Parental experience of a pediatric genetic referral

MCN The American Journal of Maternal/Child Nursing

Volumn 31, Issue 3, 2006, Pages 178-184

  Skirton, Heather ^a  

^a UNIVERSITY OF PLYMOUTH   (United Kingdom)

Author keywords

Genetics services; Parents; Pediatric nursing; Psychological support systems

Indexed keywords

ADAPTIVE BEHAVIOR; ADULT; ARTICLE; CAREGIVER; CHILD; CHILD PARENT RELATION; FEMALE; GENETIC COUNSELING; GENETIC SCREENING; HUMAN; INTERPERSONAL COMMUNICATION; MALE; MENTAL STRESS; PARENT; PATIENT REFERRAL; PERSONAL AUTONOMY; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE;

ADAPTATION, PSYCHOLOGICAL; ADULT; CAREGIVERS; CHILD; FEMALE; GENETIC COUNSELING; GENETIC SCREENING; HUMANS; MALE; PARENT-CHILD RELATIONS; PARENTS; PERSONAL AUTONOMY; QUESTIONNAIRES; REFERRAL AND CONSULTATION; STRESS, PSYCHOLOGICAL; TRUTH DISCLOSURE;

EID: 33746586482     PISSN: 0361929X     EISSN: None     Source Type: Journal    
DOI: 10.1097/00005721-200605000-00010     Document Type: Article

References (18)

1. Abidin, R. R. (1995). Parenting Stress Index (PSI) (3rd ed.). Odessa, FL: Psychological Assessment Resources.
2. Ciarleglio, L. J., Bennett, R. L., Williamson, J., Mandell, J. B., & Marks, J. H. (2003). Genetic counseling throughout the life cycle. Journal of Clinical Investigation, 112, 1280-1286.
3. Fanos, J. H., & Mackintosh, M. A. (1999). Never again joy without sorrow: The effect on parents of a child with ataxia-telangiectasia. American Journal of Medical Genetics, 87, 413-419.
4. Giorgi, A. (1997). The theory, practice, and evaluation of the phenomenological method as a qualitative research procedure. Journal of Phenomenological Psychology, 28, 236-260.
5. Harper, P. S. (2004). Practical genetic counselling (6th ed.). Oxford, UK: Oxford University Press.
6. Hartrey, L., & Wells, J. S. (2003). The meaning of respite care to mothers of children with learning disabilities: Two Irish case studies. Journal of Psychiatric and Mental Health Nursing, 10, 335-342.
7. Hoare, P., Harris, M., Jackson, P., & Kerley, S. (1998). A community survey of children with severe intellectual disability and their families: Psychological adjustment, carer distress and the effect of respite care. Journal of Intellectual Disability Research, 42(Pt 3), 218-227.
8. Humphreys, L., Hunter, A. G., Zimak, A., O'Brien, A., Korneluk, Y., & Cappelli, M. (2000). Why patients do not attend for their appointments at a genetics clinic. Journal of Medical Genetics, 37, 810-815.
9. Hunter, A. G. (2002). Medical genetics: 2. The diagnostic approach to the child with dysmorphic signs. Canadian Medical Association Journal, 167, 367-372.
10. Linden, M. G., Bender, B. G., & Robinson, A. (2002). Genetic counseling for sex chromosome abnormalities. American Journal of Medical Genetics, 110, 3-10.
11. Pauli-Pott, U., Darui, A., & Beckmann, D. (1999). Infants with atopic dermatitis: Maternal hopelessness, child-rearing attitudes and perceived infant temperament. Psychotherapy and Psychosomatics, 68, 39-45.
12. Read, C. Y. (2002). Reproductive decisions of parents of children with metabolic disorders. Clinical Genetics, 61, 268-276.
13. Skirton, H. (2001). The client's perspective of genetic counselling - A grounded theory study. Journal of Genetic Counseling, 10(4), 311-329.
14. Skirton, H., & Eiser, C. (2003). Discovering and addressing the client's lay construct of genetic disease: An important aspect of genetic healthcare? Research and Theory for Nursing Practice, 17, 339-352.
15. Skirton, H., & Patch, C. (2000). The 'new genetics' and nursing: What does it have to do with me? Nursing Standard, 14, 42-46.
16. Strauss, A., & Corbin, J. (1998). Basics of qualitative research (2nd ed.). Thousand Oaks, CA: Sage Publications.
17. Vehmas, S. (2001). Just ignore it? Parents and genetic information. Theoretical Medicine and Bioethics, 22, 473-484.
18. Winter, R. M., & Baraitser, M. (2000). Dysmorphology photo library on CD-ROM. Version 2.2. Oxford medical databases. Oxford, UK: Oxford University Press.