A sociolinguistic exploration of genetic counseling discourse involving a child with a new genetic diagnosis

Patient Education and Counseling

Volumn 78, Issue 1, 2010, Pages 40-45

  Babul Hirji, Riyana ^a   Hewson, Stacy ^a   Frescura, Marina ^b  

^a HOSPITAL FOR SICK CHILDREN   (Canada)

^b YORK UNIVERSITY   (Canada)

Author keywords

Discourse analysis; Genetic counseling; Lay professional interaction

Indexed keywords

ANAMNESIS; ARTICLE; DISCOURSE ANALYSIS; FAMILY HISTORY; FEMALE; GENETIC COUNSELING; GENETIC DISORDER; GENETIC SCREENING; HUMAN; HUMAN RELATION; INTERPERSONAL COMMUNICATION; MALE; MEDICAL INFORMATION; PARENT; PERSONAL EXPERIENCE; PRIORITY JOURNAL; QUESTIONNAIRE; SOCIAL ASPECT;

CHILD; CHILD, PRESCHOOL; DECISION SUPPORT TECHNIQUES; GENETIC TESTING; HUMANS; INFANT; LINGUISTICS; PEDIATRICS; PROFESSIONAL-FAMILY RELATIONS; QUALITATIVE RESEARCH; SOCIOECONOMIC FACTORS; TAPE RECORDING;

EID: 70549110830     PISSN: 07383991     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.pec.2009.06.007     Document Type: Article

References (41)

1. The National Society of Genetic Counselors' Definition Task Force. A new definition of genetic counseling: national society of genetic counselors' task force report. J Genet Counsel 15 (2006) 77-83
2. Sarangi S. Activity types, discourse types and interactional hybridity: the case of genetic counseling. In: Sarangi S., and Coulthard M. (Eds). Discourse and social life (2000), Pearson, London
3. Ablon J. Parents' responses to their child's diagnosis of neurofibromatosis 1. Am J Med Genet 93 (2000) 136-142
4. McGowan R. Beyond the disorder: one parent's reflection on genetic counselling. J Med Ethics 25 (1999) 195-199
5. Skirton H. Parental experience of a pediatric genetic referral. Am J Matern Child Nurs 31 (2006) 178-184
6. Barr O.G., and McConkey R. Supporting parents who have a child referred for genetic investigation: the contribution of health visitors. J Adv Nurs 54 (2006) 141-150
7. Meiser B., Irle J., Lobb E., and Barlow-Stewart K. Assessment of the content and process of genetic counseling: a critical review of empirical studies. J Genet Counsel (2008)
8. Kessler S. Psychological aspects of genetic counseling: analysis of a transcript. Am J Med Genet 8 (1981) 137-153
9. Kessler S., and Jacopini A.G. Psychological aspects of genetic counselling. II: quantitative analysis of a transcript of a genetic counseling session. Am J Med Genet 12 (1982) 421-435
10. Davies R., Davis B., and Sibert J. Parents' stories of sensitive and insensitive care by paediatricians in the time leading up to and including diagnostic disclosure of a life-limiting condition in their child. Child: Care, Health Develop 29 (2002) 77-82
11. Drew P., and Heritage J. Talk at work: interaction in institutional settings (1992), Cambridge University Press, Cambridge
12. Mishler E. The discourse of medicine: dialectics of medical interviews (1984), Ablex Publishing, Norwoood, NJ
13. Maynard D. Bad news, good news: conversational order in everyday talk and clinical setting (2003), The University of Chicago Press
14. Peräkylä A. Communicating and responding to diagnosis. In: Heritage J., and Maynard D.W. (Eds). Practicing medicine: structure and process in primary care encounters (2006), Cambridge University Press, Cambridge
15. Pomerantz A. Agreeing and disagreeing with assessments: some features of preferred/dispreferred turn shapes. In: Atkinson J., and Heritage J. (Eds). Structures of social action: studies in conversation analysis (1984), University Press, Cambridge 57-101
16. Have ten P. Talk and Institution: a reconsideration of the 'asymmetry' of doctor-patient interaction. In: Boden D., and Zimmerman D.H. (Eds). Talk and social structure (1991), University of California Press, Berkeley 117-125
17. Heat C. The delivery and reception of diagnosis in the general-practice consultation. In: Drew P., and Heritage J. (Eds). Talk at work: studies in interactional sociolinguistics (1992), Cambridge University Press, Cambridge 235-267
18. Rapp R. Chromosomes and communication: the discourse of genetic counseling. Med Anthropol Quart 2 (1988) 143-157
19. Benkendorf J.L., Prince M.B., Rose M.A., De Fina A., and Hamilton H.E. Does indirect speech promote nondirective genetic counseling? Results of a sociolinguistic investigation. Am J Med Genet (Semin Med Genet) 106 (2001) 199-207
20. Pilnick A. There are no rights and wrongs in these situations: identifying interactional difficulties in genetic counseling. Sociol Health Illness 24 (2002) 66-88
21. Lehtinen E. Information, understanding and the benign order of everyday life in genetic counseling. Sociol Health Illness 27 (2005) 575-592
22. Lehtinen E., and Kääriäinen H. Doctor's expertise and managing discrepant information from other sources in genetic counseling: a conversation analytic approach. J Genet Counsel 14 (2005) 435-451
23. Sarangi S. Zones of expertise and the management of uncertainty in genetics risk communication. Res Lang Social Interact 35 (2002) 139-171
24. Ellington L., Baty B.J., McDonald J., Venne V., Musters A., Roter D., Dudley W., and Croyle R.T. Exploring genetic counseling communication patterns: the role of teaching and counseling approaches. J Genet Counsel 15 (2006) 179-386
25. Pieterse A.H., van Dulmen A.M., Ausems M.G.E.M., Beemer F.A., and Bensing J.M. Communication in cancer genetic counselling: does it reflect counselees' previsit needs and preferences?. Br J Cancer 92 (2005) 1671-1678
26. Butow P.N., and Lobb E.A. Analyzing the process and content of genetic counseling in familial breast cancer consultations. J Genet Counsel 13 (2004) 403-424
27. Pilnick A. What 'most people' do: exploring the ethical implications of genetic counseling. New Genet Soc 21 (2002) 339-350
28. Goffman E. Interaction ritual: essays on face-to-face behavior (1982), Pantheon Books, New York
29. Gumpertz J. Discourse strategies (1982), Cambridge University Press, Cambridge
30. Sacks H. Lectures on conversation, vols. I and II (1995), Blackwell, Oxford
31. Schegloff E. Sequencing in conversational openings. In: Gumpertz J., and Hymes D. (Eds). Directions in sociolinguistics (1972), Holt, Reinehart and Winston, New York
32. Cameron D. Working with spoken discourse (2001), Sage, London
33. Cordella M. The dynamic consultation: a discourse analytical study of doctor-patient communication (2004), John Benjamins, Amsterdam
34. In: Marková I., and Foppa K. (Eds). Asymmetries in dialogue (1991), Hemel Hempstead, Hartfordshire
35. Jefferson G. Explanation of transcript notation. In: Schenkein I.J. (Ed). Studies in the organization of conversational interaction (1978), Academic Press, New York
36. Atkinson J.M., and Drew P. Order in court: the organization of verbal interaction in judicial settings (1979), Macmillan, London
37. Robinson J., and Heritage J. Physicians' opening questions and patients' satisfaction. Patient Edu Counsel 60 (2006) 279-285
38. Schiffrin D. Discourse markers (1987), Cambridge University Press
39. Heritage J. Oh-prefaced responses to inquiry. Lang Soc 27 (1998) 291-334
40. McCarthy Veach P., Bartels D., and LeRoy B. Coming full circle: a reciprocal-engagement model of genetic counseling practice. J Genet Counsel 16 (2007) 713-728
41. Frederikson L.G., and Bull P.E. Evaluation of a patient education leaflet designed to improve communication in medical consultation. Patient Educ Couns 25 (1995) 51-57