Evaluating educational initiatives to improve palliative care for people with dementia: A narrative review

Dementia

Volumn 13, Issue 3, 2014, Pages 366-381

  Raymond, Mareeni ^a   Warner, Alex ^a   Davies, Nathan ^a   Baishnab, Elora ^a   Manthorpe, Jill ^b   Iliffe, Steve ^a  

^a UNIVERSITY COLLEGE LONDON   (United Kingdom)

^b KING'S COLLEGE LONDON   (United Kingdom)

Author keywords

dementia; end of life care; healthcare; palliative care; professional education and training

Indexed keywords

DEMENTIA; HEALTH PERSONNEL ATTITUDE; HEALTH SERVICE; HUMAN; NURSING; NURSING EDUCATION; PALLIATIVE THERAPY; TOTAL QUALITY MANAGEMENT;

ATTITUDE OF HEALTH PERSONNEL; DEMENTIA; EDUCATION, NURSING; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; PALLIATIVE CARE; QUALITY IMPROVEMENT;

EID: 84899644357     PISSN: 14713012     EISSN: 17412684     Source Type: Journal    
DOI: 10.1177/1471301212474140     Document Type: Article

References (45)

1. Arcand M.,Monette J.,Monette M.,Sourial N.,Fournier L.,Gore B.,Bergman H.Educating nursing home staff about the progression of dementia and the comfort care option: Impact on family satisfaction with end-of-life care.Journal of the American Directors Association. 2009;10 (1): 50-55.
2. Australian Department of Health and Ageing. (2006). Guidelines for a palliative approach in residential aged care (enhanced version). Canberra: Rural Health and Palliative Care Branch, Government Department of Health and Ageing. Retrieved from http://www.palliativecare.org.au/Portals/46/APRAC%20guidelines.pdf.
3. Bern-Klug M.The ambiguous dying syndrome.Health Social Work. 2004;29 (1): 55-65.
4. Brayne, C., Gao, L., Dewey, M., Matthews, F. E., & Medical Research Council Cognitive, Function, Ageing Study Investigators. (2006). Dementia before death in ageing societies - the promise of prevention and the reality. PLoS Med, 3(10): e397.
5. Brookfield S. D.Understanding and facilitating adult learning. Buckingham: Open University Press; 1986:.
6. Chang E.,Hancock K.,Harrison K.,Daly J.,Johnson A.,Easterbrook S.,Davidson P.Palliative care for end-stage dementia: A discussion of the implications for education of health care professionals.Nurse Education Today. 2005;25 (4): 326-332.
7. Dening K. H.,Greenish W.,Jones L.,Manda U.,Sampson E. L.Barriers to providing end-of-life care for people with dementia: A whole system qualitative study.BMJ Supportive & Palliative Care. 2012;2:103-107.
8. Department of Health. (2008). End of Life Care Strategy: Promoting high quality care for all adults at the end of life. London: Department of Health. Retrieved from http://www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/@dh/@en/documents/digitalasset/dh_086345.pdf.
9. Department of Health. (2009). Living well with dementia: A national dementia strategy. London: Department of Health. Retrieved from http://www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/@dh/@en/documents/digitalasset/dh_094051.pdf.
10. Department of Health. (2010). Quality outcomes for people with dementia: Building on the work of the National Dementia Strategy. London: Department of Health. Retrieved from http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_119827.
11. Engel S. E.,Kiely D. K.,Mitchell S. L.End-of-life care for nursing home residents with advanced dementia.Journal of the American Geriatrics Society. 2006;54 (10): 1567-1572.
12. Evans C.,Goodman C.Changing practice in dementia care for people in care homes towards the end of life.Dementia: The International Journal of Social Research and Practice. 2009;8 (3): 424-431.
13. Feltovitch P. J.,Barrow H. S.Tutorials in problem-based learning. Schmidt H. G.De Volder M. L., ed. Assen: Van Gorcum; 1984:128-142.
14. Formiga F.,Vidaller A.,Mascaro J.,Pujol R.Dying in hospital from end-stage dementia: Analysis of decision-making after an educational programme.Revista Espanola de Geriatria y Gerontologia. 2005;40 (1): 18-21.
15. Gnaedinger, N., Robinson, J., & Murray, K. (2010) Preliminary outcomes of the Dementia Difference workshop at the Lodge, Broadmead, Victoria, BC. Journal of Palliative Care, 26(2), 130-132.
16. Gnaediner, N., Robinson, J., Murray, K., & Vandergoot, A. (2008). The dementia difference: A palliative approach for people with late stage dementia - an education package for residential care. Frontline Dispatch, 274-276.
17. Godwin B.,Waters H.'In solitary confinement': Planning end-of-life well-being with people with advanced dementia, their family and professional carers.Mortality. 2009;14 (3): 265-285.
18. Goodman C.,Evans C.,Wilcock J.,Froggatt K.,Drennan V.,Sampson E.,Iliffe S.End of life care for community dwelling older people with dementia: An integrated review.International Journal of Geriatric Psychiatry. 2010;25 (4): 329-337.
19. Grant J.,Stanton F.,Flood S.,Mack J.,Waring C.An evaluation of educational needs and provision for doctors within three years of completion of training. London: Joint Centre for Education in Medicine; 1998:.
20. Grbich, C., Maddocks, I., Parker, D., Brown, M., Willis, E., Piller, N., & Hoffmeyer, A. (2005). Palliative care in aged care facilities for residents with a non-cancer disease: a survey of aged care facilities in South Australia. Australasian Journal on Ageing, 24(2), 108-113.
21. Hall, S., Kolliakou, A., Petkova, H., Froggatt, K., & Higginson, I. J. (2011). Interventions for improving palliative care for older people living in nursing care homes. Cochrane Database of Systematic Reviews, 3, CD007132.
22. Harden R. M.,Laidlaw J. M.Effective continuing education: The CRISIS criteria.Medical Education. 1992;26:408-22.
23. Hennings J.,Froggatt K.,Keady J.Approaching the end of life and dying with dementia in care homes: The accounts of family carers.Reviews in Clinical Gerontology. 2010;20:114-127.
24. Hughes J. C.,Jolley D.,Jordan A.,Sampson E. L.Palliative care in dementia: Issues and evidence.Advances in Psychiatric Treatment. 2007;13 (4): 251-260.
25. Hussein S.,Manthorpe J.The dementia social care workforce in England: Secondary analysis of a national workforce dataset.Aging & Mental Health. 2012;16 (1): 110-18.
26. Johnson A.,Chang E.,Daly J.,Harrison K.,Noel M.,Hancock K.,Easterbrook S.The communication challenges faced in adopting a palliative care approach in advanced dementia.International Journal of Nursing Practice. 2009;15 (5): 467-474.
27. Kitson A.,Harvey G.,McCormack B.Enabling the implementation of evidence based practice: A conceptual framework.Quality in Health Care. 1998;7:149-158.
28. Knowles M. S.The modern practice of adult education: from pedagogy to andragogy. 1980) The modern practice of adult education: from pedagogy to andragogy, (2nd ed). New York, NY: Cambridge Books.New York, NY: Cambridge Books; 1980:.
29. Kolb D. A.Experiential learning: experience as the source of learning and development. Englewood Cliffs, NJ: Prentice Hall; 1984:.
30. Lawrence V.,Samsi K.,Murray J.,Harari D.,Banerjee S.Dying well with dementia: Qualitative examination of end-of-life care.British Journal of Psychiatry. 2011;199 (5): 417-414.
31. Mirza M.,Wattis J.,Sparks G.Educational implications of the National Service Framework for older people: A brief report.Mental Health and Learning Disabilities Research and Practice. 2004;1 (1): 37-44.
32. Mittman B.Improving the quality of dementia care: The role of education.Clinical Gerontologist. 2006;29 (2): 61-69.
33. Moriarty, J., Kam, M., Coomber, C., Rutter. D., & Turner. M. (2010). Communication training for care home workers; outcomes for older people, staff, families, friends. London: Social Care Institute of Excellence. Retrieved from http://www.scie.org.uk/publications/briefings/files/briefing34.pdf.
34. Murray S. A.,Kendall M.,Boyd K.,Sheikh A.Illness trajectories and palliative care.British Medical Journal. 2005;330 (7498): 1007-1011.
35. Nowlem P. M.A new approach to continuing education for business and the professions. New York, NY: Macmillan; 1988:.
36. Robinson, J., & Sudbury, F. (2009). The dementia difference: Practice changes after a workshop for staff on caring for people dying with Alzheimer's disease. Alzheimer's and Dementia, 5(4), suppl. 1.
37. Valente S.,Saunders J.Psychiatric nurses' expertise, interest in end-of-life care, and requests for continuing education on end of life.American Journal of Hospice & Palliative Medicine. 2010;27 (1): 24-30.
38. Sachs G. A.,Shega J. W.,Cox-Hayley D.Barriers to excellent end-of-life care for patients with dementia.Journal of General Internal Medicine. 2004;19 (10): 1057-1063.
39. Sampson E. L.,Ritchie C. W.,Lai R.,Raven P. W.,Blanchard M. R.A systematic review of the scientific evidence for the efficacy of a palliative care approach in advanced dementia.International Psychogeriatrics. 2005;17 (1): 31-40.
40. Scottish Government (2008). Living and dying well: A national action plan for palliative and end of life care in Scotland. Edinburgh: Scottish Government. Retrieved from http://scotland.gov.uk/Resource/Doc/239823/0066155.pdf.
41. Sloane P. D.,Zimmerman S.,Williams C. S.,Hanson L. C.Dying with dementia in long-term care.Gerontologist. 2008;48 (6): 741-751.
42. Triplett P.,Black B. S.,Phillips H.,Fahrendorf S. R.,Schwartz J.,Angelino A. F.,Rabins P. V.Content of advance directives for individuals with advanced dementia.Journal of Aging and Health. 2008;20 (5): 583-596.
43. Watson J.,Hockley J.,Murray S.Evaluating effectiveness of the GSFCH and LCP in care homes.End of Life Care. 2010;4 (3): 42-49.
44. Welsh Assembly Government (2003). A strategic direction for palliative care services in Wales. Cardiff: Welsh Assembly Government. Retrieved from http://wales.gov.uk/docrepos/40382/dhss/guidance/pall-care-final-e.pdf?lang=en.
45. Xie, J., Brayne, C., Matthews, F. E., & Medical Research Council Cognitive, Function, Ageing Study Collaborators. (2008). Survival times in people with dementia: Analysis from population based cohort study with 14 year follow-up. British Medical Journal, 336(7638), 258-262.