Do women make an informed choice about participating in breast cancer screening? A survey among women invited for a first mammography screening examination

Patient Education and Counseling

Volumn 89, Issue 2, 2012, Pages 353-359

  van Agt, Heleen ^a   Fracheboud, Jacques ^a   van der Steen, Annemieke ^b   de Koning, Harry ^a  

^a ERASMUS MEDICAL CENTER   (Netherlands)

^b Screening Organization South West   (Netherlands)

Author keywords

Breast cancer screening; Decision relevant knowledge; Informed choice; Informed decision making

Indexed keywords

ADULT; ARTICLE; ATTITUDE TO HEALTH; BREAST CANCER; CANCER SCREENING; FEMALE; HEALTH SURVEY; HUMAN; INFORMED CONSENT; INTERNAL CONSISTENCY; KNOWLEDGE; MAMMOGRAPHY; MEDICAL DECISION MAKING; PRIORITY JOURNAL; QUESTIONNAIRE; SCORING SYSTEM;

BREAST NEOPLASMS; CHOICE BEHAVIOR; DECISION MAKING; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HEALTH SURVEYS; HUMANS; INFORMED CONSENT; INTENTION; MASS SCREENING; MIDDLE AGED; NETHERLANDS; PATIENT ACCEPTANCE OF HEALTH CARE; QUESTIONNAIRES; SOCIOECONOMIC FACTORS;

EID: 84868214085     PISSN: 07383991     EISSN: 18735134     Source Type: Journal    
DOI: 10.1016/j.pec.2012.08.003     Document Type: Article

References (33)

1. Berry D.A., Cronin K.A., Plevritis S.K., Fryback D.G., Clarke L., Zelen M., et al. Effect of screening and adjuvant therapy on mortality from breast cancer. N Engl J Med 2005, 353:1784-1792.
2. Blanks R.G., Moss S.M., McGahan C.E., Quinn M.J., Babb P.J. Effect of NHS breast screening programme on mortality from breast cancer in England and Wales, 1990-8: comparison of observed with predicted mortality. Brit Med J 2000, 321:665-669.
3. Otto S.J., Fracheboud J., Looman C.W., Broeders M.J., Boer R., Hendriks J.H., et al. Initiation of population-based mammography screening in Dutch municipalities and effect on breast-cancer mortality: a systematic review. Lancet 2003, 361:1411-1417.
4. Irwig L., McCaffery K., Salkeld G., Bossuyt P. Informed choice for screening: implications for evaluation. Brit Med J 2006, 332:1148-1150.
5. Minister of Health Letter about screening [Kaderbrief screening]. The Hague; 2008.
6. General Medical Council Seeking Patients' Consent: the Ethical Considerations. London; 1998.
7. Beauchamp T.L., Childress J.F. Principles of biomedical ethics 2001, Oxford University Press. 5th edition.
8. Raffle A.E. Information about screening - is it to achieve high uptake or to ensure informed choice?. Health Expect 2001, 4:92-98.
9. Marteau T.M., Kinmonth A.L. Screening for cardiovascular risk: public health imperative or matter for individual informed choice?. Brit Med J 2002, 325:78-80.
10. Austoker J. Gaining informed consent for screening is difficult-but many misconceptions need to be undone. Brit Med J 1999, 319:722-723.
11. Marteau T.M., Dormandy E., Michie S. A measure of informed choice. Health Expect 2001, 4:99-108.
12. National Cancer Institute NCI Designing print materials: a communications guide for breast cancer screening 2007, NIH, Bethesda (MD).
13. Schoonen H.M., van Agt H.M., Essink-Bot M.L., Wildschut H.I., Steegers E.A., de Koning H.J. Informed decision-making in prenatal screening for Down's syndrome: what knowledge is relevant?. Patient Educ Couns 2011, 84:265-270.
14. Wald N. Information leaflets in medical screening. J Med Screen 2006, 13:109.
15. Schoonen H.M., Essink-Bot M.L., Van Agt H.M., Wildschut H.I., Steegers E.A., De Koning H.J. Informed decision-making about the fetal anomaly scan: what knowledge is relevant?. Ultrasound Obstet Gynecol 2011, 37:649-657.
16. Michie S., Dormandy E., Marteau T.M. The multi-dimensional measure of informed choice: a validation study. Patient Educ Couns 2002, 48:87-91.
17. Mathieu E., Barratt A.L., McGeechan K., Davey H.M., Howard K., Houssami N. Helping women make choices about mammography screening: an online randomized trial of a decision aid for 40-year-old women. Patient Educ Couns 2010, 63-72.
18. Dormandy E., Michie S., Hooper R., Marteau T.M. Informed choice in antenatal Down syndrome screening: a cluster-randomised trial of combined versus separate visit testing. Patient Educ Couns 2006, 61:56-64.
19. Dormandy E., Tsui E.Y., Marteau T.M. Development of a measure of informed choice suitable for use in low literacy populations. Patient Educ Couns 2007, 66:278-295.
20. Gummersbach E., Piccoliori G., Zerbe C.O., Altiner A., Othman C., Rose C., et al. Are women getting relevant information about mammography screening for an informed consent: a critical appraisal of information brochures used for screening invitation in Germany, Italy, Spain and France. Eur J Public Health 2010, 20:409-414.
21. Fox R. Informed choice in screening programmes: do leaflets help? A critical literature review. J Public Health (Oxf) 2006, 28:309-317.
22. Zapka J.G., Geller B.M., Bulliard J.L., Fracheboud J., Sancho-Garnier H., Ballard-Barbash R., et al. Print information to inform decisions about mammography screening participation in 16 countries with population-based programs. Patient Educ Couns 2006, 63:126-137.
23. Mathieu E., Barratt A., Davey H.M., McGeechan K., Howard K., Houssami N. Informed choice in mammography screening: a randomized trial of a decision aid for 70-year-old women. Arch Intern Med 2007, 167:2039-2046.
24. Lewis C.L., Pignone M.P., Sheridan S.L., Downs S.M., Kinsinger L.S. A randomized trial of three videos that differ in the framing of information about mammography in women 40 to 49 years old. J Gen Intern Med 2003, 18:875-883.
25. Haakenson C.P., Vickers K.S., Cha S.S., Vachon C.M., Thielen J.M., Kircher K.J., et al. Efficacy of a simple, low-cost educational intervention in improving knowledge about risks and benefits of screening mammography. Mayo Clin Proc 2006, 81:783-791.
26. Gøtzsche P.C., Jorgensen K.J. The breast screening programme and misinforming the public. J R Soc Med 2011, 104:361-369.
27. Fracheboud J., Groenewoud J.H., de Koning H.J. Fifteen years of population-based breast cancer screening in the Netherlands. Semin Breast Dis 2007, 10:72-82.
28. National Evaluation Team for Breast cancer screening in the Netherlands N. National evaluation of breast cancer screening in the Netherlands 1990-2007. Rotterdam: Erasmus University Medical Center, Dept. of Public Health. Report No.: Twelfth report; 2009.
29. Smeets H., Janssen J.P.G. Using National registrations to correct for selctive non-response. Political preference of ethnic groups. Statistics Canada Symposium 2001 2001, 1-9.
30. Ajzen I. Attitudes, personality, and behavior 1988, Open University Press, Buckingham.
31. Green J.M., Hewison J., Bekker H.L., Bryant L.D., Cuckle H.S. Psychosocial aspects of genetic screening of pregnant women and newborns: a systematic review. Health Technol Assess 2004, 8:1-109. iii, ix-x.
32. Elwyn G., Frosch D., Volandes A.E., Edwards A., Montori V.M. Investing in deliberation: a definition and classification of decision support interventions for people facing difficult health decisions. Med Decis Making 2010, 30:701-711.
33. Durand M.A., Stiel M., Boivin J., Elwyn G. Where is the theory? Evaluating the theoretical frameworks described in decision support technologies. Patient Educ Couns 2008, 71:125-135.