Interventions to enhance informed choices among invitees of screening programmes - A systematic review

European Journal of Public Health

Volumn 24, Issue 5, 2013, Pages 789-801

  Van Agt, Heleen M E ^a   Korfage, Ida J ^a   Essink Bot, Marie Louise ^b  

^a ERASMUS MEDICAL CENTER   (Netherlands)

^b UNIVERSITY OF AMSTERDAM   (Netherlands)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGED; ATTITUDE TO HEALTH; DECISION MAKING; FEMALE; FETAL DISEASES; HUMAN; MALE; MASS SCREENING; MIDDLE AGED; NEOPLASMS; NEWBORN; NEWBORN SCREENING; PATIENT PARTICIPATION; PREGNANCY; PRENATAL DIAGNOSIS; PROCEDURES; PROGRAM EVALUATION; STATISTICS AND NUMERICAL DATA;

ADULT; AGED; CHOICE BEHAVIOR; FEMALE; FETAL DISEASES; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; INFANT, NEWBORN; MALE; MASS SCREENING; MIDDLE AGED; NEONATAL SCREENING; NEOPLASMS; PATIENT PARTICIPATION; PREGNANCY; PRENATAL DIAGNOSIS; PROGRAM EVALUATION;

EID: 84903195467     PISSN: 11011262     EISSN: 1464360X     Source Type: Journal    
DOI: 10.1093/eurpub/ckt205     Document Type: Article

References (44)

1. Minister of Health. Letter About Screening [Kaderbrief Screening]. The Hague, 2008.
2. General Medical Council. Seeking Patients' Consent: The Ethical Considerations. London, 1998.
3. Raffle AE. Information about screening-is it to achieve high uptake or to ensure informed choice? Health Expect 2001;4:92-8.
4. Marteau TM, Kinmonth AL. Screening for cardiovascular risk: public health imperative or matter for individual informed choice? BMJ 2002;325:78-80.
5. Austoker J. Gaining informed consent for screening. Is difficult-but many misconceptions need to be undone. BMJ 1999;319:722-3.
6. Beauchamp TL, Childress JF. Principles of Biomedical Ethics, 5th edn. New York City, NY: Oxford University Press, 2001.
7. van den Heuvel A, Marteau TM. Cultural variation in values attached to informed choice in the context of prenatal diagnosis. Semin Fetal Neonatal Med 2008;13: 99-102.
8. de Koning HJ, van Ineveld BM, van Oortmarssen GJ, et al. Breast cancer screening and cost-effectiveness; policy alternatives, quality of life considerations and the possible impact of uncertain factors. Int J Cancer 1991;49:531-7.
9. Zapka JG, Geller BM, Bulliard JL, et al. Print information to inform decisions about mammography screening participation in 16 countries with population-based programs. Patient Educ Couns 2006;63:126-37.
10. Barratt A, Irwig L, Glasziou P, et al. Users' guides to the medical literature: XVII. How to use guidelines and recommendations about screening. Evidence-Based Medicine Working Group. JAMA 1999;281:2029-34.
11. Jepson RG, Hewison J, Thompson A, Weller D. Patient perspectives on information and choice in cancer screening: a qualitative study in the UK. Soc Sci Med 2007;65: 890-9.
12. Jepson RG, Hewison J, Thompson AG, Weller D. How should we measure informed choice? The case of cancer screening. J Med Ethics 2005;31:192-6.
13. Marteau TM, Dormandy E, Michie S. A measure of informed choice. Health Expect 2001;4:99-108.
14. O'Connor AM, Rostom A, Fiset V, et al. Decision aids for patients facing health treatment or screening decisions: systematic review. BMJ 1999;319:731-4.
15. Korfage IJ, van Ballegooijen M, Wauben B, et al. Informed choice on Pap smear still limited by lack of knowledge on the meaning of false-positive or false-negative test results. Patient Educ Couns 2011;85:214-8.
16. van den Bergh KA, Essink-Bot ML, van Klaveren RJ, de Koning HJ. Informed participation in a randomised controlled trial of computed tomography screening for lung cancer. Eur Respir J 2009;34:711-20.
17. Stacey D, Bennett CL, Barry MJ, et al. Decision aids for people facing health treatment or screening decisions. Cochrane Database Syst Rev 2011: CD001431.
18. van den Berg M, Timmermans DR, ten Kate LP, et al. Informed decision making in the context of prenatal screening. Patient Educ Couns 2006;63:110-7.
19. Higgins JPT, Green S. Cochrane Handbook for Systematic Reviews of Interventions. Available at: www.cochrane-handbook.org. Version 5.1.0, 2011 (September 2013, date last accessed
20. Bjorklund U, Marsk A, Levin C, Ohman SG. Audiovisual information affects informed choice and experience of information in antenatal Down syndrome screening-A randomized controlled trial. Patient Educ Couns 2012;86:390-5.
21. Drake ER, Engler-Todd L, O'Connor AM, et al. Development and evaluation of a decision aid about prenatal testing for women of advanced maternal age. J Genet Counseling 1999;8:217-33.
22. Dormandy E, Michie S, Hooper R, Marteau TM. Informed choice in antenatal Down syndrome screening: a cluster-randomised trial of combined versus separate visit testing. Patient Educ Couns 2006;61:56-64.
23. Hwa HL, Huang LH, Hsieh FJ, Chow SN. Informed consent for antenatal serum screening for Down syndrome. Taiwan J Obstet Gynecol 2010;49:50-6.
24. Kaiser AS, Ferris LE, Pastuszak AL, et al. The effects of prenatal group genetic counselling on knowledge, anxiety and decisional conflict: issues for nuchal translucency screening. J Obstet Gynaecol 2002;22:246-55.
25. Kuppermann M, Norton ME, Gates E, et al. Computerized prenatal genetic testing decision-Assisting tool: a randomized controlled trial. Obstet Gynecol 2009;113:53-63.
26. Michie S, Smith D, McClennan A, Marteau TM. Patient decision making: an evaluation of two different methods of presenting information about a screening test. Br J Health Psychol 1997;2:317-26.
27. Nagle C, Gunn J, Bell R, et al. Use of a decision aid for prenatal testing of fetal abnormalities to improve women's informed decision making: a cluster randomised controlled trial [ISRCTN22532458]. BJOG 2008;115:339-47.
28. Haakenson CP, Vickers KS, Cha SS, et al. Efficacy of a simple, low-cost educational intervention in improving knowledge about risks and benefits of screening mammography. Mayo Clin Proc 2006;81:783-91.
29. Lewis CL, Pignone MP, Sheridan SL, et al. A randomized trial of three videos that differ in the framing of information about mammography in women 40 to 49 years old. J Gen Int Med 2003;18:875-83.
30. Mathieu E, Barratt A, Davey HM, et al. Informed choice in mammography screening: a randomized trial of a decision aid for 70-year-old women. Arch Int Med 2007;167:2039-46.
31. Mathieu E, Barratt AL, McGeechan K, et al. Helping women make choices about mammography screening: an online randomized trial of a decision aid for 40-yearold women. Patient Educ Couns 2010;81:63-72.
32. Smith SK, Trevena L, Simpson JM, et al. A decision aid to support informed choices about bowel cancer screening among adults with low education: randomised controlled trial. BMJ 2010;341:c5370.
33. Steckelberg A, Hülfenhaus C, Haastert B, Mühlhauser I. Effect of evidence based risk information on ''informed choice'' in colorectal cancer screening: randomised controlled trial. BMJ 2011;342:d3193.
34. Trevena LJ, Irwig L, Barratt A. Randomized trial of a self-Administered decision aid for colorectal cancer screening. J Med Screen 2008;15:76-82.
35. Durand M-A, Stiel M, Boivin J, Elwyn G. Where is the theory? Evaluating the theoretical frameworks described in decision support technologies. Patient Educ Counsel 2008;71:125-35.
36. Elwyn G, Frosch D, Volandes AE, et al. Investing in deliberation: a definition and classification of decision support interventions for people facing difficult health decisions. Med Decis Making 2010;30:701-11.
37. Green L, Kreuter M. Health Program Planning: An Educational and Ecological Approach. NY, London: McGraw-Hill, 2005.
38. Elwyn G, Miron-Shatz T. Deliberation before determination: the definition and evaluation of good decision making. Health Expect 2010;13:139-47.
39. McCaffery KJ, Smith SK, Wolf M. The challenge of shared decision making among patients with lower literacy: a framework for research and development. Med Decis Making 2010;30:35-44.
40. Jepson R, Clegg A, Forbes C, et al. The determinants of screening uptake and interventions for increasing uptake: a systematic review. Health Technol Assess 2000; 4:i-vii, 1-133.
41. Green JM, Hewison J, Bekker HL, et al. Psychosocial aspects of genetic screening of pregnant women and newborns: a systematic review. Health Technol Assess 2004;8: iii, ix-x, 1-109.
42. van Agt H, Fracheboud J, van der Steen A, de Koning H. Do women make an informed choice about participating in breast cancer screening A survey among women invited for a first mammography screening examination. Patient Educ Couns 2012;89:353-9.
43. Fransen MP, Essink-Bot ML, Oenema A, et al. Ethnic differences in determinants of participation and non-participation in prenatal screening for Down syndrome: a theoretical framework. Prenat Diagn 2007;27:938-50.
44. Conner M, Norman P, editors. Predicting Health Behaviour. Buckingham: Open University Press, 1996.