Development of the SIOPE DIPG network, registry and imaging repository: a collaborative effort to optimize research into a rare and lethal disease

Journal of Neuro-Oncology

Volumn 132, Issue 2, 2017, Pages 255-266

  Veldhuijzen van Zanten, Sophie E M ^a   Baugh, Joshua ^b   Chaney, Brooklyn ^b   De Jongh, Dennis ^c   Sanchez Aliaga, Esther ^a   Barkhof, Frederik ^a,ay   Noltes, Johan ^d   De Wolf, Ruben ^d   Van Dijk, Jet ^e   Cannarozzo, Antonio ^f   Damen Korbijn, Carin M ^g   Lieverst, Jan A ^g   Colditz, Niclas ^h   Hoffmann, Marion ^h   Warmuth Metz, Monika ⁱ   Bison, Brigitte ⁱ   Jones, David T W ^j   Sturm, Dominik ^j   Gielen, Gerrit H ^j   Jones, Chris ^k   Hulleman, Esther ^a   Calmon, Raphael ^l   Castel, David ^m   Varlet, Pascale ⁿ   Giraud, Géraldine ^m   Slavc, Irene ^o   Van Gool, Stefaan ^p   Jacobs, Sandra ^q,r   Jadrijevic Cvrlje, Filip ^s   Sumerauer, David ^t   Nysom, Karsten ^u   Pentikainen, Virve ^v   Kivivuori, Sanna Maria ^w   Leblond, Pierre ^x   Entz Werle, Natasha ^y   von Bueren, Andre O ^z   Kattamis, Antonis ^aa   Hargrave, Darren R ^ab   Hauser, Péter ^ac   Garami, Miklos ^ac   Thorarinsdottir, Halldora K ^ad   Pears, Jane ^ae   Gandola, Lorenza ^f   Rutkauskiene, Giedre ^af   Janssens, Geert O ^ag   Torsvik, Ingrid K ^ah   Perek Polnik, Marta ^ai   Gil da Costa, Maria J ^aj   Zheludkova, Olga ^ak   Shats, Liudmila ^al   Deak, Ladislav ^am   Kitanovski, Lidija ^an   Cruz, Ofelia ^ao   Morales La Madrid, Andres ^ao   Holm, Stefan ^ap   Gerber, Nicolas ^aq   Kebudi, Rejin ^ar   Grundy, Richard ^as   Lopez Aguilar, Enrique ^at   Zapata Tarres, Marta ^au   Emmerik, John ^av   Hayden, Tim ^aw   Bailey, Simon ^ax   Biassoni, Veronica ^f   Massimino, Maura ^f   Grill, Jacques ^m   Vandertop, William P ^a   Kaspers, Gertjan J L ^a,ag   Fouladi, Maryam ^b   Kramm, Christof M ^h   van Vuurden, Dannis G ^a   more..

^a VU UNIVERSITY MEDICAL CENTER   (Netherlands)

^b CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER   (United States)

^c 2TCI BV   (Netherlands)

^d KPMG   (Netherlands)

^e Yellow Research   (Netherlands)

^f NATIONAL CANCER INSTITUTE   (Italy)

^g Dutch Childhood Oncology Group DCOG   (Netherlands)

^h UNIVERSITY OF GÖTTINGEN   (Germany)

ⁱ GERMAN CANCER RESEARCH CENTER DKFZ   (Germany)

^j UNIVERSITY HOSPITAL BONN   (Germany)

^k INSTITUTE OF CANCER RESEARCH   (United Kingdom)

^l UNIVERSITÉ PARIS DESCARTES   (France)

^m INSTITUT GUSTAVE ROUSSY   (France)

ⁿ CENTRE HOSPITALIER SAINTE ANNE   (France)

^o UNIV KLIN KINDER JUGENDHEILKUNDE   (Austria)

^p Immuno Oncologic Center Köln   (Germany)

^q UNIVERSITY HOSPITALS LEUVEN   (Belgium)

^r UNIVERSITY OF LEUVEN   (Belgium)

^s Alergologiju I Reumatologiju S Klini kom Imunologijom   (Croatia)

^t UNIVERSITY HOSPITAL MOTOL   (Czech Republic)

^u University of Copenhagen   (Denmark)

^v UNIVERSITY OF HELSINKI AND HELSINKI UNIVERSITY HOSPITAL   (Finland)

^w HELSINKI UNIVERSITY CENTRAL HOSPITAL   (Finland)

^x Oscar Lambret Comprehensive Cancer Center   (France)

^y HÔPITAL DE HAUTEPIERRE   (France)

^z GENEVA UNIVERSITY HOSPITALS   (Switzerland)

^aa UNIVERSITY OF ATHENS   (Greece)

^ab GREAT ORMOND STREET HOSPITAL   (United Kingdom)

^ac SEMMELWEIS UNIVERSITY   (Hungary)

^ad LANDSPITALI UNIVERSITY HOSPITAL   (Iceland)

^ae OUR LADY S CHILDREN S HOSPITAL   (Ireland)

^af LITHUANIAN UNIVERSITY OF HEALTH SCIENCES   (Lithuania)

^ag Department of Radiation Oncology   (Netherlands)

^ah HAUKELAND UNIVERSITY HOSPITAL   (Norway)

^ai CHILDREN'S MEMORIAL HEALTH INSTITUTE   (Poland)

^aj HOSPITAL DE SÃO JOÃO   (Portugal)

^ak Chemistry Moscow Russia   (Russian Federation)

^al St Petersburg City Hospital #31   (Russian Federation)

^am L PASTEUR UNIVERSITY HOSPITAL   (Slovakia)

^an UNIVERSITY MEDICAL CENTRE LJUBLJANA   (Slovenia)

^ao HOSPITAL SANT JOAN DE DÉU   (Spain)

^ap KAROLINSKA UNIVERSITY HOSPITAL   (Sweden)

^aq UNIVERSITY CHILDREN S HOSPITAL   (Switzerland)

^ar ISTANBUL UNIVERSITY   (Turkey)

^as UNIVERSITY OF NOTTINGHAM   (United Kingdom)

^at HOSPITAL DE PEDIATRÍA   (Mexico)

^au HOSPITAL INFANTIL DE MÉXICO FEDERICO GÓMEZ   (Mexico)

^av Stichting Semmy   (Netherlands)

^aw The DIPG Collaborative   (United States)

^ax Newcastle Upon Tyne Hospitals NHS Foundation Trust   (United Kingdom)

^ay UNIVERSITY COLLEGE LONDON   (United Kingdom)

more..

Author keywords

Collaboration; Diffuse intrinsic pontine glioma (DIPG); International research infrastructure; SIOPE DIPG network; SIOPE DIPG registry

Indexed keywords

ARTICLE; CHILD; CHILD PARENT RELATION; COHORT ANALYSIS; CONTROLLED STUDY; DISEASE REGISTRY; FEMALE; HEALTH CARE POLICY; HUMAN; INFORMATION TECHNOLOGY; INFORMED CONSENT; MAJOR CLINICAL STUDY; MALE; NUCLEAR MAGNETIC RESONANCE IMAGING; OVERALL SURVIVAL; PONTINE GLIOMA; PROGRESSION FREE SURVIVAL; PROSPECTIVE STUDY; RETROSPECTIVE STUDY; BRAIN STEM TUMOR; DIAGNOSTIC IMAGING; EUROPE; GLIOMA; IMAGE PROCESSING; INFORMATION SERVICE; INTERNATIONAL COOPERATION; PONS; PRESCHOOL CHILD; REGISTER; YOUNG ADULT;

BRAIN STEM NEOPLASMS; CHILD; CHILD, PRESCHOOL; EUROPE; FEMALE; GLIOMA; HUMANS; IMAGE PROCESSING, COMPUTER-ASSISTED; INFORMATION SERVICES; INTERNATIONAL COOPERATION; MAGNETIC RESONANCE IMAGING; MALE; PONS; REGISTRIES; YOUNG ADULT;

EID: 85009885065     PISSN: 0167594X     EISSN: 15737373     Source Type: Journal    
DOI: 10.1007/s11060-016-2363-y     Document Type: Article

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