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Volumn 8, Issue SUPPL/ 1, 2003, Pages 17-23

Privacy and the secondary use of data for health research: Experience in Canada and suggested directions forward

Author keywords

[No Author keywords available]

Indexed keywords

HEALTH SERVICES;

EID: 0038383689     PISSN: 13558196     EISSN: None     Source Type: Journal    
DOI: 10.1258/135581903766468837     Document Type: Conference Paper
Times cited : (11)

References (28)
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    • Willison DJ, Keshavjee K, Nair K, Goldsmith C, Holbrook AM, for the COMPETE investigators. Patients' consent preferences for research uses of information in electronic medical records: Interview and survey data. BMJ 2003; 326: 373-376
    • (2003) BMJ , vol.326 , pp. 373-376
    • Willison, D.J.1    Keshavjee, K.2    Nair, K.3    Goldsmith, C.4    Holbrook, A.M.5
  • 10
    • 0038348514 scopus 로고    scopus 로고
    • Ottawa: The Privacy Commissioner of Canada
    • Office of the Privacy Commissioner of Canada. Annual report to parliament 2000-2001. Ottawa: The Privacy Commissioner of Canada, 2003 http://www.priv-com.gc.ca/information/ar/02_04_e.asp
    • (2003) Annual Report to Parliament 2000-2001
  • 17
    • 0038686998 scopus 로고    scopus 로고
    • Human resource: Newfoundland's 300-year-old genetic legacy has triggered a gold rush
    • Staples S. Human resource: Newfoundland's 300-year-old genetic legacy has triggered a gold rush. Report on Business Magazine 2000; 17: 117-120
    • (2000) Report on Business Magazine , vol.17 , pp. 117-120
    • Staples, S.1
  • 22
    • 0037672590 scopus 로고
    • The origin of modern claims to privacy
    • Shoeman FD, ed. Cambridge: Cambridge University Press
    • Westin A. The origin of modern claims to privacy. In: Shoeman FD, ed. Philosophical dimensions of privacy. Cambridge: Cambridge University Press, 1984: 56-74
    • (1984) Philosophical Dimensions of Privacy , pp. 56-74
    • Westin, A.1
  • 23
    • 0032435034 scopus 로고    scopus 로고
    • Population statistics, the holocaust, and the Nuremberg trials
    • Seltzer W. Population statistics, the holocaust, and the Nuremberg trials. Population and Development Review 1998; 24: 511-552
    • (1998) Population and Development Review , vol.24 , pp. 511-552
    • Seltzer, W.1
  • 24
    • 0343750712 scopus 로고    scopus 로고
    • The theory and practice of citizens' juries
    • Smith G, Wales C. The theory and practice of citizens' juries. Policy and Politics 1999; 27: 295-308
    • (1999) Policy and Politics , vol.27 , pp. 295-308
    • Smith, G.1    Wales, C.2
  • 25
    • 0032699672 scopus 로고    scopus 로고
    • Involving the public in rationing decisions. The experience of citizens juries
    • Lenaghan J. Involving the public in rationing decisions. The experience of citizens juries. Health Policy 1999; 49: 45-61
    • (1999) Health Policy , vol.49 , pp. 45-61
    • Lenaghan, J.1
  • 26
    • 0034827645 scopus 로고    scopus 로고
    • The privacy paradox: Laying Orwell's ghost to rest
    • Upshur RE, Morin B, Goel V. The privacy paradox: laying Orwell's ghost to rest. CMAJ 2001; 165: 307-309
    • (2001) CMAJ , vol.165 , pp. 307-309
    • Upshur, R.E.1    Morin, B.2    Goel, V.3
  • 27
    • 0035798841 scopus 로고    scopus 로고
    • Public standards and patients' control: How to keep electronic medical records accessible but private. Commentary: Open approaches to electronic patient records. Commentary: A patient's viewpoint
    • Mandl KD, Szolovits P, Kohane IS, Markwell D, MacDonald R. Public standards and patients' control: how to keep electronic medical records accessible but private Commentary: Open approaches to electronic patient records Commentary: A patient's viewpoint. BMJ 2001; 322: 283-287
    • (2001) BMJ , vol.322 , pp. 283-287
    • Mandl, K.D.1    Szolovits, P.2    Kohane, I.S.3    Markwell, D.4    MacDonald, R.5
  • 28
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    • Some limits of informed consent
    • O'Neill O. Some limits of informed consent. J Med Ethics 2003; 29: 4-7
    • (2003) J Med Ethics , vol.29 , pp. 4-7
    • O'Neill, O.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.