Parents' experiences of receiving their child's genetic diagnosis: A qualitative study to inform clinical genetics practice

American Journal of Medical Genetics, Part A

Volumn 164, Issue 6, 2014, Pages 1496-1502

  Ashtiani, Setareh ^a   Makela, Nancy ^b   Carrion, Prescilla ^a   Austin, Jehannine ^a  

^a UNIVERSITY OF BRITISH COLUMBIA   (Canada)

^b UNIVERSITY OF BRITISH COLUMBIA   (Canada)

Author keywords

Genetic counseling; Genetic diagnosis; Parental experience; Pediatric genetics; Receiving bad news

Indexed keywords

ADULT; AMBIVALENCE; ARTICLE; ATTITUDE TO HEALTH; CHILD; CHILD PARENT RELATION; CLINICAL ARTICLE; CLINICAL PRACTICE; DEVELOPMENTAL DISORDER; EMOTIONALITY; FEMALE; GENETIC COUNSELING; GENETIC SCREENING; HUMAN; MALE; MEDICAL TERMINOLOGY; PARENT COUNSELING; PARENTAL ATTITUDE; PERSONAL EXPERIENCE; PRESCHOOL CHILD; PRIORITY JOURNAL; QUALITATIVE RESEARCH; SEMI STRUCTURED INTERVIEW; THEMATIC ANALYSIS; CHILD REARING; DOCTOR PATIENT RELATION; GENETIC DISEASES, INBORN; INFORMATION PROCESSING; PARENT; PSYCHOLOGY; QUESTIONNAIRE; RETROSPECTIVE STUDY; SOCIAL SUPPORT;

CHILD; CHILD REARING; DATA COLLECTION; FEMALE; GENETIC COUNSELING; GENETIC DISEASES, INBORN; HUMANS; MALE; PARENTS; PHYSICIAN-PATIENT RELATIONS; QUESTIONNAIRES; RETROSPECTIVE STUDIES; SOCIAL SUPPORT;

EID: 84899946024     PISSN: 15524825     EISSN: 15524833     Source Type: Journal    
DOI: 10.1002/ajmg.a.36525     Document Type: Article

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