Parent perspectives on pediatric genetic research and implications for genotype-driven research recruitment

Journal of Empirical Research on Human Research Ethics

Volumn 6, Issue 4, 2011, Pages 41-52

  Tabor, Holly K ^a   Brazg, Tracy ^a   Crouch, Julia ^a   Namey, Emily E ^b   Fullerton, Stephanie M ^a   Beskow, Laura M ^b   Wilfond, Benjamin S ^a  

^a UNIVERSITY OF WASHINGTON SCHOOL OF MEDICINE   (United States)

^b DUKE UNIVERSITY MEDICAL CENTER   (United States)

Author keywords

Autism; Benefit; Diabetes; Ethics; Genotype driven; Informed consent; Recruitment; Risk

Indexed keywords

ADULT; ARTICLE; ATTITUDE; CHILD; ETHICS; FEMALE; GENETICS; GENOTYPE; HUMAN; INTERPERSONAL COMMUNICATION; INTERVIEW; MALE; MIDDLE AGED; PARENT; PATIENT SELECTION; QUALITATIVE RESEARCH; RESEARCH SUBJECT;

ADULT; ATTITUDE; CHILD; DISCLOSURE; FEMALE; GENETIC RESEARCH; GENOTYPE; HUMANS; INTERVIEWS AS TOPIC; MALE; MIDDLE AGED; PARENTS; PATIENT SELECTION; QUALITATIVE RESEARCH; RESEARCH SUBJECTS;

EID: 84855535566     PISSN: 15562646     EISSN: 15562654     Source Type: Journal    
DOI: 10.1525/jer.2011.6.4.41     Document Type: Article

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