메뉴 건너뛰기




Volumn 149, Issue 1 SUPPL., 2006, Pages

Ethical issues arising from the participation of children in genetic research

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CONFIDENTIALITY; DATA ANALYSIS; GENETIC DISORDER; GENETIC IDENTIFICATION; HEALTH CARE; HUMAN; HUMAN GENOME PROJECT; INFORMED CONSENT; INTERPERSONAL COMMUNICATION; MEDICAL ETHICS; MEDICAL RESEARCH; PRIORITY JOURNAL; VALIDATION PROCESS;

EID: 33745738700     PISSN: 00223476     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jpeds.2006.04.049     Document Type: Article
Times cited : (55)

References (39)
  • 1
    • 33745756645 scopus 로고    scopus 로고
    • Clark C. Blueprint of the Body. On the threshold of a rave new world. CNN.com. Available online at: http://www.cnn.com/SPECIALS/2000/genome/story/overview/. accessed September 26, 2005.
  • 2
    • 33745744765 scopus 로고    scopus 로고
    • Collins FS, quoted in International Consortium Completes Human Genome Project. National Human Genome Research Institute. Available online at: http://www.genome.gov/11006929. accessed September 26, 2005.
  • 3
    • 0029443996 scopus 로고
    • Drafting the genetic privacy act. science, policy, and practical considerations
    • Annas G.J., Glantz L.H., and Roche P.A. Drafting the genetic privacy act. science, policy, and practical considerations. J Law Med Ethics 23 (1995) 360-366
    • (1995) J Law Med Ethics , vol.23 , pp. 360-366
    • Annas, G.J.1    Glantz, L.H.2    Roche, P.A.3
  • 5
    • 33745749862 scopus 로고    scopus 로고
    • University of Toronto. Researchers isolate gene for Crohn's disease. Available online at: http://www.newsandevents.utoronto.ca/bin5/040412a.asp. accessed September 26, 2005.
  • 6
    • 0037070248 scopus 로고    scopus 로고
    • The media and public reaction to genetic research
    • Geller G., Bernhardt B.A., and Holtzman N.A. The media and public reaction to genetic research. JAMA 287 (2002) 773
    • (2002) JAMA , vol.287 , pp. 773
    • Geller, G.1    Bernhardt, B.A.2    Holtzman, N.A.3
  • 8
    • 0002062234 scopus 로고    scopus 로고
    • Genetic exceptionalism and "future diaries". is genetic information different from other medical information?
    • Rothstien M. (Ed), Yale University Press, New Haven, CT
    • Murray T.H. Genetic exceptionalism and "future diaries". is genetic information different from other medical information?. In: Rothstien M. (Ed). Genetic Secrets. Protecting Privacy and Confidentiality in the Genetic Era (1997), Yale University Press, New Haven, CT
    • (1997) Genetic Secrets. Protecting Privacy and Confidentiality in the Genetic Era
    • Murray, T.H.1
  • 9
    • 0029418165 scopus 로고
    • The ethics of prediction. genetic risk and the physician-patient relationship
    • Jeungst E. The ethics of prediction. genetic risk and the physician-patient relationship. Genome Science Tech 1 (1995) 21-36
    • (1995) Genome Science Tech , vol.1 , pp. 21-36
    • Jeungst, E.1
  • 10
    • 33745741534 scopus 로고    scopus 로고
    • Comments by Dr. Francis S. Collins Regarding the Passage of Genetic Information Nondiscrimination Act of 2005 (S. 306). Available online at: http://www.genome.gov/pfv.cfm?pageid=13014311. accessed September 26, 2005.
  • 11
    • 0033486029 scopus 로고    scopus 로고
    • Mercaptopurine therapy intolerance and heterozygosity at the thiopurine S-methyltransferase gene locus
    • Relling M.V., Hancock H.L., Rivera G.K., Sandlund J.T., Ribeiro R.C., Krynetski E.Y., et al. Mercaptopurine therapy intolerance and heterozygosity at the thiopurine S-methyltransferase gene locus. JNCI 91 (1999) 2001-2008
    • (1999) JNCI , vol.91 , pp. 2001-2008
    • Relling, M.V.1    Hancock, H.L.2    Rivera, G.K.3    Sandlund, J.T.4    Ribeiro, R.C.5    Krynetski, E.Y.6
  • 12
    • 20444419044 scopus 로고    scopus 로고
    • Pharmacogenetics of outcome in children with acute lymphoblastic leukemia
    • Rocha J.C.C., Cheng C., Liu W., Kishi S., Das S., Cook E.H., et al. Pharmacogenetics of outcome in children with acute lymphoblastic leukemia. Blood 105 (2005) 4752-4758
    • (2005) Blood , vol.105 , pp. 4752-4758
    • Rocha, J.C.C.1    Cheng, C.2    Liu, W.3    Kishi, S.4    Das, S.5    Cook, E.H.6
  • 13
    • 0041830430 scopus 로고    scopus 로고
    • Genomics as probe for disease biology
    • Burke W. Genomics as probe for disease biology. New Engl J Med 349 (2003) 969-974
    • (2003) New Engl J Med , vol.349 , pp. 969-974
    • Burke, W.1
  • 14
    • 7444257301 scopus 로고    scopus 로고
    • Ethical issues in identifying and recruiting participants for familial genetic research
    • Beskow L.M., Botkin J.R., Daly M., Juengst E.T., Lehmann L.S., et al. Ethical issues in identifying and recruiting participants for familial genetic research. Am J Med Genet 130A (2004) 424-431
    • (2004) Am J Med Genet , vol.130 A , pp. 424-431
    • Beskow, L.M.1    Botkin, J.R.2    Daly, M.3    Juengst, E.T.4    Lehmann, L.S.5
  • 15
    • 0028806086 scopus 로고
    • Ethical concerns in the research and treatment of complex disease
    • Parker L.S. Ethical concerns in the research and treatment of complex disease. Trends Genet 11 (1995) 520-523
    • (1995) Trends Genet , vol.11 , pp. 520-523
    • Parker, L.S.1
  • 16
    • 24644472331 scopus 로고    scopus 로고
    • Ethical issues associated with conducting genetic family studies of complex disease
    • Arar N.H., Hazuda H., Steinbach R., Arar M.Y., and Abboud H.E. Ethical issues associated with conducting genetic family studies of complex disease. Ann Epidemiol 15 (2005) 712-719
    • (2005) Ann Epidemiol , vol.15 , pp. 712-719
    • Arar, N.H.1    Hazuda, H.2    Steinbach, R.3    Arar, M.Y.4    Abboud, H.E.5
  • 17
    • 0032945446 scopus 로고    scopus 로고
    • The emerging importance of genetics in epidemiologic research, I. basic concepts in human genetics and laboratory technology
    • Ellsworth D.L., and Manolio T.A. The emerging importance of genetics in epidemiologic research, I. basic concepts in human genetics and laboratory technology. Ann Epidemiol 9 (1999) 1-16
    • (1999) Ann Epidemiol , vol.9 , pp. 1-16
    • Ellsworth, D.L.1    Manolio, T.A.2
  • 18
    • 2642585738 scopus 로고    scopus 로고
    • The case for a US prospective cohort study of genes and environment
    • Collins F.S. The case for a US prospective cohort study of genes and environment. Nature 429 (2004) 475-477
    • (2004) Nature , vol.429 , pp. 475-477
    • Collins, F.S.1
  • 19
    • 0038618794 scopus 로고    scopus 로고
    • Genebanks. a comparison of eight proposed international genetic databases
    • Austin M.A., Harding S., and McElroy C. Genebanks. a comparison of eight proposed international genetic databases. Commun Genet 6 (2003) 37-45
    • (2003) Commun Genet , vol.6 , pp. 37-45
    • Austin, M.A.1    Harding, S.2    McElroy, C.3
  • 20
    • 0345134216 scopus 로고    scopus 로고
    • Monitoring ethical, legal, and social issues in developing population genetic databases
    • Austin M.A., Harding S.E., and McElroy C.E. Monitoring ethical, legal, and social issues in developing population genetic databases. Genet Med 5 (2003) 451-457
    • (2003) Genet Med , vol.5 , pp. 451-457
    • Austin, M.A.1    Harding, S.E.2    McElroy, C.E.3
  • 21
    • 33745736704 scopus 로고    scopus 로고
    • HHS Office for Human Research Protections Policy Guidance. Available online at: http://www.hhs.gov/ohrp/policy/. accessed September 26, 2005.
  • 22
    • 0347750518 scopus 로고    scopus 로고
    • DNA databanks and consent. a suggested policy option involving an authorization model
    • Available online at: www.biomedcentral.com/1472-6939/4/1.
    • Caulfield T., Upshur R.E.G., and Daar A. DNA databanks and consent. a suggested policy option involving an authorization model. BMC Medical Ethics (2003) 4. http://www.biomedcentral.com/1472-6939/4/1 Available online at: www.biomedcentral.com/1472-6939/4/1.
    • (2003) BMC Medical Ethics , pp. 4
    • Caulfield, T.1    Upshur, R.E.G.2    Daar, A.3
  • 23
    • 5044225199 scopus 로고    scopus 로고
    • Encoded evidence. DNA in forensic analysis
    • Jopling M.A., and Gill P. Encoded evidence. DNA in forensic analysis. Nat Rev Genet 5 (2004) 739-751
    • (2004) Nat Rev Genet , vol.5 , pp. 739-751
    • Jopling, M.A.1    Gill, P.2
  • 24
    • 11144291050 scopus 로고    scopus 로고
    • Attitudes of healthcare professionals and parents regarding genetic testing for violent traits in childhood
    • Campbell E., and Ross L.F. Attitudes of healthcare professionals and parents regarding genetic testing for violent traits in childhood. J Med Ethics 30 (2004) 580-586
    • (2004) J Med Ethics , vol.30 , pp. 580-586
    • Campbell, E.1    Ross, L.F.2
  • 25
    • 0037008485 scopus 로고    scopus 로고
    • Role of genotype in the cycle of violence in maltreated children
    • Caspi A., McClay J., Moffitt T.E., Mill J., Martin J., Craig I.W., et al. Role of genotype in the cycle of violence in maltreated children. Science 297 (2002) 851-854
    • (2002) Science , vol.297 , pp. 851-854
    • Caspi, A.1    McClay, J.2    Moffitt, T.E.3    Mill, J.4    Martin, J.5    Craig, I.W.6
  • 26
    • 20944446077 scopus 로고    scopus 로고
    • Moderation of the effect of adolescent-onset cannabis use on adult psychosis by a functional polymorphism in the catechol-O-methyltransferase gene. longitudinal evidence of a gene X environment interaction
    • Caspi A., Moffitt T.E., Cannon M., McClay J., Murray R., Harrington H., et al. Moderation of the effect of adolescent-onset cannabis use on adult psychosis by a functional polymorphism in the catechol-O-methyltransferase gene. longitudinal evidence of a gene X environment interaction. Biol Psychiatry 57 (2005) 1117-1127
    • (2005) Biol Psychiatry , vol.57 , pp. 1117-1127
    • Caspi, A.1    Moffitt, T.E.2    Cannon, M.3    McClay, J.4    Murray, R.5    Harrington, H.6
  • 27
    • 27744538134 scopus 로고    scopus 로고
    • Psychosocial risk associated with newborn screening for cystic fibrosis. parents' experience while awaiting the sweat-test appointment
    • Tluczek A., Koscik R.L., Farrell P.M., and Rock M.J. Psychosocial risk associated with newborn screening for cystic fibrosis. parents' experience while awaiting the sweat-test appointment. Pediatrics 115 (2005) 1692-1703
    • (2005) Pediatrics , vol.115 , pp. 1692-1703
    • Tluczek, A.1    Koscik, R.L.2    Farrell, P.M.3    Rock, M.J.4
  • 28
    • 21744455286 scopus 로고    scopus 로고
    • Newborn screening. new developments, new dilemmas
    • Kerruish N.J., and Robertson S.P. Newborn screening. new developments, new dilemmas. J Med Ethics 31 (2005) 393-398
    • (2005) J Med Ethics , vol.31 , pp. 393-398
    • Kerruish, N.J.1    Robertson, S.P.2
  • 30
    • 33745761300 scopus 로고    scopus 로고
    • Image Archive on the American Eugenics Movement. Available online at: www.eugenicsarchive.org/eugenics/. accessed September 26, 2005.
  • 33
    • 33745763682 scopus 로고    scopus 로고
    • National Bioethics Advisory Commission. Research involving human biological materials: ethical issues and policy guidance. Vol 1. Available online at: http://www.bioethics.gov/reports/past_commissions/nbac_biological1.pdf. accessed September 26, 2005.
  • 34
    • 9744238850 scopus 로고    scopus 로고
    • Disclosure of genetic information obtained through research
    • Quaid K.A., Jessop N.M., and Meslin E.M. Disclosure of genetic information obtained through research. Genet Test 8 (2004) 347-355
    • (2004) Genet Test , vol.8 , pp. 347-355
    • Quaid, K.A.1    Jessop, N.M.2    Meslin, E.M.3
  • 35
    • 0035861017 scopus 로고    scopus 로고
    • Informed consent for population-based research involving genetics
    • Beskow L.M., Burke W., Merz J.F., Barr P.A., Terry S., Penchaszadeh V., et al. Informed consent for population-based research involving genetics. JAMA 286 (2001) 2315-2321
    • (2001) JAMA , vol.286 , pp. 2315-2321
    • Beskow, L.M.1    Burke, W.2    Merz, J.F.3    Barr, P.A.4    Terry, S.5    Penchaszadeh, V.6
  • 36
    • 0028872836 scopus 로고
    • ASHG/ACMG Report. Points to consider: ethical, legal, and psychosocial implications of genetic testing in children and adolescents
    • ASHG/ACMG Report. Points to consider: ethical, legal, and psychosocial implications of genetic testing in children and adolescents. Am J Hum Genet 57 (1995) 1233-1241
    • (1995) Am J Hum Genet , vol.57 , pp. 1233-1241
  • 38
    • 3142773390 scopus 로고    scopus 로고
    • International HapMap Consortium. Integrating ethics and science in the international HapMap project
    • International HapMap Consortium. Integrating ethics and science in the international HapMap project. Nat Rev Genet 5 (2004) 467-475
    • (2004) Nat Rev Genet , vol.5 , pp. 467-475
  • 39
    • 0034644254 scopus 로고    scopus 로고
    • Will genetics revolutionize medicine?
    • Holtzman N.A., and Marteau T.M. Will genetics revolutionize medicine?. N Engl J Med 343 (2000) 141-144
    • (2000) N Engl J Med , vol.343 , pp. 141-144
    • Holtzman, N.A.1    Marteau, T.M.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.