Disclosing pathogenic genetic variants to research participants: Quantifying an emerging ethical responsibility

Genome Research

Volumn 22, Issue 3, 2012, Pages 421-428

  Cassa, Christopher A ^a,b   Savage, Sarah K ^a   Taylor, Patrick L ^c   Green, Robert C ^b,d   McGuire, Amy L ^e   Mandl, Kenneth D ^a,b,f  

^a BOSTON CHILDREN S HOSPITAL   (United States)

^b HARVARD MEDICAL SCHOOL   (United States)

^c HARVARD LAW SCHOOL   (United States)

^d BRIGHAM AND WOMEN S HOSPITAL   (United States)

^e BAYLOR COLLEGE OF MEDICINE   (United States)

^f Harvard Medical School Center for Biomedical Informatics   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CRITERION RELATED VALIDITY; GENE MUTATION; GENETIC ASSOCIATION; GENETIC INFORMATION DISCLOSURE; GENETIC VARIABILITY; HUMAN; INFORMED CONSENT; INTERPERSONAL COMMUNICATION; PHENOTYPE; PRACTICE GUIDELINE; PRIORITY JOURNAL; RESEARCH ETHICS; RESEARCH SUBJECT; UNITED STATES;

DISCLOSURE; ETHICS, RESEARCH; GENETIC COUNSELING; GENETIC PRIVACY; GENETIC RESEARCH; GENETIC VARIATION; GENOME-WIDE ASSOCIATION STUDY; HUMANS; UNITED STATES;

EID: 84857855694     PISSN: 10889051     EISSN: 15495469     Source Type: Journal    
DOI: 10.1101/gr.127845.111     Document Type: Article

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