Hearing from parents: The impact of receiving the diagnosis of Williams syndrome in their child

American Journal of Medical Genetics, Part A

Volumn 161, Issue 3, 2013, Pages 534-541

  Waxler, Jessica L ^a   Cherniske, Elizabeth M ^b   Dieter, Kristen ^c   Herd, Pamela ^d   Pober, Barbara R ^a,e  

^a MASSACHUSETTS GENERAL HOSPITAL   (United States)

^b YALE UNIVERSITY SCHOOL OF MEDICINE   (United States)

^c Northwestern Reproductive Genetics   (United States)

^d UNIVERSITY OF WISCONSIN MADISON   (United States)

^e HARVARD MEDICAL SCHOOL   (United States)

Author keywords

Breaking bad news; Diagnostic process; Parental recollections; Williams syndrome; Williams Beuren syndrome

Indexed keywords

AGE; ARTICLE; CONTROLLED STUDY; DISEASE ASSOCIATION; FAMILY ASSESSMENT; FAMILY ATTITUDE; GENETIC COUNSELING; HUMAN; MEDICAL INFORMATION; OUTCOME ASSESSMENT; PARENT COUNSELING; PARENTAL ATTITUDE; PATIENT ASSESSMENT; PERSONAL EXPERIENCE; PRIORITY JOURNAL; PROFESSIONAL KNOWLEDGE; QUALITATIVE ANALYSIS; WILLIAMS BEUREN SYNDROME;

ADOLESCENT; ADULT; CHILD; CHILD, PRESCHOOL; DISABLED CHILDREN; EXPRESSED EMOTION; GENETIC COUNSELING; HEALTH CARE SURVEYS; HUMANS; INFANT; INFANT, NEWBORN; MIDDLE AGED; PARENTS; PATIENT PREFERENCE; PERCEPTION; PROFESSIONAL-PATIENT RELATIONS; TRUTH DISCLOSURE; UNITED STATES; WILLIAMS SYNDROME; YOUNG ADULT;

EID: 84874203601     PISSN: 15524825     EISSN: 15524833     Source Type: Journal    
DOI: 10.1002/ajmg.a.35789     Document Type: Article

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