Palliative and end-of-life care for children with diffuse intrinsic pontine glioma: Results from a London cohort study and international survey

Neuro-Oncology

Volumn 18, Issue 4, 2016, Pages 582-588

  Veldhuijzen Van Zanten, Sophie E M ^a   Van Meerwijk, Charlotte L L I ^a   Jansen, Marc H A ^a   Twisk, Jos W R ^a   Anderson, Anna Karenia ^b   Coombes, Lucy ^b   Breen, Maggie ^b   Hargrave, Olivia J ^c   Hemsley, June ^c   Craig, Finella ^c   Cruz, Ofelia ^d   Kaspers, Gertjan J L ^a   Van Vuurden, Dannis G ^a   Hargrave, Darren R ^c  

^a VU UNIVERSITY MEDICAL CENTER   (Netherlands)

^b INSTITUTE OF CANCER RESEARCH   (United Kingdom)

^c GREAT ORMOND STREET HOSPITAL   (United Kingdom)

^d HOSPITAL SANT JOAN DE DÉU   (Spain)

Author keywords

diffuse intrinsic pontine glioma (DIPG); end of life care; palliative care; pediatric oncology; quality of life

Indexed keywords

ANALGESIC AGENT; ANTICONVULSIVE AGENT; ANTIEMETIC AGENT; LAXATIVE; SEDATIVE AGENT; STEROID; STOMACH SECRETION INHIBITOR;

ADOLESCENT; ADULT; ARTICLE; ATAXIA; BACKACHE; CANCER CHEMOTHERAPY; CANCER RADIOTHERAPY; CANCER STAGING; CHILD; CHILDHOOD DISEASE; COHORT ANALYSIS; COMMUNICATION DISORDER; CONSCIOUSNESS DISORDER; CONSTIPATION; DEATH; DISEASE COURSE; DISEASE DURATION; DYSARTHRIA; DYSPHAGIA; DYSPNEA; ENGLAND; FEEDING APPARATUS; FEEDING DIFFICULTY; FEMALE; HEADACHE; HEALTH CARE PERSONNEL; HUMAN; INFANT; LIMITED MOBILITY; MAJOR CLINICAL STUDY; MALE; MULTICENTER STUDY (TOPIC); NAUSEA AND VOMITING; NEUROPATHIC PAIN; NOSE FEEDING; PALLIATIVE THERAPY; PARESIS; PONTINE GLIOMA; PRACTICE GUIDELINE; PRESCRIPTION; PROBLEM BEHAVIOR; REHABILITATION EQUIPMENT; RETROSPECTIVE STUDY; SEIZURE; SPEECH DISORDER; SYMPTOMATOLOGY; TERMINAL CARE; TIME TO TREATMENT; URINARY DYSFUNCTION; BRAIN STEM NEOPLASMS; FOLLOW UP; GLIOMA; INTERNATIONAL COOPERATION; NEWBORN; PRESCHOOL CHILD; PROGNOSIS; QUALITY OF LIFE; QUESTIONNAIRE;

ADOLESCENT; BRAIN STEM NEOPLASMS; CHILD; CHILD, PRESCHOOL; FEMALE; FOLLOW-UP STUDIES; GLIOMA; HUMANS; INFANT; INFANT, NEWBORN; INTERNATIONAL AGENCIES; LONDON; MALE; NEOPLASM STAGING; PALLIATIVE CARE; PROGNOSIS; QUALITY OF LIFE; RETROSPECTIVE STUDIES; SURVEYS AND QUESTIONNAIRES; TERMINAL CARE;

EID: 84966687375     PISSN: 15228517     EISSN: 15235866     Source Type: Journal    
DOI: 10.1093/neuonc/nov250     Document Type: Article

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