How to routinely collect data on patient-reported outcome and experience measures in renal registries in Europe: An expert consensus meeting

Nephrology Dialysis Transplantation

Volumn 30, Issue 10, 2015, Pages 1605-1614

  Breckenridge, Kate ^a   Bekker, Hillary L ^b   Gibbons, Elizabeth ^c   Van Der Veer, Sabine N ^d,e   Abbott, Denise ^f   Briançon, Serge ^g   Cullen, Ron ^a   Garneata, Liliana ^h   Jager, Kitty J ⁱ   Lønning, Kjersti ^j   Metcalfe, Wendy ^k,l   Morton, Rachael L ^c,m   Murtagh, Fliss E M ⁿ   Prutz, Karl ^o,p   Robertson, Susan ^q   Rychlik, Ivan ^r   Schon, Steffan ^o,s   Sharp, Linda ^t   Speyer, Elodie ^g,u   Tentori, Francesca ^v   Caskey, Fergus J ^a,w   more..

^a SOUTHMEAD HOSPITAL   (United Kingdom)

^b UNIVERSITY OF LEEDS   (United Kingdom)

^c UNIVERSITY OF OXFORD   (United Kingdom)

^d GHENT UNIVERSITY HOSPITAL   (Belgium)

^e UNIVERSITY OF MANCHESTER   (United Kingdom)

^f National Kidney Federation   (United Kingdom)

^g UNIVERSITY HOSPITAL OF NANCY   (France)

^h CAROL DAVILA UNIVERSITY OF MEDICINE AND PHARMACY   (Romania)

ⁱ UNIVERSITY OF AMSTERDAM   (Netherlands)

^j OSLO UNIVERSITY HOSPITAL   (Norway)

^k ROYAL INFIRMARY OF EDINBURGH   (United Kingdom)

^l Scottish Renal Registry   (United Kingdom)

^m UNIVERSITY OF SYDNEY   (Australia)

ⁿ KING'S COLLEGE LONDON   (United Kingdom)

^o Swedish Renal Registry   (Sweden)

^p HELSINGBORG HOSPITAL   (Sweden)

^q DUMFRIES AND GALLOWAY ROYAL INFIRMARY   (United Kingdom)

^r CHARLES UNIVERSITY   (Czech Republic)

^s Diaverum Renal Services Group   (Sweden)

^t NATIONAL CANCER REGISTRY IRELAND   (Ireland)

^u UNIVERSITÉ DE LORRAINE   (France)

^v ARBOR RESEARCH COLLABORATIVE FOR HEALTH   (United States)

^w UNIVERSITY OF BRISTOL   (United Kingdom)

more..

Author keywords

patient reported measures; quality indicators; registry

Indexed keywords

CHRONIC KIDNEY DISEASE; CONCEPTUAL FRAMEWORK; CONSENSUS; EPIDEMIOLOGICAL DATA; EUROPE; EXPERIENCE; HEALTH CARE DELIVERY; HUMAN; INFORMATION PROCESSING; KIDNEY FAILURE; MEDICAL DECISION MAKING; MEDICAL INFORMATION; OUTCOME ASSESSMENT; PATIENT ATTITUDE; PATIENT DECISION MAKING; PATIENT REPORTED EXPERIENCE MEASURE; PATIENT REPORTED OUTCOME MEASURE; PATIENT SATISFACTION; PRIORITY JOURNAL; QUALITY OF LIFE; QUALITY OF LIFE ASSESSMENT; QUESTIONNAIRE; RENAL REGISTRY; REVIEW; SELF REPORT; STANDARDIZATION; SYSTEMATIC REVIEW; CONSENSUS DEVELOPMENT; ELECTRONIC HEALTH RECORD; HEALTH CARE QUALITY; QUALITY ADJUSTED LIFE YEAR; REGISTER; RENAL INSUFFICIENCY; RENAL REPLACEMENT THERAPY;

DATA COLLECTION; ELECTRONIC HEALTH RECORDS; EUROPE; HUMANS; PATIENT OUTCOME ASSESSMENT; PATIENT SATISFACTION; QUALITY INDICATORS, HEALTH CARE; QUALITY OF LIFE; QUALITY-ADJUSTED LIFE YEARS; REGISTRIES; RENAL INSUFFICIENCY; RENAL REPLACEMENT THERAPY; SURVEYS AND QUESTIONNAIRES;

EID: 84943390653     PISSN: 09310509     EISSN: 14602385     Source Type: Journal    
DOI: 10.1093/ndt/gfv209     Document Type: Review

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