메뉴 건너뛰기




Volumn 142, Issue 3, 2006, Pages 173-179

Breaking difficult news in a newborn setting: Down syndrome as a paradigm

Author keywords

Breaking bad news; Communication; Down syndrome; Theoretical model

Indexed keywords

ATTITUDE TO ILLNESS; CLINICAL GENETICS; CONCEPTUAL FRAMEWORK; CONSENSUS; DOCTOR PATIENT RELATION; DOWN SYNDROME; EXPERIENCE; GENETIC COUNSELING; HONESTY; HUMAN; INTERPERSONAL COMMUNICATION; INTERVIEW; MEDICAL LITERATURE; NEWBORN SCREENING; PARENTAL BEHAVIOR; PRACTICE GUIDELINE; PRIORITY JOURNAL; REVIEW;

EID: 33748051094     PISSN: 15524868     EISSN: 15524876     Source Type: Journal    
DOI: 10.1002/ajmg.c.30100     Document Type: Review
Times cited : (30)

References (27)
  • 1
    • 0034679909 scopus 로고    scopus 로고
    • Parents' response to their child's diagnosis of NF1
    • Ablon J. 2000. Parents' response to their child's diagnosis of NF1. Am J Med Genet 93:136-142.
    • (2000) Am J Med Genet , vol.93 , pp. 136-142
    • Ablon, J.1
  • 2
    • 84858949558 scopus 로고    scopus 로고
    • American Academy of Pediatrics (AAP). 2006. http://www.aap.org/
    • (2006)
  • 3
    • 28544434163 scopus 로고    scopus 로고
    • Ability of primary care physicians to break bad news: A performance based assessment of an educational intervention
    • Amiel GE, Ungar L, Alperin M, Baharier Z, Cohen R, Reis S. 2006. Ability of primary care physicians to break bad news: A performance based assessment of an educational intervention. Pt Educ Couns 60:10-15.
    • (2006) Pt Educ Couns , vol.60 , pp. 10-15
    • Amiel, G.E.1    Ungar, L.2    Alperin, M.3    Baharier, Z.4    Cohen, R.5    Reis, S.6
  • 4
    • 0027315810 scopus 로고
    • The meaning of bad news in HIV disease: Counseling about dreaded issues revisited
    • Bor R, Miller R, Goldman E, Scher I. 1993. The meaning of bad news in HIV disease: Counseling about dreaded issues revisited. Counsel Psychol Q 6:69-80.
    • (1993) Counsel Psychol Q , vol.6 , pp. 69-80
    • Bor, R.1    Miller, R.2    Goldman, E.3    Scher, I.4
  • 6
    • 33748036534 scopus 로고    scopus 로고
    • Clinical genetics and dysmorphology
    • Rudolph CD, Rudolph AM, editors. New York: McGraw-Hill
    • Carey JC, Bamshad M. 2003. Clinical genetics and dysmorphology. In: Rudolph CD, Rudolph AM, editors. Rudolph's Pediatrics. 21st edition. New York: McGraw-Hill.
    • (2003) Rudolph's Pediatrics. 21st Edition
    • Carey, J.C.1    Bamshad, M.2
  • 7
    • 0027357287 scopus 로고
    • Supporting the family of a newborn with Down syndrome
    • Cooley WC. 1993. Supporting the family of a newborn with Down syndrome. Compr Ther 19:111-115.
    • (1993) Compr Ther , vol.19 , pp. 111-115
    • Cooley, W.C.1
  • 8
    • 0021355850 scopus 로고
    • Down's syndrome: Is dissatisfaction with disclosure inevitable?
    • Cunningham CC, Morgan PS, McGucken RB. 1984. Down's syndrome: Is dissatisfaction with disclosure inevitable? Dev Med Ch Neuro 26:33-39.
    • (1984) Dev Med Ch Neuro , vol.26 , pp. 33-39
    • Cunningham, C.C.1    Morgan, P.S.2    McGucken, R.B.3
  • 10
    • 0016839224 scopus 로고
    • The adaptation of parents to the birth of an infant with a congenital malformation: A hypothetical model
    • Drotar D, Baskiewiez A, Irvin N, Kennell JH, Klaus MH. 1975. The adaptation of parents to the birth of an infant with a congenital malformation: A hypothetical model. Pediatrics 56:710-717.
    • (1975) Pediatrics , vol.56 , pp. 710-717
    • Drotar, D.1    Baskiewiez, A.2    Irvin, N.3    Kennell, J.H.4    Klaus, M.H.5
  • 11
    • 0031009878 scopus 로고    scopus 로고
    • An assessment of residents' competence in the delivery of bad news to patients
    • Eggly S, Afonso N, Rojas G, Baker M, Cardozo L, Robertson RS. 1997. An assessment of residents' competence in the delivery of bad news to patients. Acad Med 72:397-399.
    • (1997) Acad Med , vol.72 , pp. 397-399
    • Eggly, S.1    Afonso, N.2    Rojas, G.3    Baker, M.4    Cardozo, L.5    Robertson, R.S.6
  • 12
    • 0029157445 scopus 로고
    • Breaking the news. How families first learn about their child's chronic condition
    • Garwick AW, Patterson J, Bennett FC, Blum RW. 1995. Breaking the news. How families first learn about their child's chronic condition. Arch Pediatr Adolesc Med 9:991-997.
    • (1995) Arch Pediatr Adolesc Med , vol.9 , pp. 991-997
    • Garwick, A.W.1    Patterson, J.2    Bennett, F.C.3    Blum, R.W.4
  • 13
    • 0022391032 scopus 로고
    • Parental reactions to loss and disappointment with the diagnosis of Down syndrome
    • Gath A. 1985. Parental reactions to loss and disappointment with the diagnosis of Down syndrome. Dev Med Child Neurol 27:293-400.
    • (1985) Dev Med Child Neurol , vol.27 , pp. 293-400
    • Gath, A.1
  • 14
    • 0016054912 scopus 로고
    • Down syndrome: Informing the parents
    • Gayton WF, Walker L. 1974. Down syndrome: Informing the parents. Am J Dis Child 127:510-512.
    • (1974) Am J Dis Child , vol.127 , pp. 510-512
    • Gayton, W.F.1    Walker, L.2
  • 15
    • 84858932554 scopus 로고    scopus 로고
    • GeneticAlliance. 2006. http://www.geneticalliance. org/
    • (2006)
  • 16
    • 0029131445 scopus 로고
    • Breaking bad news: Consensus guidelines for medical practitioners
    • Girgis A, Sanson-Fisher RW. 1995. Breaking bad news: Consensus guidelines for medical practitioners. J Clin Oncology 13:2449-2456.
    • (1995) J Clin Oncology , vol.13 , pp. 2449-2456
    • Girgis, A.1    Sanson-Fisher, R.W.2
  • 17
  • 18
    • 0346615151 scopus 로고
    • Caring for the parents of an infant with congenital malformation
    • Klaus MH, Kennell JH, editors. St. Louis: CV Mosby Company
    • Irvin NA, Kennell JH, Klaus MH. 1982. Caring for the parents of an infant with congenital malformation. In: Klaus MH, Kennell JH, editors. Parent-Infant Bonding. 2nd edition. St. Louis: CV Mosby Company.
    • (1982) Parent-Infant Bonding. 2nd Edition
    • Irvin, N.A.1    Kennell, J.H.2    Klaus, M.H.3
  • 19
    • 33748029909 scopus 로고    scopus 로고
    • The communication of difficult news to parents. A protocol based on parent preference
    • Kelly MA, Johnson P, Shaul M, Beall S, Carey JC. 1998. The communication of difficult news to parents. A protocol based on parent preference. J Invest Med 46:100A.
    • (1998) J Invest Med , vol.46
    • Kelly, M.A.1    Johnson, P.2    Shaul, M.3    Beall, S.4    Carey, J.C.5
  • 20
    • 0012214564 scopus 로고
    • The psychological foundations of genetic counseling
    • Kessler S, editor. New York: Academic Press
    • Kessler S. 1979. The psychological foundations of genetic counseling. In: Kessler S, editor. Genetic counseling psychological dilemmas. New York: Academic Press.
    • (1979) Genetic Counseling Psychological Dilemmas
    • Kessler, S.1
  • 21
    • 23944444313 scopus 로고    scopus 로고
    • Recipients' perspective on breaking bad news: How you put it really makes a difference
    • Mast MS, Kindlimann A, Langewitz W. 2005. Recipients' perspective on breaking bad news: How you put it really makes a difference. Pt Ed Couns 58:244-251.
    • (2005) Pt Ed Couns , vol.58 , pp. 244-251
    • Mast, M.S.1    Kindlimann, A.2    Langewitz, W.3
  • 22
    • 12244268035 scopus 로고    scopus 로고
    • Evaluation of a communication skills seminar for students in a Japanese medical school: A non-randomized controlled study
    • Mukohara K, Kitamura K, Wakabayashi H, Abe K, Sato J, Ban N. 2004. Evaluation of a communication skills seminar for students in a Japanese medical school: A non-randomized controlled study. BMC Med Educ 4:24.
    • (2004) BMC Med Educ , vol.4 , pp. 24
    • Mukohara, K.1    Kitamura, K.2    Wakabayashi, H.3    Abe, K.4    Sato, J.5    Ban, N.6
  • 23
    • 0029741289 scopus 로고    scopus 로고
    • Breaking bad news: A review of the literature
    • Ptacek JT, Eberhardt TL. 1996. Breaking bad news: A review of the literature. JAMA 276:496-502.
    • (1996) JAMA , vol.276 , pp. 496-502
    • Ptacek, J.T.1    Eberhardt, T.L.2
  • 24
    • 0017358833 scopus 로고
    • Assessment of counseling practices at the birth of a child with Down syndrome
    • Pueshel SM, Murphy A. 1977. Assessment of counseling practices at the birth of a child with Down syndrome. Am J Ment Def 81:325-330.
    • (1977) Am J Ment Def , vol.81 , pp. 325-330
    • Pueshel, S.M.1    Murphy, A.2
  • 25
    • 0026666552 scopus 로고
    • Communicating medical bad news: Parents' experiences and preferences
    • Sharp MC, Strauss RP, Lorch SC. 1992. Communicating medical bad news: Parents' experiences and preferences. J Pediatr 121:539-546.
    • (1992) J Pediatr , vol.121 , pp. 539-546
    • Sharp, M.C.1    Strauss, R.P.2    Lorch, S.C.3
  • 26
    • 14644404232 scopus 로고    scopus 로고
    • Mothers of children with Down syndrome reflect on their postnatal support
    • Skotko B. 2005. Mothers of children with Down syndrome reflect on their postnatal support. Pediatrics 115:64-77.
    • (2005) Pediatrics , vol.115 , pp. 64-77
    • Skotko, B.1
  • 27
    • 0035893438 scopus 로고    scopus 로고
    • Breaking bad news
    • Vandekieft GK. 2001. Breaking bad news. Am Fam Phys 64:1975-1978.
    • (2001) Am Fam Phys , vol.64 , pp. 1975-1978
    • Vandekieft, G.K.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.