Developing CollaboRATE: A fast and frugal patient-reported measure of shared decision making in clinical encounters

Patient Education and Counseling

Volumn 93, Issue 1, 2013, Pages 102-107

  Elwyn, Glyn ^a,b,c   Barr, Paul James ^a   Grande, Stuart W ^a   Thompson, Rachel ^a   Walsh, Thom ^a,c   Ozanne, Elissa M ^d  

^a DARTMOUTH COLLEGE   (United States)

^b CARDIFF UNIVERSITY   (United Kingdom)

^c DARTMOUTH INSTITUTE FOR HEALTH POLICY AND CLINICAL PRACTICE   (United States)

^d UNIVERSITY OF CALIFORNIA   (United States)

Author keywords

Cognitive interviewing; Measurement; Shared decision making

Indexed keywords

ADULT; AGED; ANALYTIC METHOD; ARTICLE; CLINICAL PRACTICE; COGNITIVE INTERVIEW; CONTENT VALIDITY; CONTROLLED STUDY; DATA COLLECTION METHOD; FEMALE; HUMAN; ITEM FORMULATION; ITEM REFINEMENT; MAJOR CLINICAL STUDY; MALE; MEDICAL RESEARCH; PATIENT ATTITUDE; PATIENT CARE; PATIENT PARTICIPATION; PILOT STUDY; PRIORITY JOURNAL; PSYCHOMETRY; SELF REPORT; SHARED DECISION MAKING; UNITED STATES;

COGNITIVE INTERVIEWING; MEASUREMENT; SHARED DECISION MAKING;

ADOLESCENT; ADULT; AGED; COMMUNICATION; COOPERATIVE BEHAVIOR; DECISION MAKING; DECISION SUPPORT TECHNIQUES; FEMALE; HUMANS; INTERVIEWS AS TOPIC; MALE; MIDDLE AGED; PATIENT OUTCOME ASSESSMENT; PATIENT PARTICIPATION; PATIENT-CENTERED CARE; PHYSICIAN-PATIENT RELATIONS; QUESTIONNAIRES; TIME FACTORS;

EID: 84883237931     PISSN: 07383991     EISSN: 18735134     Source Type: Journal    
DOI: 10.1016/j.pec.2013.05.009     Document Type: Article

References (55)

1. Scholl I., Loon M.K., Sepucha K., Elwyn G., Légaré F., Härter M., et al. Measurement of shared decision making - a review of instruments. Z Evid Fortbild Qual Gesundhwes 2011, 105:313-324.
2. Frosch D.L., Moulton B.W., Wexler R.M., Holmes-Rovner M., Volk R.J., Levin C.A. Shared decision making in the united states: policy and implementation activity on multiple fronts. Z Evid Fortbild Qual Gesundhwes 2011, 105:305-312.
3. Braddock C., Edwards K., Hasenberg M., Laidley T., Levinson W. Informed decision making in outpatient setting: time to get back to basics. J Amer Med Assoc 1999, 282:2313-2320.
4. Elwyn G., Hutchings H., Edwards A., Rapport F., Wensing M., Cheung W., et al. The option scale: measuring the extent that clinicians involve patients in decision-making tasks. Health Expect 2005, 8:34-42.
5. Shields C., Franks P., Fiscella K., Meldrum S., Epstein R. Rochester participatory decision-making scale (RPAD): reliability and validity. Ann Fam Med 2005, 3:436-442.
6. Stacey D., Taljaard M., Drake E.R., O'Connor A.M. Audit and feedback using the brief decision support analysis tool (DSAT-10) to evaluate nurse-standardized patient encounters. Patient Educ Couns 2008, 73:519-525.
7. Saba G.W., Wong S.T., Schillinger D., Fernandez A., Somkin C.P., Wilson C.C., et al. Shared decision making and the experience of partnership in primary care. Ann Fam Med 2006, 4:54-62.
8. Kasper J., Heesen C., Köpke S., Fulcher G., Geiger F. Patients' and observers' perceptions of involvement differ. Validation study on inter-relating measures for shared decision making. PLoS ONE 2011, 6:e26255.
9. Scheibler F., Müller H., Légaré F., Kasper J. No EBM without SDM: give us a measure to capture patient involvement and we will move the health system. Z Evid Fortbild Qual Gesundhwes 2012, 106:235-237.
10. Couët N., Desroches S., Robitaille H., Vaillancourt H., Leblanc A., Turcotte S., et al. Assessments of the extent to which healthcare providers involve patients in decision making: a systematic review of studies using the option instrument. Health Expect 2013, [Epub ahead of print].
11. Arora N.K., Ayanian J.Z., Guadagnoli E. Examining the relationship of patients' attitudes and beliefs with their self-reported level of participation in medical decision-making. Med Care 2005, 43:865-872.
12. Brehaut J., O'Connor A., Wood T., Hack T., Siminoff L., Gordon E., et al. Validation of a decision regret scale. Med Decis Making 2003, 23:281-292.
13. Holmes-Rovner M., Kroll J., Schmitt N., Rovner D., Breer M., Rothert M., et al. Patient satisfaction with health care decisions: the satisfaction with decision scale. Med Decis Making 1996, 16:58-64.
14. Krantz D.S., Baum A., Wideman M.V. Assessment of preferences for self-treatment and information in health care. J Pers Soc Psychol 1980, 39:977-990.
15. Martin L.R., DiMatteo M.R., Lepper H.S. Facilitation of patient involvement in care: development and validation of a scale. Behav Med 2001, 27:111.
16. O'Connor A. User manual - decision self-efficacy, scale 2002, Ottawa Hospital Research Institute, Ottawa.
17. Sainfort F., Booske B.C.B. Measuring post-decision satisfaction. Med Decis Making 2000, 20:51-61.
18. Stalmeier P.P.F.M., Roosmalen M.S.M.S., Verhoef L.L.C.G., Hoekstra-Weebers J.E.H.M., Oosterwijk J.C., Moog U., et al. The decision evaluation scales. Patient Educ Couns 2005, 57:286-293.
19. O'Connor A.M. Validation of a decisional conflict scale. Med Decis Making 1995, 15:25-30.
20. Graham I., O'Connor A. Graham ID & O'Connor AM. User manual - preparation for decision making scale 2010, Ottawa Hospital Research Institute, Ottawa.
21. Ende J., Kazis L., Ash A., Moskowitz M.A. Measuring patients' desire for autonomy. J Gen Intern Med 1989, 4:23-30.
22. Degner L., Sloan J., Degner L.F., Sloan J.A. Decision making during serious illness: what role do patients really want to play?. J Clin Epidemiol 1992, 45:941-950.
23. Edwards A.G., Elwyn G., Hood K.K., Robling M.R., Atwell C.L.A., Holmes-Rovner M., et al. The development of comrade - a patient-based outcome measure to evaluate the effectiveness of risk communication and treatment decision making in consultations. Patient Educ Couns 2003, 50:386-392.
24. Légaré F., Kearing S., Clay K., Gagnon S., D'Amours D., Rousseau M., et al. Are you sure? Assessing patient decisional conflict with a 4-item screening test. Can Fam Physician 2010, 56:E308-E314.
25. Smoliner A., Hantikainen V., Mayer H., Ponocny-Seliger E., Them C. Development and test-theoretical analysis of an instrument for data collection on patients' preferences and experiences concerning participation in nursing care decisions in acute hospitals. Pflege 2009, 22:401-409.
26. Farin E., Gramm L., Kosiol D. Development of a questionnaire to assess communication preferences of patients with chronic illness. Patient Educ Couns 2011, 82:81-88.
27. Shiozaki M., Hirai K., Dohke R., Morita T., Miyashita M., Sato K., et al. Measuring the regret of bereaved family members regarding the decision to admit cancer patients to palliative care units. Psychooncology 2008, 17:926-931.
28. Gagnon M., Hébert R., Dubé M., Dubois M.-F. Development and validation of the health care satisfaction questionnaire (HCSQ) in elders. J Nurs Meas 2006, 14:190-204.
29. Melbourne E., Sinclair K., Durand M.-A., Légaré F., Elwyn G. Developing a dyadic option scale to measure perceptions of shared decision making. Patient Educ Couns 2010, 78:177-183.
30. Martin L.R., Jahng K.H., Golin C.E., DiMatteo M.R. Physician facilitation of patient involvement in care: correspondence between patient and observer reports. Behav Med 2003, 28:159-164.
31. Kriston L., Scholl I., Hölzel L., Simon D., Loh A., Härter M. The 9-item shared decision making questionnaire (SDM-Q-9). Development and psychometric properties in a primary care sample. Patient Educ Couns 2010, 80:94-99.
32. Lerman C.E., Brody D.S.D., Caputo G.C., Smith D.G.D., Lazaro C.G.C., Wolfson H.G.H. Patients' perceived involvement in care scale: relationship to attitudes about illness and medical care. J Gen Intern Med 1990, 5:29-33.
33. Melbourne E., Roberts S., Durand M.-A., Newcombe R., Légaré F., Elwyn G., et al. Dyadic option: measuring perceptions of shared decision-making in practice. Patient Educ Couns 2010, 83:55-57.
34. Frongillo M., Feibelmann S., Belkora J., Lee C., Sepucha K. Is there shared decision making when the provider makes a recommendation?. Patient Educ Couns 2013, 90:69-73.
35. Streiner D.L., Norman G.R. Health measurement scales: a practical guide to their development and use 2008, Oxford University Press, Oxford. 4th ed.
36. Willis G. Cognitive interviewing: a tool for improving questionnaire design 2005, Sage Publications, Thousand Oaks, CA.
37. Knafl K., Deatrick J., Gallo A., Holcombe G., Bakitas M., Dixon J., et al. The analysis and interpretation of cognitive interviews for instrument development. Res Nurs Health 2007, 30:224-234.
38. Entwistle V.A., Skea Z.C., O'Donnell M.T. Decisions about treatment: interpretations of two measures of control by women having a hysterectomy. Soc Sci Med 2001, 53:721-732.
39. Entwistle V.A., Watt I.S., Gilhooly K., Bugge C., Haites N., Walker A.E. Assessing patients' participation and quality of decision-making: insights from a study of routine practice in diverse settings. Patient Educ Couns 2004, 55:105-113.
40. Hauer K.E., Fernandez A., Teherani A., Boscardin C.K., Saba G.W. Assessment of medical students' shared decision-making in standardized patient encounters. J Gen Intern Med 2011, 26:367-372.
41. Bowling A. Just one question: if one question works, why ask several?. J Epidemiol Community Health 2005, 59:342-345.
42. Ivers N., Jamtvedt G., Flottorp S., Young J.M., Odgaard-Jensen J., French S.D., et al. Audit and feedback: effects on professional practice and healthcare outcomes. Cochrane Database Syst Rev 2012, 6:CD000259.
43. Griffin S., Kinmonth A., Veltman M., Gillard S., Grant J., Stewart M. Effect on health-related outcomes of interventions to alter the interaction between patients and practitioners: a systematic review of trials. Ann Fam Med 2004, 2:595-608.
44. Makoul G., Clayman M.L. An integrative model of shared decision making in medical encounters. Patient Educ Couns 2006, 60:301-312.
45. Entwistle V. Patient involvement in decision-making: the importance of a broad conceptualization. Shared decision-making in health care: achieving evidence-based patient choice 2009, 17-22. Oxford University Press. A. Edwards, G. Elwyn (Eds.).
46. Entwistle V.A., Cribb A., Watt I.S. Shared decision-making: enhancing the clinical relevance. J R Soc Med 2012, 105:416-421.
47. Glass K.E., Wills C.E., Holloman C., Olson J., Hechmer C., Miller C.K., et al. Shared decision making and other variables as correlates of satisfaction with health care decisions in a United States National Survey. Patient Educ Couns 2012, 88:100-105.
48. Charles C., Gafni A., Whelan T. Shared decision-making in the medical encounter: what does it mean? (or it takes at least two to tango). Soc Sci Med 1997, 44:681-692.
49. Guest G., Bunce A., Johnson L. How many interviews are enough? An experiment with data saturation and variability. Field Method 2006, 18:59-82.
50. Edwards A., Elwyn G. Inside the black box of shared decision making: distinguishing between the process of involvement and who makes the decision. Health Expect 2006, 9:307-320.
51. Entwistle V., Watt I. Patient involvement in treatment decision-making: the case for a broader conceptual framework. Patient Educ Couns 2006, 63:268-278.
52. Ford S., Schofield T., Hope T. Observing decision-making in the general practice consultation: who makes which decisions?. Health Expect 2006, 9:130-137.
53. Guadagnoli E., Ward P. Patient participation in decision-making. Soc Sci Med 1998, 47:329-339.
54. Deber R., Kraetschmer N., Irvine J. What role do patients wish to play in treatment decision making?. Arch Intern Med 1996, 156:1414-1420.
55. Weng L.-J. Impact of the number of response categories and anchor labels on coefficient alpha and test-retest reliability. Educ Psychol Meas 2004, 64:956-972.