The ambiguous dying syndrome

Health and Social Work

Volumn 29, Issue 1, 2004, Pages 55-65

  Bern Klug, Mercedes ^a,b  

^a UNIVERSITY OF KANSAS MEDICAL CENTER   (United States)

^b UNIVERSITY OF KANSAS   (United States)

Author keywords

Chronic illness; Dying; End of life; Palliative care

Indexed keywords

ATTITUDE TO DEATH; AWARENESS; CHRONIC DISEASE; DEATH AND EUTHANASIA; FAMILY RELATION; HUMAN; METHODOLOGY; ORGANIZATION AND MANAGEMENT; PALLIATIVE THERAPY; PROBABILITY; PSYCHOLOGICAL ASPECT; REVIEW; SOCIAL WORK; TERMINALLY ILL PATIENT; TIME; UNITED STATES;

DEATH AND EUTHANASIA;

ATTITUDE TO DEATH; AWARENESS; CHRONIC DISEASE; FAMILY RELATIONS; HUMANS; PALLIATIVE CARE; PROBABILITY; SOCIAL WORK; TERMINALLY ILL; TIME FACTORS; UNITED STATES;

EID: 2342642275     PISSN: 03607283     EISSN: None     Source Type: Journal    
DOI: 10.1093/hsw/29.1.55     Document Type: Review

References (40)

1. Ariès, P. (1974). Western attitudes toward death: From the middle ages to the present. Baltimore: Johns Hopkins Press.
2. Bartholome, W. G. (1999). Meditations: Lessons from the angel of death. Bioethics Forum, 16(Special Issue).
3. Bern-Klug, M., Gessert, C., & Forbes, S. (2001). The need to revise assumptions about the end of life at the beginning of the 21st century: Implications for social work practice. Health & Social Work, 26, 38-48.
4. Braun, K. L., Pietsch, J. H., & Blanchette, P. L. (2000). Cultural issues in end-of-life decision making. Thousand Oaks, CA: Sage Publications.
5. Christakis, N. A. (1999). Death foretold: Prophecy and prognosis in medical care. Chicago: University of Chicago Press.
6. Christakis, N. A., & Escarce, J. J. (1996). Survival of Medicare patients after enrollment in hospice programs. New England Journal of Medicine, 335, 172-178.
7. Feifel, H. (1959). Meaning of death. New York: McGraw-Hill.
8. Field, M. J., & Cassel, C. K. (Eds.). (1997). Approaching death: Improving care at the end of life. Institute of Medicine, Committee on Care at the End of Life. Washington, DC: National Academy Press.
9. Fins, J. J. (1999, Spring). Death and dying in the 1990s: Intimations of reality and immortality. Generations, pp. 81-86.
10. Finucane, T. (1999). How gravely ill becomes dying: A key to end-of-life care. JAMA, 282, 1670-1672.
11. Fox, E., Landrum-McNiff, K., Zhong, Z., Dawson, N. V., Wu, A. W., & Lynn, J. (1999). Evaluation of prognostic criteria for determining hospice eligibility in patients with advanced lung, heart or liver disease. JAMA, 282, 1638-1645.
12. Glaser, B. G., & Strauss, A. L. (1965). Awareness of dying. Chicago: Aldine.
13. Goodlin, S. J., Zhong, Z., Lynn, J., Teno, J. M., Fago, J. P., Desbiens, N., Connors, A. F., Wenger, N. S., & Phillips, R. S. ( 1999). Factors associated with use of cardiopulmonary resuscitation in seriously ill hospitalized patients. JAMA, 282, 2333-2339.
14. Gorer, G. (1955). The pornography of death. In G. Gorer (Ed.), Death, grief, and mourning (pp. 192-201). Garden City, NY: Doubleday.
15. Hanson, L. C., Danis, M., & Garrett, J. (1997). What is wrong with end-of-life care? Opinions of bereaved family members. Journal of the American Geriatrics Society, 45, 1339-1344.
16. Irish, D. P., Lundquist, K. F., & Nelson, V. J. (Eds). (1993). Ethnic variations in dying, death and grief: Diversity in universality. Bristol, PA: Taylor & Francis.
17. Kaplowitz, S. A., Osuch, J. R., Safron, D., & Campo, S. (1999). Physician communication with seriously ill cancer patients: Results of a survey of physicians. In B. DeVries (Ed.), End of life issues: Interdisciplinary and multidimensional perpsectives (pp. 205-227). New York: Springer.
18. Kastenbaum, R., & Kastenbaum, B. (1989). Encyclopedia of death. New York: Avon Books.
19. Kaufman, S. R (1998). Intensive care, old age, and the problem of death in America. Gerontologist, 38, 715-725.
20. Kübler-Ross, E. (1969). On death and dying. New York: Macmillan.
21. Lewin, T. (2001, December 17). Conflicting breast cancer studies creating unsettling uncertainties. New York Times, pp. A1, A13.
22. Lynn, J., Arkes, H. R., Stevens, M., Cohn, F., Koenig, B., Fox, E., Dawson, N. V., Phillips, R. S., Hamel, M. B., & Tserat, J. (2000). Rethinking fundamental assumptions: SUPPORT's implications for future reform. Journal of the American Geriatrics Society, 48(Suppl.), S214-S221.
23. Lynn, J., Harrell, F. E., Cohn, F., Hamel, M. B., Dawson, N., & Wu, A. W. (1996). Defining 'terminally ill' insights from SUPPORT. Duquesne Law Review, 35(285), 311-336.
24. McCue, J. D. (1995). The naturalness of dying. JAMA, 273, 1039-1043.
25. Murphy, S. L. (2000). Deaths: Final data for 1998. National Vital Statistics Report, 48(11). Hyattsville, MD: National Center for Health Statistics.
26. National Hospice and Palliative Care Organization. (2001). Facts and figures on hospice care in America. Retrieved April 1, 2001, from http://www.nhpco.org
27. Neufeldt, V., & Guralnik, D. B. (Eds.). (1988). Webster's new world dictionary of American English: Third college edition. New York: Simon & Schuster.
28. Nuland, S. (1995). How we die. New York: Vintage Books.
29. Parsons, T. (1951). The social system. New York: Free Press.
30. Prigerson, H. G. (1991). Determinants of hospice utilization among terminally ill geriatric patients. Home Health Care Services Quarterly, 12, 81-112.
31. Pritchard, R. S, Fisher, E. S., Teno, J. M., Sharp, S. M., Reding, D. J., Knaus, W. A., Wennberg, J. E., & Lynn, J. (1998). Influence of patient preferences and local health system characteristics on the place of death. Journal of the American Geriatrics Society, 46, 1242-1250.
32. Sudnow, D. (1967). Passing on: The social organisation of dying. Englewood Cliffs, NJ: Prentice Hall.
33. Teno, J. M., Stevens., M., Spernak, S., & Lynn, J. (1998). Role of written advanced directives in decision making: Insights from qualitative & quantitive data. Journal of General Internal Medicine, 13, 439-446.
34. Tilden, V. P., Tolle, S. W., Nelson, C. A., Thompson, M., & Eggman, S. C. (1999). Family decision making in foregoing life-extending treatments. Journal of Family Nursing, 5, 426-442.
35. Van Winkle, N. W. (2000). End-of-life decision making in American Indian and Alaska Native cultures. In K. Braun, J. H. Pietsch, & P. L. Blanchette (Eds.), Cultural issues in end-of-life decision making (pp. 127-144). Thousand Oaks, CA: Sage Publications.
36. Veatch, R. M. (1973). The medical model its nature & problems. Hastings Center Studies, 1(3), 59-76.
37. Weick, A. (1983). Issues in overturning a medical model of social work practice. Social Work, 28, 467-471.
38. Welk, T. (1996, January/February). Ministering to those in the dying role. Healing Ministry, pp. 6-8.
39. White, K. M., & Preston, S. H. (1996). How many Americans are alive because of 20th century improvements in mortality? Population and Development Review, 22, 415-429.
40. Zastrow, C. (1981). The practice of social work. Homewood, Il: Dorsey Press.