Returning incidental findings from genetic research to children: Views of parents of children affected by rare diseases

Journal of Medical Ethics

Volumn 40, Issue 10, 2014, Pages 691-696

  Kleiderman, Erika ^a   Knoppers, Bartha Maria ^a   Fernandez, Conrad V ^b   Boycott, Kym M ^c   Ouellette, Gail ^d   Wong Rieger, Durhane ^e   Adam, Shelin ^f   Richer, Julie ^c   Avard, Denise ^a  

^a MCGILL UNIVERSITY   (Canada)

^b DALHOUSIE UNIVERSITY   (Canada)

^c CHILDREN S HOSPITAL OF EASTERN ONTARIO   (Canada)

^d Regroupement Québécois des Maladies Orphelines   (Canada)

^e Canadian Organization for Rare Disorders   (Canada)

^f UNIVERSITY OF BRITISH COLUMBIA   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADULT; CHILD; ETHICS; FEMALE; GENETICS; HUMAN; INCIDENTAL FINDING; MALE; MIDDLE AGED; PARENT; PEDIATRICS; PRESCHOOL CHILD; PSYCHOLOGY; RARE DISEASES; YOUNG ADULT;

ADOLESCENT; ADULT; CHILD; CHILD, PRESCHOOL; FEMALE; GENETIC RESEARCH; HUMANS; INCIDENTAL FINDINGS; MALE; MIDDLE AGED; PARENTS; PEDIATRICS; RARE DISEASES; YOUNG ADULT;

EID: 84902212511     PISSN: 03066800     EISSN: 14734257     Source Type: Journal    
DOI: 10.1136/medethics-2013-101648     Document Type: Article

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