The communication challenges faced in adopting a palliative care approach in advanced dementia

International Journal of Nursing Practice

Volumn 15, Issue 5, 2009, Pages 467-474

  Johnson, Amanda ^a   Chang, Esther ^a   Daly, John ^a   Harrison, Kathleen ^b   Noel, Michael ^b   Hancock, Karen ^a   Easterbrook, Sally ^b  

^a UNIVERSITY OF WESTERN SYDNEY   (Australia)

^b SYDNEY SOUTH WEST AREA HEALTH SERVICE   (Australia)

Author keywords

Advanced dementia; Communication; Education; Palliative care; Symptom management

Indexed keywords

EID: 77958110151     PISSN: 13227114     EISSN: 1440172X     Source Type: Journal    
DOI: 10.1111/j.1440-172X.2009.01795.x     Document Type: Article

References (21)

1. World Health Organization, Regional Health Forum. Alzheimer's disease: Of emerging importance. 6(1). Available from URL: Accessed 22 March 2007.
2. Access Economics Pty Ltd. The Dementia Epidemic: Economic Impact and Positive Solutions for Australia. Canberra: Alzheimer's Australia, 2003.
3. Australian Institute of Health and Welfare. The Impact of Dementia on the Health and Aged Care Systems, in Cat. No AGE 37. Canberra: Australian Institute of Health and Welfare, 2004.
4. Grbich C, Maddocks I, Parker D et al. Palliative Care in Aged Care Facilities for Residents with Non-Cancer Diagnoses. Adelaide, Australia: Department of Palliative and Supportive Services, School of Medicine, Flinders University, 2003.
5. Cohen L, O'Connor M, Blackmore AM. Nurses' attitudes to palliative care in nursing homes in Western Australia. International Journal of Palliative Nursing 2002; 8: 88-98.
6. Australian Government Department of Health and Ageing. Guidelines for a Palliative Approach in Residential Aged Care. Australian Government Department of Health and Ageing, Rural Health and Palliative Care Branch. Canberra WA, 2004.
7. Volicer L, Hurley A. Hospice Care for Patients with Advanced Progressive Dementia. New York: Springer, 1998.
8. Dooneief G, Marder K, Tang MX, Stern Y. The clinical dementia rating scale: Community-based validation of 'profound' and 'terminal' stages. Neurology 1996; 46: 1746-1749.
9. Australian Bureau of Statistics. Australian Social Trends 1999, in Health Status: Health of Older People. Canberra: Australian Bureau of Statistics, 2000.
10. McCarthy M, Addington-Hall J, Altmann D. The experience of dying with dementia: A retrospective study. International Journal of Geriatric Psychiatry 1997; 12: 404-409.
11. Luchins D, Hanrahan P, Murphy K. Criteria for enrolling dementia patients in hospice. Journal of the American Geriatrics Society 1997; 45: 1054-1059.
12. Aminoff BZ, Adunsky A. Dying dementia patients: too much suffering, too little palliation. American Journal of Alzheimer's Disease and Other Dementias 2004; 19: 243-247.
13. Sampson EL, Ritchie CW, Lai R, Raven PW, Blanchard MR. A systematic review of the scientific evidence for the efficacy of a palliative care approach in advanced dementia. International Psychogeriatrics 2005; 17: 31-40.
14. Webb B. Using focus groups as a research method: A personal experience. Journal of Nursing Management 2002; 10: 27-35.
15. Franks PJ, Salisbury C, Bosanquet N et al. The level of need for palliative care: A systematic review of the literature. Palliative Medicine 2000; 14: 93-104.
16. Evans BD. Improving palliative care in the nursing home: From a dementia perspective. Journal of Hospice and Palliative Nursing 2002; 4: 91-102.
17. Shuster JL Jr. Palliative care for advanced dementia. Clinics in Geriatric Medicine 2000; 16: 373-386.
18. Grbich C, Parish P, Glaetzer K, Hegarty M, Hammond L, McHugh A. Communication and decision making for patients with end stage disease in an acute care setting. Contemporary Nurse 2006; 23: 21-30.
19. Phillips C. Communication: The first tool in risk management for long-term care. Journal of the American Medical Directors Association 2004; 5: 123-126.
20. Hancock K, Chang E, Johnson A et al. Palliative care for people with advance dementia: The need for a collaborative evidence-based approach. Alzheimers's Care Quarterly 2006; 7: 49-57.
21. Chang E, Hancock K, Harrison K et al. Palliative care for end-stage dementia: A discussion of the implications for education of health professionals. Nurse Education Today 2005; 25: 326-332.