Revolution or evolution: The challenges of conceptualizing patient and public involvement in a consumerist world

Health Expectations

Volumn 12, Issue 3, 2009, Pages 275-287

  Tritter, Jonathan Q ^a  

^a UNIVERSITY OF WARWICK   (United Kingdom)

Author keywords

Arnstein; English NHS; Globalization; Health policy; Patient choice; Patient rights

Indexed keywords

CLINICAL EVALUATION; DECISION MAKING; HEALTH CARE DELIVERY; HEALTH CARE MANAGEMENT; HEALTH CARE ORGANIZATION; HEALTH CARE PERSONNEL; HEALTH CARE POLICY; HEALTH CARE PRACTICE; HEALTH CARE UTILIZATION; HEALTH EDUCATION; HEALTH SERVICE; HUMAN; LEGAL ASPECT; MEDICAL EDUCATION; PATIENT CARE; PATIENT PARTICIPATION; PATIENT RIGHT; PERSONAL EXPERIENCE; PRIORITY JOURNAL; REVIEW; SOCIAL BEHAVIOR; SOCIAL EVOLUTION; SOCIAL INTERACTION; SOCIAL SUPPORT; STAFF TRAINING;

CONSUMER PARTICIPATION; ENGLAND; HEALTH CARE REFORM; HEALTH POLICY; HUMANS; PATIENT PARTICIPATION; POLITICS; STATE MEDICINE;

EID: 70349135968     PISSN: 13696513     EISSN: 13697625     Source Type: Journal    
DOI: 10.1111/j.1369-7625.2009.00564.x     Document Type: Review

References (64)

1. Arnstein S. A ladder of citizen participation. Journal of the American Institute of Planners, 1969 35 : 216 224.
2. Wilcox D. The Guide to Effective Participation. London : Joseph Rowntree Foundation, 1994.
3. Burns D, Hamilton R, Hogget P. The Politics of Decentralisation. Basingstoke : MacMillan, 1994.
4. Choguill G. A ladder of community participation for underdeveloped countries. Habitat International, 1996 20 : 431 444.
5. Tritter J, McCallum A. The snakes and ladders of user involvement: moving beyond Arnstein. Health Policy, 2006 76 : 156 168.
6. Harrison S, Dowswell G, Milewa T. Guest editorial: public and user 'involvement' in the UK National Health Service. Health & Social Care in the Community, 2002 10 : 63 66.
7. Somerset Health and Social Care NHS Trust. Available at: http://www.somerset.nhs.uk/news-info/involvement/index.html, accessed on 5 July 2008.
8. Davies C, Wetherell M, Barnett E. Citizens at the Centre: Deliberative Participation in Healthcare Decisions. Bristol : Policy Press, 2006.
9. London Ambulance Service. Patient and Public Involvement (PPI) - The LAS Approach. 2004 Available at: http://www.londonambulance.nhs.uk/talkingtous/ppi/ media/PPI%20strategy.pdf, accessed on 5 July 2008.
10. Avon, Somerset and Wiltshire Cancer Services. Annual Report 2006. Available at: http://www.aswcs.nhs.uk/AnnualReport.pdf, accessed on 5 July 2008.
11. Oliver S, Rees R, Clarke-Jones L et al. A multidimensional conceptual framework for analysing public involvement in health services research. Health Expectations, 2008 11 : 72 84.
12. WHO Regional Office for Europe. Declaration on the Promotion of Patients' Rights in Europe. Copenhagen : WHO, 1994.
13. Council of Europe. Recommendation of the Committee of Ministers of the Council of Europe on the Development of Structures for Citizen and Patient Participation in the Decision-Making Process Affecting Health Care. Strasbourg : Council of Europe, 2000.
14. Rutter D, Manley C, Weaver T, Crawford MJ, Fulop N. Patients or partners? Case studies of user involvement in the planning and delivery of adult mental health services in London Social Science and Medicine, 2004 58 : 1973 1984.
15. Crawford M, Rutter D, Manley C et al. Systematic review of involving patients in the planning and development of health care. British Medical Journal, 2002 325 : 1263 1267.
16. Richardson A, Sitzia J, Cotterll P. 'Working the System'. Achieving change through partnership working: an evaluation of cancer partnership groups. Health Expectations, 2005 8 : 210 220.
17. Gagliardi A, Lemieux-Charles L, Brown A, Sullivan T, Goel V. Barriers to patient involvement in health service planning and evaluation: an exploratory study. Patient Education and Counseling, 2008 70 : 234 241.
18. Daykin N, Sanidas M, Tritter J, Rimmer J, Evans S. Developing user involvement in a UK cancer network: professionals' and users' perspectives. Critical Public Health, 2004 14 : 277 294.
19. Simpson E, House A. Involving users in the delivery and evaluation of mental health services: systematic review. British Medical Journal, 2002 325 : 1265 1270.
20. Simces and Associates. Exploring the Link between Public Involvement/Citizen Engagement and Quality Health Care: A Review and Analysis of the Current Literature. Ottawa : Health Canada, Health and Human Resources Division, 2003 : 4.
21. Crawford M, Rutter D, Thelwall S. User Involvement in Change Management: A Review of the Literature. London : National Co-ordinating Centre for Service Delivery and Organisation, 2003.
22. Tritter J. 'Getting to know myself'. Changing needs and gaining knowledge among people with cancer. In Denny E, Earle S (eds) Long Term Conditions and Nursing Practice. Basingstoke : Palgrave, 2008, 151 168.
23. Williams S. Chronic illness as biographical disruption or biographical disruption as chronic illness? Reflections on a core concept. Sociology of Health and Illness, 2000 22 : 40 67.
24. Doel M, Carroll C, Chambers E et al. Developing Measures for Effective Service User and Carer Participation. London : Social Care Institute for Excellence, 2007.
25. Welsh Assembly Government and OPM. Signposts Two: Putting Public and Patient Involvement into Practice in Wales. Cardiff : Welsh Assembly, 2003.
26. Surrey and Sussex Strategic Health Authority. PPI Self-Assessment Framework. Redhill : Surrey and Sussex Strategic Health Authority, 2005.
27. Healthcare Commission. The Annual Health Check 2008/09: Assessing and Rating the NHS. London : Healthcare Commission, 2008. Available at: http://www.healthcarecommission.org.uk/serviceproviderinformation/ annualhealthcheck.cfm, accessed on 21 July 2008.
28. Irvine D. The Doctors' Tale: Professionalism and Public Trust. Oxford : Radcliffe Publishing, 2003.
29. Croft S, Beresford P. User involvement, citizenship and social policy. Critical Social Policy, 1993 9 : 5 18.
30. Feldberg G, Vipond R. The virus of consumerism. In : Drache D, Sullivan T (eds) Health Reform: Public Success Private Failure. London : Routledge, 1999, 448 464.
31. Ignatieff M. The myth of citizenship. In : Beiner R ed Theorizing Citizenship. Albany : SUNY Press, 1995 71 : 53 78.
32. Klein R. The New Politics of the NHS, 4th edn. Harlow : Pearson, 2001.
33. Dale J, Harbinder S, Lall R, Glucksman E. The patient, the doctor and the emergency department: a cross section study of patient-centeredness in 1995 and 2005. Patient Education and Counselling, 2008 72 : 320 329.
34. Stewart M. Towards a global definition of patient centred care: The patient should be the judge of patient centred care. British Medical Journal, 2001 322 : 444 445.
35. Marinker M (ed Sense & Sensibility in Healthcare. London : BMJ Publishing Group, 1996 : 13.
36. Department of Health. Patient and Public Involvement in the New NHS. London : Department of Health, 1999.
37. Department of Health. The NHS Plan: A Plan for Investment, A Plan for Reform. London : Department of Health, 2000.
38. Department of Health. Building on the Best; Choice, Responsiveness and Equity in the NHS (Cm 6268). London : Department of Health, 2003.
39. Department of Health. The NHS Improvement Plan: Putting People at the Heart of Public Services (Cm 6268). London : Department of Health, 2004.
40. Department of Health. Creating a Patient-Led NHS: Delivering the NHS Improvement Plan. London : Department of Health, 2005.
41. Department of Health. Government Response to the Consultation Exercise about the Future Support Arrangements for Patient and Public Involvement in Health. London : Department of Health, 2005.
42. Department of Health. Our Health, Our Care, Our Say: A New Direction for Community Services. London : Department of Health, 2006.
43. Vos P. Health and Healthcare in the Netherlands. Maarssen : Elsevier gezonheidszorg, 2002.
44. Fotaki M. Patient choice in healthcare in England and Sweden: From quasi-market and back to market? A comparative analysis of failure in unlearning. Public Administration, 2007 85 : 1059 1075.
45. Bergmark Å. Market reforms in Swedish health care: normative reorientation and welfare state sustainability. Journal of Medicine and Philosophy, 2008 33 : 241 261.
46. Tritter JQ, Koivusalo M, Ollila E, Dorfman P. Globalisation, Markets and Healthcare Policy: Redrawing the Patient as Consumer. London : Routledge, 2009.
47. Romanow R. Building on Values: The Future of Health Care in Canada, Final Report. Ottawa : Royal Commission on the Future of Health Care in Canada, 2002.
48. Commission of the European Communities. Proposal for a Directive of the European Parliament and of the Council on the Application of Patients' Rights in Cross Border Healthcare, 2008/0142. Brussels : Commission of the European Communities, 2008. Available at: http://ec.europa.eu/health/ph-overview/co- operation/healthcare/docs/COM-en.pdf, accessed on 6 July 2008.
49. American Medical Association. New AMA Guidelines on Medical Tourism. 2008. Available at: http://www.ama-assn.org/ama1/pub/upload/mm/31/ medicaltourism.pdf, accessed on 23 July 2008.
50. United Nations Economic Commission for Europe. Convention on Access to Information, Public Participation in Decision-Making and Access to Justice in Environmental Matters. Aarhus : UNECE, 1998.
51. Lewis M. Governing Foundation Trusts: A New Era for Public Accountability. London : King's Fund, 2005.
52. House of Commons Health Committee. Foundation Trusts and Monitor. London : House of Commons, 2008.
53. Hogg C. Citizens, Consumers and the NHS: Capturing Voices. London : Palgrave Macmillan, 2008.
54. House of Commons Health Committee. Patient and Public Involvement in the NHS. London : House of Commons, 2008.
55. Department of Health. Health Bill 2009. http://www.dh.gov.uk/en/ Publicationsandstatistics/Legislation/Actsandbills/DH-093280, accessed on 17 July 2009.
56. Department of Health. Department of Health: Departmental Report 2008. London : Department of Health, 2008.
57. NHS Confederation Key Statistics in the NHS. 2008. Available at: http://www.nhsconfed.org/issues/about-1857.cfm, accessed on 15 July 2008.
58. Koivusalo M, Tritter J. The Globalisation of Health Care Reforms: The Impact and Response to Commercialisation in Different National Contexts. 16th International Sociological Association World Congress of Sociology, Durban, South Africa, 23-29 July 2006.
59. U.S. Department of Health & Human Services. HealthReform.Gov. 2009. http://www.healthreform.gov, accessed on 17 July 2009.
60. Valentine N, Darby C, Bonsel GJ. Which aspects of non-clinical quality of care are most important? Results from WHO's general population surveys of "health systems responsiveness" in 41 countries Social Science and Medicine, 2008 66 : 1939 1950.
61. Ollila E, Koivusalo M. The World Health Report 2000: the World Health Organization health policy steering off course - changed values, poor evidence, and lack of accountability. International Journal of Health Services, 2002 32 : 503 514.
62. Docteur E, Oxley H. Health Care Systems: Lessons from the Reform Experience. Paris : OECD/ELSA/WD/HEA, 2003.
63. Henderson S, Petersen A (eds). Consuming Health: The Commodification of Health Care. Routledge : London and New York, 2002 3.
64. Krugman P. Blue double cross. The New York Times, 21 May 2009.