Ethnic differences in determinants of participation and non-participation in prenatal screening for Down syndrome: A theoretical framework

Prenatal Diagnosis

Volumn 27, Issue 10, 2007, Pages 938-950

  Fransen, Mirjam P ^a   Essink Bot, Marie Louise ^a   Oenema, Anke ^a   Mackenbach, Johan P ^a   Steegers, Eric A P ^a   Wildschut, Hajo I J ^a  

^a ERASMUS MEDICAL CENTER   (Netherlands)

Author keywords

Down syndrome; Ethnic differences; Focus group interviews; Prenatal screening; Stage model

Indexed keywords

ARTICLE; CULTURAL ANTHROPOLOGY; DECISION MAKING; DOWN SYNDROME; ETHNIC DIFFERENCE; ETHNIC GROUP; HUMAN; INTERVIEW; NETHERLANDS; PREGNANCY; PRENATAL SCREENING; PRIORITY JOURNAL; RELIGION;

ADULT; DECISION SUPPORT TECHNIQUES; DOWN SYNDROME; FEMALE; FOCUS GROUPS; GENETIC COUNSELING; HUMANS; INTERVIEWS AS TOPIC; NETHERLANDS; PATIENT ACCEPTANCE OF HEALTH CARE; PREGNANCY; PRENATAL DIAGNOSIS; SURINAME; TURKEY;

EID: 35348932746     PISSN: 01973851     EISSN: 10970223     Source Type: Journal    
DOI: 10.1002/pd.1805     Document Type: Article

References (35)

1. Ajzen I. 1991. The Theory of Planned Behavior. Organ Behav Hum Decis Process 50: 179-211.
2. Albar MA. 2002. Ethical considerations in the prevention and management of genetic disorders with special emphasis on religious considerations. Saudi Med J 23(6): 627-632.
3. Alkuraya FS, Kilani RA. 2001. Attitude of Saudi families affected with hemoglobinopathies towards prenatal screening and abortion and the influence of religious ruling (Fatwa). Prenat Diagn 21(6): 448-451.
4. Blalock SJ, DeVellis RF, Giorgino KB, et al. 1996. Osteoporisis prevention in premenopausal women: Using stage model approach to examine the predictors of behavior. Health Psychol 15(2): 84-93.
5. Browner CH, Preloran M, Press NA. 1996. The effects of ethnicity, education and an informational video on pregnant women's knowledge and decisions about a prenatal diagnostic screening test. Patient Educ Couns 27(2): 135-146.
6. Browner CH, Preloran HM, Cox SJ. 1999. Ethnicity, bioethics, and prenatal diagnosis: the amniocentesis decisions of Mexican-origin women and their partners. Am J Public Health 89(11): 1658-1666.
7. Caughey AB, Washington AE, Gildengorin V, Kuppermann M. 2004. Assessment of demand for prenatal diagnostic testing using willingness to pay. Obstet Gynecol 103(3): 539-545.
8. CBS Centraal Bureau vd Statistiek. 2006. www.cbs.nl (assessed february 2006).
9. Chilaka VN, Konje JC, Stewart CR, Narayan H, Taylor DJ. 2001. Knowledge of Down syndrome in pregnant women from different ethnic groups. Prenat Diagn 21(3): 159-164.
10. Clark MA, Rakowski W, Ehrich B, et al. 2002. The effect of a stage-matched and tailored intervention on repeat mammography(1). Am J Prev Med 22(1): 1-7.
11. Dormandy E, Michie S, Hooper R, Marteau TM. 2005. Low uptake of prenatal screening for Down syndrome in minority ethnic groups and socially deprived groups: a reflection of women's attitudes or a failure to facilitate informed choices?. Int J Epidemiol 34(2): 346-352.
12. Greenhalgh T, Taylor R. 1997. How to read a paper: papers that go beyond numbers (qualitative research). BMJ 315(7110): 740-743.
13. Irwig L, McCaffery K, Salkeld G, Bossuyt P. 2006. Informed choice for screening: implications for evaluation. BMJ 332(7550): 1148-1150.
14. Jaques AM, Halliday JL, Bell RJ. 2004. Do women know that prenatal testing detects fetuses with Down syndrome?. J Obstet Gynaecol 24(6): 647-651.
15. Khoshnood B, Blondel B, de Vigan C, Breart G. 2004. Socioeconomic barriers to informed decisionmaking regarding maternal serum screening for down syndrome: results of the French National Perinatal Survey of 1998. Am J Public Health 94(3): 484-491.
16. Kuppermann M, Nease RF, Learman LA, Gates E, Blumberg B, Washington AE. 2000. Procedure-related miscarriages and Down syndrome-affected births: implications for prenatal testing based on women's preferences. Obstet Gynecol 96(4): 511-516.
17. Kuppermann M, Nease RF Jr, Gates E, et al. 2004. How do women of diverse backgrounds value prenatal testing outcomes? Prenat Diagn 24(6): 424-429.
18. Kuppermann M, Learman LA, Gates E, et al. 2006. Beyond Race or Ethnicity and Socioeconomic Status: Predictors of Prenatal Testing for Down Syndrome. Obstet Gynecol 107(5): 1087-1097.
19. Learman LA, Kuppermann M, Gates E, Nease RF Jr, Gildengorin V, Washington AE. 2003. Social and familial context of prenatal genetic testing decisions: are there racial/ethnic differences? Am J Med Genet 119C(1): 19-26.
20. Lewando-Hundt G, Shoham-Vardi I, Beckerleg S, Belmaker I, Kassem F, Jaafar AA. 2001. Knowledge, action and resistance: the selective use of pre-natal screening among Bedouin women of the Negev, Israel. Soc Sci Med 52(4): 561-569.
21. Marteau TM, Dormandy E, Michie S. 2001. A measure of informed choice. Health Expect 4(2): 99-108.
22. Moyer A, Brown B, Gates E, Daniels M, Brown HD, Kuppermann M. 1999. Decisions about prenatal testing for chromosomal disorders: perceptions of a diverse group of pregnant women. J Womens Health Gend Based Med 8(4): 521-531.
23. Nagle C, McCarthy P, Wallace EM. 2000. Uptake of Down syndrome screening in an Australian Vietnamese population. Aust N Z J Obstet Gynaecol 40(2): 157-159.
24. Oenema A. 2004. Promoting awareness of fat, fruit and vegetable intake. Health Education and Promotion. Maastricht University: Maastricht.
25. Press N, Browner CH. 1998. Characteristics of women who refuse an offer of prenatal diagnosis: data from the California maternal serum alpha fetoprotein blood test experience. Am J Med Genet 78(5): 433-445.
26. QSR International. 2005. Nvivo.
27. Rowe RE, Garcia J, Davidson LL. 2004. Social and ethnic inequalities in the offer and uptake of prenatal screening and diagnosis in the UK: a systematic review. Public Health 118(3): 177-189.
28. Saucier JB, Johnston D, Wicklund CA, Robbins-Furman P, Hecht JT, Monga M. 2005. Racial-ethnic differences in genetic amniocentesis uptake. J Genet Couns 14(3): 189-195.
29. Sheiner E, Shoham-Vardi I, Weitzman D, Gohar J, Carmi R. 1998. Decisions regarding pregnancy termination among Bedouin couples referred to third level ultrasound clinic. Eur J Obstet Gynecol Reprod Biol 76(2): 141-146.
30. Shoham-Vardi I, Weiner N, Weitzman D, Levcovich A. 2004. Termination of pregnancy: attitudes and behavior of women in a traditional society. Prenat Diagn 24(11): 869-875.
31. Stein ND, Sandman PM. 1992. A model of the precaution adoption process: nce from home radon testing. Health Psychol 11(3): 170-180.
32. Weinstein ND. 1988. The precaution adoption process. Health Psychol 7(4): 355-386.
33. Weinstein ND, Lyon JE, Sandman PM, Cuite CL. 1998. Experimental evidence for stages of health behavior change: the precaution adoption process model applied to home radon testing. Health Psychol 17(5): 445-453.
34. Zahed L, Nabulsi M, Bou-Ghanim M, Usta I. 1999. Acceptance of prenatal diagnosis for genetic disorders in Lebanon. Prenat Diagn 19(12): 1109-1112.
35. Zlotogora J, Reshef N. 1998. Prenatal testing for genetic disorders among Arabs. Prenat Diagn 18(3): 219-224.