Attitudes of parents toward the return of targeted and incidental genomic research findings in children

Genetics in Medicine

Volumn 16, Issue 8, 2014, Pages 633-640

  Fernandez, Conrad V ^a   Bouffet, Eric ^b   Malkin, David ^b   Jabado, Nada ^c   O'Connell, Colleen ^a   Avard, Denise ^d   Knoppers, Bartha M ^d   Ferguson, Meghan ^a   Boycott, Kym M ^e   Sorensen, Poul H ^f   Orr, Andrew C ^g   Robitaille, Johane M ^g   McMaster, Christopher R ^h  

^a IWK HEALTH CENTRE   (Canada)

^b HOSPITAL FOR SICK CHILDREN   (Canada)

^c MCGILL UNIVERSITY HEALTH CENTRE   (Canada)

^d MCGILL UNIVERSITY   (Canada)

^e CHILDREN S HOSPITAL OF EASTERN ONTARIO   (Canada)

^f UNIVERSITY OF BRITISH COLUMBIA   (Canada)

^g DALHOUSIE UNIVERSITY   (Canada)

^h DALHOUSIE UNIVERSITY   (Canada)

Author keywords

genomics; incidental findings; next generation sequencing; participants

Indexed keywords

ADULT; ATTITUDE TO HEALTH; CANADA; CHILD; FEMALE; GENETICS; GENOMICS; HUMAN; INCIDENTAL FINDING; MALE; MIDDLE AGED; PARENT; PSYCHOLOGY; QUESTIONNAIRE; ARTICLE; CANCER RISK; CHILDHOOD CANCER; CHILDHOOD DISEASE; DISEASE SEVERITY; EXTENDED FAMILY; GENETIC SUSCEPTIBILITY; GENOME; HIGH RISK POPULATION; HUMAN RIGHTS; ONSET AGE; PARENTAL ATTITUDE; SIBLING; UNCERTAINTY;

ADULT; CANADA; CHILD; FEMALE; GENETIC RESEARCH; GENOMICS; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; INCIDENTAL FINDINGS; MALE; MIDDLE AGED; PARENTS; QUESTIONNAIRES;

EID: 84905592105     PISSN: 10983600     EISSN: 15300366     Source Type: Journal    
DOI: 10.1038/gim.2013.201     Document Type: Article

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