User involvement as sharing knowledge – an extended perspective in patient education

Journal of Multidisciplinary Healthcare

Volumn 7, Issue , 2014, Pages 551-559

  Strøm, Anita ^a   Fagermoen, May Solveig ^b  

^a LOVISENBERG DIACONAL UNIVERSITY COLLEGE   (Norway)

^b UNIVERSITY OF OSLO   (Norway)

Author keywords

Knowledge sharing; Patient education; Professional patient relations; User involvement

Indexed keywords

EID: 84914174828     PISSN: None     EISSN: 11782390     Source Type: Journal    
DOI: 10.2147/JMDH.S73343     Document Type: Article

References (33)

1. Fudge N, Wolfe CD, McKevitt C. Assessing the promise of user involve­ment in health service development: ethnographic study. BMJ. 2008; 336(7639):313–317.
2. Thompson AG. The meaning of patient involvement and participation in health care consultations: a taxonomy. Soc Sci Med. 2007;64(6): 1297–1310.
3. Tritter JQ. Revolution or evolution: the challenges of conceptualizing patient and public involvement in a consumerist world. Health Expect. 2009;12(3):275–287.
4. Tritter JQ, McCallum A. The snakes and ladders of user involvement: Moving beyond Arnstein. Health Policy. 2006;76(2):156–168.
5. Gruman J, Rovner MH, French ME, et al. From patient education to patient engagement: implications for the field of patient education. Patient Educ Couns. 2010;78(3):350–356.
6. Boyd H, McKernon S, Mullin B, Old A. Improving healthcare through the use of co-design. N Z Med J. 2012;125(1357):76–87.
7. Rise MB, Solbjor M, Lara MC, Westerlund H, Grimstad H, Steinsbekk A. Same description, different values. How service users and providers define patient and public involvement in health care. Health Expect. 2013;16(3):266–276.
8. Hanley B, Bradburn J, Evans C, et al. Involving the Public in NHS, Public Health and Social Care Research: Briefing Notes for Researchers (second edition). Eastleigh, Hampshire: INVOLVE; 2004.
9. Crawford MJ, Aldridge T, Bhui K, et al. User involvement in the plan­ning and delivery of mental health services: a cross-sectional survey of service users and providers. Acta Psychiatr Scand. 2003;107(6): 410–414.
10. 10. Crawford MJ, Rutter D, Manley C, et al. Systematic review of involv­ing patients in the planning and development of health care. BMJ. 2002;325(7375):1263.
11. Nilsen ES, Myrhaug HT, Johansen M, Oliver S, Oxman AD. Methods of consumer involvement in developing healthcare policy and research, clinical practice guidelines and patient information material. Cochrane Database Syst Rev. 2006(3):CD004563.
12. Rutter D, Manley C, Weaver T, Crawford MJ, Fulop N. Patients or partners? Case studies of user involvement in the planning and delivery of adult mental health services in London. Soc Sci Med. 2004;58(10): 1973–1984.
13. Anderson RM, Funnell MM. Patient empowerment: reflections on the challenge of fostering the adoption of a new paradigm. Patient Educ Couns. 2005;57(2):153–157.
14. Strøm A. Samarbeid i Lærings- og mestringssenteret: brukermedvirkning og makt [Collaboration in the Learning and Mastery Centers – User Participation and Power] [Doctoral dissertation]. Oslo, Unipub; 2010. Norwegian.
15. Coffey A, Atkinson P. Making Sense of Qualitative Data: Complementary Research Strategies. Thousand Oaks, California: Sage; 1996.
16. Fangen K. Deltagende observasjon [Participant Observation]. Bergen: Fagbokforl; 2004. Norwegian.
17. Kvale S, Brinkmann S. Interviews: Learning the Craft of Qualitative Research Interviewing. Los Angeles, California: Sage; 2009.
18. Schatzman L, Strauss AL. Field Research: Strategies for a Natural Sociology. Englewood Cliffs, NJ: Prentice-Hall; 1973.
19. Strøm A, Fagermoen MS. Systematic data integration – a method for combined analyses of field notes and interview texts. International Journal of Qualitative Methods. 2012;11(5):534–546.
20. 20. Polit D, Beck, BT. Nursing Research: Generating and Assessing Evidence for Nursing Practice (8th ed.) Philadelphian, PA: Lippincott Williams & Wilkins; 2008.
21. Vatne S, Fagermoen MS. Event-oriented data integration: a qualitative strategy in studying professional practice. Res Theory Nurs Pract. 2008; 22(1):38–55.
22. Borge L, Hummelvoll JK. Patients’ experience of learning and gaining personal knowledge during a stay at a mental hospital. J Psychiatr Ment Health Nurs. 2008;15(5):365–373.
23. Borge L, Rossberg JI, Sverdrup S. Cognitive milieu therapy and physical activity: experiences of mastery and learning among patients with dual diagnosis. J Psychiatr Ment Health Nurs. 2013;20(10):932–942.
24. Freire P. Pedagogy of the Oppressed. New York: Herder and Herder; 1972.
25. Langton H, Barnes M, Haslehurst S, Rimmer J, Turton P. Collaboration, user involvement and education: a systematic review of the literature and report of an educational initiative. Eur J Oncol Nurs. 2003;7(4): 242–252.
26. Aujoulat I, d’Hoore W, Deccache A. Patient empowerment in theory and practice: polysemy or cacophony? Patient Educ Couns. 2007;66(1): 13–20.
27. 27. Swift TL, Dieppe PA. Using expert patients’ narratives as an educational resource. Patient Educ Couns. 2005;57(1):115–121.
28. 28. Tritter JQ. Public and patient participation in health care and health policy in the United Kingdom. Health Expect. 2011;14(2):220–223.
29. Strom A, Kvernbekk T, Fagermoen MS. Parity: (im) possible? Interplay of knowledge forms in patient education. Nurs Inq. 2011;18(2): 94–101.
30. 30. Fay B. Contemporary Philosophy of Social Science: A Multicultural Approach. Oxford: Blackwell; 1996.
31. Forland G, Ringsberg KC. Implementation of a standardised health education in a local context. A case study. Scand J Caring Sci. 2013; 27(3):724–732.
32. Strøm A, Fagermoen MS. Lærings- og mestringssentre ved sykehus. Ny arena for samarbeid om pasientopplæring ved kronisk sykdom [Learning and Mastery Centres at hospitals. A new arena for collaboration on patient education]. Norsk Tidsskrift for Sykepleieforskning. 2004;6(1): 36–44. Norwegian.
33. Strøm A. Opplevelse av mening i livet når man lever med kroniske, ikke-maligne smerter: en studie av begrepet mening i livet innenfor rammen av en hybrid modell for begrepsutvikling (Schwartz-Barcott og Kim, 1986) [The experience of having a purpose for life while living with chronic, non-malignant pain. A study of the concept purposeful life within the frame of a Hybrid Model for Concept Development]. [master’s thesis]. Oslo: University of Oslo; 1995.