How will DSM-5 affect autism diagnosis? A systematic literature review and meta-analysis

Journal of Autism and Developmental Disorders

Volumn 44, Issue 8, 2014, Pages 1918-1932

  Kulage, Kristine M ^a,b   Smaldone, Arlene M ^b   Cohn, Elizabeth G ^b  

^a Columbia University Mailman School of Public Health ^*  (United States)

^b NewYork Presbyterian Hospital   (United States)

Author keywords

Autism spectrum disorder; Diagnosis; DSM 5; PDD NOS; Public health policy

Indexed keywords

ARTICLE; ASPERGER SYNDROME; AUTISM; CLINICAL EVALUATION; COMMUNICATION DISORDER; DSM-5; DSM-IV-TR; HUMAN; ICD-10; META ANALYSIS; PERVASIVE DEVELOPMENTAL DISORDER NOT OTHERWISE SPECIFIED; PRIORITY JOURNAL; SOCIAL INTERACTION; SYSTEMATIC REVIEW;

CHILD DEVELOPMENT DISORDERS, PERVASIVE; DIAGNOSTIC AND STATISTICAL MANUAL OF MENTAL DISORDERS; HUMANS; PRACTICE GUIDELINES AS TOPIC; PSYCHIATRIC STATUS RATING SCALES;

EID: 84906937311     PISSN: 01623257     EISSN: 15733432     Source Type: Journal    
DOI: 10.1007/s10803-014-2065-2     Document Type: Article

References (48)

1. APA. (2012a). DSM-5 Autism Spectrum Disorder Fact Sheet. http://dsmfacts.org/wp-content/uploads/2012/11/Autism-spectrum-disorder-fact- sheet.pdf.
2. APA. (2012b). Recent updates to proposed revisions for DSM-5. http://www.dsm5.org/Pages/RecentUpdates.aspx.
3. APA. (2013a). Diagnostic and statistical manual of mental disorders (5th ed.). Washington, DC: American Psychiatric Publishing.
4. APA. (2013b). Social (pragmatic) communication disorder. http://www.dsm5.org/Documents/Social%20Communication%20Disorder%20Fact%20Sheet. pdf.
5. Autism Speaks. (May 31, 2013). CT legislature passes DSM-V bill. http://www.autismspeaks.org/advocacy/advocacy-news/ct-legislature-passes-dsm-v- bill.
6. Barton, M. L., Robins, D. L., Jashar, D., Brennan, L., & Fein, D. (2013). Sensitivity and specificity of proposed DSM-5 criteria for autism spectrum disorder in toddlers. Journal of Autism and Developmental Disorders. doi:10.1007/s10803-013-1817-8.
7. Beighley, J. S., Matson, J. L., Rieske, R. D., Jang, J., Cervantes, P. E., & Goldin, R. L. (2013). Comparing challenging behavior in children diagnosed with autism spectrum disorders according to the DSM-IV-TR and the proposed DSM-5. Developmental Neurorehabilitation. doi:10.3109/17518423.2012. 760119.
8. Centers for Disease Control and Prevention. (2012). Prevalence of autism spectrum disorders-autism and developmental disabilities monitoring network, 14 sites, United States, 2008. Morbidity and Mortality Weekly Report, 61(3), 1-19.
9. Dickerson Mayes, S., Black, A., & Tierney, C. D. (2013). DSM-5 under-identifies PDDNOS: diagnostic agreement between the DSM-5, DSM-IV, and checklist for autism spectrum disorder. Research in Autism Spectrum Disorders, 7, 298-306.
10. Falkmer, T., Anderson, K., Falkmer, M., & Horlin, C. (2013). Diagnostic procedures in autism spectrum disorders: A systematic literature review. European Child and Adolescent Psychiatry. doi:10.1007/s00787-013-0375-0.
11. Gibbs, V., Aldridge, F., Chandler, F., Witzlsperger, E., & Smith, K. (2012). Brief report: an exploratory study comparing diagnostic outcomes for autism spectrum disorders under DSM-IV-TR with the proposed DSM-5 revision. Journal of Autism and Developmental Disorders, 42(8), 1750-1756. doi:10.1007/s10803-012-1560-6.
12. Glasson, E. J., MacDermott, S., Dixon, G., Cook, H., Chauvel, P., Maley-Berg, A., et al. (2008). Management of assessments and diagnoses for children with autism spectrum disorders: The Western Australian model. Medical Journal of Australia, 188(5), 288-291.
13. Greaves-Lord, K., Eussen, M. L., Verhulst, F. C., Minderaa, R. B., Mandy, W., Hudziak, J. J., et al. (2013). Empirically based phenotypic profiles of children with pervasive developmental disorders: Interpretation in the light of the DSM-5. Journal of Autism and Developmental Disorders, 43(8), 1784-1797.
14. Hemp, R., Catherine Rizzolo, M., & Braddock, D. (2002). Selected trends in public spending for MR/DD services and the state economies. Mental Retardation, 40 (5), 418-422. doi:10.1352/0047-6765(2002)040〈0418: stipsf〉2.0.co;2.
15. Hu, V. W. (2012). Subphenotype-dependent disease markers for diagnosis and personalized treatment of autism spectrum disorders. Disease Markers, 33(5), 277-288. doi:10.3233/dma-2012-0916.
16. Huerta, M., Bishop, S. L., Duncan, A., Hus, V., & Lord, C. (2012). Application of DSM-5 criteria for autism spectrum disorder to three samples of children with DSM-IV diagnoses of pervasive developmental disorders. American Journal of Psychiatry, 169(10), 1056-1064. doi:10.1176/appi.ajp.2012.12020276.
17. Johnson, C. P., & Myers, S. M. (2007). Identification and evaluation of children with autism spectrum disorders. Pediatrics, 120(5), 1183-1215. doi:10.1542/peds.2007-2361. (Pubitemid 350085561)
18. King, M., & Bearman, P. (2009). Diagnostic change and the increased prevalence of autism. International Journal of Epidemiology, 38(5), 1224-1234.
19. Lane, C. (May 4, 2013). The NIMH Withdraws Support for DSM-5. Psychology today. http://www.psychologytoday.com/blog/side-effects/201305/the-nimh- withdraws-support-dsm-5.
20. Lord, C., Rutter, M., DiLavore, P. C., & Risi, S. (1999). Autism diagnostic observation schedule (WPS ed.). Los Angeles: Western Psychological Services.
21. Lucas, N. P., Macaskill, P., Irwig, L., & Bogduk, N. (2010). The development of a quality appraisal tool for studies of diagnostic reliability (QAREL). Journal of Clinical Epidemiology, 63(8), 854-861. doi:10.1016/j. jclinepi.2009.10.002.
22. Mark, T. L., Buck, J. A., Dilonardo, J. D., Coffey, R. M., & Chalk, M. (2003). Medicaid expenditures on behavioral health care. Psychiatric Services (Washington, D. C.), 54(2), 188-194. (Pubitemid 36752849)
23. Matson, J. L., Beighley, J., & Turygin, N. (2012a). Autism diagnosis and screening: factors to consider in differential diagnosis. Research in Autism Spectrum Disorders, 6, 19-24.
24. Matson, J. L., Belva, B. C., Horovitz, M., Kozlowski, A. M., & Bamberg, J. W. (2012b). Comparing symptoms of autism spectrum disorders in a developmentally disabled adult population using the current DSM-IV-TR diagnostic criteria and the proposed DSM-5 diagnostic criteria. Journal of Developmental and Physical Disabilities, 24(4), 403-414.
25. Matson, J. L., Kozlowski, A. M., Hattier, M. A., Horovitz, M., & Sipes, M. (2012c). DSM-IV vs DSM-5 diagnostic criteria for toddlers with autism. Developmental Neurorehabilitation, 15(3), 185-190. doi:10.3109/17518423.2012. 672341.
26. Matson, J. L., Wilkins, J., & Gonzalez, M. (2008). Early identification and diagnosis in autism spectrum disorders in young children and infants: How early is too early? Research in Autism Spectrum Disorders, 2, 75-84. (Pubitemid 351181799)
27. Mattila, M. L., Kielinen, M., Linna, S. L., Jussila, K., Ebeling, H., Bloigu, R., et al. (2011). Autism spectrum disorders according to DSM-IV-TR and comparison with DSM-5 draft criteria: An epidemiological study. Journal of the American Academy of Child and Adolescent Psychiatry, 50(6), 583-592. doi:10.1016/j.jaac.2011.04.001. e511.
28. Mazefsky, C. A., McPartland, J. C., Gastgeb, H. Z., & Minshew, N. J. (2013). Brief report: Comparability of DSM-IV and DSM-5 ASD research samples. Journal of Autism and Developmental Disorders, 43(5), 1236-1242.
29. McClure, I., Mackay, T., Mamdani, H., & McCaughey, R. (2010). A comparison of a specialist autism spectrum disorder assessment team with local assessment teams. Autism, 14(6), 589-603. doi:10.1177/1362361310373369.
30. McPartland, J. C., Reichow, B., & Volkmar, F. R. (2012). Sensitivity and specificity of proposed DSM-5 diagnostic criteria for autism spectrum disorder. Journal of the American Academy of Child and Adolescent Psychiatry, 51(4), 368-383. doi:10.1016/j.jaac.2012.01.007.
31. Moher, D., Liberati, A., Tetzlaff, J., & Altman, D. G. (2009). Preferred reporting items for systematic reviews and metaanalyses: the PRISMA statement. Annals of internal Medicine, 151(4), 264-269. W264.
32. Montes, G., Halterman, J. S., & Magyar, C. I. (2009). Access to and satisfaction with school and community health services for US children with ASD. Pediatrics, 124(Suppl 4), S407-S413. doi:10.1542/peds.2009-1255L.
33. National Conference of State Legislatures. (August 2012). Insurance coverage for autism. http://www.ncsl.org/issues-research/health/autism-and- insurance-coverage-state-laws.aspx.
34. Neal, D., Matson, J. L., & Hattier, M. A. (2012). A comparison of diagnostic criteria on the autism spectrum disorder observation for children (ASD-OC). Developmental Neurorehabilitation, 15(5), 329-335. doi:10.3109/17518423.2012.697492.
35. Newschaffer, C. J., & Curran, L. K. (2003). Autism: an emerging public health problem. Public Health Reports, 118(5), 393-399. (Pubitemid 37059473)
36. Peterson, K., & Barbel, P. (2013). On alert for autism spectrum disorders. Nursing, 43(4), 28-34. quiz 35.
37. Regier, D. A., Narrow, W. E., Clarke, D. E., Kraemer, H. C., Kuramoto, S. J., Kuhl, E. A., et al. (2013). DSM-5 field trials in the United States and Canada, Part II: Test-retest reliability of selected categorical diagnoses. American Journal of Psychiatry, 170(1), 59-70. doi:10.1176/appi.ajp.2012. 12070999.
38. Robertson, K., Stafford, T., Benedicto, J., & Hocking, N. (2013). Autism assessment: The Melton health model. Journal of Paediatrics and Child Health. doi:10.1111/jpc.12303.
39. Robison, J.E. (January 17, 2013). Social Communication Disorder - is it "Autism Lite?". Psychology Today. April 25, 2013, http://www. psychologytoday.com/blog/my-life-aspergers/201301/social-communication-disorder- is-it-autism-lite.
40. Rossi, J., Newschaffer, C., & Yudell, M. (2013). Autism spectrum disorders, risk communication, and the problem of inadvertent harm. Kennedy Institute of Ethics Journal, 23(2), 105-138.
41. Ruble, L. A., Heflinger, C. A., Renfrew, J. W., & Saunders, R. C. (2005). Access and service use by children with autism spectrum disorders in Medicaid Managed Care. Journal of Autism and Developmental Disorders, 35(1), 3-13. (Pubitemid 40879813)
42. Rutter, M., Le Couteur, A., & Lord, C. (2002). Autism diagnostic interview-revised (ADI-R). Los Angeles: Western Psychological Services.
43. State of Connecticut. (June 5, 2013). Senate Bill No. 1029, Public Act No. 13-84, "An act concerning health insurance coverage for autism spectrum disorders". http://www.cga.ct.gov/2013/ACT/PA/2013PA-00084-R00SB-01029-PA. htm.
44. Taheri, A., & Perry, A. (2012). Exploring the proposed DSM-5 criteria in a clinical sample. Journal of Autism and Developmental Disorders, 42(9), 1810-1817. doi:10.1007/s10803-012-1599-4.
45. Wilson, C. E., Gillan, N., Spain, D., Robertson, D., Roberts, G., Murphy, C. M., et al. (2013). Comparison of ICD-10R, DSM-IVTR and DSM-5 in an adult autism spectrum disorder diagnostic clinic. Journal of Autism and Developmental Disorders. doi:10.1007/s10803-013-1799-6.
46. Woolfenden, S., Sarkozy, V., Ridley, G., & Williams, K. (2012). A systematic review of the diagnostic stability of autism spectrum disorder. Research in Autism Spectrum Disorders, 6(1), 345-354.
47. Worley, J. A., & Matson, J. L. (2012). Comparing symptoms of autism spectrum disorders using the current DSM-IV-TR diagnostic criteria and the proposed DSM-V diagnostic criteria. Research in Autism Spectrum Disorders, 6(2), 965-970.
48. You, Y., Wu, B.-L., & Shen, Y. (2011). A pilot study on the diagnostic performance of DSM-IV and DSM-V for autism spectrum disorder. North American Journal of Medicine and Science, 4(3), 116-123.