India. Pp. 287-308 in National Research Council, Population, Land Use, and Environment: Research Directions. Panel on New Research on Population and the Environment, B. Entwisle and P.C. Stern, eds. Washington, DC: The National Academies Press.
55. Fotheringham, A.S., C. Brunsdon, and M. Charlton 2002 Geographically Weighted Regression. Hoboken, NJ: John Wiley & Sons.
56. Fuller, W.A. 1993 Masking procedures for microdata disclosure limitation. Journal of Official Statistics 9:383-406.
57. Geer, D. 2006 Nanotechnology: The growing impact of shrinking computers. Pervasive Computing 5:7-11.
58. Gephart, M.A. 1997 Neighborhoods and communities as contexts for development. Pp. 1-43 in J. Brooks-Gunn, G.J. Duncan, and J.L. Aber, eds., Neighborhood Poverty: Context and Consequences for Children. New York: Russell Sage.
59. Gomatam, S., A.F. Karr, J.P Reiter, and A.P. Sanil 2005 Data dissemination and disclosure limitation in a world without microdata: A risk-utility framework for remote access servers. Statistical Science 20:163-177.
60. Gordon-Larsen, P., M.C. Nelson, P. Page, and B.M. Popkin 2006 Inequality in the built environment underlies key health disparities in physical activity and obesity. Pediatrics 117:417-424.
61. Goss, J. 1995 We know who you are and we know where you live: The instrumental rationality of geodemographic systems. Economic Geography 71:171-198.
62. Greenberg, B., and L.V. Zayatz 1992 Strategies for measuring risk in public use microdata files. Statistica Neerlandica 46:33-48.
63. Gutmann, M.P., G.D. Deane, N. Lauster, and A. Peri 2006 Heat, elevation, and migration: Two population-environment regimes in the Great Plains of the United States, 1930-1990. Population and Environment 27(2):191-225. Available: http://www.springerlink.com/content/f51434802p621653/ [accessed December 2006].
64. Hutchinson, C.F. 1998 Social science and remote sensing in famine early warning. Pp. 189-196 in National Research Council, People and Pixels: Linking Remote Sensing and Social Science. Committee on the Human Dimensions of Global Change, D. Liverman, F.F. Moran, R.R. Rindfuss, and P.C. Stern, eds. Washington, DC: National Academy Press.
65. Indiana University 2006 Anthropological Center for Training and Research on Global Environmental Change. Available: http://www.indiana.edu/%7Eact/research.htm [accessed November 2006].
66. Inter-university Consortium for Political and Social Research 2005 Guide to Social Science Data Preparation and Archiving. Third Edition. Available: http://www.icpsr.umich.edu/access/dataprep.pdf [accessed April 2006].
67. Jabine, T.B. 1993 Statistical disclosure limitation practices of United States statistical agencies. Journal of Official Statistics 9:427-454.
68. Kadushin, C. 2005 Who benefits from network analysis: Ethics of social network research. Social Networks 27(2):139-153.
69. Karr, A.F., X. Lin, A.P. Sanil, and J.P. Reiter 2005 Secure regressions on distributed databases. Journal of Computational and Graphical Statistics 14:263-279.
70. Kennickell, A.B. 1997 Multiple imputation and disclosure protection: The case of the 1995 survey of consumer finances. Pp. 248-267 in National Research Council, Record Linkage Techniques. Committee on Applied and Theoretical Statistics. Washington, DC: National Academy Press.
71. Klovdahl, A.S. 2005 Social network research and human subjects protection: Towards more effective infectious disease control. Social Networks 27(2):119-137.
72. Kwan, M.-P. 2003 Individual accessibility revisited: Implications for geographical analysis in the twenty-first century. Geographical Analysis 35(4):341-353.
73. Lahlou, S., M. Langheinrich, and C. Röcker 2005 Privacy and trust issues with invisible computers. Communications of the Association for Competing Machinery 48(3):59-60.
74. Lambert, D. 1993 Measures of disclosure risk and harm. Journal of Official Statistics 9:313-331.
75. LeClere, F.B., R.G. Rogers, and K.D. Peters 1998 Neighborhood social context and racial differences in women's heart disease mortality. Journal of Health and Social Behavior 39:91-107.
76. Levine, F., and P.R. Skedsvold 2006 Behavioral and social science research. In E.J. Emanuel, R.A. Crouch, C. Grady, R. Lie, F. Miller, and D. Wendler, eds., The Oxford Textbook of Clinical Research Ethics. Oxford, England: Oxford University Press.
77. Little, R.J.A. 1993 Statistical analysis of masked data. Journal of Official Statistics 9:407-426.
78. Martinez, K., J.K. Hart, and R. Ong 2004 Environmental sensor networks. Computer 37(8):50-56.
79. McGrahanan, G., P. Marcotullio, X. Bai, D. Balk, T. Braga, I. Douglas, T. Elmqvist, W. Rees, D. Satterthwaite, J. Songsore, and H. Zlotnik 2005 Urban systems. Chapter 22 in Conditions and Trends Assessment of the Millennium Ecosystem Assessment. Chicago, IL: Island Press.
80. McGranahan, G., D. Balk, and B. Anderson 2006 Low coastal zone settlements. Tiempo: A Bulletin on Climate and Development 59(April):23-26.
81. Melichar, L., J. Evans, and C. Bachrach 2002 Data Access and Archiving: Options for the Demographic and Behavioral Sciences Branch. Deliberations and Recommendations of DBSB Workshop. Available: http://www.nichd.nih.gov/publications/pubs/upload/data_access.pdf [accessed November 2006].
82. Minnesota Population Center, University of Minnesota, and Inter-university Consortium for Political and Social Research Census 2000 Advisory Committee 2000 The Public Use Microdata Samples of the U.S. Census: Research Applications and Privacy Issues. Census. 2000 Users' Conference on PUMS, Alexandria, VA. Available: http://www.pop.umn.edu/~census2000/index_older.html [accessed July 2006].
83. Monmonier, M. 2002 Spying with Maps: Surveillance Technologies and the Future of Privacy. Chicago, IL: The University of Chicago Press.
84. Moran, E.F., E.S. Brondizio, and L.K. VanWey 2005 Population and Environment in Amazonia: Landscape and household dynamics. Pp. 106-134 in National Research Council, Population, Land Use, and Environment: Research Directions. Panel on New Research on Population and the Environment, B. Entwisle and P.C. Stern, eds. Washington, DC: The National Academies Press.
85. National Center for Health Statistics and Centers for Disease Control and Prevention 2003 Zip Code Tabulation Area and Confidentiality. Joint ECE/Eurostat Work Session on Statistical Data Confidentiality, Conference of European Statisticians, Luxembourg, 7-9 April 2003, sponsored by United Nations Statistical Commission and Economic Commission for Europe and European Commission, Statistical Office of the European Communities (EUROSTAT). Available: http://www.unece.org/stats/documents/2003/04/confidentiality/wp.34.e.pdf [accessed April 2006].
86. National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research 1979 Belmont Report: Ethical Principles and Guidelines for the Protection of Human Subjects of Research. GPO 887-809. Washington. DC: U.S. Government Printing Office.
87. National Research Council 1985 Sharing Research Data. Committee on National Statistics, S. Fienberg, L. Martin, and M. Straf, eds. Washington, DC: National Academy Press.
88. National Research Council 1993 Private Lives and Public Policies: Confidentiality and Accesssibility of Government Statistics. Panel on Confidentiality and Data Access, Committee on National Statistics, G.T. Duncan, T.B. Jabine, and V.A. deWolf, eds. Washington, DC: National Academy Press.
89. National Research Council 1998 People and Pixels: Linking Remote Sensing and Social Science. Committee on the Human Dimensions of Global Change, D. Liverman, F.F. Moran, R.R. Rindfuss, and P.C. Stern, eds. Washington, DC: National Academy Press.
90. National Research Council 2000 Improving Access to and Confidentiality of Research Data: Report of a Workshop. Committee on National Statistics, C. Mackie and N. Bradburn, eds. Washington, DC: National Academy Press.
91. National Research Council 2001 Resolving Conflicts Arising from the Privatization of Environmental Data. Committee on Geophysical and Environmental Data, Board on Earth Sciences and Resources, Division on Earth and Life Studies. Washington, DC: National Academy Press.
92. National Research Council 2003 Access to Research Data in the 21st Century: An Ongoing Dialogue Among Interested Parties. Science, Technology, and Law Panel, Division of Policy and Global Affairs. Washington, DC: The National Academies Press.
93. National Research Council 2004a Licensing Geographic Data and Services. Committee on Licensing Geographic Data and Services, Board on Earth Sciences and Resources. Washington, DC: The National Academies Press.
94. National Research Council 2004b Protecting Participants and Facilitating Social and Behavioral Science Research. Panel on Institutional Review Boards, Surveys, and Social Science Research, C.F. Citro, D.R. Ilgen, and C.B. Marrett, eds., Committee on National Statistics and Board on Behavioral, Cognitive and Sensory Sciences. Washington, DC: The National Academies Press.
95. National Research Council 2005a Expanding Access to Research Data: Reconciling Risks and Opportunities. Panel on Data Access for Research Purposes, Committee on National Statistics: Washington, DC: The National Academies Press.
96. National Research Council 2005b Population, Land Use, and Environment: Research Directions. Panel on New Research on Population and the Environment, B. Entwisle and P.C. Stern, eds. Washington, DC: The National Academies Press.
97. New York Times 2006 House panel to press cellphone industry on improving protection of customer records. February 1:C3 (late edition). Available: http://select.nytimes.com/search/restricted/article?res=F70F11FF345B0C728CDDAB0894DE404482 [accessed April 2006].
98. O'Harrow, R. 2005 No Place to Hide. New York: Free Press.
99. O'Keefe, C.M., M. Yung, L. Gu, and R. Baxter 2004 Privacy-preserving data linkage protocols. Pp. 94-102 in V. Atluri, P. Syverson, and S. De Capitani di Vimercati, eds. Proceedings of the 2004 ACM Workshop on Privacy in the Electronic Society, WPES 2004. Washington, DC: ACM Press.
100. Openshaw, S., and P.J. Taylor 1979 A million or so correlation coefficients: Three experiments on the modifiable areal unit problem. Pp. 127-144 in N. Wrigley, ed., Statistical Applications in the Spatial Sciences. London, England: Pion.
101. Paass, G. 1988 Disclosure risk and disclosure avoidance for microdata. Journal of Business and Economic Statistics 6:487-500.
102. Pannekoek, J. 1999 Statistical methods for some simple disclosure limitation rules. Statistica Neerlandica 53:55-67.
103. Parker, E.B. 1998 Measuring access to primary medical care: some examples of the use of geographical information systems. Health and Place 4(2):183-193.
104. Raghunathan, T.E., J.M. Lepkowski, J. van Hoewyk, and P. Solenberger 2001 A multivariate technique for multiply imputing missing values using a series of regression models. Survey Methodology 27:85-96.
105. Raghunathan, T.E., J.P. Reiter, and D.B. Rubin 2003 Multiple imputation for statistical disclosure limitation. Journal of Official Statistics 19:1-16.
106. Reiter, J.P. 2002 Satisfying disclosure restrictions with synthetic data sets. Journal of Official Statistics 18:531-544.
107. Reiter, J.P. 2003 Inference for partially synthetic, public use microdata sets. Survey Methodology 29:181-189.
108. Reiter, J.P. 2004 Simultaneous use of multiple imputation for missing data and disclosure limitation. Survey Methodology 30:235-242.
109. Reiter, J.P. 2005a Estimating risks of identification disclosure in microdata. Journal of the American Statistical Association 100:1103-1113.
110. Reiter, J.P. 2005b Releasing multiply-imputed, synthetic public use microdata: An illustration and empirical study. Journal of the Royal Statistical Society, Series A: 168, 185-205.
111. Reiter, J.P. 2005c Significance tests for multi-component estimands from multiply-imputed, synthetic microdata. Journal of Statistical Planning and Inference 131:365-377.
112. Reiter, J.P. 2005d Using CART to generate partially synthetic, public use microdata. Journal of Official Statistics 21:441-462.
113. Robinson, W.S. 1950 Ecological correlation and the behavior of individuals. American Sociological Review 15:351-357.
114. Ross, C.E., J.R. Reynolds, and K.J. Geis 2000 The contingent meaning of neighborhood stability for residents' psychological well-being. American Sociological Review 65:581-595.
115. Rubin, D.B. 1993 Discussion: Statistical disclosure limitation. Journal of Official Statistics 9:462-468.
116. Rushton, G., M.P. Armstrong, J. Gittler, B. Greene, C.E. Pavlik, M. West, M. and D. Zimmerman 2006 Geocoding in cancer research: A review. American Journal of Preventive Medicine 30(2, Suppl. 1):S16-S24.
117. Sampson, R.J., J.D. Morenoff, and T. Gannon-Rowley 2002 Assessing 'neighborhood effects': Social processes and new directions in research. Annual Re-view of Sociology 28:443-478.
118. Samuels, S.M. 1998 A Bayesian species-sampling-inspired approach to the unique problems in microdata. Journal of Official Statistics 14:373-384.
119. Seastrom, M.M. 2002 Licensing. Pp. 279-296 in Confidentiality, Disclosure and Data Access: Theory and Practical Applications for Statistical Agencies, P. Doyle, J. Lane, J.J.M. Theeuwes, and L. Zayatz, eds. Amsterdam, Netherlands: North-Holland Elsevier.
120. Seto, K.C. 2005 Economies, societies, and landscapes in transition: Examples from the Pearl River Delta, China, and the Red River Delta, Vietnam. Pp. 193-216 in National Research Council, Population, Land Use, and Environment: Research Directions. Panel on New Research on Population and the Environment, B. Entwisle and P.C. Stern, eds. Washington, DC: The National Academies Press.
121. Skinner, C.J. 1992 On identification disclosure and prediction disclosure for microdata. Statistica Neerlandica 46:21-32.
122. Skinner, C.J., and M.J. Elliot 2002 A measure of disclosure risk for microdata. Journal of the Royal Statistical Society, Series B 64:855-867.
123. Skinner, C., C. Marsh, S. Openshaw, and C. Wymer 1994 Disclosure control for census microdata. Journal of Official Statistics 10:31-51.
124. Smailagic, A., and D.P. Siewiorek 2002 Application design for wearable and context-aware computers. Pervasive Computing 1(4):20-29.
125. Small, C., and J.E. Cohen 2004 Continental physiography, climate, and the global distribution of human population. Current Anthropology 45(2):269-277.
126. Small, C., and R.J. Nicholls 2003 A global analysis of human settlement in coastal zones. Journal of Coastal Research 19(3):584-599.
127. Smith, K.R., and N.J. Waitzman 1997 Effects of marital status on the risk of mortality in poor and non-poor neighborhoods. Annals of Epidemiology 7:343-349.
128. Spruill, N.L. 1982 Measures of confidentiality. Pp. 260-265 in Proceedings of the Section on Survey Research Methods of the American Statistical Association. Alexandria, VA: American Statistical Association.
129. Streitz, N., and P. Nixon 2005 The disappearing computer. Communications of the Association for Computing Machinery 48(3):33-35.
130. Sui, D. 2005 Will ubicomp make GIS invisible? Computers, Environment and Urban Systems 29:361-367.
131. University of Michigan 2005a Project SLUCE: Spatial Land Use Change and Ecological Effects at the RuralUrban Interface: Agent-Based Modeling and Evaluation of Alternative Policies and Interventions. Available: http://www.cscs.umich.edu/sluce [accessed April 2006].
132. University of Michigan 2005b Reciprocal Relations Between Population and Environment Project, Population Studies Center. Available: http://www.psc.isr.umich.edu/research/project-detail.html?ID=51 [accessed April 2006].
133. University of North Carolina 2005 Ecuador Projects, Carolina Population Center. Available: http://www.cpc.unc.edu/projects/Ecuador [accessed November 2006].
134. University of North Carolina 2006 Nang Rong Projects, Carolina Population Center: Available: http://www.cpc.unc.edu/projects/nangrong [accessed November 2006].
135. VanWey, L.K., Rindfuss, R.R., Gutmann, M.P., Entwisle, B.E., and Balk, D.L. 2005 Confidentiality and spatially explicit data: Concerns and challenges. Proceedings of the National Academy of Sciences 102:15337-15342.
136. Walsh, S.J., R.R. Rindfuss, P. Prasartkul, B. Entwisle, and A. Chamratrithirong 2005 Population change and landscape dynamics: The Nang Rong, Thailand studies. Pp. 135-162 in National Research Council, Population, Land Use, and Environment: Research Directions. Panel on New Research on Population and the Environment, B. Entwisle and P.C. Stern, eds. Washington, DC: The National Academies Press.
137. Want, R. 2006 An introduction to RFID technology. Pervasive Computing 5(1):25-33.
138. Weeks, J.R., D.P. Larson, and D.L. Fugate 2005 Patterns of urban land use as assessed by satellite imagery: An application to Cairo, Egypt. Pp. 265-286 in National Research Council Population, Land Use, and Environment: Research Directions. Panel on New Research on Population and the Environment, B. Entwisle and P.C. Stern, eds. Washington, DC: The National Academies Press.
139. Weiser, M. 1991 The computer for the 21st century. Scientific American 265(3):94-104.
140. Willenborg, L., and T. de Waal 1996 Statistical Disclosure Control in Practice. New York: Springer-Verlag.
141. Willenborg, L., and T. de Waal 2001 Elements of Statistical Disclosure Control. New York: Springer-Verlag.
142. Williams, A.P. 1983 How many miles to the doctor? The New England Journal of Medicine 309(16):958-963.
143. Wood, C.H., and D. Skole 1998 Linking satellite, census, and survey data to study deforestation in the Brazilian Amazon. Pp. 70-93 in National Research Council, People and Pixels: Linking Remote Sensing and Social Science. Committee on the Human Dimensions of Global Change, D. Liverman, F.F. Moran, R.R. Rindfuss, and P.C. Stern, eds. Washington, DC: National Academy Press.
144. Yancey, W.E., W.E. Winkler, and R.H. Creecy 2002 Disclosure risk assessment in perturbative microdata protection. In J. Domingo- Ferrer, ed., Inference Control in Statistical Databases. Berlin, Germany: SpringerVerlag.
145. Alpert, S. 2000 Privacy and the analysis of stored tissues. Pp. A-1-A-36 in Research Involving Human Biological Materials: Ethical Issues and Policy Guidance (Volume II Commissioned Papers). Rockville, MD: National Bioethics Advisory Commission. Available: http://bioethics.georgetown.edu/nbac/hbmn.pdf. [accessed December 2006].
146. Gellman, R. 1995 Public records: Access, privacy, and public policy. Government Information Quarterly 12:391-426.
147. Gellman, R. 2001 Public Record Usage in the United States. Paper presented at the 23rd International Conference of Data Protection Commissioners, September 25, Paris, France. Available: http://www.personaldataconference.com/eng/contribution/gellman_contrib.html [accessed December 2006].
148. Gellman, R. 2005 A general survey of video surveillance law in the United States. In S. Nouwt, B.R. de Vries, and C. Prins, eds., Reasonable Expectations of Privacy? Eleven Country Reports on Camera Surveillance and Workplace Privacy. Hague, Netherlands: T.M.C. Asser Press.
149. Harvard Journal of Law and Technology 2004 Who knows where you've been? Privacy concerns regarding the use of cellular phones as personal locators. Harvard Journal of Law and Technology 18(1):307, 316 (fall).
150. McCarthy, S. 2000 Ottawa pulls plug on big brother database, Canadians promised safeguards on data. Globe and Mail, May 30.
151. National Committee on Vital and Health Statistics, Subcommittee on Privacy and Confidentiality 1998a Proceedings of Roundtable Discussion: Identifiability of Data. Hubert Humphrey Building, January 28, Washington, DC. Transcript available: http://ncvhs.hhs.gov/980128tr.htm [accessed December 2006].
152. National Committee on Vital and Health Statistics, Subcommittee on Privacy and Confidentiality 1998b Roundtable Discussion: Identifiability of Data. Available: http://ncvhs.hhs.gov/980128tr.htm [accessed January 2007].
153. National Research Council and the Social Science Research Council 1993 Private Lives and Public Policies. G.T. Duncan, T.B. Jabine, and V.A.. de Wolf, eds. Panel on Confidentiality and Data Access. Committee on National Statistics, Commission on Behavioral and Social Sciences and Education.Washington, DC: National Academy Press.
154. Organisation for Economic Co-Operation and Development 1980 Council Recommendations Concerning Guidelines Governing the Protection of Privacy and Transborder Flows of Personal Data. O.E.C.D. Doc. C (80) 58 (Final). Available: http://www.oecd.org/document/18/0,2340,en_2649_34255_1815186_1_1_1_1,00.html [accessed December 2006].
155. Perrin, S., H.H. Black, D.H. Flaherty, and T.M. Rankin 2001 The Personal Information Protection and Electronic Documents Act: An Annotated Guide. Toronto, Canada: Irwin Law.
156. Perritt, H.H., Jr. 1997 Protecting Confidentiality of Research Data through Law. Paper prepared for Committee on National Statistics, National Research Council Data Confidentiality and Access Workshop, Washington, DC. Available: http://www7.nationalacademies.org/cnstat/Perritt_Paper.pdf [accessed January 2007].
157. Reidenberg, J.R. 1991 The privacy obstacle course: Hurdling barriers to transnational financial services. Fordham Law Re-view 60:S137, S175.
158. Reidenberg, J.R., and P.M. Schwartz 1998 Data Protection Law and Online Ser-vices: Regulatory Responses Commissioned from ARETE by Directorate General XV of the Commission of the European Communities. Available: http://ec.europa.eu/justice:home/fsj/pri-vacy/docs/studies/regul_en.pdf [accessed December 2006].
159. Schwartz, P. 1995 Privacy and participation: Personal information and public sector regulation in the United States. Iowa Law Re-view 80:553, 573.
160. Sweeney, L. 2001 Information explosion. Chapter 3 in P. Doyle, J. Lane, J. Theeuwes, and L. Zayatz, eds., Confidentiality, Disclosure, and Data Access: Theory and Practical Applications for Statistical Agencies. New York: North-Holland Elsevier.
161. American Anthropological Association 1998 Code of Ethics. Arlington, VA: American Anthropological Association.
162. American Association for Public Opinion Research 2003 Protection of Human Participants in Survey Research: A Source Document for Institutional Review Boards. Available: http://www.aapor.org/default.asp?page=news_and_issues/aapor_statement_for_irb. [accessed November 25, 2005].
163. American Association for Public Opinion Research 2005 Code of Professional Ethics and Practices. Available: http://www.aapor.org/pdfs/AAPOR_Code_2005.pdf [accessed November 25, 2005].
164. American Educational Research Association 2006 Standards for reporting on empirical social science research in AERA publications. Educational Researcher 35(6):33-40.
165. American Political Science Association 1998 A Guide to Professional Ethics in Political Science. Washington, DC: American Political Science Association.
166. American Psychological Association 2003 Ethical principles of psychologists and code of conduct. American Psychologist 57:1060-1073.
167. American Sociological Association 1997 Code of Ethics. Washington, DC: American Sociological Association.
168. American Statistical Association 1977 Report of ad hoc committee on privacy and confidentiality. The American Statis- tkmn 31(2):59-78.
169. American Statistical Association 1999 Ethical Guidelines for Statistical Practice. Alexandria, VA: Author.
170. Armstrong, M.P., G. Rushton, and D.L. Zimmerman 1999 Geographic masking health data to preserve confidentiality. Statistics in Medicine 18:497-525.
171. Association of American Geographers 1998 Statement on Professional Ethics. Available: http://www.aag.org/publications/other%20pubs/ethicsstatement.html [accessed November 25, 2005].
172. Collogan, L.K., F. Tuma, R. Dolan-Sewell, S. Borja, and A.R. Fleischman 2004 Ethical issues pertaining to research in the aftermath of disaster. Journal of Traumatic Stress 17:363-372.
173. Collogan, L.K., F.K. Tuma, and A.R. Fleischman 2004 Research with victims of disaster: Institutional review board considerations. IRB: Ethics & Human Research 26(July-August):9-11.
174. de Wolf, V.A. 2003 Issues in accessing and sharing confidential survey and social science data. Data Science Journal 2:66-74.
175. de Wolf, V.A., J.E. Sieber, P.M. Steel, and A.O. Zarate 2006 Part II: HIPAA and disclosure risk. IRB: Ethics & Human Research, 28(January-February), 6-11.
176. Duncan, G.T. 1993 Special issue on confidentiality and data access. Journal of Official Statistics 93:269-607.
177. Duncan, G.T. 2003 Confidentiality and data access issues for institutional review boards. Pp. 235247 in National Research Council, Protecting Participants and Facilitating Social and Behavioral Sciences Research. C.F. Citro, D.R. Ilgen, and C. B. Marrett, eds. Panel on Institutional Review Boards, Surveys, and Social Science Research. Washington, DC: The National Academies Press.
178. Fienberg, S.E. 2004 Confidentiality in Geo-Spatially-Linked Data: How Robust Are the Solutions? Presentation at the Workshop on Confidentiality Issues in Linking Geographically Explicit and Self-Identifying Data, The National Academies, Washington, DC, December 9-10.
179. Fisher, C.B. 2003 Decoding the Ethics Code: A Practical Guide for Psychologists. Thousand Oaks, CA: Sage Publications.
180. Flaherty, D.H. 1978 Report of the Bellagio conference. Journal of the Royal Statistical Society. Series A (General) 141:401-405.
181. Golden, M.L., R.R. Downs, and K. Davis-Packard 2005 Confidentiality Issues and Policies Related to the Utilization and Dissemination of Geospatial Data for Public Health Applications. A report to the Public Health Applications of Earth Science Program, National Aeronautics and Space Administration, Science Mission Directorate, Applied Sciences Program. Prepared by the Socioeconomic Data and Applications Center, Center for International Earth Science Information Network, Columbia University, March 2005. Available: http://www.ciesin.columbia.edu/pdf/SEDAC_ConfidentialityReport.pdf [accessed November 25, 2005].
182. Goodchild, M.F., and D.G. Janelle, eds. 2004 Spatially Integrated Social Science. New York: Oxford University Press.
183. Griffin, M.G., P.A. Resick, A.E. Waldrop, and M.B. Mechanic 2003 Participation in trauma research: Is there evidence of harm? Journal of Traumatic Stress 16:221-227.
184. Gutmann, M., K. Witkowski, C. Colyer, J.M. O'Rourke, and J. McNally 2005 Providing Spatial Data for Secondary Analysis: Issues and Current Practices Relating to Confidentiality. Unpublished manuscript, Inter-university Consortium for Political and Social Research, University of Michigan (available from Myron Gutmann).
185. Institute of Medicine 2007 Ethical Considerations for Research Involving Prisoners. Committee on Ethical Considerations for Revisions to DHHS Regulations for Protection of Prisoners Involved in Research, L.O. Gostin, C. Vanchieri, and A. Pope eds. Washington, DC: The National Academies Press.
186. Iutcovich, J.M., J.M. Kennedy, and F.J. Levine 2003 Establishing an ethical climate in support of research integrity: Efforts and activities of the American Sociological Association. Science and Engineering Ethics 9:201-205.
187. Kwan, M.P., I. Casas, and B.C. Schmitz 2004 Protection of geoprivacy and accuracy of spatial information: How effective are geographical masks? Cartographica 39:15-28.
188. Kwan, M.R., and J. Lee 2004 Geovisualization of human activity patterns using 3D GIS. Pp. 18-66 in M.F. Goodchild and D.G. Janelle, eds., Spatially Integrated Social Science. New York: Oxford University Press.
189. Lane, J. 2003 Key Issues in Confidentiality Research: Results of an NSF Workshop. Available: http://www.nsf.gov/sbe/ses/mms/nsfworkshop_summary1.pdf [accessed November 25, 2005].
190. Levine, F.J., and J.M. Iutcovich 2003 Challenges in studying the effects of scientific societies on research integrity. Science and Engineering Ethics 9:257-268.
191. Levine, F.J., and P.R. Skedsvold 2007 Behavioral and social science research. In E.J. Emmanuel, R.A. Crouch, C. Grady, R. Lie, F. Miller, and D. Wendler (Eds.) The Oxford Textbook of Clinical Research Ethics. Oxford, England: Oxford University Press.
192. Marshall, P.A., and C. Rotimi 2001 Ethical challenges in community-based research. American Journal of the Medical Sciences 322(5):241-245.
193. Melton, G.B., R.J. Levine, G.P., Kocher, R Rosenthal, and W.C. Thompson 1988 Community consultation in socially sensitive research: Lessons from clinical trials on treatments for AIDS. American Psychologist 43:573-581.
194. Merton, R.K. 1973 The normative structure of science. In R.K. Merton, ed., The Sociology of Science: Theoretical and Empirical Investigations. Chicago, IL: University of Chicago Press.
195. National Bioethics Advisory Commission 2001 Ethical and Policy Issues in Research Involving Human Participants: Vols I, II. Bethesda, MD: National Bioethics Advisory Commission.
196. National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research 1979 Belmont Report: Ethical Principles and Guidelines for the Protection of Human Subjects of Research. (GPO No. 887-809). Washington, DC: U.S. Government Printing Office. Also available: http://ohsr.od.nih.gov/guidelines/belmont.html [accessed November 13, 2005].
197. National Human Research Protections Advisory Committee 2002 Recommendations on Confidentiality and Research Data Protections. Available: http://www.aera.net/aera.old/humansubjects/NHRPAC_Final_Confidentiality.pdf.
198. National Research Council 1985 Sharing Research Data. Committee on National Statistics, S.E. Fienberg, M.M. Martin, and M.L. Straf, eds. Washington, DC: National Academy Press.
199. National Research Council 1993 Private Lives and Public Policies: Confidentiality and Accessibility of Government Statistics. Committee on National Statistics, G.T. Duncan, T.B. Jabine, and V.A. de Wolf, eds. Washington, DC: National Academy Press.
200. National Research Council 1998 People and Pixels: Linking Remote Sensing and Social Science. Committee on the Human Dimensions of Global Change, D. Liverman, E.F. Moran, R.R. Rindfuss, and P.C. Stern, eds. Washington, DC: National Academy Press.
201. National Research Council 2000 Improving Access to and Confidentiality of Research Data: Report of a Workshop. Committee on National Statistics, C. Mackie and N. Bradburn, eds. Washington, DC: National Academy Press.
202. National Research Council 2002 Research Ethics in Complex Humanitarian Emergencies: S'ummar'y of a Workshop. H, Reed, Rapporteur, Roundtable on the Demography of Forced Migration, Committee on Population. Division of Behavioral and Social Sciences and Education. Washington, DC: The National Academies Press.
203. National Research Council 2003a Protecting Participants and Facilitating Social and Behav-ioral Sciences Research. Panel on Institutional Review Boards, Surveys, and Social Science Research, C.F. Citro, D.R. Ilgen, and C.B. Marrett, eds.. Washington, DC: The National Academies Press.
204. National Research Council 2003b Sharing Publication-Related Data and Materials. Committee on Responsibilities of Authorship in the Life Sciences. Washington, DC: The National Academies Press.
205. National Research Council 2005 Expanding Access to Research Data; Reconciling Risks and Opportunities. Panel on Data Access for Research Purposes, Committee on National Statistics. Washington, DC: The National Academies Press.
206. National Science Foundation, Division of Social and Economic Science 1986 Data Archiving Policy and Implementation Guidance. Materials available from F.J. Levine at flevine@aera.net.
207. Newman, E., and D.G. Kaloupek 2004 The risks and benefits of participating in trauma-focused research studies. Journal of Traumatic Stress 17:383-394.
208. Newman, E., E. Risch, and N. Kassam-Adams 2006 Ethical issues in trauma-related research: A review. Journal of Empirical Research on Human Research Ethics 1(3):29-46.
209. O'Rourke, J., S. Roehrig, S. Heeringa, B. Reed, W. Birdsall, M. Overcashier, M., and K. Zidar 2006 Solving problems of disclosure risk while retaining key analytic uses of publicly released microdata. Journal of Empirical Research on Human Research Ethics 1(3):63-84.
210. Rindfuss, R.R., and P.C. Stern 1998 Linking remote sensing and social science: The need and the challenges. Pp. 1-27 in National Research Council, People and Pixels: Linking Remote Sensing and Social Science. Committee on the Human Dimensions of Global Change, D. Liverman, E.F. Moran, R.R. Rindfuss and P.C. Stern, eds. Washington, DC: National Academy Press.
211. Rodgers, W., and M. Nolte 2006 Disclosure review procedures in an academic setting: Example of the Health and Retirement Study. Journal of Empirical Research on Human Research Ethics 1(3):85-98.
212. Shea, D.A. 2006 Oversight of Dual-Use Biological Research: The National Science Advisory Board for Biosecurity. (CRS Report No. RL33342). Washington, DC: Congressional Research Service.
213. Sieber, J.E. 1991 Introduction: Sharing social science data. In J.E. Sieber (Ed.), Sharing Social Science Data: Advantages and Challenges. Newbury Park, CA: Sage Publications.
214. Sieber, J.E. 1992 Planning Ethically Responsible Research: A Guide for Students and Internal Review Boards. Newbury Park, CA: Sage Publications.
215. Somerville, M.A., and R.M. Atlas 2005 Ethics: A weapon to counter bioterrorism. Science 307:1881-1882.
216. Trimble, J.E., and C.B. Fisher 2006 The Handbook of Ethical Research with Ethnocultural Populations and Communities, Thousand Oaks, CA: Sage Publications.
217. Urban and Regional Information Systems Association 2003 A GIS Code of Ethics. Available: http://www.urisa.org/ethics/code_of_ethics.htm [accessed August 9, 2005].
218. U.S. General Accounting Office 2001 Record Linkage and Privacy: Issues in Creating New Federal Research and Statistical Information. (GAO-01-126SP). Washington, DC: U.S. General Accounting Office.
219. VanWey, L.K., R.R. Rindfuss, M.P. Gutmann, B.E. Entwisle, and D.L. Balk 2005 Confidentiality and spatially explicit data: Concerns and challenges. Proceedings of the National Academy of Sciences 102:15337-15342.
220. Vest, C.M. 2003 Balancing security and openness in research and education. Academe. Available: http://www.aaup.org/publications/Academe/2003/03so/03sowest.htm [accessed January 7, 2006].
221. Wendler, D., L. Belsky, K.M. Thompson, and E.J. Emanuel 2005 Quantifying the federal minimal risk standard: Implications for pediatric research without a prospect of direct benefit. Journal of the American Medical Association 294:826-832.
222. Willis, G. 2006 Cognitive interviewing as a tool for improving the informed consent process. Journal of Empirical Research on Human Research Ethics 1(1):9-23.
223. Willison, D.J. 2003 Privacy and the secondary use of data for health research. Experience in Canada, and suggested directions forward. Journal of Health Services Research and Policy 8(Suppl 1):17-23.