Barriers to providing end-of-life care for people with dementia: A whole-system qualitative study

BMJ Supportive and Palliative Care

Volumn 2, Issue 2, 2012, Pages 103-107

  Dening, Karen Harrison ^a   Greenish, Wendy ^b   Jones, Louise ^c   Mandal, Uttara ^d   Sampson, Elizabeth L ^c  

^a DEMENTIA UK   (United Kingdom)

^b Marie Curie Cancer Care   (United Kingdom)

^c UNIVERSITY COLLEGE LONDON   (United Kingdom)

^d CENTRAL AND NORTH WEST LONDON NHS FOUNDATION TRUST   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

CAREGIVER; CLINICAL COMPETENCE; DEMENTIA; FAMILY; HEALTH CARE PERSONNEL; HOSPITALIZATION; HUMAN; INFORMATION PROCESSING; NURSING; PATIENT CARE; QUALITATIVE RESEARCH; STANDARDS; TERMINAL CARE;

ADVANCE CARE PLANNING; CAREGIVERS; CLINICAL COMPETENCE; DEMENTIA; FAMILY; FOCUS GROUPS; HEALTH PERSONNEL; HOSPITALIZATION; HUMANS; QUALITATIVE RESEARCH; TERMINAL CARE;

EID: 84873114870     PISSN: 2045435X     EISSN: 20454368     Source Type: Journal    
DOI: 10.1136/bmjspcare-2011-000178     Document Type: Article

References (15)

1. Goodman C, Evans C, Wilcock J, et al. End of life care for community dwelling older people with dementia: an integrated review. Int J Geriatr Psychiatry 2010; 25: 329-337.
2. Kiely DK, Prigerson H, Mitchell SL. Health care proxy grief symptoms before the death of nursing home residents with advanced dementia. Am J Geriatr Psychiatry 2008; 16: 664-673.
3. Hirschman KB, Kapo JM, Karlawish JH. Why doesn't a family member of a person with advanced dementia use a substituted judgment when making a decision for that person? Am J Geriatr Psychiatry 2006; 14: 659-667.
4. Sampson EL, Burns A, Richards M. Improving end-of-life care for people with dementia. Br J Psychiatry 2011; 199: 357-359.
5. Annett H, Rifkin SB. Guidelines for Rapid Participatory Appraisals to Assess Community Health Needs: A Focus on Health Improvements for Low-income Urban and Rural Areas. Geneva: World Health Organisation 1995.
6. Murray SA, Graham LJ. Practice based health needs assessment: use of four methods in a small neighbourhood. BMJ 1995; 310: 1443-1448.
7. Addicott R, Dewar S. Improving Choice at End of Life. London: King's Fund 2008.
8. Department of Health. National Service Framework for Older People. London: Department of Health 2001.
9. Banerjee S, Owen J. Living well with dementia: A National Dementia Strategy. London: Department of Health 2009.
10. Department of Health. End of Life Care Strategy: Promoting High Quality Care for all Adults at the End of Life. London: Department of Health, 2008.
11. Sampson EL, Blanchard MR, Jones L, et al. Dementia in the acute hospital: prospective cohort study of prevalence and mortality. Br J Psychiatry 2009; 195: 61-66.
12. Scott S, Pace V. The fi rst 50 patients: a brief report on the initial fi ndings from the Palliative Care in Dementia Project. Dementia 2009; 8: 435-41.
13. Zarit SH, Reever KE, Bach-Peterson J. Relatives of the impaired elderly: correlates of feelings of burden. Gerontologist 1980; 20: 649-655.
14. Payne S, Radbruch L. White Paper on standards and norms for hospice and palliative care in Europe: part 1 Recommendations from the European Association for Palliative Care. European Journal of Palliative Care 2009; 16(6): 278-89.
15. van der Steen JT. Dying with dementia: what we know after more than a decade of research. J Alzheimers Dis 2010; 22: 37-55.